THE BASE IS BEHCET'S?

I have recently discovered that half my symptoms, one of two very long lists, are down to something called Behcet's Disease.

My daughter was diagnosed with this and she realised upon hearing it that I had it too, as I had been pressing her to get a diagnosis and had to keep on at this because her GP s, just like more than six I spoke to, fobbed her off. She was even told she would be referred to a Fibromyalgia specialist and that never arrived, or to be more precise has not from being told she was referred in October or maybe November 2017 to date. Today's date is the 12^th May 2018.

I had never previously heard of the condition before but when I read the list of things it causes all I could think was “Oh .. my .. GOD?!”

I had only very recently discovered that these same useless and so called health professionals had also not informed me of something else.

After refusing to admit that one condition can cause numerous symptoms, stating it was most assuredly impossible, they then tried very hard not to confirm my self-diagnosis of Fibromyalgia. They were unsuccessful.

Then when it was time to get serious because I had very high blood pressure which skipped over to a Hypertensive Crisis from Hypertension Stage 2 from time to time they were quick to put that down to the Fibromyalgia they had previously refused to admit to.

Then when I had complained several times about night cramps and severe pains in my thighs most days they put this down to a low magnesium level and told me to buy my vitamin pills form an expensive store .. Holland & Barrett. Oddly they just told my daughter to do the same a few days back! Must have some contract with Holland & Barrett?

However they failed to tell me that low magnesium screws up many other things some of which I was already suffering from, like anxiety attacks for instance! In fact there was a long list of symptoms I had been experiencing that looked like they were down to this .. like my heart palpitations and chest issues?! Yeah I had even been fucking sent all over the place for stupid tests that found nothing and I stumble across the fact that it could be down to something they knew damn well I already had. The low magnesium .. only .. this time it looked like the supplements were failing to work in these instances?

I text my daughter because she has many of my symptoms, along with cervical cancer, who called me up and she said “Dad, your joking right?!” turns out she had just had results from a blood test and they told her that her magnesium was low and should buy pills from Holland & Barrett?! This is a GP Surgery 250 miles away and yet just like mine in London she gets told to go to Holland & Barrett?! Does this not strike you as a bit odd?

Now all these other pills and treatments they are going to refuse? What do you think the odds are that everyone will now get told to go to Holland & Barrett?!

Two days after this my head is still spinning from the realisation I have been deliberately fucked about and lied to yet again, lying by omission, when I get a text from my daughter pleading for me to call her and that she has been diagnosed with Behcet's Disease. Never heard of it.

I look up this Behcet's Disease and when I see the symptom list I cannot believe what I am seeing on the webpage before me. I click on half a dozen webpages to cross-reference just as I always do as I am always the one to tell others not to believe everything you read on the Internet. I am a stickler for facts and not one looking for what I want to hear. I know a lot of people that like hearing what they want to hear .. I really do! I am so .. not like that. I want to know the facts! Guess that is the scientist and analytical mind in me. There on these webpages is a list that covers almost the other half of the things I experience. More or less almost everything that cannot be linked to the low magnesium is in this list.

All that is .. except for the right knee issue which was spotted by Guy's Hospital as a separate and physical issue that then disappeared from my medical records .. though the knee issue is still there. Or at least it is on letters I have had from previous GPs I have had. Would be posted on here too, way back at some point. It even has my right eye irritation and I think it said something about back pain too? Though I was told by a chiropractor in Waltham Abbey that this was collapsed discs.

So I was talking to my daughter who now finally realises the truth I have been trying to get through to her and one that several close friends of hers believes only too well now too. That the NHS is corrupt, lies through its teeth and lies about patients health to save themselves and the government along with local councils and the DWP money.

If this was not bad enough they are now infuriated about the other .. aspects of this shocking truth .. they all get paid. They all get paid tens of thousands to hundreds of thousands each year so that the government can save a few thousand a year in payouts to stop people and families from starving to death .. while standing behind you with a proverbial whip to force you to go to work.

That would be bad enough in of itself but we are talking about sick and disabled people now and many with children too!

So tonight my daughter asked me ..

“Dad? You gave had these symptoms for years. I cannot believe that they did not diagnose you with this years ago?!”

I still have some research to do but I automatically thought that like everything else .. this must be a result of the Fibromyalgia and so intended to look for a link. Only I did not need to as only the second webpage I pulled up mentions Fibromyalgia on it. As I mostly skim read things anyway there is a chance that the first page mentioned Fibromyalgia too?

I did a little more research tonight and I found another webpage that seems to suggest that things might be the other way around? That Fibromyalgia might stem from Behcet's Disease?

Let us review ..

• Bechet's Disease
  • Skin issues going back twenty six years
  • Joints maybe as much as thirty years - ankles
  • Hearing issues twenty years plus
  • Eye Issue around ten years
  • Mouth Issues over fifteen years

• Fibromyalgia
  • Main one was feet .. fourteen years ago – ankles, joints, were way before this
  • Asked about for 13 years before discovering Fibromyalgia
  • Refused to admit I had it
  • Within five minutes of being diagnosed, figuratively speaking, I had high blood pressure and they were THEN quick to blame it on Fibromyalgia and once again refuse to refer me .. messing me about with Ramipril and Amlodopine and it is still high to this day

• Low Magnesium
  • Diagnosed around 2014-15
  • Told to buy Vit ABC+ by Dr Andrew Theivendra of The Town Surgery in Enfield
  • No mention of affects on anxiety, heart palpitations or other things
    • Despite being dragged kicking and screaming, I did not want to go, to A&E several times

Ugh!

I did think about putting down a list of all symptoms along with the rough time each one started along with the longevity but it was .. daunting .. and overwhelming and would take a long time!

There have been in excess of 270 symptoms ranging from one offs, ones that occurred years ago but not lately, ones that appear from time to time, those more frequent and those that are more or less permanent.

I also struggled to think of what this would achieve. It would not help others that might be in this predicament, though by all accounts Behcet's Disease is pretty rare in itself. To have this along with Fibromyalgia, Hypertension Stage 2 and low magnesium must be very, very rare.

Let us not forget the damaged right knee either.

I had previously understood, from research, that all of the symptoms were from the fact that Fibromyalgia causes a lack of restorative sleep.

Restorative sleep is a deep sleep whereby the brain does all its clearing or say .. memory and all its detoxification and repairs, like muscles. Since discovering Fibromyalgia four years ago that is how I have understood it.

However .. after reading about Behcet's Disease and all the things it causes, low magnesium levels and all the things that causes I am starting to wonder if all this stuff with Firbomyalgia and non-restorative sleep was just guess work?!

I can only ever do research and cross-reference when it is not my field or do not have the necessary equipment to reach a factual conclusion.

I am in a place that is not that good and after all this while I had thought .. no, I had hoped that before now enough things would have been exposed to stop all this crap. But apparently not and so I have kept on going.

Except I not only find myself in a place now where I cannot nor do I want to continue but I find my daughter is also in the same place as me and I find it staggering.

Discovering what she has been through both in the distant and recent past, present and the future will shock the most hardened person to their core. All but the most amoral of people, that is.

She is not homeless .. but they are working on that, despite not being in a suitable home anyway. I can tell you that I KNEW she had my Fibromyalgia as she has most of my symptoms and a few I do not have. Fobbed off over that. Had two children diagnosed with Autism but then had an about face over that, with a letter that proves they decided the outcome before even meeting the children. Also has blood clots, or a blood clot. Cervical cancer, you had better believe it.

Domestic violence against her where the abuser was going to get..

• Ten years and then Deported
  • Now not even a year out soon
  • Social Services backing abusers rights to access to his children
    • Threatened to throw one out of a window
  • Will get housed
  • Not being deported
  • Phoned and harrassed my daughter from prison
  • Was on the front cover of an edition of the Liverpool Echo

Yeah .. you had better believe it.

She got no help.

I got stabbed in the back over my health repeatedly.

I was then going to set up a business, promised help and then stabbed in the back over that and all help retracted. Just a couple months before finding out about my daughter's domestic violence.

I then moved to help my daughter without sorting out the wounds in my own back, risking my own health which then later suffered because ..

Help I was expecting both of us to get because my four grandchildren, Autism of two of them, daughter's FMS, blood clots, domestic violence and cervical cancer and my own FMS, high blood pressure and heart issues .. NOTHING!

I then had a breakdown which they failed to realise was part of a chemical unbalance I had told them for fucking years I had, had! Compounded by the lack of help.

Yet when it comes to everyone else .. we seem to live in a leftist society? Not from our point of view we do not! Just run by people that like it to appear that they are left wing but they are most certainly not. Especially when it comes to money and support they are not.

EDIT: It is funny as I have just remembered something. The one thing about Behcet's Disease I read, that I did not experience or though I had not, are these ulcers you get. I could not recall experiencing anything like this so I did not mention it .. until ..

Just the other day I was talking about insect bites and there was this one time in my house in Enfield when I felt this sudden pain get stronger and stronger and stronger. At first I thought I was being bitten by a Mosquito but after it reached the point I was leaping off my sofa I thought it must be a Horsefly? Only there was no Horsefly to be found in the house and it had never happened before or since .. as far as I can recall.

I ended up with a small crater in my lower leg and some swelling.

EDIT 2: It just gets better as just like low magnesium this Bechet's Disease has its own way of killing you ..

Behçet’s disease (BD) is a rare but severely debilitating vasculitis, which typically manifests as mucocutaneous disease with orogenital ulcers and skin lesions;¹ however, involvement of the musculoskeletal system, eye, nervous system, gastrointestinal tract, vascular beds, urogenital tract and cardio-pulmonary system can lead to significant morbidity and mortality. - http://www.clinmed.rcpjournal.org/content/17/1/71.full

https://fibromyalgianewstoday.com/2017/05/10/fibromyalgia-more-common-in-people-with-certain-diseases-compared-to-general-population/