FIRST ASSAULT ON THE GREY

Right then...

I was going to do this one on the 1st January 2014 like the last one but thought of what the hell, just do it now and state it as the 1st January. About right what with holidays and all and only becomes important by about April anyway, lol.

As done of you may have guessed I am reapplying for Disability Living Alliance now that I have acquired another mountain of evidence and discovered my condition.

This time I am going to apply much more pressure than I did previously and this will spread out to affect all those that were previously involved. Very hopefully those involved in the fiascoes that were the tribunal?! If not I will just have to get more creative, lol.

Now some of you know and I have mentioned it several times that I was waiting for Personal Independent Payments to be introduced so that the DWP and this that run it and commit crimes against humanity leave themselves without a grey area.

I stated before that the idiots really jet themselves wide open with hi grey area add you cannot lure and chest with no grey area. In other words you cannot claim that someone WITH a disability can be classed as NOT having one. Simple!

But I went on the DWP's website and look and behold I have to claim for the NEW PIPs or Personal Independent Payments. Make note if the intentional removal of the word disability completely which is phase two of their plan.

Now a great deal has happened and I do not want to spend the best part of a year playing games with these people. So I have made my discoveries and evidence among with big and YouTube account abundantly clear to them.

As will I have the consequences if they insist on plating the same game they did peevish but one. I say but one because I claimed last year when I thought I was suffering with the Charcot Mature Tooth Disease. I found out it was not that and the DWP had ignored my claim anyway so I just left it. This was largely because my search fur a correct diagnosis continued on and I had no idea how long it was going to take. I also had no idea just how close I was to it with Charcot Marie Tooth but it turned out the NHS did!

So I thought that all those that have had injustices against them by way of public office but mainly the DWP and Atos would get a good laugh and sense of hope by now reading the email I entry to the Disability and Carers Department of the DWP.

OR MAYBE THE DEPARTMENT IS CALLED LEMONS ADD THEY DISH OUT PIPS?!  LMAO!

EMAIL...

Dear Sirs

NR 746864 D

Do you remember me? I would be disappointed if you didn't as it would mean I have not done my job very well

I can assure you that your bosses all the way up to Iain Duncan Smith know if me even if they do not my name.

I have been... busy since I put in a claim last year that was ignored by you. It did not matter as it just goes against you in the end.

You might know that the government and Iain Duncan Smith in particular has been hammered by the Labour Party and in the media over their very bad and incompetently implemented idea of a overhaul of the welfare system.

Well I was behind that and I still have the email from the member of parliaments that will remain nameless requesting if they could send my data to the media and use it in the House of Commons.

When I play I play to win.

I am afraid that is not even the worst of it either and I have found it highly amusing and surprising that those that receive my emails and read them first have no idea that when the proverbial hits the fan from Iain Duncan Smith ask the way down to you the blame will be passed on.

Think that social worker that was fired over the death of Baby Peter who I knew took the blame for a certain MP that meddled.

I am afraid I knew a lot more than I let on and still had to prove several things to knit everything nearly together.

One of these was the NHS lying and falsifying things so that the DWP, Local Councils and varies others could save money. Oh dear.

In the time since you wrongly turned me down, had a GP in your pocket on a tribunal hearing and lied skiing with Atos regarding my health and assessments I have managed a few things...

1 Recorded many health professionals and specialists deliberately going it if their way and lying to NOT DIAGNOSE ME!!

2 Recorded a specialist while I pulled him to account when he lured about the results of an ultrasound test!! He then dictated a new letter with the truth in it. However twats l like that in expensive suits or in job titles that cause delusions of grandeur you need to be sure if one thing... YOU ARE THE MOST INTELLIGENT PERSON ON THE ROOM... OR CORRESPONDENCE. He then sent of the falsified letter.

3 I had an argument about the letter with my GP at the time who had precisely lied and handed me the Tracy version of my medical records that was falsified very badly. He then stated to suggest I needed psychiatric help...

4 Funny how they are now which to diagnose that now you cannot get DLA for it?!

5 What he did not know about was that I had recorded him the whole time I was registered with him as he lied repeatedly. However in the demanding of me seeing psychiatric help I then declared that I had the recording of a specialist at the hospital lying and admitting it. Oh dear I had not even let on to the specialist that lured that I did that, after all I would not get as much as I had had I gone round blabbing about what I had did even in arguments. It gets worse...

6 For the first time ever I was given a drug that actually worked and about the same time I stumbled upon what it was that everyone had been trying very hard to keep from me?! How bizarre is that? It gets better...

7 I had not wanted the drug prescribed called Amitriptyline and instead wanted one called Pregabalin because I was previously on Gabapentin which was working until it made me extremely ill. I guessed at the time that Pregabalin was expensive due to the refusal.

8 He lured to my face starting that he was going to sort me out as I had been offered a pain management course as the one I was on and had attended for times was actually a sham and bit a pain  management course at all. It was a recruitment drive to get people in pain to work for free for the NHS.

Unfortunately for them and the NHS I had been recording each and every one and has posted them online and made them VERY PUBLIC.

9 THE VERY NEXT DAY AFTER THAT APPOINTMENT I RECEIVED A LETTER BY POST, POSTED BEFORE MY APPOINTMENT THE DAY BEFORE, STARTING I WAS BEING KICKED OFF THE PRACTICE FOR VIOLENT CONDUCT?!

10 I gathered that everyone now knew that I had been recording them and I had also raised an official complaint with NHS England and the GMC. In fact the GMC, who I also knew to be corrupt and would do nothing, who also one about my presence and huge following on the Internet told the GP to get rid of me based on violent conduct because I told them in a letter that if he spoke to me the way he did ever again I would want to break his jaw. Because he was rude, arrogant and was lying through his teeth while he was at it and i told him so. They broke a confidentiality agreement doing this and I managed to prove that they did it by getting them to admit it in a letter, oh deary me!

11 I had also managed to keep secret what they were bloody well scared about... that they KNEW that with my self diagnostic of Charcot Marie Tooth Disease, which coincidentally I put in a DLA claim for last year that was ignored, that I was one step away from finding out EXACTLY what was wrong with me. I then was prescribed two drugs in a row both of which worked?! Funny that.

12 Oddly as I was completely dumbfounded that this Amitriptyline worked I was researching the condition that I was now becoming more convinced I had when I read in Black's Medical Dictionary that there was only two drugs currently known, at publication, that worked on the condition I thought I now had! I will give you one single guess what one of those drugs listed were?! Now think now... how many drugs are there in existence?! The drug that worked was the drug I had been prescribed of Amitriptyline!

13 When I stated that Charcot Marie Tooth Disease was a possibility this was rather surprisingly entertained. I was sent to a Neurologist who I know for a fact recognised me somehow desire never having met before?! Strange that. I can prove that too! I was sent to The Royal Free Hospital for Nerve Conduction Studies and an Electromyography test. These look for Neurological problems but not all! How do I know? Because I asked him and you can guess what I was doing at the time?!

14 The guy doing the rest told me that my neurologist was the best in the country, YEAH RIGHT, and that he would find out what neurological problem I had. He gave me two copies of the result and one for the neurologist. Except the neurologist who somehow miraculously recognised me discharged me by letter stating I did not have a neurological problem?!

But I actually already had one and was not tested for all neurological problems with those two tests!! Oh dear!

I am now on my fourth GP in my catchment area. I had never done this before. I have evidence each one was used to chest and our to me. The first being young and native and easily fooled, the second became disgusted at my treatment by the NHS and you and closed her practice effective immediately and ran off with my irrigate X-Rays. X-Rays, I might add, that were looked at at Chase Farm Hospital and I was first told the same thing the Chiropractor that did them had said, that I have two problems with my back and that the last MRI performed by the NHS was performed on the wing section of my back. They were shocked that I knew what the previous MRI was on but an Orthopaedic Surgeon who also wrongly assumed he was the most intelligent man in the room was tricked into telling me... by me of course. I simply had to ask him one thing..."Can we confirm that the MRI was performed on the correct part of my back? Did you MRI the lumber region?" and with a EU smile he says yes with a cocky look on his face...I then said "Well Houston, we have a problem as the address that should have been scanned was the top half of my back!" and on hearing this and that I had tricked him his face dropped to the floor like it had been pumped full of lead!

Oddly when I mentioned what I now knew I had and shed for a referral to a specialist I was told 'good luck, they are rare and hard to find' so imagine my surprise that one of the most famous hospitals in the lands has a HUGE department catering for it?! I had a great deal of emails thinking it very odd I was told that they were rare and hard to find and had several email me from around the country trekking me that it was right here in London?!

Note do you think those that out all these dastardly and evil, child and inhumane plans in place will willingly accept responsibility? Or do you think the blame game will continue down the hierarchy where no one knows where it will stop? Like a wheel of fortune?!

What I have provided here is only a tiny fraction of a section I have been working on for the last year. In fact all that I have done and acquired in the last year is s tiny fraction of a much bigger and biker plan.

All the time the I have corresponded with public offices, public services, the Police, NHS, DWP, all Ombudsman and everyone else I have been publishing it all online for everyone to see. All of it which means letters, emails, recorded meeting and appointments and everything else.

I have only been doing this fur just over a year and yet I have gone from just a few dozen visitors after the first month to 100,000 visitors thereabouts today. Indeed it now rises by over 2,000 per week and this itself rises ever higher. Ergo in a months time it may well be 2,500 per week. A month later 3,000 pier week. A month later 5,000 per week and so on and so forth?

I could be wing of course! But the only thing I would be wrong on is that it could go viral and rise at a faster rate than the numbers in my spreadsheet suggest?! There could be one single diktat thing that the British public are interested in as regards proof that they are being lied to and kicked in their private parts?! Like what I will now request if you below as I have made it abundantly clear of my intentions. That I want people to go to jail for both treason in some cases and crimes against the British public in others.

A few weeks ago I contracted all Ombudsman and governing bodies under the Freedom of Information Act and requested much information. Primarily regarding how much it costs to run each one.

Now I will separately state that this was my plan to all this all along because there was one thing that I knew from the beginning before I rated all this...

THAT EACH AND EVERY OMBUDSMAN WOULD DO NOTHING AT ALL!

BECAUSE THERE IS A HUGE AMOUNT IF FRAUD GOING ON OF THE TAXPAYERS MONEY THAT DWARFS THAT IF THE WELFARE STATE ON PEOPLE THAT ARE NOT EVEN SUCH AND LIKELY RELATIVES OF MPs or someone else in public positions.

The General Medical Council have reacted target amusingly to this request and sending me emails of excuses which I am not interested in.

I will compile a spreadsheet of this showing the totals, all wages as well as cost of buildings, energy bills, stationary, expenses and the like. Then I start contacting OTHER public offices for a separate spreadsheet.

Oh I am afraid this also includes your INDEPENDENT Case Examiners too. Who are nothing of the kind and was easy to door immediately.

Unfortunately all this took a long time. But then it had to as I had to traverse all the avenues and public office are notified for being slow, lazy while wringing about party and conditions even though they stand around all weeks taking about where they are all going for a drink that coming Friday. Oops I knew people that worked in departments like yours, and Local Government too. Yes from day one I knew that I was looking at over a year and likely minimum of 18 months and a maximum of three years.

In the end it was only ever going to go one way we that was the way I designed it to.

For instance I designed it all so that I would be taken to court many times in quick succession during the first half of 2014 and I already have the first two.  Surprisingly one was from a private firm called So Direct who own Littlewoods, Very and Isme Catalogues.

I received a smart phone from them I suspected and then proved was used, faulty and sources from America! I was rather surprised when two years go by and they take me to court after various threats I deliberately ignored. I had count court papers arrive in my doorstep so I contracted the court...

.. now all I did is supply the court with some links to my YouTube account videos, of which there are roughly a thousand, and to certain blog posts on my corruption blog, of which there are likely over 1,500. I also informed the court that the blog and YouTube account provides proof of corruption throughout the land in all public offices and services as well as some private companies too. I then pointed out there was only one left I had yet to prove but this would not take long as I was about to desk with several of them all in a row and was the final piece to my jigsaw...

... The Courts and their associative Judges!!

I pointed out that add they can see this was now all in hand.

I received a letter from the court starting they had contracted Ship Directs debt collectors, who had used the old and boring trick of altering dates on letters to acquire entry orders or liability orders, who then stated they had contracted the debt collectors and Shop Direct asking them to explain themselves within 28 days or it will be dropped.

The Debt Collectors thought they were extremely clever, yawn so boring because everyone thinks the bloody same when they are not, and they wrote to me starting that I had not contacted the court, a lie, and that the deadline had passed, also a lie, and that the city could pass  judgement against me if I did not pay them, also a lie.

I sent the letter to the court and rooted crap out if then and the debt collectors and starred I had published all this on my blog and an feed up that everyone turns a blind eye to councils, DWP, large private firms to break very serious laws and commit grand scale FRAUD ask if which are crimes that carry long prison sentences so that they can acquire minutes from their victims they have no fecking legal right to our do anything for OR have provided that which the customer purchased!! I had five cameras in a row all of which were refurbished and faulty and priced it involving Nikon in the process too!

I received a letter from CapQuest, which reminds me I keep forgetting to contact them, a clue there to my condition and a major factor in my durability that cannot be gotten around, saying they are sorry about my complaints and are launching an internal investigation?!

Year right?! An internal investigation, that fold me with zero confidence! Unless of course they used to be called JBW Group who assaulted me physically and made my disability a great deal worse and was a direct result of your organisation eight cancelling my Disability Living Allowance for years ago. SERIES FRAUD AND ABH which was done on the instructions of a local government?! Uh-oh!!

So now I have revealed about 2% of what I have and that everything is linked together from the NHS to Local Government to you and then everything else.

To prove to the British people and the world of the series crimes against humanity that go on that jobsworths are too Braun dead to realise nor that they will go to jail when the truth gets out.

And the truth will out, I can assure that of that.

Right now I have made it perfectly clear where we all stand and that you are five foot deep in the mire I will now request that which this very long email was designed to do...

... can you send me a Personal Independent Payments form please as I need to make yet another claim for disability living, despite the fact that the word 'disability' is intentionally and wrongly being erased from the DWP and the welfare system.

I mentioned a lot of public offices and a few private companies. If you doubt this it does not bother me, in fact it just week GI to show how over confident but actually incompetent that public offices are. But you may have noted just how many things to do with the government and public office have appeared in the media of late? Well the majority of that is down to me, the four DVDs I sent to the media two years ago as well as the blog and the YouTube account.

Best of all is that everything that I do or apply for now has an absolutely huge following. That ever increasing number will now refuse and then they will tell those that they know if what they have witnessed. If you average that each person knows at least 6 people then currently 600,000 know about me. The team figure might be closer to ten people if you factor in work colleagues, fellow students, school friends and the like.

In the meantime can you post me the forms for PIP please?

Yours

Martin Haswell

Subject: RE: DLA claim
Date: Fri, 3 Aug 2012 10:17:21 +0100
From: WALES-DBC-CUSTOMERSERVICES@DWP.GSI.GOV.UK
To:

I can confirm that your  e-mail has been received.

A SAINT WITH ONLY FAITH

It is always surprising to me how things work out. No matter how much I pay attention to detail and fully intend particular outcomes and how often I achieve it, it always comes as a surprise... every time.

Through this blog and of course including the preceding years immediately before setting it up it was almost always the same.

Right at this very moment is a perfect example unfolding before my eyes and now yours. I have already started covering it done time ago but now it has taken a few twists and turns. Rather surprising turns I might add.

I always had the belief that if you stick to the truth and the facts then it all falls into place. My enemies that have destroyed my own life and those I care about are about to get a very hard as well as lengthy lesson in this. It will be their own fault and will only have themselves to blame.

In all areas, organisations and public offices my story and claims have always been the same. This is most notable with my correspondences with organisations that you trust and would never expect criminal behaviour from to defraud you. After so many tricks and lies you have to accept the truth about what they have become.

For the last year you have read while I have ranted about my health, the NHS and the DWP. In particular the lies, arrogance, tricks, utter rudeness and lack of professionalism with my last GP.

Well I believed that with all of them I would eventually win and thought it would be interesting and maybe even exciting as will add helpful to others to read. I was convinced that the longer it continued the worse it would be for these departments and that eventually people would see the truth, no matter how many Ostriches wanted to bury their heads in the sand.

In fact you would find several correspondences between myself and those that made themselves my enemy that if they take this course of action that they will lose and that the longer they doggedly stick to this the worse it will be when they do lose.

The longer it goes on the amount of lies increases, the more mistakes they make, the more days I get, the more visitors I get and so on and so forth. Things reveal themselves that not even I expect.

Those that paid attention will know I have been given years of cheap crap drugs most of which have not worked. That when I explained an odd behaviour, like getting hot and sweaty more than usual I get spoken to like a child and told everyone seats? Yah THINK!!! I have had literally hundreds of appointments over the years and they have all failed to spot the one single thing wrong with me and now it's entirely possible that every diagnosis I have ever had could be wrong.

Well I was looking for a new GP recently and I found one. I have been to this surgery three times now and in every single visit they have found things. Several things actually and it is not over yet, far from it, it turns out and several things are likely to emerge.

First of all in this period I bumped into a nurse, not the one (or really two) I already know but someone I had not met before. We chatted and I explained what had happened previously and about this blog. But not to much. She then said that she had been forced out of a hospital under very bad circumstances. She did not see eye to eye with other nurses and doctors and for the following reasons...

A new attitude is being forced onto health staff that includes both nurses and doctors that states that patients should not be allowed to talk and explain anything about their symptoms. If they do you are too just ignore them and go ahead and diagnose them. All in a few minutes remember?!

She then explained that she expressed her utter horror at this and kept disagreeing, obviously arguing, with other nurses and doctors in that the only thing you have to go on is what the patient described to you.

I said that this was very true and that they have this added new aversion to performing any tests especially if they cost money. I then explained how it was a big con, no diagnosis means money saved on prescriptions, treatment, all benefits and support from the DWP, Local Councils and anyone else you would otherwise be able to turn to for help.

She simply raised an eyebrow.

A week ago I had to meet another nurse at my surgery and while there she asked me to provide a urine sample and I said I did not think I could and she shed me to try. Lo and behold I did and she said "right you are not drinking enough water" and I did I knew. Then she revealed I had a high protein count in it too. I asked how much I was supposed to have and she said none! Then she did something I had been expecting to be asked for 5 years and has given up expecting, the over forties health check up and I agreed. She also said they would have to send my sample of for testing.

I returned a week later and I was tested for three things and I silted all three to my shock. Cholesterol, glucose and...err something else Lol. So I was ordered to eat fruit and Benecol and come back for a blood test and again after Christmas for another test, but way after Christmas due to the obvious over indulgences with eating, not that I do.

I went back in today to give a blood sample as well as a print out. I said previously that in the appointment with the new GP I starred that I previously thought I had Charcot Marie Tooth disease but this was ruled out but now knew it was Fibromyalgia . I stated I would be extremely grateful if he could refer me to a specialist and he simply replied "good luck"?! When I asked why he said that he started that there were very few people around who specialised in it which was a real surprise to me. After all I found someone in London who specialised in Charcot Marie Tooth so this must surely be body easy?

After the  appointment I emailed a number of Fibromyalgia groups and within twenty four hours two tepid to me. They both said exactly the same thing and said something surprising that only made what my new GP stated as confusing. "Yes there are specialists at Guy's Hospital"?! I looked it up and though there was a Professor Stevens who had sadly died there were still five names on the list in their website!

This is confusing because Guy's Hospital is bloody famous and you think a doctor of years of experience would know this? Unless...

Despite being American the author in that book with quotes I posted up here did state that there are some doctors that believe Fibromyalgia dies not exist. Well once again I am a living  embodiment of the fact that this is simply not true. Not by a long way.

If it turns out that this is the stance my GP takes I can change that within 5 minutes tops. Twenty years ago I start getting odd symptoms start to build up until 13 years ago when they started to become a real problem and I started to pressure the NHS for help. Up until the last year when I first wrongly diagnosed Charcot Marie Tooth which was seemingly ruled out by Electromyograpy and Nerve Conduction Studies. Only those tests were performed I should add, for anyone who is a stickler for attention to detail. Still despite being wrong the diagnosis WAS entertained. A matter of months later and I stumble across the real culprit that fits like a tailor made silk glove woven by angels in heaven.

Hmm yes I stated it was not over? Yes well after the phlebotomy I stood at the reception with my list of names at Guy's and the Doc was standing their as were both receptionists...

"Ahh hello" I said and he greeted me with the same.

"I have something here for you.." I continued.

"I do not want ANYTHING FROM YOU, this is my mud morning coffee break!" He replied

"Oh..." I continued "I can always guarantee that I will run peaceful coffee breaks!" I exclaimed while the two receptionists started laughing. I said I handed over the list explaining what it was, said my goodbyes and have a wry smile and left.

But at 7pm tonight my mobile rang with a number I did not recognise and I answered it was the Doctor. He tried to ring earlier and it seems that the urine test came back and their are some issues. I have to pick up a prescription for some pills, I'm assuming are antibiotics, tomorrow and I have to have my kidneys tested for something or other.

One year with the man who should have made sure he was the smartest man in the room before opening his giant gate and I could not get a single diagnosis for the things that I KNOW I have. One week at this new surgery and kaboom! Three failed tests, more blood tests and other tests to come!

Now remember... the majority of pills, like even ibuprofen, have a bad effect on your kidneys. Many are toxins which have to be filtered out just like anything else, say like alcohol. Eventually you will knacker them out and how about this for irony? I was watching the end part of the third film, The Girl Who Kicked The Hornets Nest, in the trilogy and an old secret service guy needed kidney dialysis every two days to stay alive. When I restarted the film he was in hospital about to be arrested!

Now THAT is irony!

Now it only remains to be seen, listen to me with the only, what the results of the cholesterol, glucose, blood and kidney tests are. They did seem quite concerned about these and was shocked that they rang me at 7pm in the evening to tell me. I stated to the doctor that this was unusually professional of them where he chucked a bit before saying "we do try" and I said well not many do.

One had to wonder if that irony well be outplayed by the fact that anything that had been done to my kidneys is down to the crap and wrong drugs I have been given over the years. Also of interest would be any legal implications this may have upon the NHS in time. My guess would be that there will be some series implications. Like the cholesterol test, with me not eating take-away foods or smoking any longer, I also do not drink alcohol!

I have a sneaky suspicion that the NHS are going to start putting their hands together and praying that I am lying about many things but now that I do still smoke and drink like a fish?!

Oh dear.

Lmao!

In all this time and in all I have attempted to do I have relied on but one single thing...

Faith in the truth.

FIBRO FOG LEADS ME TO RLS

Well what do you know?!

After reading the long list of symptoms for Fibromyalgia and discovering the associated memory problems with Fibro Fog I decided to look it up. The latter not the former.

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-and-fatigue

I found this page and in the list of symptoms is another one of my complaints I have also had a LONG TIME!

Restless Legs Syndrome! Oddly now that I typed it my usually bad memory is telling me that I have linked this RLS up previously with a different condition. This is awfully funny, good job I can see the funny side of things, as I was told by GP after GP that no one knew anything about it or what causes it and I myself discovered what irritates mine and that is CAFFEINE! I can still get mild RLS but if I drink too much caffeine late in the day my night time would be far more miserable than it normally is, well some of the time it is.

Ahh now I remember it was linked to Charcot Marie Tooth Disease and for me it was the cherry on the Bakewell Tart and why I was so convinced I had found the condition I was afflicted with.

You see each time I made a mistake it was based on everything I had ever been told by so called health professionals within the NHS!

Because no one could figure it out it seems highly probable that it was something unusual and rare.

Because little is known about...hmm... RLS and CMT was a rare condition I had thought that must be it. The 'hmm' was to remind me to type this sentence as another thing that has been driving me crazy is that my typing has been very progressively been getting worse and it has driven me mad because I try doing things at the speeds I always have. But every now and then I make a series if mistakes and almost seems as if I have forgotten where the KEYS are for certain letters on my keyboard every now and then?!

But I have been around computers since my first Commodore VIC-20 which must be over 30 years ago now?

It should also be noted, for anyone that reads this who has not picked up on it, is that I have been given a totally different drug to that I had, or that I wanted. It just so happens that they hit on one of the only two drugs that WORK with Fibromyalgia?! It also transpires that this was done at a time a couple of months AFTER I had revealed I had been recording hospital visits?!

Now maybe it is just me but Fibromyalgia is NOT a rare condition and even I was familiar with the term and I even told my brother's first neighbour I was familiar with the name Fibromyalgia when she explained she suffered from it. Now had it turned out that I suffered with Charcot Marie Tooth then it would have explained away some of the NHS mistakes with just being naive but there still would have been the lies among all that.

But now and after 13 years I have let the cat out of the bag so to speak and the VERY FIRST appointment I have AFTER this I just so happen to have been given one of the two drugs that work on my conditions. Only the affects seem to come and go unfortunately but I cannot ignore those few times when my felt had never felt more normal than they had for over ten years!

THE THIRD CONDITION

Oh and on my travels I see something, YET AGAIN, that seems to describe my overall condition.

Only this time it seems to list other little things that I experience I would NEVER have linked to my physical pains.

1) Sensitivity to light and I hate being without sunglasses even in the winter months and currently have three sets.

2) Sensitivity to smells which had increased a lot in the last year and just today I thought I could smell burning and kept sniffing everything.

3) Something to do with taste which is odd because Doner Kebabs stated rafting gross about a year ago and not eaten one since, lol.

4) Read one sufferer referring to bolts of pain in their feet which I have been getting around a year or so now.

OK so that last one could have been spotted as a link. But the others I would never have guessed in a million years! But then the constant insistence of Plantar fasciitis along with my conditions not possibly being linked and dealing with things one at a time and...Oh I have forgotten the other thing the NHS have done! Well there were a great deal of things to remember, lol.

This has happened a few times before when I have been convinced I have discovered my affliction. So I am not going to be placing any bets. But it is now a third condition that can cause all these things despite being told there were not any?! Which is why the previous times I was so sure I had found it. But now I am on my third condition and all those Doctors telling me that a condition that linked everything did not exist now look like it was a knowing lie.

The previous conditions were Charcot Marie Tooth, the Claw Hand thing ooh yeah Dupuytren's Contracture and now it is Fibromyalgia! Oddly I met a woman a couple years back who was a Fibromyalgia sufferer and whose father worked for GCHQ! LOL.

These three things are hardly unheard of and my idiot GP was aware of CMT and Fibromyalgia is a condition that even I have heard of, maybe not quite enough though, lol.

Of course this is provided that the NHS and those lying Doctors have not lied about my previous estimations based on some research?!

https://www.fibrocenter.com/fibromyalgia-pain.aspx

AUDIO: PAIN MANAGEMENT CONFUSION

Today I had another key time and date and for those that have forgotten or not reached that post stating what was approaching its is the following...

PAIN MANAGEMENT!!

How cool this was too!!

I got a phone-call a couple of days ago asking if I would not only come in a few days time but also I do not have to travel to the bloody hospital?!

Added to this that, and you will need to look back in the archives for this one, it is the SAME chap I met a year...no TWO years ago up at the hospital.

Oddly though his head dropped when I replied to his question of the diagnosis and I stated that I do not KNOW yet he then did something curious.

He stated he was going to add a drug to my list of drugs called Gabapentin, I think he said, and this was not only something to do with electrical signals to and from my muscles but also he seemed to be aware of the fact I had the Nerve Conduction Tests too?!

Now if you recall this test was about the electrical signals regarding my muscles to which the test results were negative but these pills ARE to do with the electrical signals to and from my muscles?!

Well if your confused beyond belief with that one well join the club and I am the chairman of the board?!

After leaving I thought how good it was to have met him again and have this new drug to add to my arsenal of drugs and hoping that it has some effect on some of my conditions, fingers crossed.

Turns out that the drug is given to patients that are epileptic but I have no grand mal seizures, though I did have one many years ago and do go light headed and warm and fuzzy often when I am out and grabbing hold of magazine racks so that I do not fall over, lol.

As I said to two friends afterwards maybe they DID find out something and just did not want to admit I was right and they were horridly wrong for all these years. Maybe that news has got to this pain management guy which is why he hung his head like he was in shame when I said I did not know and said results were negative and perhaps the DWP became informed too?!

It will probably turn out to be pure coincidence that I just so happen to have now been prescribed drugs that seem to be linked to the Nerve Conduction Studies and Electromyography tests.

Oh but HEY...do not take MY WORD for it, LMAO...

...as EVER...

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/PainMANAGEMENT020513.mp3/

AUDIO: ELECTROMYOGRAPHY & NERVE CONDUCTION STUDIES

Well I have to hold my hands up and it is one of those occasions that I am wrong.

Had my tests at the Royal Free Hospital in Hampstead today at 9.30am.

It appears that I had convinced myself of Charcot Marie Tooth Disease and that this was indeed my affliction but the nerve tests have ruled it out completely.

As I statetd to the friend who took me there in his car I was fully expecting to be fobbed off on this and in all honesty did not expect to be told of any findings.

The man seemed pleasant enough though and did not talk down to me, a relief, and I tend to believe him and it has left me deflated.

I also would not recommend these tests unless absolutely necessary and they were NOT how I imagined at all. If you HAVE A FEAR OF NEEDLES then I suggest you asked to be unconscious, lol. I had to have a needle place into the outer muscles tissue before it was wiggle about and pushed down into DEEPER TISSUE!!

Now if I remember correctly this was done either 4 or 6 times on my right foot and then my left, so 8 or 12 in total on my feet alone.

Then four times I think it was on each of my lower legs, So another 8 in total.

Then 2 or 4 times in each of my thighs, so 4 or 8.

Then there was a series of them down my back, four or more,  and in my right shoulder which I think was two but could have been higher.

No the odd thing is that, yes of course, this did have a sharp pain to each but when he inserted it into the left of my spine in the middle of my back I got a different pain, a painful MUSCULAR pain. Rather like that if you rubbed a torn muscle and this was DEAD ON the area that hurts and I told him so.

You will hear on the audio me explaining to him abut the Chiropractor and him telling me that they are not Doctors and not governed by the GMC or NICE?!

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/NeurophysTESTS.mp3/

Also you will hear him tell me that my Neurologist is 'the best there is' which in all honesty and the only think to point to being set up. Well that and the fact that when he was running the electricity through me, like a very powerful TENS machine or muscle toner, he often turned it on with a fair amount of power and had that limb flail around. Stark contrast to other ones were it was barely noticeable, lol.

ROUTE TO ATOS' DOWNFALL

Right now I have enough people's attention and seem to be gaining at approximately 1,500 a week and rising let us just post the KNOCK-OUT blow?!

Right to recap....I received DLA up unti 4 years ago when they cancelled.


I have re-applied every so often since then...

So they are fucking well aware off..

Pin my my Heels
Pains in my Ankles
Pains in my Knees
Pains in my Hips
Pains in my Groin
Pains in my BACK, Neck and SHOULDERS.

My Insomnia and Heartburn and that...

I cannot attend early morning appointments half the time....
I cannot travel on public transport in the rush hours and really not good to go far atl all...

I have been asking for help to deal with shopping for two years or more.

I have repeatedly told the DWP all the above REPEATEDLY prior to 2011.

This AFTER they failed to come here three times and the started to ask ME to travel to them?!

Now despite this, they must have really shit computers with very cheap memory that corrupts very easily and have never heard of the Eisenhower Building and what it is for, they CONTINUED to send me these of which I must have between THREE AND SIX of these in my files...

Remember this is AFTER they failed to attend my home to do the assessment...therefore they have already admitted acknowledgement of the fact that they have received and READ my letters and evidence as well as AGREEING that I cannot travel!!

Oh yeah and the morons have put a date on it?!

Branch of Serco and if so these people are running the country?

No wonder we are in the fecking mess we are in?!?!?!

Remember that as well as all I have published recently regarding my hospital visits I have two letters on their way to add to the list...

One for a Pain Clinic or Pain Management which as NOTHING to do with...

One for the pain in my Inguinal Hernia Repair

NO PERSONAL INDEPENDENT PAYMENTS SO DISABILITY LIVING ALLOWANCE THREE - PART THREE

Right NOW?!

Notice that the two screen-shots just above the last one will show you a list of 5 hospital departments and NAMES and it would not allow me anymore?! So I ran out but it did give me a window which I mentioned about a Pain Clinic appointment coming up at some point very soon.

Also NOTE that none of these listed are my GP?!

Also NOTE how I CLEARLY POINT OUT TO THER BIASED IDIOTS AT ATOS WHO ARE CLEARLY NOT DOCTORS how that at least 90% of my ailments and pains are ONE CONDITION and that this is Charcot Marie Tooth Disease and THEREFORE cannot be treated as a seperate person on each count?!

Remember all the statements by the Conservative party about being FAIR?! Well they said they would do away with that terrible attitude, first pulled by the Labour Party when they was in power, as treating each pain as if you only had the one and then DISCARDED when they move onto the next as if you NEVER HAD IT?!

WELL LET US SEE SHALL WE?! LMFAO!!

A WOBBLE AT THE DENTIST

Apologies for tardiness but here are a series of recordings I have not put up and I am trying to figure out if I put up the Neurology Appointment as it was still on my phone?!

Annoyingly the Dentist recording where I go a bit awry which then lasts a week is really crap...

To save time it is around 39.40 on I sway a bit and he asks if I am OK and then suggests I rest in the waiting room. At 42.30 I go to leave and asked by reception if I am sure.

I do not think this is anything to do with Dentist in any way.

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/DentistWobble.mp3/


After pain and the A&E visit I go back to Dentist for Metronidazole.

It helps for awhile but my tooth ache still persist but is on and off and I think this is the CMT. I think I had better email the Dentist as they said they would have to refer me to hospital to have it out...

QUEUE CMT and my history with GENERAL ANESTHETICS and I am reluctant and in pain, go figure!!

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/DenistTWO.wav/

NEUROPHYSIOLOGY LETTER - ROYAL FREE HOSPITAL

First up I have acquired TWO audio recordings today and these will be up in the coming days.

Today I received my Neurophysiology letter from the Royal Free Hospital and just like the DWP and Atos do NOT LISTEN they have booked it too early meaning I would have to travel in the rush hour.

Almost like a DWP tactic...."OOH WELL Mr Haswell if you managed to get here you cannot be that bad?!?!"

Me ... "How the feck would you know and you have X-Ray vision that can tell how much drugs I have inside me and a camera that followed me the whole journey?! Oh and by the way because I can get here and then sit here, lay down, be tested and then get home again on ONE GOOD DAY does not then mean I can do a 5 day a weel full time job you bloody moron?!"

LMAO! God help them if I get any smart comments like that, God bloody help them!!

LOL.

Ooh OK back to front then?! Right above is where I contact them because the appointment is TOO EARLY, LOL. I would have to travel in the rush hour which is a NO-NO! I have requested it for a MIDDAY appointment and I will ask TWO people I know if they can take me, first one and then the other!

Right this is the letter, there is actually more of it and I have not read it...but I will tell you now that I am CONVINCED I have Charcot Marie Tooth. I have TWO recordings to be posted and one where I state that the Neurologist who sent me for this thinks I do not and I think I do!

BUT... despite this I must state that not being a DOCTOR myself I have to admit that it is NOT beyond the realms of possibility that there is indeed ANOTHER condition that does a damn fine job of mimicking CMT?!

Not to my point... to travel all the way to a hospital such as the Royal Free and the to come out WITHOUT a diagnosis will be not only frustrating but I will be in a right quandry with myself wondering if I have just been lied to?!

So you can bet your bottom dollar that I will be on the damn ball that day!!

DIZZYING HEIGHTS OF DOOM WHILE I QUAKE

Well just thought I would put this in here before I forgot and while I was thinking about it.

I am currently downloading Windows 7 ISO (OS Image I will not go into right now) because Microsoft and namely Steve Ballmer is a bunch of things I do not want to repeat on here?!

Rip offs for one and anti competetive more than they ever have been for two and that is putting it mildly.

So after PAYING for a copy of Windows 7 I am now having to download it for the second time despite have a screwed up copy in a partition on my hard drive.

The goal is to currently put Widows back on on a smaller drive and to do one thing and one thing only, play the games I love because the long overdue return of a Linux Operating System....think Apple's MAC OS on a PC...does not run the games I love. Hmm come to think of it and though Valve has recently released their Steam Client for Linux I hve to wonder which of my games you can run on an Apple Mac and if so then WHY are they NOT on Linux? They are very similar Operating Systems and next to Windows they alomst appear as identical twins?! So why.... I digress.

The point to this post was that it has been a couple of weeks since I played either of Fallout 3 or Fallout New Vegas or indeed my now favourite game, same development house. Elder Scrolls V Skyrim and Elder Scrolls IV Oblivion?!

I was also thinking about this dizzying feeling I have experienced a great deal of lately and the fact it put me in hospital. So while I was thinking of Skyrim I was then thinking about the dizziness when I remembered I have been feeling dizzy at time while playing Skyrim and a few other games?!

Now here is the funny thing and this is not the first time this has happened but it is the worst time this has happened. I also have not played any 3D games since the hospital visit and it suddenly occurred to me I may not be able to play at all?!?!

Ballacks!!!

That is annoying but I do have these pills, of which I had to take 15mg yesterday just t get to the GP surgery?!

Right the first time this happened with a computer was a long time ago with two games and one was, I think, Doom II and the other was Heretic. Hmm or was it Quake? Well anyway it was PRIOR to Quake 3 by some time. It was when I first installed a Voodoo 3DFX Graphics card!

Oddly enough I also get travel sick and sea sick?!

Exclamation mark and question mark?! LMAO well I put those because with all of these things I have realised that these behave just like it is doing today and just how my aches and pains do, INTERMITTENTLY?!

SOO WHAT WEEEE HAVE HEEEERE IS A FAILUUUUURE TO COMMUUNNNNNNICATE?!

LOL!

This is quite literally, despite me stealing...ahem borrowing that lone from cool Hand Luke with Paul Newman but as far as my nerve responses go and as far as the NHS listens or speaks to their own members of staff or each other!

Of course this dizziness which drove me to distraction when it first occurred would have been around...1998 give or take a year or two. So PRIOR to my feet playing up and PRIOR to my Restless Leg Syndrome occurring...I think, lol.

As far as I remember my RLS occurred when I lived in Bristol during my last year of my degree so around 1999 to 2000. The Plantar fasciitis occurred in 2000-2001 and the dizziness from playiing 3D games occurred around 1998.

Three things not only all linked but occured all within two to three years, or at least NOTICED during this time.

GP TWO WEEK PLAY AWAY...AGAIN

Well I went in my surgery to book an appointment with my GP in the hope if catching them all out red handed...

But lo and behold he is away AGAIN for two Weeks for the seconds time in 6 months I am sure of that.

Bizarrely I also seem to have walked in for the second time just when he has two Weeks off still?!

Well I'll be a monkeys uncle what are the chances of that?!

Oddly I found myself on the end if a lecture from a trumped up receptionist who decided to be patronizing but got it wrong each time.

I nearly said "look lady, don't come across that your all intelligent your just s bloody receptionist and the Doctors are mostly devious of intelligence to so cut it out!!"

Lmao. But I did not as I believe that is a rude thing to do and belittling despite the fact they are belittling without knowing the facts.

I then said that two Weeks was too long and could I see someone else and she said no only emergency nurse?! Was told this before I remembered but now I had a valid problem with this. I pointed this out by them saying...

"well hang on I've been given pills that will ruin out soon what is one supposed to do then?!"

Now forgive nd if I'm wrong but this is a question about a problem that necessitates an answer so why did I them get the reply...

"well you should be more careful with your pills and make sure you do not run out?!"

This is very common for receptionists, except for my last Doctor who was great as was her staff. This despite the rumour being spread around the chemists deliberately about her which was false!!

So I ask a question to a receptionist and get a sarcastic lecture belittling me in front of the public...

...red rag to a bull, you think?! People will never learn that I ask NOT THE PERSON to go down this route with and I answered...

"Whoa! Wait one minute there...my pills are ALL on repeat prescription but these were only given to me Friday as I was taken to hospital by a concerned friend who gave me these pills..They gave me ten days worth and though to last me until I see my GP but it now seems they underestimated that!"

A now embarrassed receptionist then asked if I had a letter to which I said no I have a pink carbon copy of the prescription and she said just bring it in.

Only this had made me realise that this could screw things up worth my plan. But then I'm now wondering that my GP's second disappearance for two Weeks might mean I have to rethink my plan anyway.

You see he, and not just him, had a 180 Degree U-TURN with me I found highly suspicious. He is one of three people who took a Mayer of fact attitude towards me, without the facts I might add, and even accusing and a little sarcastic. He also showed himself to be dismissive something I experienced with a different doctor recently.

One other member of the health staff gives off a level of confusion without knowing it.

My suspicion if that some idiot in my past, inserted into my medical records that I was either a hypochondriac or making up my ailments. Now I asked about this outright when I knew for sure I was deliberately being fecked about around 4 years ago and was told no.

Of course its possible that they all just want to fob me off but the confused one does not want to do this and genuinely cares. She is the only one out of several dozen I've met if I'm honest.

The trouble for them is that whatever is actually going on I can work out what it is or all the possibilities and plan for them all.

Some, none or all if them may be aware of this blog. If aware it may explain why my current GP keeps disappearing and why he had a sudden and nervous change if tact the third time I was in there. He also got nervous and turned away when I said I think I have CMT. He refused to refer me to Professor Mary Reilly and anyone else despite me telling him what the Podiatrist said?! But then on the next meeting did an about face after receiving the Podiatrist letter and sent me to Neurology and said make sure I mention CMT?! Odd thing to say!

The Podiatry was also very FUNNY with me like I was lying or deliberately wasting their time. Well they can think that son they wish they will only destroy themselves. I have given the NHS every opportunity to coercer this over the years and no they are shit out of excuses.

I'm but a gambling man and I don't need to gamble when the combination and permutation mathematics pot to the list of ailments I have, CMT lists and the odds on me NOT having it and the odds of winning the lottery would be a great deal less than this coincidence.

Also hedging Mt beta is that fact that even in some crazy outcome that it is NOT CMT it still remains that there IS SOMETHING!

After all u would be bloody stupid to go through all this to find answers. If I was a court liar or hypochondriac I could manufacturer something a great deal more obvious and listed and widely know as being debilitating, lol.

So there are no excuses whatsoever and there is no way around this blog if indeed they are stalling while trying to think up a way to stall me, come up with a lie our tactic and avoid any repercussions.

What they fail to realise if this latter version if the case if that they only succeed in making the damage being done to themselves as being exponentially worse the longer they go on with this path.

You would think that three years our more into a recession that putting things off only makes it worse in the end.

ODD HEAVY EYELIDS FEELING

This is a weird one this!

One of the things I have been getting is this heavy eyelids!

I think my previous remarks about feeling sleepy are not entirely correct ... or accurate. My eyelids and head feel heavy and if I was to be as accurate as I can be I would not say they were like lead more like they were made of stone.

I have just been stirred into a consciousness by my phone beeping from a message or notification. For the last 30 minutes my eyes have been closed and my head resting back on the sofa but not asleep.

Trying to do ANYTHING on the laptop at all ends up with me finding it harder and harder to do and my eyelids get heavier and heavier all the time until they just close and I simply cannot keep them open. But O do not always fall asleep?!

Hmm it is now happening again as I typed the last sentence in the last paragraph?!

Oh yes I have also experienced this mild tingling on the side of my face but it is NOT a stroke! Lmao! Well I did not think so and neither did the hospital.

Just remembered this and thought it was worth mentioning on here.

Did a search and came across Myalgic Encephalomyelitis or M.E. but I had a lecturer friend who suffered from this and I do not think it is that.

I am sure it is something to do with the fatigue and the Charcot Marie Tooth Disease but now I have read about M.E. I suppose its not beyind the realms of possibility and yet another thing that is it turned out I had that the NHS should have spotted in the last dozen years plus!

LMFAO!

A KING SIZE HEADACHE

Well Timmy must be about because someone is hitting my head with a Mallet or at least that is what it damn well feels like!

I seem to have traded the other illnesses and pain, or at least much reduced versions, for one hell of a headache this morning.

So I am making a cup of tea and taking even MORE PILLS, lol.

Taken 50mg Tramadol already an hour ago...

Taken Metronidazole

Taken the Prochlorepzine which according to my GP does NOT exist.

Now I will take another 50mg Tramadol and 500mg Paracetemol for this headache which I have to move very slowly and gingerly as to not aggravate it!

Of course I do often get headaches in the morning but not like this and of course for those that paid attention the CMT is a cause of that as you do not breathe properly at night and YES there ARE pills for that!

Now Metronidazole are the only drug on the complications list with CMT in my book that I am familiar with. Quite how it complicates things I do not know for sure.

Now what I do know is that muscle relaxants are a bit iffy because, and obvious hen you think about it, this relaxes your muscles and with CMT you have messages from your nerves not getting to your brain and vice-versa so that diazepam could have a far greater effect than it otherwise normally would.

So if you take at night and your diaphragm does not operate as it should then your not breathing as you should and CO2 gets re-absorbed into your body and you will wake with a headache!

I still have not studied the entire book so am not aware of other complications right now. Of course there IS the possibility that I do not have it...

...but it IS my body, MY symptoms and I have the whole bloody lot of the lengthy list that goes with CMT going back not just the 12 years with my feet but going back over 20 years.

In other words if a PROPER test was done and it came back NEGATIVE I would bloody well eat my hat!!!

How I spent over twenty years gradually acquiring the dozen or more symptoms of a rare disease like Charcot Marie Tooth Disease of which I only became aware of a couple of months ago is.... well lets be straight down the line here its just not possible is it?

I mean consider the list of symptoms...

Feet Problems
Lower Leg Problems
Knee Problems
Back Problems
Arm Problems
Hand Problems
Morning Headaches
Reactions to General Anaesthetic (combined anaesthetics FOUR TIMES I know of)
Reactions to Local Anesthetic
Feelings in hands and legs can be MISSING - Harm Myself without KNOWING
Pins & Needles
Restless Leg Syndrome
Hand tremors

Without going through the book these are off the top of my head!

There would be a full list on another post somewhere about this blog.

THE DENTAL APPOINTMENT

It seems I had forgotten...

First time I decided to do this and fully expected to turn out to be something completely different, if it turned out to be useful at all that is.

Instead I capture the first moments of a FIASCO to end all fiascos and just as it SEEMS I have just started to be manipulated into being cast off yet again.

Not that I NEEDED this but I did need it for YOU!!

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/2013-03-21_13-53.mp3/

I hope its the right file I forgot to rename it and it appears the right date and time, lol.

Oddly enough you will note that the time initiated is 01:53pm and outside the dental practice and the appointment was for 2pm. However I do not realise the mistake at first but I am told I am late when asked to go in and I just smirk.

Thought I had lost track of the time somehow but did think I could not be more than a couple of minutes late. Well until I saw the time stamp on the file and realised I was a couple of minutes early if anything, lol.

Odd.

CMT & ANAESTHETIC

Well here is a webpage I just found on my phone and used a screen shot atop on my phone whole I am out the house.

I still feel pain in my tooth asks jaw socket and still feeling mildly dizzy that comes and goes. As does the pain in my jaw and tooth as is the pain in my back too.

Been to Dentist and waiting in a friends ago to go back at 11.15 am so having very shortly.

So it seems a local anaesthetic can cause a reaction and I was not really aware of this until a few moments ago. I had doubted this was possible in all honesty despite my insistence of suffering with Charcot Marie Tooth Disease.

So you see a whole list and anything new fits right in with the CMT theory EVEN when I doubt that it will!

So the question now is, once this horrid feeling is out the way, is the tests at Royal Free Hospital and whether they are for CMT if the Tunnel Syndromes?! In other words another deliberate ploy to NOT diagnose me and yet with me recording everything and also knowing still about CMT?!

FECKING STUPID AND SELF DEFEATING IN OTHER WORDS.

I also now know my friends with me was disapproved with the way I was treated and phoned one of my brothers who called new and he was disappointed and angry too.

In fact he has suspicions about a friends off ours whose funeral is on Monday and him dying in hospital being the fault of the NHS.

LETTER & AUDIO OF/FROM NEUROLOGIST

Now I told you about this ...appointment. I also stated I recorded it well now you can compare the exact words of an NHS Doctor with his written words along with the fact that I describe certain things in detail and that he has totally ignored them.

An example of this is EXACTLY how my road accident went down and he states that I was just simply 'knocked down' with no mention of a car and could well have been PUSHED OVER by another KID?!

He states I was pushed over onto my side when I said nothing of the kind and the fact of the matter is I travelled UP the bonnet, UP the windscreen and ONTO the roof and then along the roof I fell OFF the side and DOWN onto the tarmac... WELL ITS ON THE DAMNED TAPE?!?!

Also note that with the amount of symptoms I now possess that there is little desire to collect all data and therefore place it within my records?!

Oddly and just today a Nurse at Chase farm was rude to me several times when I was having trouble stringing three words together and fighting to stay conscious?!

If it turns out that one person in my history with the NHS has uttered one SINGLE SOLITARY DEROGATORY WORD and I have never been allowed to defend myself by members of staff I will not rest until the NHS as it stands today has been reduced to smouldering ashes!

Because only the dumbest morons would think that I has spent 20 years collecting, or inventing, ailments that just so happened to all be connected to Charcot Marie Tooth and well they should not be in a position where they are responsible for people's health that IS for sure!

THE AUDIO OF NEUROLOGY APPOINTMENT:

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/Neurology.mp3/

Looking more likely you are all being SHAFTED is it not?!?!

Cannot just be ME?!

Well this letter turned up this morning and the pages are in order, despite it seeming otherwise.

The second page was on the top and STAPLED to the first page which is underneath?!

I KID YOU NOT!!

It contradicts previous specialists, previous GPs and only mentions POSSIBLE trouble with ANkle Jerk because I stated they had already been tested and did not react at all?!

He ALSO STATED that though  he says he does NOT THINK I have CMT that this does not mean I do not.

He says he will send me for CMT tests but the letter looks like he sent me for something else?! Like Carpal, Tarpal Tunnel Syndrome?! He had better not!

I am afraid that his glance at me in the main building I am now convinced he recognised me from a picture he could not possibly have had and that is why I thought immediately he was Dominick Mort, as you hear me state on the TAPE!!!

I was and am being set-up!!

Good for me...bad for them!!

Page ONE was actually PAGE TWO and VICE VERSA?!?!

AUDIO: NEUROLOGY APPOINTMENT

Well here it is...or will be once the new program to link it is installed....Wuala!

LOL.

A Little late uploading it and then linking it in here, well four days late to be precise, lol.

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/Neurology.mp3/

Ahh and there it is...

...still working out the little difference in the Ubuntu Linux OS and every so often you run something and there is a pause and I am reminded of Red Hat and wondering whether or now need to alter things in a Terminal?! LOL.

Sometimes, or at least so far I cannot remember, it IS just a pause, lol.

THE FIGHT TO REMAIN UPSTANDING

Now that headline might appear to mean one thing when indeed it actually means something else completely different.

As others now I have spent the last week messing around with a new operating system on my laptop and in the process lost my old one. The one I am currently using is a Linux OS called Ubuntu 12.04 LTS using Unity.

The one I have lost until I find away to return it as it was is Windows 7.

I have lost some applications, games, programs and files in the process though this should only prove to be temporary and for 2 to 4 weeks.

Now I am currently trying to install drivers that have caused a headache and all of the problems for the last 8 or 9 days. I am TRYING to get my graphics to work on my laptop under Ubuntu. Currently I have been attempting to install the drivers for the last hour and god knows how much longer it will take and if it will succeed at all.

But that is NOT what this post is about and I only state that to make it clear as to WHY I have been pacing around the house and am a bit lost with myself...

For sometime now I have had something a bit odd going on with me and I had put this down to the Charcot Marie Tooth Disease that I did, and still, bet the proverbial farm on that I suffer with, oh yeah still have to upload that sound file?!

Today while waiting for things to happen on my laptop I keep feeling dizzy and light headed and this happens a great deal. Sometimes I have mentioned it in posts and other times I have not.

It is weird and fecking horrid if I am totally honest and it feels like I want to sleep all the time. The mad thing is it only seems to occur when I am indoors and not doing much. Or waiting around for something like I am now.

Oops just checked something as my fan speed altered and I thought something had finished?! Turns out no it has not.

For the longest time this occurred only now and then and its kind of like that out of it feeling you sometimes get just prior to going down with a bad case of flu! Like when people say they do not feel right and think they are coming down with something?!

Only the feeling is becoming more frequent and stronger as time goes on and its becoming more than just an annoying distraction. I have had plenty of sleep and it is not like that feeling of lack of sleep but different. I have taken pills so it is not withdrawal that has crept up on me unnoticed.

This is kind of the thing I have to deal with every single day only my body presents my mind with new tricks and new obstacles.

I really HATE doing nothing I really do. I hate staying in the house and I know my house is pretty small but I honestly do not know if I ended up in a house four times the size a year from now and possessed a big garden and a greenhouse I really could not tell you at all if this would change!

My mind wants to stay active and you could claim that I am hyperactive to a degree...

Only many parts of my body, including even my head at the moment, are the exact opposite. Different parts bitch and groan in different ways entirely and with differing frequencies as well as different levels of bitching and groaning.

Only of late this is now being accompanied by a lethargic and light headedness that feels as if I am intoxicated to just beyond the point when you start regretting it!

Intoxication is exactly they way to describe it. As if I had taken to much drugs, had a drug administered without my knowledge and possibly my mind is thinking to when I was stuck in the loo and the force of pressure that my Vagus Nerve experienced that forced my blood pressure to drop, cold sweats and a feeling of overheating and then heart attack and breathlessness came over me before passing out. I did actually mention this in brief to Doctor Mort yesterday and I mentioned the Vagus Nerve and I think he laughed if I recall correctly. A look of surprise that I knew about the Vagus Nerve and that I had passed out. I did actually say that I wonder if my Hiatus Hernia is pressing on it at all and why I have these dizzy and lethargic periods?!

In fact I had spent 30 minutes wondering whether to just go out, which I have not done all day and also waiting for this darned program to install, or post about it just so that I have this on record, so to speak.

I decided on the latter, always good to have it on record but that when I get days like this sitting in front of my laptop screen only makes it worse.

I am LOSING on the SWING, I am LOSING on the ROUNDABOUTS!

Sorry that was a line sung by Fish when he was with Marillion, lol. Just popped into my head and thought it apt for the points I have often tried to get across?!

As the Charcot Marie Tooth listed Fatigue as one of its many symptoms I experience I was then pleased to finally have an answer tot that...

When you have a lot of things going wrong with you and only have 5% of the answers it is annoying. I am sure there are people that have not had a proper diagnosis to just one or two things for many years that can tell you the same. If the read this and the rest of the blog and realise that this amounts to a dozen or more going back up to twenty years I am sure they would do a double take and re-read the post just to make sure they had not read something wrong, lol.

Yes it is not nice and hence why periods of me being funny, witty and comical and can interspersed with ire and anger due to what I have to deal with while doing chores and errands I am finding it harder to do all the time.

This is probably one reason am an so charged up over things as well as passionate about things I type and post about. Why I get outraged at greed by so many out there when it is obvious these people do not know what suffering is.

This is where their downfall lies in all honesty as those that do suffer and have now been repeatedly and savagely kicked in the nether regions by the government will come out of corner like that of a caged animals gnashing and snarling as they come.

This is why I like to let loose on here when I do feel enraged at things. To show that not only am I human but what it will be like for people with lives of suffering and pain. Especially those who have had no help from no one while the ravishing wolves bark at your door.

Bark enough and what will emerge is something that would make a Polar Bear blush!!

MISERABLE DAYS OF GREYS

Well its been a long rotten and painful day. I had my neurology appointment and not sure what to make of it.

I passed a guy in main building and thought he was the doc I was there for. Get given really bad directions by totally clueless receptionist. No signs anywhere and I ignore what I was told and head towards different physiotherapy department I was under lady time.

I see building saying Urology and think ill ask in there. Can you tell me where Neurology is? I ask. Yes your in the right place! She answers. No not Urology I said NNNeurology! I insist...

Yes it is here we have Urology and Neurology but only had one stated outside and I can't believe my luck as I'm now over 500 yards from main reception.

While sitting there I turn on the phones recording app, yes I RECORDED IT, I strip off clothing as I'm out of breath and being cooked when all if a sudden someone steps into the building and its the man I looked at earlier I oddly thought was the Doctor I was there for?!

I though "if he appears and calls my name I'm going to ray my hat!!"

Well it turned out I NEEDED the fibre?! Lol.

When that guy does call me in we have a chat and he is not convinced I have Charcot Marie Tooth and I state that I find it incredible and unlikely to think that I just so happened to have developed all the same just if symptoms as CMT.

He does admit that because he THINKS it is not what affects me does not mean that it is not that...so much so that he now fully intends to have a series of tests performed on me....at the Royal Free Hospital which involved some electrical testing like the Tarsal and Carpal Tunnel Syndrome Tests.

Also oddly he does what seems like a thorough test and includes my reactor muscles. He says they are all fine and I say "Well that IS odd! According to private Chiropractor my knees are delayed and the Podiatrist stated my heels did not react at all...NOTHING!

He seem surprised to hear this.

He mentions the look of the litter legs from wasting and I then say "oh champagne flutes?" which causes a raised eyebrow.

My head so spinning as he has contradicted nearly everyone I have been sent to for several years and I try to get him to contradict my GP in stating he says that done people NEVER find out what is wrong with them and he agrees with this.

I say "ooh bore hold on a minute here. This is the 21st century and with the science and technology available today I cannot really accept that statement! Or does it only simply to the NHS?" He says no the NHS have access to everything and again I hear something I do not believe and decide not to make any more remarks.

His insistence to send me for the tests for something he thinks I do not have among with guys public schoolboy accent makes me start to wonder.

After I have left I notice the dark and dreary sky and how miserable it looks si recall how I saw this chap 500 yards away in a different building and suspected he was the Doctor I was to see. I even told him this when I first entered and you can hear us speak of it on the tape!

It is then I recall that s he was walking along with a woman and chatting he looks sty me and does a very little double take. I think it was this I picked up on and as I eventually passed him I thought he was the Doctor I was to see though we had never met previously.

The odd thing is this is the only sensible and scientific reason I suspected he was this Neurologist. That glance at me and that ever so subtle double take... But...

That would them mean he recognised me and as I started we had not met previously and no picture of me exists in my medical records.

As mad as it sounds suddenly all the little facts point towards me being well and truly expected and prepared for.

The doubting of the possibilities if what I have seemed a little much too. You heart new counter things he says with triassic possibilities but with no reaction.

You also hear me state after being told done people never find out that I did think for many years that this works mean I had a condition our injuries never before described by science and that I would therefore become a fascination to Doctors and Specialists sd they could then study me and write a scientific paper and make a name for themselves?!

Rather oddly this does not cause a reaction either which suggests that all Doctor's befit hand fall into one if two categories...

1) They were well aware of what I have but did not, out were forced to, me being aware if it and/or...

2) They were not really confident our capable Doctors to study something new and unknown to want to take interest as this would then expose them not being for to be Doctors?!

Welllll I typed and/or but it can really only be I've our the other.

You will also note how I remark about being given drugs you do not want and he states that Doctors are ordered to give certain drugs and are told off if they do not?!

So no evidence if corruption there then?!

Now things are a little slow as I turned my kaori into two computers, just go with me on this too tricky to explain. Now the NEW part, Operating System called Ubuntu and a Linux Operating System based on UNIX, so like Apple, lol, works but took a week and now has screwed up Windows 7 and of course and just sd I complained about no hard coot of Operating Systems given with laptops is recipe for disaster....now I have a DISASTER! LMAO!

So no games, no Skyrim or any enjoyment right now just frustration, lol...

So I ended up at Sainsburys after now painkillers and upon editing it is pis pouring down with rain and cold. A thousand times I've taken out an umbrella and not used it and today is a rare occasion as I don't bloody have one!

So u get home soaked through and child and with the joys of spending my seventh evening attempting to get Windows working again when out dawns on my during this that Windows had been deliberately designed not to work with the LINUX OS and they have even charged me for this fecking mess and kept me from having a hard copy of the disc which would have had be sort out out in a few hours.

Now I an not sure how rio get around this and fecking fed up with being at the shit end of the stock because corporate twats like Steve Bullmer wants to behave like a butter as he did in the military and just railroad anyone else who might be a threat to Microsoft's dominance no matter how small they are.

With LINUX its a bit more than that as it is actually FREE and exists because the people who created it and worked tirelessly on it did it because of their dislike you're Microsoft.

Indeed it is this reason for its existence that certain companies who are now using employing very cheeky and sneeky methods in an attempt to make money out if something they did not really have a hand in creating and if you decide to do that it will backfire and cause them no end of trouble.

Problem with the world? Took many people want millions if pounds while doing feck well for it and then moan and point the finger at the jobless and disabled people over things they have no control over and get one to two hundred quid a week to live on?

Well hand on a minute you get thousands and possibly tens thousands a week or more and you for on you're fat arse too!

The difference if they are in no perdition to open their mouths because they CHOOSE to sir on their fat arse while still the money rolls in when the vast majority if the jobless and all if the disabled have NO CHOICE IN THE MATTER!

Now that is the difference and will prove KEY at done point st just how God damn thick and naive these people really are.

Yeah I had a pretty miserable day, lol.

Still you gotta soldier on...ooh sorry Mr Bullmer...no pun intended...HONEST!

Lol.