REQUIRING THE PATIENCE OF A SAINT

It has been a very long road to get where I am today. An inordinately long time indeed!

Just doing what I needed to do on the blog I thought I would need at least two years of hammering away at it and as stated before this is due to the extremely slow pace that everyone involved operates as many people have unfortunately found out for themselves.

What should have been very clear to people of late is that the salaries involved in contrast to the services provided have a great distince between them. I have known this for sometime but not many realised, or possibly thought it was that important. I wonder what anyone who served in the Home Guard in Word War II would have made of this. They likely would have thought that if Englands shores were ever invaded again we would be done for.

Eighteen months has been spent thus far posting about the things that went before as wel as those happening currently. That is quite awhile indeed and I challenge anyone to be able to do all that while not receiving monetary gain from it. Unfortunately for me the things that Google told me convinced me to have not one but a dozen blogs. Unfortunately what they failed to tell you is that you would have to put two years into a dozen different subjects before you had any hope of getting the piss poor £60 per month smallest payment. God only knows how long others have been at it on Adsense and still waiting?!

Had I realised I might have not tried so hard through the warmer months of 2013 plus the Winter of 2012-13 racing around on my bike trying to acquire as much content as I could. The number of times I came back and my body gave out as I crossed the threshold of my front door I lost count of. Of course now I realise this is down to my condition but each journey was still between 12 and 30 miles. Not to be sniffed at but then I am used to cycling and cycled to Brighton and back as well as Southend and back as a kid, from London. In recent years it has become more difficult and I hate the Winters more than you could know because the worse it is and for longer the harder it is for me to get fit on the bike again each Spring now. Something many close friends knew for a number of years. I often told them it was strange because each year it was taking me longer to get fit aenough to cycle to my usual haunts along the River Lea.

Unfortunately this year between 2013-14 the Winter has been the worse as well as the longest for people that cycle at any rate and for me this goes treble. Because the longer I have been off the bike that adds to the length of time it will take to get fit again! I am NOT looking forward to it! I have had a few yearnings to be riding again the last couple of weeks now. But the amount of rain as well as the wind makes this impossoble to do what I want to do on a bike. The soild every is boggy and that is an understatement as I have seen puddles on grass looking bigger then many ponds I have visited over the years. I would estimate that one in a local park is anywhere between 100 feet and 150 feet in length. On foot or bike this is just impossible for one and damed difficult for the other but factor in the doghy, cicky and painful parts and even with the pile of pills it is simply a non-starter.

That, this winter, has been somewhat annoying!

Last year I did not get to half as many places as I was expecting to to get media content to upload to my blogs and YouTube, again annoying.

It is odd how people and companies with money act as if it grows on trees, proverbially speaking of course. They just seem to act as if things are avaiable for free. Not only is this preposterous for even fit people I can tell you is is quite insulting for anyone with disabilities. I can also tell you that despite what you might see out there in the way of disabled signs it is still not that disabled friendly out there, still I guess many will think something is better than nothing?

I had a bit of a panic recently, though I did not let on, as that kidney test I had left me wondering and worrying about a couple of things and living with requiring a kidney dailysis machine was NOT top of that list. Nope it was 'what if I have to stop taking prescription medicine?!' Coming from someeone that hates taking it and put off asking for any pills or medicine for years that is saying something.

So eighteen months of blogging about corruption and most but not all of my other subjects but the build up to the blog was itself a coupe of years in the making. In fact if I wanted to split hairs I could say that all this as twenty years in the making.

Twenty years ago I started collecting symptoms and as I stated early on in this blog every year or so I seem to acquire another one that added to the list. I was diagnosed with a Hiatus Hernia which I was told was the cause of my heartburn back in the late 80's which I know know is listed as a symptom of Fibromyalgia. Though this could turn out to be far more complex than you might think?! As I am a stickler for the truth I also am of detail and I do not know whether or not it WAS a Hiatus Hernia to begin with but later on become a symptom of Fibromyalgia. I shall explain...

It is obvious that the condition is accepted that a scrambling of the nerve signals to your brain and I have often asked myself if MEMORY has something to do with it?! Make sense? Well if not consider that you had a pain once before in your life. The feelings of said pain would be stored in your memeory as at the end of the day it is merely a set of electrical impulses. In the scrambling of the main signal going to and from the brain your brain could be registering the memory of pain and amplifying that memory so that it appears to your conscious mind that this part of the body is indeed in pain. What I could also add to that is that I went a long period of time WITHOUT any heartburn and I mean several years!

The accident I had that I know believe either bought on the Fibromyalgia or at least increased its intensity was AFTER I was first diagnosed with this Hiatus Hernia. Factor in that my second Doctor out of four in Enfield stated that I should only have taken a Proton Pump Inhibitor, cuts down stomach acid production, until the scarred lining had healed. That was Doctor Huq and no other Doctor has stated this before or since. Indeed though I did bring this up with my last Doctor and he seemed a litlte anxious to see my medical records. Not only IS he the first Doctor to be anxious to see my medical records that have mysteriously gone astray but will be the first one to actually read them if he does as he has now stated to me twice in conversation.

The one thing I can be certain of is that it is now obvious that the Fibromyalgia goes back longer than when I started pressuring the NHS for answers. This was when my feet started hurting and that was just after I got my degree. Easy to remember and detailed on here because I was unofficially living in Bristol and some of the people I knew back then are on my Facebook list still today. Not the ex girlfriend mind you, jus her family, lol. It was when I left there and returned to London and only a matter of days that the feet were hurting. The hips and ankles and even back issues had popped up before hand. Not the knees however. I had also just got the grades for my degree and they were admittedly 6 months late due to a deferral. Off the top of my head this was somewhere in the region of 2000 and always remember I was waiting for the Millenium Bug to crash all computers and aircraft fly-by-wire systems. Though I did not really think that would happen, lol. I do remember it was April and in the June I travelled to Italy with a friend in search of animals, Calabria in southern Italy to be precise. I think it was April 2001 to be precise in which case I have had the feet problems for now approaching thirteen years. Oddly enough I started getting the symptoms for Restless Legs Syndrome not long after I moved to Bristol so precisely a year before the pains the RLS appeared. Never occurred to me that the two would or could be linked. Oddly and from 2001 onwards and with the other pains I had already been to Doctors about it never occurred to any of them either. Both before this pre April 2012 and POST April 2012 I was treated abysmally 99% of the time! In fact leaving out my currect GP there was only one GP I could speak highly of and two if you included her stand in Doctor and there were named Hq and Pilani respectively.

But even so I still felt that the contents of my medical records were entirely unfamiliar to them as everyone else and I remember thinking how annoying it was because they were now in use of computers which should make it easier! Meaning they either could not be bothered to read of that the syetem they were using wa utter crap. I have had several reception staff tell me it is utter crap from different suegeris and clinics too. So another inordinate amount of money wasted and lost then?! Probably done it cheap and syphoned off the taxes used into personal accounts?! I could have implements the same bloody system standing on my head and blinfolded and still have done it better that they did. But not to worry, they are clawing back all that money they lost now. Of course this is just one single soliary instance.

It is my belief and will become clear in the nxt couple of months that things could have been done very differently. One of the things is that delaying tactics only ends up making the net cost far higher than it would have normally been...

Why is it, or should I state WHEN WILL IT, that of all these bloody surveys uyou see on the TV News and in the Tabloids there are some I would find intersting and revealing that they never do?

One I would like to see is how much money has bene lost to businesses over the years because health problems with THEIR workforce have been put off and put off for long periouds of time? I mean any condition at all reduces the ability to work to one degree or another. Be it a mere 10% or be it 90% it is all a loss and all adds up. This is made worse when you consider all the days off a member of staff has to keep visiting Doctors not wanting to deal with it because someone from up on high has told them to avoid it to save them money?!

Thnk the Rats on the sinking ship here.

Now factor in those people that have been unable to work for years?! This has not only cost the company they did or could have worked for but now costing the taxpayer because of the benefits needing to be claimed!

You see it is not really that hard when you think about it is it?

I know there will be a show in Channel 5 now in the coming days. I only hope they do not take the Channel 4 stance as they did with their lop sided show Benefits Street. I wonder who commissioned that as it was on every day and that is peculiar outside of a soap opera.

I will not be watchng the Channel 5 show for a whole host of reasons, lmao! This blog will achieve what I want it to either with or WITHOUT the media. Of course had the media reacted as they should have done when I first contacted them or even when I sent them THE FOUR DVDs then I would not be whimpering about Google and their Adsense crap. But it matters not as the direction is ONE WAY and there is only one conclusion. Well unless people are for more naïve than I could ever have possibly imagined?!

But then at the end of the day IF I have been unable to HELP the British Public as a whole it would be a shame as that is what I intended but it would not really affect me in anyway now my other goals either. It will be those that turned away or failed to believe what was staring them in the face on here that lose at the end of the day...

I do not need 60 Million people on here to succeed in the vast majority of my endeavours. I do not even need 60 Million people worldwide. In fact I think I only have to increase my current visitors by a factor of 10 to solve all my personal problems. Worldwide.

Provided that the weekly visitors of around 2,000 cary on rising themselves this figure will be a lot closer than you might think?! I would be rather shocked if I did not hit that in 12 to 18 months provided the weather start working in my favour and I can get my arse into gear.

Of course now that I have a hundred thousand people that are aware of me, this blog and all my other blogs on all my other subjects it will make a number of other things relatively easy too. Being published repeatedly is one.

Another things of interest is whether or not when the weather warms up and people socialise a great deal more by going shopping together or meeting up in the local park whether or not the numbers in thes blog will start to rise faster? Faster than what I do not know because it was around 2,200 in a 7 day week the last time I looked. But then my postings on many blogs have been a little lackadaisical of late due to the weather.

I think in the winter, which I orginally expected faster rises, I miscalculated because this is the time when people stay in so find my sites individually. In the warmer weather and everyone out and about more and with smartphones in their pocket it is likely that more people will show each other this blog and its secretly recorded audio and other factual data and the rises will be greater. IN theory at any rate, lol.

Of course there is also that I believe more and more of my content, subjects and even facts will gradually fond themsleves in the news, because you have to be an overpaid celebrity twat in a suit on TV to have any news to tell not a disabled guy with a laptop?! LMAO!

The amusing thing about all this is that considering what it is that they have tried to accuse me of or get me to do there is one thing that I have that allowed me to do this and therefore help as many people as I can...

...THE JOB REQUIRES THE PATIENCE OF A SAINT!

...and saints have to perform MIRACLES.

A SAINT WITH ONLY FAITH

It is always surprising to me how things work out. No matter how much I pay attention to detail and fully intend particular outcomes and how often I achieve it, it always comes as a surprise... every time.

Through this blog and of course including the preceding years immediately before setting it up it was almost always the same.

Right at this very moment is a perfect example unfolding before my eyes and now yours. I have already started covering it done time ago but now it has taken a few twists and turns. Rather surprising turns I might add.

I always had the belief that if you stick to the truth and the facts then it all falls into place. My enemies that have destroyed my own life and those I care about are about to get a very hard as well as lengthy lesson in this. It will be their own fault and will only have themselves to blame.

In all areas, organisations and public offices my story and claims have always been the same. This is most notable with my correspondences with organisations that you trust and would never expect criminal behaviour from to defraud you. After so many tricks and lies you have to accept the truth about what they have become.

For the last year you have read while I have ranted about my health, the NHS and the DWP. In particular the lies, arrogance, tricks, utter rudeness and lack of professionalism with my last GP.

Well I believed that with all of them I would eventually win and thought it would be interesting and maybe even exciting as will add helpful to others to read. I was convinced that the longer it continued the worse it would be for these departments and that eventually people would see the truth, no matter how many Ostriches wanted to bury their heads in the sand.

In fact you would find several correspondences between myself and those that made themselves my enemy that if they take this course of action that they will lose and that the longer they doggedly stick to this the worse it will be when they do lose.

The longer it goes on the amount of lies increases, the more mistakes they make, the more days I get, the more visitors I get and so on and so forth. Things reveal themselves that not even I expect.

Those that paid attention will know I have been given years of cheap crap drugs most of which have not worked. That when I explained an odd behaviour, like getting hot and sweaty more than usual I get spoken to like a child and told everyone seats? Yah THINK!!! I have had literally hundreds of appointments over the years and they have all failed to spot the one single thing wrong with me and now it's entirely possible that every diagnosis I have ever had could be wrong.

Well I was looking for a new GP recently and I found one. I have been to this surgery three times now and in every single visit they have found things. Several things actually and it is not over yet, far from it, it turns out and several things are likely to emerge.

First of all in this period I bumped into a nurse, not the one (or really two) I already know but someone I had not met before. We chatted and I explained what had happened previously and about this blog. But not to much. She then said that she had been forced out of a hospital under very bad circumstances. She did not see eye to eye with other nurses and doctors and for the following reasons...

A new attitude is being forced onto health staff that includes both nurses and doctors that states that patients should not be allowed to talk and explain anything about their symptoms. If they do you are too just ignore them and go ahead and diagnose them. All in a few minutes remember?!

She then explained that she expressed her utter horror at this and kept disagreeing, obviously arguing, with other nurses and doctors in that the only thing you have to go on is what the patient described to you.

I said that this was very true and that they have this added new aversion to performing any tests especially if they cost money. I then explained how it was a big con, no diagnosis means money saved on prescriptions, treatment, all benefits and support from the DWP, Local Councils and anyone else you would otherwise be able to turn to for help.

She simply raised an eyebrow.

A week ago I had to meet another nurse at my surgery and while there she asked me to provide a urine sample and I said I did not think I could and she shed me to try. Lo and behold I did and she said "right you are not drinking enough water" and I did I knew. Then she revealed I had a high protein count in it too. I asked how much I was supposed to have and she said none! Then she did something I had been expecting to be asked for 5 years and has given up expecting, the over forties health check up and I agreed. She also said they would have to send my sample of for testing.

I returned a week later and I was tested for three things and I silted all three to my shock. Cholesterol, glucose and...err something else Lol. So I was ordered to eat fruit and Benecol and come back for a blood test and again after Christmas for another test, but way after Christmas due to the obvious over indulgences with eating, not that I do.

I went back in today to give a blood sample as well as a print out. I said previously that in the appointment with the new GP I starred that I previously thought I had Charcot Marie Tooth disease but this was ruled out but now knew it was Fibromyalgia . I stated I would be extremely grateful if he could refer me to a specialist and he simply replied "good luck"?! When I asked why he said that he started that there were very few people around who specialised in it which was a real surprise to me. After all I found someone in London who specialised in Charcot Marie Tooth so this must surely be body easy?

After the  appointment I emailed a number of Fibromyalgia groups and within twenty four hours two tepid to me. They both said exactly the same thing and said something surprising that only made what my new GP stated as confusing. "Yes there are specialists at Guy's Hospital"?! I looked it up and though there was a Professor Stevens who had sadly died there were still five names on the list in their website!

This is confusing because Guy's Hospital is bloody famous and you think a doctor of years of experience would know this? Unless...

Despite being American the author in that book with quotes I posted up here did state that there are some doctors that believe Fibromyalgia dies not exist. Well once again I am a living  embodiment of the fact that this is simply not true. Not by a long way.

If it turns out that this is the stance my GP takes I can change that within 5 minutes tops. Twenty years ago I start getting odd symptoms start to build up until 13 years ago when they started to become a real problem and I started to pressure the NHS for help. Up until the last year when I first wrongly diagnosed Charcot Marie Tooth which was seemingly ruled out by Electromyograpy and Nerve Conduction Studies. Only those tests were performed I should add, for anyone who is a stickler for attention to detail. Still despite being wrong the diagnosis WAS entertained. A matter of months later and I stumble across the real culprit that fits like a tailor made silk glove woven by angels in heaven.

Hmm yes I stated it was not over? Yes well after the phlebotomy I stood at the reception with my list of names at Guy's and the Doc was standing their as were both receptionists...

"Ahh hello" I said and he greeted me with the same.

"I have something here for you.." I continued.

"I do not want ANYTHING FROM YOU, this is my mud morning coffee break!" He replied

"Oh..." I continued "I can always guarantee that I will run peaceful coffee breaks!" I exclaimed while the two receptionists started laughing. I said I handed over the list explaining what it was, said my goodbyes and have a wry smile and left.

But at 7pm tonight my mobile rang with a number I did not recognise and I answered it was the Doctor. He tried to ring earlier and it seems that the urine test came back and their are some issues. I have to pick up a prescription for some pills, I'm assuming are antibiotics, tomorrow and I have to have my kidneys tested for something or other.

One year with the man who should have made sure he was the smartest man in the room before opening his giant gate and I could not get a single diagnosis for the things that I KNOW I have. One week at this new surgery and kaboom! Three failed tests, more blood tests and other tests to come!

Now remember... the majority of pills, like even ibuprofen, have a bad effect on your kidneys. Many are toxins which have to be filtered out just like anything else, say like alcohol. Eventually you will knacker them out and how about this for irony? I was watching the end part of the third film, The Girl Who Kicked The Hornets Nest, in the trilogy and an old secret service guy needed kidney dialysis every two days to stay alive. When I restarted the film he was in hospital about to be arrested!

Now THAT is irony!

Now it only remains to be seen, listen to me with the only, what the results of the cholesterol, glucose, blood and kidney tests are. They did seem quite concerned about these and was shocked that they rang me at 7pm in the evening to tell me. I stated to the doctor that this was unusually professional of them where he chucked a bit before saying "we do try" and I said well not many do.

One had to wonder if that irony well be outplayed by the fact that anything that had been done to my kidneys is down to the crap and wrong drugs I have been given over the years. Also of interest would be any legal implications this may have upon the NHS in time. My guess would be that there will be some series implications. Like the cholesterol test, with me not eating take-away foods or smoking any longer, I also do not drink alcohol!

I have a sneaky suspicion that the NHS are going to start putting their hands together and praying that I am lying about many things but now that I do still smoke and drink like a fish?!

Oh dear.

Lmao!

In all this time and in all I have attempted to do I have relied on but one single thing...

Faith in the truth.