ONE LONG ROAD OF PAIN

Ooh boy! Has today been a bad one and it is only 1.30pm!

First off I am stuck between a rock and a hard place, quite literally and to say it is not stressful ... well I would be lying.

It also turns out that not only have the naysayers now decreed that the positive parts including money is all bullshit, that they have taken it upon themselves to decide that all the previous stuff, much I was present at and recorded dozens of things, is all bullshit too.

Damaged egos, eh?! LMAO!

Added to that is I have a GP appointment where I am going to try once again to be referred to an Osteopath over my back pain.

Oh and the nausea.

Oh and I must remember to mention waking up to discover my left hand is digging into a tender area around the base of my neck, which was already spotted twice and then retracted by the NHS. This may be linked to the nausea, you see?

Which may be linked to the back pain that was also spotted twice and then retracted.

Being wrongly diagnosed, especially when you yourself know what it is, is one thing. But being diagnosed and then having things retracted?

Happened with not only my back, twice, but also my right knee twice and an inguinal hernia on my right side. Recordings of the Doctor in question being caught red-handed by me and admitting falsifying test results and then retracting that too! Lol.

If I ever told them in anger I was recording them I would never  have acquired as much as I have. Let them lie, let them think they are getting away with it. Move onto the next thing, let them build up a great deal of over-confidence in lying ...

...carry on recording. Mount it all up ... post it all on the Internet when you have far more than enough.

Watch as journalists, newspapers and TV idiots act no different to those they expose and steal your stuff, alter it, go after their own but similar story and you get nothing in the way of thanks for it.

Well I did say the whole blog was a trap?! Remember? LOL!

I have now confirmed that high blood pressure is linked to Fibromyalgia and in so doing discovered a new drug, Milnacipran (brand name Savella) that is reported to have better affects with Fibromyalgia sufferers than the totally cheap crap and wrong drugs they fob you off with, like Gabapentin and Amitriptyline.

It seems that this new Milnacipran works on specific neurotransmitters in the brain that are affected by Fibromyalgia Syndrome which itself is partly driven, or mostly, by not having the sleep where your body repairs itself, including the brain itself.

Yeaahh ... imagine that next time your thinking about your friend or family member having something you do not believe or think does no exist, because of idiot medical ... umm experts? I think not.

I know because I went through it for 13 years, though it turned out I had had FMS for closer to 20 years!

I am not going to get into the number of things the NHS destroyed by being both idiots, deaf and liars because I have mostly done that already. Spent 3.5 years almost doing that on this blog ...

... saving money? I think not!

It also mentions the other drug which is the only one that work on the cause of Fibromyalgia, lack of restorative sleep, Sodium oxybate (brand name Xyrem).

Please note that on the page in the link below that Gabapentin is Neurontin, the latter being the brand name which they seem to fail to mention.

Sodium oxybate (Xyrem) is the drug that Dr Kirkham, specialist ion Fibromyalgia at Guy's Hospital, had, to my complete shock, never heard of. I told him it was a shock to hear that as it is the one and only drug that deals with the core problem for people with Fibromyalgia.

In other words it is not only dealing with the pain, not masking it, but deals with he fatigue too. I think this goes double for Chronic Fatigue  Syndrome which I believe is just Fibromyalgia Syndrome in its early stages,

If you have come here about the drugs I mention of Fibromyalgia or Chronic Fatigue, or other subjects for that matter ... you can search the archive! Lol.

So I am thinking about all that ... plus the two other things both concerning large amounts of money, one I do not want to be involved in and one I thought I was and now I am not ... how long for and why not I am in the dark about.

Of course as I stated previously my life has been made a living hell by the naysayers made up with those with damaged egos and those jealous with envy who do not want it to be true.

For the first time in several days I pop in to get something from a friends store and am on in serious back pain. I then decide to head to town for a brief pick up and head home. I bizarrely consider catching an unusual bus route home but miss a bus.

I am then walking down a long straight road I use and I get a third of the distance along it when ... WHAM! No George Michael has not crashed into another Prontoprint, or whatever it was, I get a sudden attack of one of my many other pains straight into my right foot!

I cannot walk! No buses down this road either! I stop for several minutes, lean onto my walking stick and wonder how a human is supposed to deal with this amount of pain, stress and thoughtlessness of others before trying to carry on. Two steps - bang, bang! Darn it this is seeming impossible.

Now here is the bit that no one considers nor asks about ... what do I at times like this? Well I have my walking stick and I stand there and think that there must be a walk that will keep the pain from firing off.

I walk with the heel on the right foot and try not to put the ball of my foot onto the pavement, it does not always work.

I limp and lean hard and my arms get tired and I switch arms and I feel light drops of rain on my face and think "please, no! Not fucking now!! You have made things hard enough at a tough time already, do not fucking rain now, its all you have done for week on end!!"

I look at the pavement stretching off into the distance. It suddenly looks a very long way away.

I have to make three major stops of several minutes, more leaning and questioning, along with a half a dozen stops of a few second here and there.

Despite actually thinking this was going to be the first time I was going to fail to get home., because of my location far from a bus stop, I struggled, bit my lip hard, got down deep and I worked through the pain and limped all the way home.

Oh how I wish that we could get just a week or two of some clear skies and wind free! You have no idea how much I so want some of those so that I can get out on my damned bike!

Because the other things I have to deal with, harder when your avoiding people, is the ever so annoying boredom!

The link to the drug I researched that holds the link to high blood pressure and Fibromyalgia along with the listed drugs above ... yes including the ones I get refused, like Pregabalin (brand name Lyrica) and the mentioned Sodium oxybate (brand name Xyrem), click the link ...

http://www.ukfibromyalgia.com/treatments/medication.html

THE HAND THAT SHOCKS THE DODO

The following was stated about the drugs currently used, in the US this is, for Fibromyalgia but there is no mention of Sodium oxybate.

For all that the drugs have done for Fibromyalgia (FM),  the evidence suggests that none of  these drugs are particularly helpful for many people with FM.   Dr. John Quintner of the National Pain  Report points out that  the Number Needed to Treat (NNT) for Lyrica indicates that only  one out of ten FM patients taking Lyrica is likely to receive a fifty percent  or greater reduction in pain. It’s one out of six for Cymbalta and one out of eight for Savella.   That means only a small  percentage of FM patients  can expect their pain  levels  to drop really  significantly on these drugs.

Here is hot this is started off and the drugs they mention, remember Mr Idiot that I have had two of these drugs and that they worked and about to be prescribed a third ...

“Pregabalin, duloxetine, milnacipran, and amitriptyline are the current first-line prescribed agents but have had a mostly modest effect. With only a minority of patients expected to experience substantial benefit, most will discontinue therapy because of either a lack of efficacy or tolerability problems.” Hauser

Now please note here that I disagreed with my last Doctor, Dr Gubbay at Abernethy House, who stated that all these drugs are the same and are all just painkillers? You might note from the above list that there are a fair few missing? Painkillers that is, after all they are all the same! The truth is even the drugs above are not all the same. Also note that he disagreed with me oin this because I stated I wanted Pregabalin as it was a modern, better and intended replacement for Gabapentin. He disagreed. Well note that Gabapentin or its brand name of Neurontin appears to be missing? Also note that they state 'first-line drugs' given for Fibromylagia? So where was my fecking Pregabalin? Pregabalin's brand name is Lyrica by the way.

Of course this could have been refused as it might have lead me to Fibromyalgia as I was unaware of my own condition at the time.

Please remember that a very noticeable effect of two consecutively prescribed drugs were list at the bottom of an articale where I had read of around a couple of dozen of my own symptoms that stated these were the only drugs known to have an effect on Fibromylagia! I had already strongly suspected I had the condition and hence why I was in my Town Library when I read this. SO I was reading several paragraqphs that were me to a 'T', or in a nutshell, which finshes off my telling me that, after thirteen years of asking, the two drugs I was consecuriveky prescribed were the only ones that worked!!

This was Black's Medical Dictionary! The GP that precribed those two drugs refused to give me Oregabalin and gave me Amitriptyline that I was convinced would ntot work but did. So imagine my horror and suprise whan I saw only these to listed as the only ones out of dozens of drugs to have an effect?!

Coincidence? DUMB-ARSE!!

Now if you recall I did state that I met with my latest Doctor and he told me I was right and no fool and that the reason that I was refused Pregabalin was because it was an expensive drug and the treatment for Fibromyalgia was expensive?

However despite these things being said to me I always keep an open mind. Unlike some people and I did state that my new GP stated this fact. According to this author the drug is cheap and Cannabis should prescribed? However I think it should be Sodium oxybate.

So what do you think that the chances are that you are lied to so that yu are not diagnosed to stop you claiming DIsability? Idiots should not read this as claiming Disability money under false pretences as I have no used these words in which case it should be taken as it is written.

I guess this Huaser guy is a big cheese across the pond?

Now what seriously concerns me here is the absolute bad picture that many people paint of the FDA and despite the number of English Doctors, and sorry I do mean English Doctors here, that have a negative view that often delves into sarcasm with American medicine. This is because on the face of it many of our decisions are alrgely based on what America does I am afraid to say.

The author of the webpage titles one section under it The Missing Drug and you would be completely forgiven for thinking at this point 'A-HA! He is talking about Sodium oxybate after all then?!'

Well no...nut oddly there is one other drug that worked for me and despite tellling dozens of Doctors this they would merely roll their eyes at me.

Why it is CANNABIS of course...

The survey found that one drug, however, was quite effective at reducing pain in Fibromyalgia. The catch is that it’s not, for political reasons, readily available  to many people in the U.S. for use or even for study. In an astonishing reversal of the findings  for the ‘big three’, over sixty percent of FM patients who had used medical marijuana in the past stated it was very effective  at treating  pain. 33% said it provided a little relief   and only five percent said it provided no relief.

I stated for years and have written of this throughout the life of this blog. If my memory was better I would have looked into a link between Fibromyalgia and Cannabis a lot earlier. In fact if I had one single raised eyebrow from stating Cannabis helps from one of the three dozen incompetent idiots that should ne be Doctors I would have looked up a list of all the things Cannabis is used for medically and would also have discovered Fibromyalgia years ago.

In which case I would never have found out that the NHS is corrupt and lies and misdiagnoses patients deliberately so they can continue commanding hudreds of thousands of pounds in salaries each paid for by tha taxpayer they never deserved.

In a nutshell Dwayne Dibley.

I am not currently using Cannabis, have not for a few years and releuctant too because I do not want to start smoking again! However I did manage to quite smoking before and only smoke Cannabis and in half the time that I have currently quit smoking.

Also as many of you know and a fact that will drive Mr Dwayne Dibley up the wall and down again is that this is ... very much about to change.

For along with a number of back up blogs this back up blog 'is my shit' and that one of the very many purposes of this blog was to make money eventually. A lot! Hahaha, moron. Added to this this would then make money until the other blogs all caught up.

After all I really could not continue my endeavours on forever! There would be a time when I ran out of reasons to create events or appointments where I could acquire more evidence, somehing I have stated before that quite possibly made someone else angry because they misunderstood what I was stating. Or perhaps they just thought I was continue on my putting up links to people making very bold claims without a shred of evidence by people thay had never met?

Nope despite the name calling by the idiot I refer to as Mr Dwayne Dibley the sole reason this blog has bene popular and successful and becomes more so every month is keeping it level headed. Because I always have been, depite what some thought. I simply had to acquire everything I needed to prove to everyone online that visited that tehse were in fact the events that took place and to prove to those I know OFFLINE that everything I ever said ore predicted for many years was true and based upon facts.

Thereby removing the possibility that shrinking violets with their heads in the sand, or just jealous, will try to deter others by flinging about accusations like a moron while not wanting to face the truth holding their fingers in the ears goin 'LALALALALAAAAA!!!!' while their heads are buried in the sand.

The nxt in the list of people I do not like after cocky know it all bullies with mental problems and liars holding positions of Health professionals or Doctor along with politicians. I mean there are mental problems and then there are mental problems with the worst kinds of personality with a bully-boy nature thrown in who cannot live with the fact he is gay! You ever wanted a recipe for destruction in human naature, he is it! Forget the book a solicitor said he could write about Basil Falty, lol.

In no particualr order of course!

The link to the statements I listed above and the author who made them ...

http://www.cortjohnson.org/blog/2014/05/15/medical-madness-feds-approved-drugs-fibromyalgia-dont-work-well-barring-access-one-might/

RETURN FLIGHT TO EARTH

Whoa!

That was quite bizarre. I just woke up thought it was morning looked st the clock and got confused when it said 9pm, lol.

My mind was then all in a spin until I remembered I was out of it but sure what time just yet I Erik have to look st time of the last posting on here as it was only couple of minutes after I posted.

In those few minutes I was attempting to focus on the feelings in my legs which is where I experience most difficulties.

With the about of Gabapentin I had taken, which had been 400mg thus far, I experienced tingling feelings in areas of my feet and calf muscles which feel like they have woken up from a deep sleep and I am feeling areas I have not felt for years. Along with the tingling is s feeling like a light trembling and I now notice it occurs in my thighs too to s order extent.

It is almost as if they are repairing themselves our recovering from something and despite the fact I'm still only half awake it feels almost as if they sure being felt fir the first time as mad as that sounds, lol.

It is also a comforting feeling and as if my mind now realises that this twelve year old plus problem is on its way to s conclusion, lol.

I do pray that this chain of thought is correct! We will see. If the stoned knocked out feeling to this 600mg port day settles down so the high as a kite feeling disappears completely, along with the unavoidable need to sleep then the upping of the doses may get to a happy medium in the coming weeks.

It really, REALLY is a surreal period is this. I have feelings in my legs I have not felt in a long times as well as a few of them diminishing too.

Now I would love to know the intricate and technical scientific details if what exactly has been going on. An understanding if how the pills have worked do to speak.

That nurse I spoke to said two things that have been echoing in my mind somewhat. These ARE a neurological drug and why did they not try me on these at an earlier date?!

It was around 2000 to 2001 when the problems started and fir the first year our two I must have been told by medical professionals over a dozen times it will dissipate in a few weeks?!

Tenosynivitis, Tennis Elbow, was what I was told initially and months later this was changed to Plantar fasciitis. I argued and disagreed with several Doctors and INSISTED this was but what I was afflicted with as the description of the symptoms were the EXACT OPPOSITE to what I experienced but that always fell upon deaf ears.

I am very eager to see what transpires over the coming weeks?! I also feel that getting to the 900mg per day will be damn close to being the optimum dosage for the problems I have long since suffered from.

What I find fascinating about this 900mg is that this was what the Pain Specialist started he wanted me on when he first prescribed Gabapentin for me?!

The dosages given are obviously now from 100mg to 3600mg daily though it states starting doses of 300mg daily, which is what I was first told I would be given, to 900mg daily. Now I find this quite odd for two reasons. First off I now realise that even starting at 300mg would have been DEVASTATING for me and God only knows what 900mg would have done, lol. Would be funny and explain a few things if this was a new drug and suddenly in a few months the leaflet to these Neurontin suddenly start starting a starting dose if 100mg a day, lol.

Yup it certainly is turning out to be an interesting time right now and the next few weeks is going to be quite revealing that is for sure.

If I can get some more content for each of my blogs this next month should be blowing my mind?!?!

EUREKA!

GABAPENTIN or NEURONTIN LINK AND INFORMATION

Here is a link and some quotes from the website for Gabapentin, or known by its brand name of Neurontin in my case here in the UK.

"These are just some of the off-label uses of Neurontin we’re aware of. Let’s start with some that it’s actually good for:

• All sorts of neuropathic pain
• HIV/AIDS-related neuropathy
• Phantom Limb Pain
• Anxiety
• hiccups

"

No idea bout the Anxiety in all honesty and first I heard about it.

"The main problems with Neurontin are dizziness, cloudy thinking, fatigue and klutziness." Ooh yeah!

"Edema. Really goofy thinking - hence the nickname “Morontin.” LMAO!! FUNNY! Ooh YEAH!! LOL.

"Neurontin (gabapentin) is a prime example of the Law of Diminishing Returns in that the more you take the less you get. Seriously. It’s right there in the PI sheet / PDR" Did NOT want to read this part!!

"Hah! That’s like asking the half-life of Lamictal or the taxonomy of the Leratiomyces ceres. While the Mechanism of Action/Pharmacodynamics section of the PI sheet for every drug on the planet is predicated with some variant of “We have no freaking clue of how it works. We’re pretty sure what it doesn’t do. So our best guess is…” Parke-Davis doesn’t even bother with the guesswork. "

LMAO!!

"Gabapentin is structurally related to the neurotransmitter GABA (gamma-aminobutyric acid) but it does not modify GABAA or GABAB radioligand binding, it is not converted metabolically into GABA or a GABA agonist, and it is not an inhibitor of GABA uptake or degradation.

In vitro studies with radiolabeled gabapentin have revealed a gabapentin binding site in areas of rat brain including neocortex and hippocampus. A high-affinity binding protein in animal brain tissue has been identified as an auxiliary subunit of voltage-activated calcium channels. However, functional correlates of gabapentin binding, if any, remain to be elucidated.—Neurontin PI sheet"

DO not ask me what the PI in PI Sheet stands for, Product Information or Pill Information at a  wild guess?!

http://crazymeds.us/pmwiki/pmwiki.php/Meds/

AUDIO: PAIN MANAGEMENT CONFUSION

Today I had another key time and date and for those that have forgotten or not reached that post stating what was approaching its is the following...

PAIN MANAGEMENT!!

How cool this was too!!

I got a phone-call a couple of days ago asking if I would not only come in a few days time but also I do not have to travel to the bloody hospital?!

Added to this that, and you will need to look back in the archives for this one, it is the SAME chap I met a year...no TWO years ago up at the hospital.

Oddly though his head dropped when I replied to his question of the diagnosis and I stated that I do not KNOW yet he then did something curious.

He stated he was going to add a drug to my list of drugs called Gabapentin, I think he said, and this was not only something to do with electrical signals to and from my muscles but also he seemed to be aware of the fact I had the Nerve Conduction Tests too?!

Now if you recall this test was about the electrical signals regarding my muscles to which the test results were negative but these pills ARE to do with the electrical signals to and from my muscles?!

Well if your confused beyond belief with that one well join the club and I am the chairman of the board?!

After leaving I thought how good it was to have met him again and have this new drug to add to my arsenal of drugs and hoping that it has some effect on some of my conditions, fingers crossed.

Turns out that the drug is given to patients that are epileptic but I have no grand mal seizures, though I did have one many years ago and do go light headed and warm and fuzzy often when I am out and grabbing hold of magazine racks so that I do not fall over, lol.

As I said to two friends afterwards maybe they DID find out something and just did not want to admit I was right and they were horridly wrong for all these years. Maybe that news has got to this pain management guy which is why he hung his head like he was in shame when I said I did not know and said results were negative and perhaps the DWP became informed too?!

It will probably turn out to be pure coincidence that I just so happen to have now been prescribed drugs that seem to be linked to the Nerve Conduction Studies and Electromyography tests.

Oh but HEY...do not take MY WORD for it, LMAO...

...as EVER...

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/PainMANAGEMENT020513.mp3/