IT IS ALL ABOUT THE MONEY

I was just explaining to someone earlier about how much debt we are in, how long the cuts have gone on and how long it will take to get out.

We wont get out because they go after the money in the wrong places, people with health conditions, disabled people, unemployed and the low paid. Very little money has been saved in comparison to how long we have now been at this.

So then how about going for it in the right places?

I stated that if Doctors, Hospitals, general Practitioners and Nurses have been asked to lie, lie and lie again then ... why have them at all?

I mean surely to God money will be saved a damn site quicker if you just shaved everything back to its bare essentials until you rebuild something better and more efficient?

How much money is being wasted employing people to say 'no' or 'computer says no!'?

The answer is; an effing lot!

So due to some things going on I have been looking around researching some things when I came across this webpage to do with drugs for Fibromyalgia. It is on www.drugs.com but will place the direct link below.

There is a long list of drugs that is something of a surprise to me and then some. Of course Lyrica, Pregabalin, is one of the most taken drugs as it is one of the best, but not the best, drug for the condition. 

Milnacipran I have discovered works a great deal better than even Pregabalin but this was refused to be allowed for Fibromyalgia by Europe! You know ... Europe!!

That same Europe also disallowed the one and only drug to deal with the root cause of Fibromyalgia, lack of restorative sleep, which is sodium oxybate. In effect it is a sleeping drug. Except it is not allowed because ... well basically it works too well.

But I hear you thinking ... but wait a minute? There are loads of sleeping drugs on the market? Are there? Because I have taken several and they did not do a damn thing. Well except for a whole string of people in a line making money out of it though. Apart from that the drugs do not work ... unless takenm in a very high dose along with tranquilisers. I know this because I have done that!!

When your desperate and those tasked with helping you do fuck all then desparate times means desperate measures, I am afraid to say.

I did not know about Cymbalta, or duloxetine but have Savella, or Milnacipran.

Tramadol is a suprise addition to that list because a pain specialist told me it would not work on my Fibromyalgia over two years before Fibromyalgia was diagnosed ... yeaah I am going to let that one sink in a little tiny bit ...

If and when you look be careful as some drugs are listed twice .... Lyrica, which is Pregabalin, is listed along with the drug in its chemical name ... errr Pregabalin. Meaning close to 500 people reviewed the drug for the condition and by far the highest on their.

Except I cannot tell you what it is like because I have been refused it for three whole years.

Anyway if you have Fibromyalgia or Chronic Fatigue Syndrome you might want to use the last below. Many of these do not work or only work minimally for me but they might work for you?

Oh and one last thing ... if I wanted to use the system to get money then when accused of being mad and need psychiatric treatment by a previous GP, because he was a liar and a wanker, then I would have said ... YES!! Dumb arses!

Just wanted to say that one last thing, lol.

https://www.drugs.com/condition/fibromyalgia.html

DRUG FUELED STATES OF BLISS

So then some medical people finally come out and state that taking drugs should be decriminalised?

Sensible. Not sure that's going to be across the board, it even sensible series the board?

For the most part it is.

However making this possible is going to create one hell of a logistical problem, or more precisely remove logistics altogether in a certain organisation. I will get to that shortly.

As far I'm concerned this could me a God send?! You see I'm not allowed several drugs that are for my condition and this includes around 120 symptoms. Yup you read that correctly, one hundred and twenty symptoms. Sound incredible? Well if I was one of the very unlucky ones it could be add many as around 200.

Whenever I mention the amount I always get this idea where naïve people and those a little slower than most ask themselves "How can anyone have that many areas in pain? It's impossible?!"

Well if you do I will first ask; oh your a Doctor or specialist are you? Then maybe I should have a direct line to you?

Then I would follow up with; Umm the word 'symptom' means exactly that and not pain!

If your that interested then I'd say the pains are over a dozen ... maybe two dozen? I don't necessarily keep track, some are permanent, done semi-regular and others only occur note and then. I get night cramps in my calves and although this is mostly an odd feeling like I'm going to get pain but don't, the bad pain only occurs once or twice each year. Thank God as several times a year and I'd take my own life if this was the case!

But I've been taking both Quinine Sulphate and magnesium sulphate to prevent it occurring. When it does the pain is so intense that you cannot actually utter a simple word. It's very weird or would be if not so bloody painful.

Sodium oxybate is the only drug to deal with the actually source of the problem with Fibromyalgia Syndrome. But you can only get it if you suffer with narcolepsy. Though it's not nice the comparison with Fibromyalgia is quite startling and I get narcolepsy like symptoms along with everything else. I did this afternoon.

I was on my computer in the afternoon and the next thing I knew I was waking up and it was after 9pm and late enough to be dark on the 17th June.

If you get any paraphernalia on Fibromyalgia it can actually mention that a certain drug helps a great deal with the condition. It does not name it but it's clear they are speaking about Cannabis.

I went through periods where I smoked it socially and got into smoking it privately and it does have a far better effect than all I've been prescribed combined!

But then that's probably because asking with sodium oxybate you are also not allowed to have milnacipran too!

It gets better as there is another drug called Pregabalin and they won't give me that either because of the cost!

So ... the best three drugs for FMS are not allowed and the other refused over expense! So I get the crappy and cheap crap fourth end fifth drugs in the list of effectiveness for FMS.

They wonder why the NHS and the country is in a mess?!

Narrow minded, selfish, amoral and inconsiderate arseholes without a shred of compassion while worrying about their salaries while pushing pens.

Hmm? Well I think that just about covers them all? All public services, local and central government?

Oh yeah that logistical problem?

Well what the fuck will the Police have to do add they don't do fucking anything else, rich and celebrities aloud to get away with murder, well pretty much almost, and laws are completely ignored fifty percent if the time.

At least the keep Krispy Kreams going strong in the financial crisis?!

Health bodies call for drugs to be decriminalised - http://www.bbc.co.uk/news/uk-36544380

EUROPEAN MEDICINES AGENCY - RESPONSE AND REPLY

Well I finally got a response to my questions of why sodium oxybate and milnacipran were turned down for use with Fibromyalgia.

Rather bizarrely they have responded and included Pregabalin with these two which, though I mentioned, is cleared for use with Fibromyalgia as far as I was aware!

Now if I missed something here and Pregabalin has not been cleared for use with Fibromyalgia I am a bit confused as to not only why I was told I would be prescribed it but that not a single GP or specialist I have mentioned the drug to has replied that it is snot cleared for Fibromyalgia.

Conclusion?

It is not cleared by the NHS for use with them and I was given a bullshit excuse for this too as they thought I had been told or informed it was not cleared for use.

Did they just let the proverbial cat out of the bag here?

Anyway I will now paste their full email response along with my reply ...


EUROPEAN MEDICINES AGENCY ..

Dear Mr Haswell

Thank you for your letter of 30 November.

The decision to apply for marketing authorisation of a medicine in a particular indication is not made by the European Medicines Agency (EMA), but the companies concerned. The Agency can only evaluate the evidence with which it is presented and can only approve a medicine for marketing if the benefits are clearly demonstrated and outweigh the risk of side effects. EMA’s assessments do not consider matters of cost and reimbursement, which are handled at a national level.

However, in the treatment of fibromyalgia, good evidence of effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran when the companies marketing these medicines applied to the EMA to authorise such use.
In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. As a result the EMA’s committee of experts responsible for the evaluation considered at that time that the benefits of the medicine did not outweigh its risks, and recommended against approving it to treat fibromyalgia. Details of this evaluation are given in the Agency’s assessment report at: http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000593/WC500106940.pdf.

With respect to pregabalin, in 2009 Pfizer Ltd presented the results of five main studies involving over 3,000 adults with fibromyalgia. Again, most of the patients included in the studies came from outside the EU. After evaluation, the Agency was similarly concerned that the benefits of Lyrica in fibromyalgia had not been shown in either the short or the long term in patients from the EU. There were no consistent or relevant reductions in pain or other symptoms in the short-term studies. In addition, the change in symptoms did not seem to be related to the dose of Lyrica that the patients received, and the maintenance of Lyrica’s effect was not shown in the longer study. At that point in time, therefore, any benefits of Lyrica in the treatment of fibromyalgia did not outweigh the risks of its known side effects. Hence, the Agency recommended that the change to the marketing authorisation be refused. For further information, see http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000546/WC500076177.pdf.

In the same year, an application was made to EMA by the company Pierre Fabre Médicament for the use of milnacipran to treat fibromyalgia. After evaluation of three main studies, involving 2,960 adult patients with fibromyalgia, the Agency’s scientific experts were of the opinion that the effect of the medicine was marginal. There was again a lack of data on the long-term effects in a European population. Therefore, at that point in time, EMA was once more of the opinion that the benefits of the medicine in the treatment of fibromyalgia did not outweigh the risks, and recommended against marketing authorisation. For more information on this, including details of the assessment, see under the various tabs on http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/001122/human_med_001313.jsp&mid=WC0b01ac058001d124

Should a further appropriate application for use in fibromyalgia be made for any of these medicines, the Agency would thoroughly evaluate any new scientific evidence presented, in order to reach a decision on whether to recommend marketing authorisation.
The Agency’s remit covers the scientific assessment of medicines and the monitoring of their safety once they are marketed, and we are unable to comment on the other matters covered in your letter.

A copy of this reply has also been sent to you by post.

Kind regards


Paul Blake

Stakeholders and Communication Division



MY REPLY ...

European Medicines Agency

I have received your report on the situation regarding the application of the drugs sodium oxybate (Xyrem), pregabalin (Lyrica, though I never said it was refused to be used only refused over money and this has been told to me by at least two Doctors) and milnacipran.

• “effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran “
• 1) This conflicts greatly with everything I have ever researched and even solicitors I worked for stated that I am extremely good at research
• 2) This also conflicts with the patients accounts of the use of these drugs

• “In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. “
• This is a … frankly bizarre statement … also ... WHAT side-effects?

• 1) Are you stating that thins are not done this way in Europe in which case why would they ever bother approaching Europe over these drugs

• 2) I very much doubt that drug companies would approach the EU, despite my understanding of their underhanded nature and dislike of them, with drugs that do not clearly work or cause such terrible side effects

• 3) All drugs have side effects and do you not think it I down to the patient when it comes to weighing up the risks to the benefits? Anyone can so no or do you not think that patients are capable of rational thought?

• 4) Further to the first point … where are your own trials?

• 5) Your statement of weighing up the benefits and risks contradicts your statement that there was little or no effectiveness

Do you know what I constantly think of several time each week and have done for the last 7 years at least?

What it would be like to actually take sodium oxybate even for just a week to ee what it feels like to be normal once again.

I also ponder that as the Fibromyalgia Syndrome issue is lack of restorative sleep and that symptoms collect over many years that taking sodium oxybate for just one week may reset everything back to the start prior to being affected by my first ever symptom.

In other words having none at all or only one of the 120 odd symptoms I currently experience.

Another conclusion I have come to regarding just the case with Fibromyalgia Syndrome is that the people that make up the committees and organisations that make thee absurd decisions are idiots made up of friends of people in government, central or local, that have not the first clue about just how bad some conditions can be on the human body as well as the mind.

Your answer has had zero effect in changing that view.

Incompetence, corruption and general skulduggery can manifest absolutely anywhere and in my years of endeavours I have generally found it to be everywhere I look 100% of the time.

In which case and in every instance there is a general protocol that exists for making challenges, legally or otherwise, to said organisations.

I would like to ask of you what exist for you?

Can you provide me with a ombudsman for you or governing body or even a watchdog? I imagine any challenge would be quite tricky for any professional body especially when they have other professional bodies that conflict with their reasons that are based on something as flimsy as …

Side effects of drugs.

This made even said drugs are cleared for ailments that re not even in the same league as Fibromyalgia Syndrome.

Now I will mention my blogs once again.

I blog about corruption and I have covered organisations in the dozens. As big as you like. I have never been challenged bot that is because of who I am and how I do things.

No bullshit. I am honest in everything I do, sincere and to the point no matter how sharp this may be. Except that when I do this I am not doing this purely through my blogs on corruption.

You might have noted the letters after my name? BSc Applied Computing.

I do a blog on computer hardware and software with some gadgets thrown in. But this is not my only subject of expertise and I provide blogs on …

• Batrachology
• Herpetology
• Ichthyology
• Astronomy and Astrophysics
• Orchidaceae
• British Wildlife
• others including Kung Fu, Photography, Music, Movies and more

My corruption blogs alone number around 3,000 posts and some read like Tolstoy's War & Peace.

I have a dozen blogs and the amount of writing involved is astronomical and with each and every one what people see is someone level headed, factual, professional and honest. Someone that does not like what he sees, dislikes the lack of professionalism, abuses of positions of power and what the UK has become.

Someone that has not just gone out and done something about it but has spent years secretly recording, collecting and compiling letters that go back 20 years and publishing everything for to help other victims, people suffering physically, mentally or both.

What surprises people most of all is that I have done this alone and there is one very outstanding endeavour that over-shadows everything I have done previously.

Despite many of my endeavours being worthy of front page national tabloid news this one last one is capable of a front page serial all on its own.

If they are surprised at what I have done and achieved so far with my excess of 100GB of data it is nothing compared to what is coming over the next couple of months. Something that will amass so much attention that it will make the 300,000 visitors I have had thus far look like a drop in the ocean.

While I twiddle my thumbs waiting for this to happen I had some requests to my GP go unanswered and I know all the reasons why. As I have proved them in the past over and over again to show my visitors this is not a localised incident, not a one off but that many Doctors and GP's are lying and are doing so under command.

Indeed many of the stories that have arisen on everyone, not just the NHS, have originated as one my stories.

Indeed if I inform you that the late backbench Labour MP, Michael Meacher, approached me via email in January 2013 requesting if he could use my blog data to atack Iain Duncan-Smith in the House of Commons while end others to the news media I am sure you will realise that even two years ago I had a hell of a lot of data?

I have not even published half of what I have!

So getting back on track …

I found myself being fobbed off again, I looked up the link between high blood pressure, which I have and my father died of a burst aneurysm at 56, I am 47 nearly, and read about milnacipran and it being refused along with sodium oxybate. I then decided to look into who make these decisions and mount another challenge against another organisation.

It kind of kills the time while my secret four year long court battle waits to hit the headlines and gives me something to do while peaking my interest.

So that procedure/ombudsman/governing body I asked for?

I look forward to hearing from you with great interest.

Yours sincerely

Martin Haswell BSc

YET ANOTHER ADDITION - EUROPEAN MEDICINES AGENCY

Well while working out some things and awaiting the outcome of others I decided to look up that which my GP asked me too, the link between high blood pressure and Fibromyalgia.

Well it turns out there is one, I am learning something new all the time.

Now here is where it gets interesting, especially if you are a sufferer or close to someone that is ...

On the page I found it also lists all the drugs that work on this horrid condition, including that one that Dr Kirkham of Guy's Hospital had not heard orf despite it being the only drug that works on the core problem ... sleep, Sodium Oxybate (brand name Xyrem).

Now I cannot find the damned web page!

Anyhoo ... on the webpage it states a few things I did not know ... one of them a new drug for Fibromyalgia called Milnacipran (brand name Savella). This works like Amitriptyline but turns out works on the specific neurotransmitters that affect us with FMS! Sounds too good to be true but there is a greater lean towards this drug for FMS sufferer and many have claimed it works very well.

However, this still does not deal with the lack of sleep problem and it reportedly only works with the pain and not the fatigue side of things of FMS. Still, better than nothing.

Except ...

I also learned that both drug companies to both drugs, maybe one company for both as I cannot remember, approached Europe about clearing them for use for Fibromyalgia and to the drug companies surprise Europe said no to both?!

So I got annoyed with this and decided to 'tear a new one' off the European Medicines Agency over it, their bureaucratic crap and the fact that they are not being very nice to sufferers of not just Fibromyalgia Syndrome but obviously a great many  sufferers across the board!

Would you like to see the letter? They have already acknowledged my letter ...


EMAIL...

30^th November 2015

European Medicines Agency
30 Churchill Place
Canary Wharf
London E14 5EU
United Kingdom

Dear Sirs

FIBROMYALGIA SYNDROME MEDICATION

I have had Fibromyalgia Syndrome for nigh on twenty years.

I had been pressing hard for a diagnosis for 13 years when I discovered Fibromyalgia and self diagnosed it as that affecting me. I have in the region of 120 symptoms, so it answered many other things that idiot GP's across six surgeries, over a dozen, and six hospitals failed to spot.

I argued with the above Doctors the whole time.

I not only proved I was correct but I also discovered that they, the NHS, had known I had Fibromyalgia for at least three year and lied to me about it.

I recorded them for several years and even many admitting they had lied and been asked to lie to patients.

I have recorded many diagnosis that was also retracted.

I can assure you that many of my endeavours have been picked up, mimicked or mirrored by the varous news media outlets.

Because I post on blogs and of the many subjects, primarily science, that I over I also cover corruption both in the public services, oh and the NHS are by no means alone in corruption, and private companies.

I have well over 100GB of data.

However I have still had some issues even after diagnosis and still am today.

I had my Fibromyalgia confirmed at Guy's Hospital by a Doctor Kirkham and a specialist in FMS who also spotted and diagnosed a physical problem with my right knee, done by performing a Lachman's Test. However I was shocked to discover that he had never heard of Sodium oxybate, Xyrem.

I was already aware that Sodium Oxybate was the one and only drug that dealt with the source of the issue with Fibromyalgia Syndrome and one that you cannot deny is pretty serious …

Lack of stage 3 and 4 restorative sleep? Really?!

Your going to hide how serious this is?

Do I have to explain how many parts of the human anatomy, including the brain itself, that this has a degrading affect on?!

So imagine my confusion when I discover that Sodium Oxybate is not allowed to be prescribed for Fibromylagia Syndrome but IS for Narcolepsy?! Really?! Are you serious?!

Well you quite obviously think yourselves of a different sect of the human race from the rest if us?

To make matters worse there is Pregabalin. At the time of the Lachman's Test on my knee I was promised Pregabalin. I was told that a letter would be forwarded to my GP.

When it arrived the letter had clearly not only been interfered with, likely intercepted, but had the knee condition, the Lachman's Test or mention that I screamed In pain from it and the prescription for Pregabalin removed from it!

Oddly enough someone at the NHS had figured out that I had been recording them but failed to realise I had been doing this for five years or more.

With a grin I was not prescribed Pregabalin as he had told me unless a Doctor prescribed it from Guy's Hospital he would not do it. He had made e turn off several devices so that we were not recorded first.

We rowed for an hour and all the patients heard us.

I offered him the testimony by way of a CD of the whole appointment at Guy's Hospital that included the Lachman's Test along with the promised Pregabalin.

He refused to listen to it based on the same lie he had accused me of … breaking the law, which I pointed out in steps why I had not broken any laws.

To his dismay he later discovered that I had indeed recorded our entire row for like 50 minutes and posted it on my blog that same night.

It seems the punishment for discovering that 100% of British GP Surgeries lie is pretty bad and I was kicked off for a breakdown in trust?! Was he effing serious?!

I had known for several years I was being lied to and they made the mistake of thinking that he and hi surgery was the first ones to be recorded by me. Nope.

Several Doctors at Abernathy House Surgery

Dr Roobans Surgery, who quit over me

Paperwork on Cartlon House Surgery and …

Forest Road Medical Centre

Where every single one lied!

Along with …

Guy's Hospital

Royal Free Hospital

Chase Farm Hospital

St Michael's Hospital

Potters Bar Community Hospital

Barnet Hospital

and paperwork from Whipps Cross Hospital

Trust me when I state that what I have regarding my chasing down Fibromyalgia alone is a lot but that is not including chasing down diagnosis for …

Right Knee Pain (tricked, manipulated and retractions)

Hiatus Hernia (refused operation for 20 years, severe heartburn like heart attack)

Oesophagitis Grade C

Extreme chronic Nausea

High Blood Pressure, Hypertension Stage 2, often over 170 and 180 at rest along with …

Postural Hypotension that causes me to black out and fall over

Inguinal Hernia (only op I had and it now causes me pain)

Inguinal Hernia (diagnosed then lied about)

Each of those I acquired a mountain of evidence on.

All of this along with two Police Forces and four local councils has all been posted on my blog over 3.5 year and rising and to date I have had in excess of 250,000 people and this is rising faster than ever.

I never lie.

I never ever fabricate.

I am known on my blog for holding my hands up if I have gotten things wrong.

Even with my theories and predictions I very rarely get things wrong.

I have many top professionals in the literary agency fields and even Doctors follow me and my data has been used the late Michael Meacher MP to attack Iain Duncan-Smith in the House Of Commons and in the email request I still have he asks if he can send elements of to the news media.

That was January 2013 and likely where more questionable journalists discovered me and what I had done and acquired?

So then?

Why are you screwing over Fibromyalgia Syndrome sufferers?

It appears to be intentional.

I will warn you here and now that if your doing this on that moronic notion that FMS does not really exist, I will rip a hole in your organisation that size of Australia.

I have already done this to dozens of Ombudsman, for every single one of the dozens of organisations I acquired data on I also got the same on their ombudsman.

It is all on my blog.

I wont give you the blog … as most people ignore it until it is too late so it is a waste of time doing so.

Why have you not approved Sodium Oxybate nor Milnacipran for Fibromyalgia and why cannot even get a months worth of Pregabalin to see if this works?

Yeaaah do not state anything about costs … I have already ripped several holes in that one because costs are not merely down to the drug alone. Not prescribing the correct drugs has far, far greater costs in the long run and that does not include anyone taking anyone else to court over the damage caused.

Oh and damage?

How about having twenty years of someone's life destroyed that had the most serious knock on effect to a number of children having lives and stories worthy of the front pages of national newspapers?

Yeah … you had better dig around on my blog for that one … ooh if you can find it of course?!

One last thing to warn you of …

Do not me either patronizing nor condescending ass I have a tendency to not only react but explicitly point out why it is wrong to do that and in each case point out the fact that you organisations are not as bg, important as you think you are and nor possess the intelligence to act that way.

Just trying to avoid a repeat of wars that have occurred many times previous and happening right now.

Do not bother with the whole, 'told in confidence' thing on the letter heads or envelopes either as it just wont wash.

I look forward to hearing from you with great interest.

Yours faithfully

Martin Haswell BSc

ONE LONG ROAD OF PAIN

Ooh boy! Has today been a bad one and it is only 1.30pm!

First off I am stuck between a rock and a hard place, quite literally and to say it is not stressful ... well I would be lying.

It also turns out that not only have the naysayers now decreed that the positive parts including money is all bullshit, that they have taken it upon themselves to decide that all the previous stuff, much I was present at and recorded dozens of things, is all bullshit too.

Damaged egos, eh?! LMAO!

Added to that is I have a GP appointment where I am going to try once again to be referred to an Osteopath over my back pain.

Oh and the nausea.

Oh and I must remember to mention waking up to discover my left hand is digging into a tender area around the base of my neck, which was already spotted twice and then retracted by the NHS. This may be linked to the nausea, you see?

Which may be linked to the back pain that was also spotted twice and then retracted.

Being wrongly diagnosed, especially when you yourself know what it is, is one thing. But being diagnosed and then having things retracted?

Happened with not only my back, twice, but also my right knee twice and an inguinal hernia on my right side. Recordings of the Doctor in question being caught red-handed by me and admitting falsifying test results and then retracting that too! Lol.

If I ever told them in anger I was recording them I would never  have acquired as much as I have. Let them lie, let them think they are getting away with it. Move onto the next thing, let them build up a great deal of over-confidence in lying ...

...carry on recording. Mount it all up ... post it all on the Internet when you have far more than enough.

Watch as journalists, newspapers and TV idiots act no different to those they expose and steal your stuff, alter it, go after their own but similar story and you get nothing in the way of thanks for it.

Well I did say the whole blog was a trap?! Remember? LOL!

I have now confirmed that high blood pressure is linked to Fibromyalgia and in so doing discovered a new drug, Milnacipran (brand name Savella) that is reported to have better affects with Fibromyalgia sufferers than the totally cheap crap and wrong drugs they fob you off with, like Gabapentin and Amitriptyline.

It seems that this new Milnacipran works on specific neurotransmitters in the brain that are affected by Fibromyalgia Syndrome which itself is partly driven, or mostly, by not having the sleep where your body repairs itself, including the brain itself.

Yeaahh ... imagine that next time your thinking about your friend or family member having something you do not believe or think does no exist, because of idiot medical ... umm experts? I think not.

I know because I went through it for 13 years, though it turned out I had had FMS for closer to 20 years!

I am not going to get into the number of things the NHS destroyed by being both idiots, deaf and liars because I have mostly done that already. Spent 3.5 years almost doing that on this blog ...

... saving money? I think not!

It also mentions the other drug which is the only one that work on the cause of Fibromyalgia, lack of restorative sleep, Sodium oxybate (brand name Xyrem).

Please note that on the page in the link below that Gabapentin is Neurontin, the latter being the brand name which they seem to fail to mention.

Sodium oxybate (Xyrem) is the drug that Dr Kirkham, specialist ion Fibromyalgia at Guy's Hospital, had, to my complete shock, never heard of. I told him it was a shock to hear that as it is the one and only drug that deals with the core problem for people with Fibromyalgia.

In other words it is not only dealing with the pain, not masking it, but deals with he fatigue too. I think this goes double for Chronic Fatigue  Syndrome which I believe is just Fibromyalgia Syndrome in its early stages,

If you have come here about the drugs I mention of Fibromyalgia or Chronic Fatigue, or other subjects for that matter ... you can search the archive! Lol.

So I am thinking about all that ... plus the two other things both concerning large amounts of money, one I do not want to be involved in and one I thought I was and now I am not ... how long for and why not I am in the dark about.

Of course as I stated previously my life has been made a living hell by the naysayers made up with those with damaged egos and those jealous with envy who do not want it to be true.

For the first time in several days I pop in to get something from a friends store and am on in serious back pain. I then decide to head to town for a brief pick up and head home. I bizarrely consider catching an unusual bus route home but miss a bus.

I am then walking down a long straight road I use and I get a third of the distance along it when ... WHAM! No George Michael has not crashed into another Prontoprint, or whatever it was, I get a sudden attack of one of my many other pains straight into my right foot!

I cannot walk! No buses down this road either! I stop for several minutes, lean onto my walking stick and wonder how a human is supposed to deal with this amount of pain, stress and thoughtlessness of others before trying to carry on. Two steps - bang, bang! Darn it this is seeming impossible.

Now here is the bit that no one considers nor asks about ... what do I at times like this? Well I have my walking stick and I stand there and think that there must be a walk that will keep the pain from firing off.

I walk with the heel on the right foot and try not to put the ball of my foot onto the pavement, it does not always work.

I limp and lean hard and my arms get tired and I switch arms and I feel light drops of rain on my face and think "please, no! Not fucking now!! You have made things hard enough at a tough time already, do not fucking rain now, its all you have done for week on end!!"

I look at the pavement stretching off into the distance. It suddenly looks a very long way away.

I have to make three major stops of several minutes, more leaning and questioning, along with a half a dozen stops of a few second here and there.

Despite actually thinking this was going to be the first time I was going to fail to get home., because of my location far from a bus stop, I struggled, bit my lip hard, got down deep and I worked through the pain and limped all the way home.

Oh how I wish that we could get just a week or two of some clear skies and wind free! You have no idea how much I so want some of those so that I can get out on my damned bike!

Because the other things I have to deal with, harder when your avoiding people, is the ever so annoying boredom!

The link to the drug I researched that holds the link to high blood pressure and Fibromyalgia along with the listed drugs above ... yes including the ones I get refused, like Pregabalin (brand name Lyrica) and the mentioned Sodium oxybate (brand name Xyrem), click the link ...

http://www.ukfibromyalgia.com/treatments/medication.html

FIBROMYALGIA & SODIUM OXYBATE

Well I just had some good news regarding a FIBROMYALGIA HOSPITAL BEING BUILT?! (see bottom of page) I received this from a blog writer while I was looking up Sodium oxybate and it efficacy for Fibromyalgia Syndrome.

It is a very, very sad state of affairs and I am not impressed at all at the way medicine is being handled either here or over in America. After an impressive clinical trials of Sodium oxybate that worked so well that pateients were balling tears over the relief the morons on the FDA panel did that which I absolutely hate, actually took these positive trials and said they were shit and not proof!

Why?

Because this drug can be used like a drug and has drug like effects on people?! ARe they for fecking real?! Lol, I have never heard anyone sound so bloody stupid in all my life! What is a moron like that doing on a board to decide what drugs get approved or not?!

If this is because of drugs "getting out there" then your doing something very wrong and to refuse patients like me who have a genuine need for it is wrong, based on the fact that it can be abused?!

Well give up and go home! We live in societies full of abusers and for all manner of reasons, many bad I know. But this is because society fails and you do not help it but leaving hundreds of thousands of pain sufferers in a living limbo like hell, and I am only speaking of one condition here!

Would you prefer that all drugs were just placebos?! Would would the of you then be? Why your salaries?!

Sometimes I see and hear such idiots in jobs of great responsibility sitting their like Lords of the manor giving a thumbs up or down like little Caesars after a gladiator fight!

Anyway, that was 2010 and lets hope they got caned big time stylee for that one?! It is approved here in the UK for Narcolepsy and this is shown on the NHS' own site! As I stated this is very stupid situation because I get the daytime sleepyness on top of all the myriad list of other things besides! So you can get it if you have Narcolepsy symptoms that is classed as Narcolepsy but you cannot get it for Narcolepsy symptoms if your condition is called Fibromyalgia despite the fact it can help with up to around 200 symptoms, never counted them all and I have over half of those, that Fibromyalgia causes?!

Absolutely no common sense here whatsoever! Now for some links ...


Link about Sodium oxybate and Fibromyalgia and its use for Narcolepsy ...

http://www.medscape.com/viewarticle/747038


This one regarding Sodium oxybate being turned down by the FDA, in 2010, for use with Fibromyalgia and yet the page states that clinical trials were excellent and that a better drug for Fibromyalgia is sorely needed!

EXPERT OPINION:
Insomnia, fatigue and pain are important clinical FM symptoms that showed moderate improvements with SXB in several large, well-designed clinical trials. Because of the limited efficacy of currently available FM drugs additional treatment options are needed.

[Sodium oxybate] would provide a much-needed addition to presently available treatment options 

Despite its proven efficacy, SXB did not receive FDA approval for the management of FM in 2010, mostly because of concerns about abuse.

LINK:  http://www.ncbi.nlm.nih.gov/pubmed/21679091


Some interesting quotes which repeat basically what I have said and found with my discussion with Doctors ...

The history of the study of FMS is punctuated by conflicting ideas about the characterization of the syndrome, the origin and extent of the myriad symptoms and ultimately the appropriate therapy for the condition.

In 1904 the term 'fibrositis' was coined for a group of painful disorders that did not meet the more formal criteria for such conditions as rheumatoid arthritis or osteoarthritis. There were schools of thought suggesting the pain was of psychopathological origin because there was no obvious physiological evidence for muscle and/or articular pathology.

In 1975 Moldofsky and colleagues reported a possible biological marker for FMS describing a 'non-REM [rapid eye movement] sleep disturbance' in patients with 'fibrositis syndrome' (see the section on 'Fibromyalgia and sleep') [Moldofsky et al. 1975]. Shortly thereafter, the term fibrositis was replaced by the current appellation: fibromyalgia.

A different kind of pharmacological agent, sodium oxybate (SXB), is described that is currently approved for the treatment of excessive daytime sleepiness and cataplexy in patients with narcolepsy.

LINK: http://www.medscape.com/viewarticle/747038


Greater detail on the refusal of approval by the FDA and that it very strangely contrasted like night and day with the clinical tests ... Note how it states that many sufferers broke down in tears at how Sodium oxybate helped with their Fibromyalgia, obviously having tried everything else?!

The panel's vote contrasted with the FDA's view of the data provided by Jazz, which included two studies measuring pain relief, and another study that tested its effectiveness as a sleep aid.
"The agency agrees that there is evidence of efficacy" for treating pain, said FDA statistician David Petullo, MS, who reviewed the studies. The FDA did not, however, accept Jazz's claims that sodium oxybate had a positive effect on sleep.
In the public comment period, the majority of the speakers supported approval of the drug. Many of them had participated in the Jazz-run studies. They explained, often emotionally, how much they had benefited from sodium oxybate after failing to respond to any of the three drugs approved to treat fibromyalgia.

"When drugs like GHB get out there, we wish it hadn't happened," said Thomas Kosten, MD, a Baylor University professor of psychiatry and addiction.

LINK: http://www.webmd.com/fibromyalgia/news/20100820/fda-panel-rejects-xyrem-as-fibromyalgia-treatment

I was just informed by a fellow blog writer who also suffers from Fibromyalgia that there is a Fibromyalgia Hospital?! It is currently being built and 40 miles from Glasgow?!

How cool is that?!

THE HAND THAT SHOCKS THE DODO

The following was stated about the drugs currently used, in the US this is, for Fibromyalgia but there is no mention of Sodium oxybate.

For all that the drugs have done for Fibromyalgia (FM),  the evidence suggests that none of  these drugs are particularly helpful for many people with FM.   Dr. John Quintner of the National Pain  Report points out that  the Number Needed to Treat (NNT) for Lyrica indicates that only  one out of ten FM patients taking Lyrica is likely to receive a fifty percent  or greater reduction in pain. It’s one out of six for Cymbalta and one out of eight for Savella.   That means only a small  percentage of FM patients  can expect their pain  levels  to drop really  significantly on these drugs.

Here is hot this is started off and the drugs they mention, remember Mr Idiot that I have had two of these drugs and that they worked and about to be prescribed a third ...

“Pregabalin, duloxetine, milnacipran, and amitriptyline are the current first-line prescribed agents but have had a mostly modest effect. With only a minority of patients expected to experience substantial benefit, most will discontinue therapy because of either a lack of efficacy or tolerability problems.” Hauser

Now please note here that I disagreed with my last Doctor, Dr Gubbay at Abernethy House, who stated that all these drugs are the same and are all just painkillers? You might note from the above list that there are a fair few missing? Painkillers that is, after all they are all the same! The truth is even the drugs above are not all the same. Also note that he disagreed with me oin this because I stated I wanted Pregabalin as it was a modern, better and intended replacement for Gabapentin. He disagreed. Well note that Gabapentin or its brand name of Neurontin appears to be missing? Also note that they state 'first-line drugs' given for Fibromylagia? So where was my fecking Pregabalin? Pregabalin's brand name is Lyrica by the way.

Of course this could have been refused as it might have lead me to Fibromyalgia as I was unaware of my own condition at the time.

Please remember that a very noticeable effect of two consecutively prescribed drugs were list at the bottom of an articale where I had read of around a couple of dozen of my own symptoms that stated these were the only drugs known to have an effect on Fibromylagia! I had already strongly suspected I had the condition and hence why I was in my Town Library when I read this. SO I was reading several paragraqphs that were me to a 'T', or in a nutshell, which finshes off my telling me that, after thirteen years of asking, the two drugs I was consecuriveky prescribed were the only ones that worked!!

This was Black's Medical Dictionary! The GP that precribed those two drugs refused to give me Oregabalin and gave me Amitriptyline that I was convinced would ntot work but did. So imagine my horror and suprise whan I saw only these to listed as the only ones out of dozens of drugs to have an effect?!

Coincidence? DUMB-ARSE!!

Now if you recall I did state that I met with my latest Doctor and he told me I was right and no fool and that the reason that I was refused Pregabalin was because it was an expensive drug and the treatment for Fibromyalgia was expensive?

However despite these things being said to me I always keep an open mind. Unlike some people and I did state that my new GP stated this fact. According to this author the drug is cheap and Cannabis should prescribed? However I think it should be Sodium oxybate.

So what do you think that the chances are that you are lied to so that yu are not diagnosed to stop you claiming DIsability? Idiots should not read this as claiming Disability money under false pretences as I have no used these words in which case it should be taken as it is written.

I guess this Huaser guy is a big cheese across the pond?

Now what seriously concerns me here is the absolute bad picture that many people paint of the FDA and despite the number of English Doctors, and sorry I do mean English Doctors here, that have a negative view that often delves into sarcasm with American medicine. This is because on the face of it many of our decisions are alrgely based on what America does I am afraid to say.

The author of the webpage titles one section under it The Missing Drug and you would be completely forgiven for thinking at this point 'A-HA! He is talking about Sodium oxybate after all then?!'

Well no...nut oddly there is one other drug that worked for me and despite tellling dozens of Doctors this they would merely roll their eyes at me.

Why it is CANNABIS of course...

The survey found that one drug, however, was quite effective at reducing pain in Fibromyalgia. The catch is that it’s not, for political reasons, readily available  to many people in the U.S. for use or even for study. In an astonishing reversal of the findings  for the ‘big three’, over sixty percent of FM patients who had used medical marijuana in the past stated it was very effective  at treating  pain. 33% said it provided a little relief   and only five percent said it provided no relief.

I stated for years and have written of this throughout the life of this blog. If my memory was better I would have looked into a link between Fibromyalgia and Cannabis a lot earlier. In fact if I had one single raised eyebrow from stating Cannabis helps from one of the three dozen incompetent idiots that should ne be Doctors I would have looked up a list of all the things Cannabis is used for medically and would also have discovered Fibromyalgia years ago.

In which case I would never have found out that the NHS is corrupt and lies and misdiagnoses patients deliberately so they can continue commanding hudreds of thousands of pounds in salaries each paid for by tha taxpayer they never deserved.

In a nutshell Dwayne Dibley.

I am not currently using Cannabis, have not for a few years and releuctant too because I do not want to start smoking again! However I did manage to quite smoking before and only smoke Cannabis and in half the time that I have currently quit smoking.

Also as many of you know and a fact that will drive Mr Dwayne Dibley up the wall and down again is that this is ... very much about to change.

For along with a number of back up blogs this back up blog 'is my shit' and that one of the very many purposes of this blog was to make money eventually. A lot! Hahaha, moron. Added to this this would then make money until the other blogs all caught up.

After all I really could not continue my endeavours on forever! There would be a time when I ran out of reasons to create events or appointments where I could acquire more evidence, somehing I have stated before that quite possibly made someone else angry because they misunderstood what I was stating. Or perhaps they just thought I was continue on my putting up links to people making very bold claims without a shred of evidence by people thay had never met?

Nope despite the name calling by the idiot I refer to as Mr Dwayne Dibley the sole reason this blog has bene popular and successful and becomes more so every month is keeping it level headed. Because I always have been, depite what some thought. I simply had to acquire everything I needed to prove to everyone online that visited that tehse were in fact the events that took place and to prove to those I know OFFLINE that everything I ever said ore predicted for many years was true and based upon facts.

Thereby removing the possibility that shrinking violets with their heads in the sand, or just jealous, will try to deter others by flinging about accusations like a moron while not wanting to face the truth holding their fingers in the ears goin 'LALALALALAAAAA!!!!' while their heads are buried in the sand.

The nxt in the list of people I do not like after cocky know it all bullies with mental problems and liars holding positions of Health professionals or Doctor along with politicians. I mean there are mental problems and then there are mental problems with the worst kinds of personality with a bully-boy nature thrown in who cannot live with the fact he is gay! You ever wanted a recipe for destruction in human naature, he is it! Forget the book a solicitor said he could write about Basil Falty, lol.

In no particualr order of course!

The link to the statements I listed above and the author who made them ...

http://www.cortjohnson.org/blog/2014/05/15/medical-madness-feds-approved-drugs-fibromyalgia-dont-work-well-barring-access-one-might/