IT IS ALL ABOUT THE MONEY

I was just explaining to someone earlier about how much debt we are in, how long the cuts have gone on and how long it will take to get out.

We wont get out because they go after the money in the wrong places, people with health conditions, disabled people, unemployed and the low paid. Very little money has been saved in comparison to how long we have now been at this.

So then how about going for it in the right places?

I stated that if Doctors, Hospitals, general Practitioners and Nurses have been asked to lie, lie and lie again then ... why have them at all?

I mean surely to God money will be saved a damn site quicker if you just shaved everything back to its bare essentials until you rebuild something better and more efficient?

How much money is being wasted employing people to say 'no' or 'computer says no!'?

The answer is; an effing lot!

So due to some things going on I have been looking around researching some things when I came across this webpage to do with drugs for Fibromyalgia. It is on www.drugs.com but will place the direct link below.

There is a long list of drugs that is something of a surprise to me and then some. Of course Lyrica, Pregabalin, is one of the most taken drugs as it is one of the best, but not the best, drug for the condition. 

Milnacipran I have discovered works a great deal better than even Pregabalin but this was refused to be allowed for Fibromyalgia by Europe! You know ... Europe!!

That same Europe also disallowed the one and only drug to deal with the root cause of Fibromyalgia, lack of restorative sleep, which is sodium oxybate. In effect it is a sleeping drug. Except it is not allowed because ... well basically it works too well.

But I hear you thinking ... but wait a minute? There are loads of sleeping drugs on the market? Are there? Because I have taken several and they did not do a damn thing. Well except for a whole string of people in a line making money out of it though. Apart from that the drugs do not work ... unless takenm in a very high dose along with tranquilisers. I know this because I have done that!!

When your desperate and those tasked with helping you do fuck all then desparate times means desperate measures, I am afraid to say.

I did not know about Cymbalta, or duloxetine but have Savella, or Milnacipran.

Tramadol is a suprise addition to that list because a pain specialist told me it would not work on my Fibromyalgia over two years before Fibromyalgia was diagnosed ... yeaah I am going to let that one sink in a little tiny bit ...

If and when you look be careful as some drugs are listed twice .... Lyrica, which is Pregabalin, is listed along with the drug in its chemical name ... errr Pregabalin. Meaning close to 500 people reviewed the drug for the condition and by far the highest on their.

Except I cannot tell you what it is like because I have been refused it for three whole years.

Anyway if you have Fibromyalgia or Chronic Fatigue Syndrome you might want to use the last below. Many of these do not work or only work minimally for me but they might work for you?

Oh and one last thing ... if I wanted to use the system to get money then when accused of being mad and need psychiatric treatment by a previous GP, because he was a liar and a wanker, then I would have said ... YES!! Dumb arses!

Just wanted to say that one last thing, lol.

https://www.drugs.com/condition/fibromyalgia.html

EUROPEAN MEDICINES AGENCY - RESPONSE AND REPLY

Well I finally got a response to my questions of why sodium oxybate and milnacipran were turned down for use with Fibromyalgia.

Rather bizarrely they have responded and included Pregabalin with these two which, though I mentioned, is cleared for use with Fibromyalgia as far as I was aware!

Now if I missed something here and Pregabalin has not been cleared for use with Fibromyalgia I am a bit confused as to not only why I was told I would be prescribed it but that not a single GP or specialist I have mentioned the drug to has replied that it is snot cleared for Fibromyalgia.

Conclusion?

It is not cleared by the NHS for use with them and I was given a bullshit excuse for this too as they thought I had been told or informed it was not cleared for use.

Did they just let the proverbial cat out of the bag here?

Anyway I will now paste their full email response along with my reply ...


EUROPEAN MEDICINES AGENCY ..

Dear Mr Haswell

Thank you for your letter of 30 November.

The decision to apply for marketing authorisation of a medicine in a particular indication is not made by the European Medicines Agency (EMA), but the companies concerned. The Agency can only evaluate the evidence with which it is presented and can only approve a medicine for marketing if the benefits are clearly demonstrated and outweigh the risk of side effects. EMA’s assessments do not consider matters of cost and reimbursement, which are handled at a national level.

However, in the treatment of fibromyalgia, good evidence of effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran when the companies marketing these medicines applied to the EMA to authorise such use.
In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. As a result the EMA’s committee of experts responsible for the evaluation considered at that time that the benefits of the medicine did not outweigh its risks, and recommended against approving it to treat fibromyalgia. Details of this evaluation are given in the Agency’s assessment report at: http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000593/WC500106940.pdf.

With respect to pregabalin, in 2009 Pfizer Ltd presented the results of five main studies involving over 3,000 adults with fibromyalgia. Again, most of the patients included in the studies came from outside the EU. After evaluation, the Agency was similarly concerned that the benefits of Lyrica in fibromyalgia had not been shown in either the short or the long term in patients from the EU. There were no consistent or relevant reductions in pain or other symptoms in the short-term studies. In addition, the change in symptoms did not seem to be related to the dose of Lyrica that the patients received, and the maintenance of Lyrica’s effect was not shown in the longer study. At that point in time, therefore, any benefits of Lyrica in the treatment of fibromyalgia did not outweigh the risks of its known side effects. Hence, the Agency recommended that the change to the marketing authorisation be refused. For further information, see http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000546/WC500076177.pdf.

In the same year, an application was made to EMA by the company Pierre Fabre Médicament for the use of milnacipran to treat fibromyalgia. After evaluation of three main studies, involving 2,960 adult patients with fibromyalgia, the Agency’s scientific experts were of the opinion that the effect of the medicine was marginal. There was again a lack of data on the long-term effects in a European population. Therefore, at that point in time, EMA was once more of the opinion that the benefits of the medicine in the treatment of fibromyalgia did not outweigh the risks, and recommended against marketing authorisation. For more information on this, including details of the assessment, see under the various tabs on http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/001122/human_med_001313.jsp&mid=WC0b01ac058001d124

Should a further appropriate application for use in fibromyalgia be made for any of these medicines, the Agency would thoroughly evaluate any new scientific evidence presented, in order to reach a decision on whether to recommend marketing authorisation.
The Agency’s remit covers the scientific assessment of medicines and the monitoring of their safety once they are marketed, and we are unable to comment on the other matters covered in your letter.

A copy of this reply has also been sent to you by post.

Kind regards


Paul Blake

Stakeholders and Communication Division



MY REPLY ...

European Medicines Agency

I have received your report on the situation regarding the application of the drugs sodium oxybate (Xyrem), pregabalin (Lyrica, though I never said it was refused to be used only refused over money and this has been told to me by at least two Doctors) and milnacipran.

• “effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran “
• 1) This conflicts greatly with everything I have ever researched and even solicitors I worked for stated that I am extremely good at research
• 2) This also conflicts with the patients accounts of the use of these drugs

• “In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. “
• This is a … frankly bizarre statement … also ... WHAT side-effects?

• 1) Are you stating that thins are not done this way in Europe in which case why would they ever bother approaching Europe over these drugs

• 2) I very much doubt that drug companies would approach the EU, despite my understanding of their underhanded nature and dislike of them, with drugs that do not clearly work or cause such terrible side effects

• 3) All drugs have side effects and do you not think it I down to the patient when it comes to weighing up the risks to the benefits? Anyone can so no or do you not think that patients are capable of rational thought?

• 4) Further to the first point … where are your own trials?

• 5) Your statement of weighing up the benefits and risks contradicts your statement that there was little or no effectiveness

Do you know what I constantly think of several time each week and have done for the last 7 years at least?

What it would be like to actually take sodium oxybate even for just a week to ee what it feels like to be normal once again.

I also ponder that as the Fibromyalgia Syndrome issue is lack of restorative sleep and that symptoms collect over many years that taking sodium oxybate for just one week may reset everything back to the start prior to being affected by my first ever symptom.

In other words having none at all or only one of the 120 odd symptoms I currently experience.

Another conclusion I have come to regarding just the case with Fibromyalgia Syndrome is that the people that make up the committees and organisations that make thee absurd decisions are idiots made up of friends of people in government, central or local, that have not the first clue about just how bad some conditions can be on the human body as well as the mind.

Your answer has had zero effect in changing that view.

Incompetence, corruption and general skulduggery can manifest absolutely anywhere and in my years of endeavours I have generally found it to be everywhere I look 100% of the time.

In which case and in every instance there is a general protocol that exists for making challenges, legally or otherwise, to said organisations.

I would like to ask of you what exist for you?

Can you provide me with a ombudsman for you or governing body or even a watchdog? I imagine any challenge would be quite tricky for any professional body especially when they have other professional bodies that conflict with their reasons that are based on something as flimsy as …

Side effects of drugs.

This made even said drugs are cleared for ailments that re not even in the same league as Fibromyalgia Syndrome.

Now I will mention my blogs once again.

I blog about corruption and I have covered organisations in the dozens. As big as you like. I have never been challenged bot that is because of who I am and how I do things.

No bullshit. I am honest in everything I do, sincere and to the point no matter how sharp this may be. Except that when I do this I am not doing this purely through my blogs on corruption.

You might have noted the letters after my name? BSc Applied Computing.

I do a blog on computer hardware and software with some gadgets thrown in. But this is not my only subject of expertise and I provide blogs on …

• Batrachology
• Herpetology
• Ichthyology
• Astronomy and Astrophysics
• Orchidaceae
• British Wildlife
• others including Kung Fu, Photography, Music, Movies and more

My corruption blogs alone number around 3,000 posts and some read like Tolstoy's War & Peace.

I have a dozen blogs and the amount of writing involved is astronomical and with each and every one what people see is someone level headed, factual, professional and honest. Someone that does not like what he sees, dislikes the lack of professionalism, abuses of positions of power and what the UK has become.

Someone that has not just gone out and done something about it but has spent years secretly recording, collecting and compiling letters that go back 20 years and publishing everything for to help other victims, people suffering physically, mentally or both.

What surprises people most of all is that I have done this alone and there is one very outstanding endeavour that over-shadows everything I have done previously.

Despite many of my endeavours being worthy of front page national tabloid news this one last one is capable of a front page serial all on its own.

If they are surprised at what I have done and achieved so far with my excess of 100GB of data it is nothing compared to what is coming over the next couple of months. Something that will amass so much attention that it will make the 300,000 visitors I have had thus far look like a drop in the ocean.

While I twiddle my thumbs waiting for this to happen I had some requests to my GP go unanswered and I know all the reasons why. As I have proved them in the past over and over again to show my visitors this is not a localised incident, not a one off but that many Doctors and GP's are lying and are doing so under command.

Indeed many of the stories that have arisen on everyone, not just the NHS, have originated as one my stories.

Indeed if I inform you that the late backbench Labour MP, Michael Meacher, approached me via email in January 2013 requesting if he could use my blog data to atack Iain Duncan-Smith in the House of Commons while end others to the news media I am sure you will realise that even two years ago I had a hell of a lot of data?

I have not even published half of what I have!

So getting back on track …

I found myself being fobbed off again, I looked up the link between high blood pressure, which I have and my father died of a burst aneurysm at 56, I am 47 nearly, and read about milnacipran and it being refused along with sodium oxybate. I then decided to look into who make these decisions and mount another challenge against another organisation.

It kind of kills the time while my secret four year long court battle waits to hit the headlines and gives me something to do while peaking my interest.

So that procedure/ombudsman/governing body I asked for?

I look forward to hearing from you with great interest.

Yours sincerely

Martin Haswell BSc

YET ANOTHER ADDITION - EUROPEAN MEDICINES AGENCY

Well while working out some things and awaiting the outcome of others I decided to look up that which my GP asked me too, the link between high blood pressure and Fibromyalgia.

Well it turns out there is one, I am learning something new all the time.

Now here is where it gets interesting, especially if you are a sufferer or close to someone that is ...

On the page I found it also lists all the drugs that work on this horrid condition, including that one that Dr Kirkham of Guy's Hospital had not heard orf despite it being the only drug that works on the core problem ... sleep, Sodium Oxybate (brand name Xyrem).

Now I cannot find the damned web page!

Anyhoo ... on the webpage it states a few things I did not know ... one of them a new drug for Fibromyalgia called Milnacipran (brand name Savella). This works like Amitriptyline but turns out works on the specific neurotransmitters that affect us with FMS! Sounds too good to be true but there is a greater lean towards this drug for FMS sufferer and many have claimed it works very well.

However, this still does not deal with the lack of sleep problem and it reportedly only works with the pain and not the fatigue side of things of FMS. Still, better than nothing.

Except ...

I also learned that both drug companies to both drugs, maybe one company for both as I cannot remember, approached Europe about clearing them for use for Fibromyalgia and to the drug companies surprise Europe said no to both?!

So I got annoyed with this and decided to 'tear a new one' off the European Medicines Agency over it, their bureaucratic crap and the fact that they are not being very nice to sufferers of not just Fibromyalgia Syndrome but obviously a great many  sufferers across the board!

Would you like to see the letter? They have already acknowledged my letter ...


EMAIL...

30^th November 2015

European Medicines Agency
30 Churchill Place
Canary Wharf
London E14 5EU
United Kingdom

Dear Sirs

FIBROMYALGIA SYNDROME MEDICATION

I have had Fibromyalgia Syndrome for nigh on twenty years.

I had been pressing hard for a diagnosis for 13 years when I discovered Fibromyalgia and self diagnosed it as that affecting me. I have in the region of 120 symptoms, so it answered many other things that idiot GP's across six surgeries, over a dozen, and six hospitals failed to spot.

I argued with the above Doctors the whole time.

I not only proved I was correct but I also discovered that they, the NHS, had known I had Fibromyalgia for at least three year and lied to me about it.

I recorded them for several years and even many admitting they had lied and been asked to lie to patients.

I have recorded many diagnosis that was also retracted.

I can assure you that many of my endeavours have been picked up, mimicked or mirrored by the varous news media outlets.

Because I post on blogs and of the many subjects, primarily science, that I over I also cover corruption both in the public services, oh and the NHS are by no means alone in corruption, and private companies.

I have well over 100GB of data.

However I have still had some issues even after diagnosis and still am today.

I had my Fibromyalgia confirmed at Guy's Hospital by a Doctor Kirkham and a specialist in FMS who also spotted and diagnosed a physical problem with my right knee, done by performing a Lachman's Test. However I was shocked to discover that he had never heard of Sodium oxybate, Xyrem.

I was already aware that Sodium Oxybate was the one and only drug that dealt with the source of the issue with Fibromyalgia Syndrome and one that you cannot deny is pretty serious …

Lack of stage 3 and 4 restorative sleep? Really?!

Your going to hide how serious this is?

Do I have to explain how many parts of the human anatomy, including the brain itself, that this has a degrading affect on?!

So imagine my confusion when I discover that Sodium Oxybate is not allowed to be prescribed for Fibromylagia Syndrome but IS for Narcolepsy?! Really?! Are you serious?!

Well you quite obviously think yourselves of a different sect of the human race from the rest if us?

To make matters worse there is Pregabalin. At the time of the Lachman's Test on my knee I was promised Pregabalin. I was told that a letter would be forwarded to my GP.

When it arrived the letter had clearly not only been interfered with, likely intercepted, but had the knee condition, the Lachman's Test or mention that I screamed In pain from it and the prescription for Pregabalin removed from it!

Oddly enough someone at the NHS had figured out that I had been recording them but failed to realise I had been doing this for five years or more.

With a grin I was not prescribed Pregabalin as he had told me unless a Doctor prescribed it from Guy's Hospital he would not do it. He had made e turn off several devices so that we were not recorded first.

We rowed for an hour and all the patients heard us.

I offered him the testimony by way of a CD of the whole appointment at Guy's Hospital that included the Lachman's Test along with the promised Pregabalin.

He refused to listen to it based on the same lie he had accused me of … breaking the law, which I pointed out in steps why I had not broken any laws.

To his dismay he later discovered that I had indeed recorded our entire row for like 50 minutes and posted it on my blog that same night.

It seems the punishment for discovering that 100% of British GP Surgeries lie is pretty bad and I was kicked off for a breakdown in trust?! Was he effing serious?!

I had known for several years I was being lied to and they made the mistake of thinking that he and hi surgery was the first ones to be recorded by me. Nope.

Several Doctors at Abernathy House Surgery

Dr Roobans Surgery, who quit over me

Paperwork on Cartlon House Surgery and …

Forest Road Medical Centre

Where every single one lied!

Along with …

Guy's Hospital

Royal Free Hospital

Chase Farm Hospital

St Michael's Hospital

Potters Bar Community Hospital

Barnet Hospital

and paperwork from Whipps Cross Hospital

Trust me when I state that what I have regarding my chasing down Fibromyalgia alone is a lot but that is not including chasing down diagnosis for …

Right Knee Pain (tricked, manipulated and retractions)

Hiatus Hernia (refused operation for 20 years, severe heartburn like heart attack)

Oesophagitis Grade C

Extreme chronic Nausea

High Blood Pressure, Hypertension Stage 2, often over 170 and 180 at rest along with …

Postural Hypotension that causes me to black out and fall over

Inguinal Hernia (only op I had and it now causes me pain)

Inguinal Hernia (diagnosed then lied about)

Each of those I acquired a mountain of evidence on.

All of this along with two Police Forces and four local councils has all been posted on my blog over 3.5 year and rising and to date I have had in excess of 250,000 people and this is rising faster than ever.

I never lie.

I never ever fabricate.

I am known on my blog for holding my hands up if I have gotten things wrong.

Even with my theories and predictions I very rarely get things wrong.

I have many top professionals in the literary agency fields and even Doctors follow me and my data has been used the late Michael Meacher MP to attack Iain Duncan-Smith in the House Of Commons and in the email request I still have he asks if he can send elements of to the news media.

That was January 2013 and likely where more questionable journalists discovered me and what I had done and acquired?

So then?

Why are you screwing over Fibromyalgia Syndrome sufferers?

It appears to be intentional.

I will warn you here and now that if your doing this on that moronic notion that FMS does not really exist, I will rip a hole in your organisation that size of Australia.

I have already done this to dozens of Ombudsman, for every single one of the dozens of organisations I acquired data on I also got the same on their ombudsman.

It is all on my blog.

I wont give you the blog … as most people ignore it until it is too late so it is a waste of time doing so.

Why have you not approved Sodium Oxybate nor Milnacipran for Fibromyalgia and why cannot even get a months worth of Pregabalin to see if this works?

Yeaaah do not state anything about costs … I have already ripped several holes in that one because costs are not merely down to the drug alone. Not prescribing the correct drugs has far, far greater costs in the long run and that does not include anyone taking anyone else to court over the damage caused.

Oh and damage?

How about having twenty years of someone's life destroyed that had the most serious knock on effect to a number of children having lives and stories worthy of the front pages of national newspapers?

Yeah … you had better dig around on my blog for that one … ooh if you can find it of course?!

One last thing to warn you of …

Do not me either patronizing nor condescending ass I have a tendency to not only react but explicitly point out why it is wrong to do that and in each case point out the fact that you organisations are not as bg, important as you think you are and nor possess the intelligence to act that way.

Just trying to avoid a repeat of wars that have occurred many times previous and happening right now.

Do not bother with the whole, 'told in confidence' thing on the letter heads or envelopes either as it just wont wash.

I look forward to hearing from you with great interest.

Yours faithfully

Martin Haswell BSc

ONE LONG ROAD OF PAIN

Ooh boy! Has today been a bad one and it is only 1.30pm!

First off I am stuck between a rock and a hard place, quite literally and to say it is not stressful ... well I would be lying.

It also turns out that not only have the naysayers now decreed that the positive parts including money is all bullshit, that they have taken it upon themselves to decide that all the previous stuff, much I was present at and recorded dozens of things, is all bullshit too.

Damaged egos, eh?! LMAO!

Added to that is I have a GP appointment where I am going to try once again to be referred to an Osteopath over my back pain.

Oh and the nausea.

Oh and I must remember to mention waking up to discover my left hand is digging into a tender area around the base of my neck, which was already spotted twice and then retracted by the NHS. This may be linked to the nausea, you see?

Which may be linked to the back pain that was also spotted twice and then retracted.

Being wrongly diagnosed, especially when you yourself know what it is, is one thing. But being diagnosed and then having things retracted?

Happened with not only my back, twice, but also my right knee twice and an inguinal hernia on my right side. Recordings of the Doctor in question being caught red-handed by me and admitting falsifying test results and then retracting that too! Lol.

If I ever told them in anger I was recording them I would never  have acquired as much as I have. Let them lie, let them think they are getting away with it. Move onto the next thing, let them build up a great deal of over-confidence in lying ...

...carry on recording. Mount it all up ... post it all on the Internet when you have far more than enough.

Watch as journalists, newspapers and TV idiots act no different to those they expose and steal your stuff, alter it, go after their own but similar story and you get nothing in the way of thanks for it.

Well I did say the whole blog was a trap?! Remember? LOL!

I have now confirmed that high blood pressure is linked to Fibromyalgia and in so doing discovered a new drug, Milnacipran (brand name Savella) that is reported to have better affects with Fibromyalgia sufferers than the totally cheap crap and wrong drugs they fob you off with, like Gabapentin and Amitriptyline.

It seems that this new Milnacipran works on specific neurotransmitters in the brain that are affected by Fibromyalgia Syndrome which itself is partly driven, or mostly, by not having the sleep where your body repairs itself, including the brain itself.

Yeaahh ... imagine that next time your thinking about your friend or family member having something you do not believe or think does no exist, because of idiot medical ... umm experts? I think not.

I know because I went through it for 13 years, though it turned out I had had FMS for closer to 20 years!

I am not going to get into the number of things the NHS destroyed by being both idiots, deaf and liars because I have mostly done that already. Spent 3.5 years almost doing that on this blog ...

... saving money? I think not!

It also mentions the other drug which is the only one that work on the cause of Fibromyalgia, lack of restorative sleep, Sodium oxybate (brand name Xyrem).

Please note that on the page in the link below that Gabapentin is Neurontin, the latter being the brand name which they seem to fail to mention.

Sodium oxybate (Xyrem) is the drug that Dr Kirkham, specialist ion Fibromyalgia at Guy's Hospital, had, to my complete shock, never heard of. I told him it was a shock to hear that as it is the one and only drug that deals with the core problem for people with Fibromyalgia.

In other words it is not only dealing with the pain, not masking it, but deals with he fatigue too. I think this goes double for Chronic Fatigue  Syndrome which I believe is just Fibromyalgia Syndrome in its early stages,

If you have come here about the drugs I mention of Fibromyalgia or Chronic Fatigue, or other subjects for that matter ... you can search the archive! Lol.

So I am thinking about all that ... plus the two other things both concerning large amounts of money, one I do not want to be involved in and one I thought I was and now I am not ... how long for and why not I am in the dark about.

Of course as I stated previously my life has been made a living hell by the naysayers made up with those with damaged egos and those jealous with envy who do not want it to be true.

For the first time in several days I pop in to get something from a friends store and am on in serious back pain. I then decide to head to town for a brief pick up and head home. I bizarrely consider catching an unusual bus route home but miss a bus.

I am then walking down a long straight road I use and I get a third of the distance along it when ... WHAM! No George Michael has not crashed into another Prontoprint, or whatever it was, I get a sudden attack of one of my many other pains straight into my right foot!

I cannot walk! No buses down this road either! I stop for several minutes, lean onto my walking stick and wonder how a human is supposed to deal with this amount of pain, stress and thoughtlessness of others before trying to carry on. Two steps - bang, bang! Darn it this is seeming impossible.

Now here is the bit that no one considers nor asks about ... what do I at times like this? Well I have my walking stick and I stand there and think that there must be a walk that will keep the pain from firing off.

I walk with the heel on the right foot and try not to put the ball of my foot onto the pavement, it does not always work.

I limp and lean hard and my arms get tired and I switch arms and I feel light drops of rain on my face and think "please, no! Not fucking now!! You have made things hard enough at a tough time already, do not fucking rain now, its all you have done for week on end!!"

I look at the pavement stretching off into the distance. It suddenly looks a very long way away.

I have to make three major stops of several minutes, more leaning and questioning, along with a half a dozen stops of a few second here and there.

Despite actually thinking this was going to be the first time I was going to fail to get home., because of my location far from a bus stop, I struggled, bit my lip hard, got down deep and I worked through the pain and limped all the way home.

Oh how I wish that we could get just a week or two of some clear skies and wind free! You have no idea how much I so want some of those so that I can get out on my damned bike!

Because the other things I have to deal with, harder when your avoiding people, is the ever so annoying boredom!

The link to the drug I researched that holds the link to high blood pressure and Fibromyalgia along with the listed drugs above ... yes including the ones I get refused, like Pregabalin (brand name Lyrica) and the mentioned Sodium oxybate (brand name Xyrem), click the link ...

http://www.ukfibromyalgia.com/treatments/medication.html