ONGOING REVELATIONS

I have come by more information regarding the Department of Work and Pensions and yet not found anything out just yet about a programme that was on TV about this.

There was a major feck up by my Job Centre. Last week after leaving the JSA lady and exiting the building an unknown number rang my phone. When I answered it was the lady I had just met on the third floor, she told me the system had double booked an appointment and could they move it forward several hours.

When I got in their this week someone went and sat down with the woman I thought I was seeing and I started to get confused and then wondered if they had booked me with someone else and did not tell me?

Eventually I was called by a lady I met once before and who I got chatting with about orchids. At first she did not remember me but when I mentioned the orchids she did. We got chatting and she told me that no one there agrees with what the DWP are doing or their attitudes towards benefit claimants. She even told me that she was told at times that she herself was too soft with claimants?!

She went on to say that the Job Centre was run really badly and that it never used to be like that and I explained what happened with the mess up with the appointment. I also even told her about my disagreement with the DWP and that I should not be going there and have been told as much and that there is a legal battle about to go on. She raised an eyebrow and said “Really?” and I told her that being shunted onto JSA did not mean a great deal to me when it happened as I had long wanted to find something to do part-time anyway.

I was surprised for the second time about someone being so candid with me and I told her that I had already been told this by a chap in the floor beneath her in Universal Credit and she was surprised to hear this despite knowing who I was talking about.

I asked her about the programme on TV and told her my landlord had mentioned it but she knew nothing about it either.

I am starting to wonder whether it was some brief TV news report somewhere but I am sure the word 'documentary' was mentioned?

It was admitted to me that the whole thing was a screw up on just about every level and that many of the staff did not know whether they were coming or going half the time.

I pointed out how there are now 6 departments where there were only three and that they now intend to make these six departments into just one and she glared at me and said “I knooow!” lol.

There is one thing I did not mention at the Job Centre and regarding my health conditions, that of the pills they have refused me for years. The drugs. Now that I have mentioned this I cannot even remember if I have mentioned this on my blog. The drugs … or at least what has happened recently over these drugs.

Best three drugs for Fibromyalgia Syndrome in order of effectiveness …

• Sodium Oxybate – Xyrem and the only one to deal with the source problem of non-restorative sleep
• Milnacipran – Seems to be specific to the pain receptor fired off in Fibromyalgia so sounding like an accidental discovery?
• Pregabalin

Which of these do I get?

NONE OF THEM!

Yup you read that right … none of them.

But wait a minute? Are they not now trying to force me into full time work? Yup. But they refuse to give me the drugs that could, with two, ,and WOULD, with one, ,make almost all my symptoms disappear overnight. Except my back problem that they had also lied about and despite having nmy own x-rays of that are on this blog!

Oops!

Except … as it turned out several people I know actually take Pregabalin, a better version of my Gabapentin, and were so shocked to hear my stories of refusal and being kicked off surgeries and falsifying documents that someone … donated some of theirs for me to try. Lol.

Now just last night I was asked if I was going to try them straight away and I said I did not know and they got annoyed with me, stating that I said I had wanted them for so long.

I then pointed out two things … that they may force me into full time work before long and if I take them and they do work there is absolutely no guarantee that my GP will give me them and that his brother, my previous GP, and my two previous GP's at two previous practices had ALSO both refused me Pregabalin over a five year period.

In other words these pills are precious to me, which is really odd as I have no idea if they will work or not, and that they may be the only ones I get in a long while, as getting them is likely to lead to me … changing to my sixth GP practice in Enfield. Do not doubt that last statement … I have already been through five in the same catchment area without moving home and I know how this always goes. An argument too start with and then all hell breaks loose, lol. Plus there is no guarantee I will get the prescription from the NEXXT GP either!

BUT … going though all that will be worth if for one reason and one reason only … the gloves will be off, a heap of stuff winds up on my blog and I guarantee that this time around the blogs will actually make some money for the first time ever and become regular before long. So there is that! Lol.

Sooo what I will do is try them for a week but check how I have to come off Gabapentin first before going on the infamous Pregabalin.

Then there is Christmas … this time it is going to be an even more lonely one than it normally is but I am used to that … mostly.

Had a bust up with the one I normally am at, at Christmas time and so I have gotten out of hearing a load of crap but not being preoccupied by others.

Yes it seems to be always happening and al happening of late and there is plenty of signs it will stay like this until the Spring?

Oddly enough the one thing I thought would happen in November which was potentially the biggest of al the things that could happen did not happen. But yeah I have kind of gotten used to that too the only thing is that this failed a year ago and the trouble it caused me could well have happened all over again. Well it kinda did as this was what I got into an argument about after finally divulging to someone I told a couple of others to keep in the dark about. Yeeah … that did not go well land I got the usual narcissistic attitude with flailing arms and a brick wall. Despite the fact that you are NOT ALLOWED under ANY CIRCUSMTANCES to EVER DO THAT TO THEM! Otherwise everyone gets to hear about it for 5 to 10 years.

Their reasons are always valid while yours are not … she fits the profile of an Social Justice Warrior to a 'T' and even thinks of themselves as a socialist, lol.

Oh yup I did not know that Social Justice Warriors were a thing until recently but that does not mean I have not heard some of the bat-shit crazy ideas beforehand and I have from right within my own family! They have changed their minds on some things bat-shit crazy but not on others and still even on the things they changed their minds about still goes into that whole socialism lecture based on half-truths and bullshit! Now THAT I and we have had for around 20 years plus.

What they do not know is that my counsellor blames them for several of my … let us say limitations? I do not but I could see why she said them and there may well be a contribution but … no.

My condition of Fibromyalgia Syndrome is the cause of the actual problems but there may well be an argument that this family member has contributed in some way? Oh yeah they certainly make it worse and no one stops and says to them, when they are crying to everyone else for sympathy, well you should not DO that with him. What they do is downright bloody rude to any normal person and the fact that they do it with someone with a known memory problem just makes it ten times worse than it otherwise would be.

They will think of something they want to talk about when your telling your anecdotes and feel it is so important they will interrupt you, which is rude before anything else is considered.

You will try to stop them and point out their story is not relevant to what you were just talking about and to win the argument and gain control of the floor they will say “Because you have not let me finish!” What should take five minutes then takes 30 minutes or more and when finished guess what? It still bears no relevance to what I was just talking about and she insists that it does. Well maybe in your warped world it does but to everyone else and that is what matters, it DOES NOT!

But despite that looking ad it is never that simple as when they talk they then meander off moist of the time to another subject and then another. So you have been interrupted and with a really bad memory problem forced to wait for like an hour or even more until they have told you several stories, none of which are relevant.

In my recent row they turned to their partner and some point and said “What was I saying just now?” and to show you as I told my counsellor that they just do not get it … their partner answered “I don't know, first you was talking about one thing ,then you started talking about something else and then moved onto something else!”

Did this person even show a face that she had just been shown up and proved to be in the wrong by their own partner? Umm NO!

What really gets my goat up is afterwords … I am the villain!

But let us recount points and summarise?

• You interrupted … which is rude so in the wrong immediately
• You spoke about something not relevant to that you subject you interrupted so wrong number TWO (example interrupt explanation on CRPS because this most painful condition has the word 'complex' in it and their unproven epilepsy is … umm … complex!)
• I get annoyed because it is rude and I suffer from memory loss, both well known facts but I am the villain, LMAO!

Does that sound like a Social Justice Warrior much?

The truth is ignored because what they think and feel is more important and relevant.

I have had friends meet them and apologise to me because they thought my description is unfair when the truth is both they and other people run when they see her coming. I have known this to occur with one man and two separate women. Reason? “If that woman seems me she will come straight over, complain bout her kids and how they cause her terrible stress for two or three hour straight!” Yeah … literally run!”

I forgot … there is one other person that fell out with them … their own cousin and over the exact same thing.

This is the bit I tell other family members I simply do not get … they fall out with everyone but it is NEVER EVER their fault. In fact when it was their cousin she lied about it for a couple of years,, in an argument I told them I knew the truth. They leave it for a year like you have a memory like a sieve and then go back to telling the story, how stressful it was and back to telling the same lies about it.

I caught my Mind counsellor with her mouth open a little in shock and she went on to say that this must have been a dreadful thing to bear for such a long time and I simply smiled and said “Yeah, it has been”.

And it was over someone else who has let me down yet again … promising two things and failing to deliver on either promise. Go figure?

So my counsellor figured out why I have trust issues while she wondered why I even started bothering blogging to help others? I told her that I had asked myself that on many, many occasions. But at the end of the day it was still the right and honourable thing to do and I keep telling myself that there must be people out there WORTH helping even if I never see any evidence of that or very rarely do.

It is also all that I have.

After all I am only five years away from being on top of the ages that both my father and Uncle died and did not want to leave this life leaving nothing in the way of a legacy behind.

The faint hope that I could make people see and point them in the right directions and thought patterns that may change a country and maybe … just maybe … in time a world?

A first video on YouTube in awhile … the Pregabalin tablets and a recap of what I experienced with three separate GP Surgeries in Enfield and how and why I was not given these pills …

NO LOVE WITHOUT THE DRUG

Well then, I see that my line spacing is still off in Google's own Blogger Android app?

Even with a new phone that still occurs and so too do the tags, or labels, go missing?! Meaning that the problem is not phone specific so must be very widespread.

*SIGH* all those updates.

Doctors and drugs are a laughable thing these days in my view. After a very rare and relaxed evening of late I have woken a little later than normal but to a building anxiety attack. This was heartbreaking as I thought that now I had taken my first Propranalol beta-blocker I thought they may have subsided for good.

I checked my emails for reassuring replies from Citizen's Advice or Mind but there was nothing and I started to look at Mind's website to see how you actually get to talk to someone. I thought 'you never know it might be a self-referral or walk in service' as I simply cannot recall.

Then I noticed that when I emailed I sued the wrong email address so I emailed again and used another one I found on their site.

The funny thing is in this instance is that I have been waiting for a reply from them and then I have had this anxiety attack that hit me so hard I lost the use of my legs. Since that has happened I have been seen by an emergency paramedic that showed a littler concern, spoke to my GP on the phone who showed some concern, spoken to my GP face to face who showed some concern and prescribed Propranalol and told me to speak to Citizen's Advice about help with support, taken the Propranalol and got up the next morning experiencing an anxiety attack. Yeesh.

So I started looking up about Propranalol and whether it makes you drowsy and the best time to take it and I found something that is just ... typical.

I have mentioned many times over four years that I have wanted to try a drug called Pregabalin but that I have been refused this three times by three consecutive Doctors. Gabapentin is the better drug, the more modern version easier to tailor and, the truth, too expensive.

The hilarious thing about not being given Pregabalin is it is actually the third best drug for the condition of Fibromyalgia. So I literally get given a fourth rate drug that is widely known to make people ill. Yeah ... that is how utterly ridiculous the medicine industry has got. Top of the pile and the only drugs that deals with the core problem is sodium oxybate which is only allowed for narcolepsy. Second on the list is Milnacipran they discovered seems to target the pain receptors specific for Fibromyalgia better than any other drug but is also not approved. Then comes Pregabalin and then Gabapentin. There might be some others that fit into that top three I do not know about.

Oh yeah Cannabis is good too ... but we know how that one ends, lol.

Yeah so there I was just doing some research on Propanalol when I saw someone ask a question about anxiety and mention the word 'Lyrica'. I  thought 'hang on? Isn't Lyrica Pregabalin? Why is it mentioned in a queestion that includes anxiety?'

Well would you believe that someone was given some, lucky *£#4!, by someone else for their anxiety and they worked?!

Oh dear. When you have something that affects you so badly to the point that you want to sling yourself in front of a bus or lorry and then you read that the drug you have been refused for four three years would actually not only get rid of your other condition but this feeling of suicidal doom too?

I just do not understand the people in power who run these organisations in such an idiotic fashion due to just how narrow minded they are. In fact 'narrow minded' is something of an understatement in almost every instance. How long have we had smartphones and the Internet in our pockets now? It is not the simple fact that we could find the truth out on our own but more the case of how can they possibly think in any way that we wont?!

Added to this is the fact that this is not something new or that only occurred in the last couple f years either. I was late to the smartphone party but I have owned a Nokia E71, Motorola Defy, Motorola Atrix, Moto G and now a Moto X and the Moto G lasted me over two years. Each phone I have had has lasted me close to the two year mark. The Moto G probably closer to 2.5 years and maybe even 3? But let us leave smartphones out of the equation for a moment and ask ourselves how long as the Internet been about? I was using it in 1997, possibly 1996, and it is now 2016 so closing in on 20 years.

Mind you it took the health and medicine industry more than 80 years to realise that Fibromyalgia Syndrome is not a made up condition. Yup hard to believe that around the world, or at least in America and Britain, thousands of people who had never met was all having these weirid collections of symptoms occur bbut they thought they were so intelligent that they could state they all made them up because they were too ignorant or lacking the intelligence to realise the truth.

Oh god, I hope these drugs do not take even a fifth of that time for them to realise that they will save their economies and tax pool a lot of money to approve them and prescribe them?! Lol.

I have also seen the term 'Fibro Warriors' used and at first wondered what it meant before then thinking, 'yeah you need to a a bloody hardened warrior to deal with the cursed condition!' LMAO!

The question asked by someone in the link below is 'Will a Doctor in the United States prescribe Lyrica for anxiety/panic attacks?'

https://www.drugs.com/answers/will-a-doctor-in-the-united-states-prescribe-286718.html

IT IS ALL ABOUT THE MONEY

I was just explaining to someone earlier about how much debt we are in, how long the cuts have gone on and how long it will take to get out.

We wont get out because they go after the money in the wrong places, people with health conditions, disabled people, unemployed and the low paid. Very little money has been saved in comparison to how long we have now been at this.

So then how about going for it in the right places?

I stated that if Doctors, Hospitals, general Practitioners and Nurses have been asked to lie, lie and lie again then ... why have them at all?

I mean surely to God money will be saved a damn site quicker if you just shaved everything back to its bare essentials until you rebuild something better and more efficient?

How much money is being wasted employing people to say 'no' or 'computer says no!'?

The answer is; an effing lot!

So due to some things going on I have been looking around researching some things when I came across this webpage to do with drugs for Fibromyalgia. It is on www.drugs.com but will place the direct link below.

There is a long list of drugs that is something of a surprise to me and then some. Of course Lyrica, Pregabalin, is one of the most taken drugs as it is one of the best, but not the best, drug for the condition. 

Milnacipran I have discovered works a great deal better than even Pregabalin but this was refused to be allowed for Fibromyalgia by Europe! You know ... Europe!!

That same Europe also disallowed the one and only drug to deal with the root cause of Fibromyalgia, lack of restorative sleep, which is sodium oxybate. In effect it is a sleeping drug. Except it is not allowed because ... well basically it works too well.

But I hear you thinking ... but wait a minute? There are loads of sleeping drugs on the market? Are there? Because I have taken several and they did not do a damn thing. Well except for a whole string of people in a line making money out of it though. Apart from that the drugs do not work ... unless takenm in a very high dose along with tranquilisers. I know this because I have done that!!

When your desperate and those tasked with helping you do fuck all then desparate times means desperate measures, I am afraid to say.

I did not know about Cymbalta, or duloxetine but have Savella, or Milnacipran.

Tramadol is a suprise addition to that list because a pain specialist told me it would not work on my Fibromyalgia over two years before Fibromyalgia was diagnosed ... yeaah I am going to let that one sink in a little tiny bit ...

If and when you look be careful as some drugs are listed twice .... Lyrica, which is Pregabalin, is listed along with the drug in its chemical name ... errr Pregabalin. Meaning close to 500 people reviewed the drug for the condition and by far the highest on their.

Except I cannot tell you what it is like because I have been refused it for three whole years.

Anyway if you have Fibromyalgia or Chronic Fatigue Syndrome you might want to use the last below. Many of these do not work or only work minimally for me but they might work for you?

Oh and one last thing ... if I wanted to use the system to get money then when accused of being mad and need psychiatric treatment by a previous GP, because he was a liar and a wanker, then I would have said ... YES!! Dumb arses!

Just wanted to say that one last thing, lol.

https://www.drugs.com/condition/fibromyalgia.html

THE ROAD TO EUPHORIA

I am not sure what is happening to me or what to do about it.

Today I had one of those afternoons where I am in effect, high. As in 'high as a kite', intoxicate or stoned!

I had been out to pick up something and just have a quick scan around at phones in these gadget shops as well as phone shops. Need to replace my phone, have one in mind and I seem to find it's sister phones, it little brothers but not the one I want. Which is a Motorola Moto X Style. Did want the Moto X Force but then found it is not entirely waterproof as it seems to suggest kn adverts.

I have had a great many Motorola phones and going backwards a Moto G, Motorola Atrix ( do ... NOT get me started on that phone), Motorola Defy and some odd other models going back the the StarTacs.

I have had others too.

Looked in half a dozen places over the last couple days and not found the one I want but not in a position to buy just yet so just looking. Idea being if I found one I would put down half the money.

There is one I have thought about getting in my local Game Store but it is a previous, 2nd, generation model and no SD Card reader. Only 16GB too. I have a 8GB Moto G and I would never have a phone with low memory ever again. Do not get me wrong the phone has been great for the money but you are just so limited with what you can do and install on the phone. You can forget music.

Anyhoo I had to pick up some things from a friends shop but when I got home I was a little out of it so I waited it out a couple of hours. Instead I felt sleepy so I went out as I did not want to go out tomorrow. As I was walking along I suddenly noticed I was walking along normally, which is rare as I normally limp, and my pains had died down. I suspected I was having one of these weird afternoons I have had recently where this does happen but then I end up feeling a little ... 'high' and I mean ... STONED 'high'. Like you have had a weak spliff, or cannabis.

As I was walking I started to feel it coming on and to my shock I continued on even higher and I even started getting the 'munchies'. If you do not know you get these cravings to eat when your stoned on cannabis. It is very weird and very enjoyable, even a little euphoric at times.

I was nearing a local shop and all I could think about was drinking and sugary things and when I went in I bought a can of Monster Ripper, I normally go for the green standard one, a carton of Orange Juice and a Snickers Duo along with chocolate raisins, strawberry pencils and some fizzy blue bottle ... things. Oh I recall the packet saying 'Bubblegum Flavour'.

I felt like Francine Smith in an episode of American Dad where she lets Jeff, Hayley's husband, smoke cannabis which he gets on prescription for his very over active libido. She gets stoned with him when she gives in, catching him ... well, pulling it several times, and downs a bottle of orange drink of something or other. Cannot recall what she called the drink, lol.

I downed everything as I was walking along and carried on getting higher and just wanted to stop walking and sit down. It was mad ... I kept thinking about just sitting on the floor or a wall and before long I did!

I eventually moved along but sat down again. Eventually moved along and then sat down yet again. I sat down around four times over a distance of about 100 metres. It was mad.

I get to my friend's shop around 4pm and I was very lucky as he was closing early, had to pick up his daughter from somewhere or other I think he said.

I had consumed everything by the time I reached him, grabbed what I needed, paid him and left.

Around another 200 metres later I started feeling like I was coming down but still remained light headed. I recall wondering if it was like some type of diabetes thing and that the sugar or perhaps something else, like caffeine, had brought me back up?

If I am in when this happens I wake up in the dark wondering what happened and most of the time do not recall falling asleep.

This is when I would get one of the major fits, or grand mal if that what it was. I always feel light headed first and it is always in the afternoons and early evenings ... it is very weird and you could set your watch to it.

About 1pm in the afternoon is when it would start and around 4pm is when it is at its strongest.

Now I have been ordered to go to A&E if I was to have another full blown fit and am also awaiting a hospital appointment letter, along with a colonoscopy letter too.

I had considered going to the hospital, bad time of the day for me and public transport, as the feeling might give the positive results needed to any tests done on me at the hospital. But then again they may not do and I may waste my time.

I deliberate over it and I still needed some things for home, like milk I have tried to remember buying for three days, and decided not to go to hospital. Me travelling on packed trains and buses is an absolute no-no and this is me being both cautious and responsible. I have one other problem with travelling on buses, less so trains except tube trains, and this is when it is hot.

I do not handle the heat well ... I really, really hate it and have done for years and often think about living in the antarctic! Or Siberia!

I will experience increasing pain if I am forced to stand still for more than a few minutes and with that I get short tempered and someone rude will be knocked unconscious in the blink of an eye. That is me being ... RESPONSIBLE!

That is only the feet pain and not being able to handle heat.

There are a great many other things in things in my pain list and there is also a separate list for embarrassing things that could occur that often stresses me out no end.

Then there is the blacking out and now these seizures. It is just too much and if not for these things I would have had a job and actually something to do and get me out of this damned house, long, long ago!

It is funny as this feeling I get is quite weird and edges closer and closer to euphoria until your completely feeling euphoric. A great many people would pay good money to feel like this but when it happens when it feels like it at some point in the afternoon and you live on your own it is becoming a major bug-bare. Things are hard enough as they are without this screwing things up.

So there I was walking down this road and heading straight for Euphoria.

I do not know if it just something else developing and you have to understand that with 120 symptoms there is always something knew developing every now and then. Or perhaps it is a drug I have recently been prescribed or an interaction between this new drug, Methocarbamol, and something else.

• Methocarbamol 2x 750mg
• Metoclopramide (cannot be bothered to look lol)
• Lansoprazole 30mg
• Quinine Sulphate (50mg?)
• Ramipril 10mg
• Amitriptyline 30mg
• Gabapentin 500mg
• Atrovastatin
• Tramadol

Hmm now that I am typing that out ... I remember getting to 900mg daily of Gabapentin and it making me ill and nauseous during the afternoons?

Maybe that taking it for long periods the same thing happens? Just takes longer?

That is how I got into a row with a GP that led me to discover they knew I had Fibromyalgia two years before I self-diagnosed it.

As I told a Jehovah's Witness recently who gets Pregabalin ... they refused to give it to me several times and the first time I asked was because Gabapentin was a horrid drug, cheap crap and makes not only me ill but everyone I have spoken to that ever took it except for one single guy. Oddly this guy that took it amazed me because he was taking 2700mg, two thousand seven hundred, daily without issues and did not understand why so many people had real problems with it. Most I have read about had issues long before reaching 1000mg per day.

I am going to drop the dose of Gabapentin and see what happens?

I just realised something else ... if it is the Gabapentin then it is this drug that caused an increase in my seizures to the point of passing out completely for ten minutes?! It simply has to be.

They knew I had a Hypertension problem along with a postural hypotension problem. So I have to risk dying now because the drugs I need are not allowed or too expensive for someone like me as I am seen as worthless? Nice! 

LMAO!

DRUG FUELED STATES OF BLISS

So then some medical people finally come out and state that taking drugs should be decriminalised?

Sensible. Not sure that's going to be across the board, it even sensible series the board?

For the most part it is.

However making this possible is going to create one hell of a logistical problem, or more precisely remove logistics altogether in a certain organisation. I will get to that shortly.

As far I'm concerned this could me a God send?! You see I'm not allowed several drugs that are for my condition and this includes around 120 symptoms. Yup you read that correctly, one hundred and twenty symptoms. Sound incredible? Well if I was one of the very unlucky ones it could be add many as around 200.

Whenever I mention the amount I always get this idea where naïve people and those a little slower than most ask themselves "How can anyone have that many areas in pain? It's impossible?!"

Well if you do I will first ask; oh your a Doctor or specialist are you? Then maybe I should have a direct line to you?

Then I would follow up with; Umm the word 'symptom' means exactly that and not pain!

If your that interested then I'd say the pains are over a dozen ... maybe two dozen? I don't necessarily keep track, some are permanent, done semi-regular and others only occur note and then. I get night cramps in my calves and although this is mostly an odd feeling like I'm going to get pain but don't, the bad pain only occurs once or twice each year. Thank God as several times a year and I'd take my own life if this was the case!

But I've been taking both Quinine Sulphate and magnesium sulphate to prevent it occurring. When it does the pain is so intense that you cannot actually utter a simple word. It's very weird or would be if not so bloody painful.

Sodium oxybate is the only drug to deal with the actually source of the problem with Fibromyalgia Syndrome. But you can only get it if you suffer with narcolepsy. Though it's not nice the comparison with Fibromyalgia is quite startling and I get narcolepsy like symptoms along with everything else. I did this afternoon.

I was on my computer in the afternoon and the next thing I knew I was waking up and it was after 9pm and late enough to be dark on the 17th June.

If you get any paraphernalia on Fibromyalgia it can actually mention that a certain drug helps a great deal with the condition. It does not name it but it's clear they are speaking about Cannabis.

I went through periods where I smoked it socially and got into smoking it privately and it does have a far better effect than all I've been prescribed combined!

But then that's probably because asking with sodium oxybate you are also not allowed to have milnacipran too!

It gets better as there is another drug called Pregabalin and they won't give me that either because of the cost!

So ... the best three drugs for FMS are not allowed and the other refused over expense! So I get the crappy and cheap crap fourth end fifth drugs in the list of effectiveness for FMS.

They wonder why the NHS and the country is in a mess?!

Narrow minded, selfish, amoral and inconsiderate arseholes without a shred of compassion while worrying about their salaries while pushing pens.

Hmm? Well I think that just about covers them all? All public services, local and central government?

Oh yeah that logistical problem?

Well what the fuck will the Police have to do add they don't do fucking anything else, rich and celebrities aloud to get away with murder, well pretty much almost, and laws are completely ignored fifty percent if the time.

At least the keep Krispy Kreams going strong in the financial crisis?!

Health bodies call for drugs to be decriminalised - http://www.bbc.co.uk/news/uk-36544380

EUROPEAN MEDICINES AGENCY - RESPONSE AND REPLY

Well I finally got a response to my questions of why sodium oxybate and milnacipran were turned down for use with Fibromyalgia.

Rather bizarrely they have responded and included Pregabalin with these two which, though I mentioned, is cleared for use with Fibromyalgia as far as I was aware!

Now if I missed something here and Pregabalin has not been cleared for use with Fibromyalgia I am a bit confused as to not only why I was told I would be prescribed it but that not a single GP or specialist I have mentioned the drug to has replied that it is snot cleared for Fibromyalgia.

Conclusion?

It is not cleared by the NHS for use with them and I was given a bullshit excuse for this too as they thought I had been told or informed it was not cleared for use.

Did they just let the proverbial cat out of the bag here?

Anyway I will now paste their full email response along with my reply ...


EUROPEAN MEDICINES AGENCY ..

Dear Mr Haswell

Thank you for your letter of 30 November.

The decision to apply for marketing authorisation of a medicine in a particular indication is not made by the European Medicines Agency (EMA), but the companies concerned. The Agency can only evaluate the evidence with which it is presented and can only approve a medicine for marketing if the benefits are clearly demonstrated and outweigh the risk of side effects. EMA’s assessments do not consider matters of cost and reimbursement, which are handled at a national level.

However, in the treatment of fibromyalgia, good evidence of effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran when the companies marketing these medicines applied to the EMA to authorise such use.
In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. As a result the EMA’s committee of experts responsible for the evaluation considered at that time that the benefits of the medicine did not outweigh its risks, and recommended against approving it to treat fibromyalgia. Details of this evaluation are given in the Agency’s assessment report at: http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000593/WC500106940.pdf.

With respect to pregabalin, in 2009 Pfizer Ltd presented the results of five main studies involving over 3,000 adults with fibromyalgia. Again, most of the patients included in the studies came from outside the EU. After evaluation, the Agency was similarly concerned that the benefits of Lyrica in fibromyalgia had not been shown in either the short or the long term in patients from the EU. There were no consistent or relevant reductions in pain or other symptoms in the short-term studies. In addition, the change in symptoms did not seem to be related to the dose of Lyrica that the patients received, and the maintenance of Lyrica’s effect was not shown in the longer study. At that point in time, therefore, any benefits of Lyrica in the treatment of fibromyalgia did not outweigh the risks of its known side effects. Hence, the Agency recommended that the change to the marketing authorisation be refused. For further information, see http://www.ema.europa.eu/docs/en_GB/document_library/EPAR_-_Assessment_Report_-_Variation/human/000546/WC500076177.pdf.

In the same year, an application was made to EMA by the company Pierre Fabre Médicament for the use of milnacipran to treat fibromyalgia. After evaluation of three main studies, involving 2,960 adult patients with fibromyalgia, the Agency’s scientific experts were of the opinion that the effect of the medicine was marginal. There was again a lack of data on the long-term effects in a European population. Therefore, at that point in time, EMA was once more of the opinion that the benefits of the medicine in the treatment of fibromyalgia did not outweigh the risks, and recommended against marketing authorisation. For more information on this, including details of the assessment, see under the various tabs on http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/001122/human_med_001313.jsp&mid=WC0b01ac058001d124

Should a further appropriate application for use in fibromyalgia be made for any of these medicines, the Agency would thoroughly evaluate any new scientific evidence presented, in order to reach a decision on whether to recommend marketing authorisation.
The Agency’s remit covers the scientific assessment of medicines and the monitoring of their safety once they are marketed, and we are unable to comment on the other matters covered in your letter.

A copy of this reply has also been sent to you by post.

Kind regards


Paul Blake

Stakeholders and Communication Division



MY REPLY ...

European Medicines Agency

I have received your report on the situation regarding the application of the drugs sodium oxybate (Xyrem), pregabalin (Lyrica, though I never said it was refused to be used only refused over money and this has been told to me by at least two Doctors) and milnacipran.

• “effectiveness was not shown with sodium oxybate (Xyrem), pregabalin (Lyrica and its generic alternatives) or milnacipran “
• 1) This conflicts greatly with everything I have ever researched and even solicitors I worked for stated that I am extremely good at research
• 2) This also conflicts with the patients accounts of the use of these drugs

• “In 2011, the company which markets Xyrem (UCB Pharma) applied to the Agency to extend the use of the medicine to patients with fibromyalgia. This involved results from two short-term studies involving 1,121 patients with moderate to severe symptoms and one longer term study involving 560 patients; the majority of the patients came from outside the European Union (EU). Results in the subgroup of patients from the EU in these studies did not demonstrate a clear benefit, either short- or long-term and there was a high incidence of side-effects on the brain and nervous system. “
• This is a … frankly bizarre statement … also ... WHAT side-effects?

• 1) Are you stating that thins are not done this way in Europe in which case why would they ever bother approaching Europe over these drugs

• 2) I very much doubt that drug companies would approach the EU, despite my understanding of their underhanded nature and dislike of them, with drugs that do not clearly work or cause such terrible side effects

• 3) All drugs have side effects and do you not think it I down to the patient when it comes to weighing up the risks to the benefits? Anyone can so no or do you not think that patients are capable of rational thought?

• 4) Further to the first point … where are your own trials?

• 5) Your statement of weighing up the benefits and risks contradicts your statement that there was little or no effectiveness

Do you know what I constantly think of several time each week and have done for the last 7 years at least?

What it would be like to actually take sodium oxybate even for just a week to ee what it feels like to be normal once again.

I also ponder that as the Fibromyalgia Syndrome issue is lack of restorative sleep and that symptoms collect over many years that taking sodium oxybate for just one week may reset everything back to the start prior to being affected by my first ever symptom.

In other words having none at all or only one of the 120 odd symptoms I currently experience.

Another conclusion I have come to regarding just the case with Fibromyalgia Syndrome is that the people that make up the committees and organisations that make thee absurd decisions are idiots made up of friends of people in government, central or local, that have not the first clue about just how bad some conditions can be on the human body as well as the mind.

Your answer has had zero effect in changing that view.

Incompetence, corruption and general skulduggery can manifest absolutely anywhere and in my years of endeavours I have generally found it to be everywhere I look 100% of the time.

In which case and in every instance there is a general protocol that exists for making challenges, legally or otherwise, to said organisations.

I would like to ask of you what exist for you?

Can you provide me with a ombudsman for you or governing body or even a watchdog? I imagine any challenge would be quite tricky for any professional body especially when they have other professional bodies that conflict with their reasons that are based on something as flimsy as …

Side effects of drugs.

This made even said drugs are cleared for ailments that re not even in the same league as Fibromyalgia Syndrome.

Now I will mention my blogs once again.

I blog about corruption and I have covered organisations in the dozens. As big as you like. I have never been challenged bot that is because of who I am and how I do things.

No bullshit. I am honest in everything I do, sincere and to the point no matter how sharp this may be. Except that when I do this I am not doing this purely through my blogs on corruption.

You might have noted the letters after my name? BSc Applied Computing.

I do a blog on computer hardware and software with some gadgets thrown in. But this is not my only subject of expertise and I provide blogs on …

• Batrachology
• Herpetology
• Ichthyology
• Astronomy and Astrophysics
• Orchidaceae
• British Wildlife
• others including Kung Fu, Photography, Music, Movies and more

My corruption blogs alone number around 3,000 posts and some read like Tolstoy's War & Peace.

I have a dozen blogs and the amount of writing involved is astronomical and with each and every one what people see is someone level headed, factual, professional and honest. Someone that does not like what he sees, dislikes the lack of professionalism, abuses of positions of power and what the UK has become.

Someone that has not just gone out and done something about it but has spent years secretly recording, collecting and compiling letters that go back 20 years and publishing everything for to help other victims, people suffering physically, mentally or both.

What surprises people most of all is that I have done this alone and there is one very outstanding endeavour that over-shadows everything I have done previously.

Despite many of my endeavours being worthy of front page national tabloid news this one last one is capable of a front page serial all on its own.

If they are surprised at what I have done and achieved so far with my excess of 100GB of data it is nothing compared to what is coming over the next couple of months. Something that will amass so much attention that it will make the 300,000 visitors I have had thus far look like a drop in the ocean.

While I twiddle my thumbs waiting for this to happen I had some requests to my GP go unanswered and I know all the reasons why. As I have proved them in the past over and over again to show my visitors this is not a localised incident, not a one off but that many Doctors and GP's are lying and are doing so under command.

Indeed many of the stories that have arisen on everyone, not just the NHS, have originated as one my stories.

Indeed if I inform you that the late backbench Labour MP, Michael Meacher, approached me via email in January 2013 requesting if he could use my blog data to atack Iain Duncan-Smith in the House of Commons while end others to the news media I am sure you will realise that even two years ago I had a hell of a lot of data?

I have not even published half of what I have!

So getting back on track …

I found myself being fobbed off again, I looked up the link between high blood pressure, which I have and my father died of a burst aneurysm at 56, I am 47 nearly, and read about milnacipran and it being refused along with sodium oxybate. I then decided to look into who make these decisions and mount another challenge against another organisation.

It kind of kills the time while my secret four year long court battle waits to hit the headlines and gives me something to do while peaking my interest.

So that procedure/ombudsman/governing body I asked for?

I look forward to hearing from you with great interest.

Yours sincerely

Martin Haswell BSc

ONE LONG ROAD OF PAIN

Ooh boy! Has today been a bad one and it is only 1.30pm!

First off I am stuck between a rock and a hard place, quite literally and to say it is not stressful ... well I would be lying.

It also turns out that not only have the naysayers now decreed that the positive parts including money is all bullshit, that they have taken it upon themselves to decide that all the previous stuff, much I was present at and recorded dozens of things, is all bullshit too.

Damaged egos, eh?! LMAO!

Added to that is I have a GP appointment where I am going to try once again to be referred to an Osteopath over my back pain.

Oh and the nausea.

Oh and I must remember to mention waking up to discover my left hand is digging into a tender area around the base of my neck, which was already spotted twice and then retracted by the NHS. This may be linked to the nausea, you see?

Which may be linked to the back pain that was also spotted twice and then retracted.

Being wrongly diagnosed, especially when you yourself know what it is, is one thing. But being diagnosed and then having things retracted?

Happened with not only my back, twice, but also my right knee twice and an inguinal hernia on my right side. Recordings of the Doctor in question being caught red-handed by me and admitting falsifying test results and then retracting that too! Lol.

If I ever told them in anger I was recording them I would never  have acquired as much as I have. Let them lie, let them think they are getting away with it. Move onto the next thing, let them build up a great deal of over-confidence in lying ...

...carry on recording. Mount it all up ... post it all on the Internet when you have far more than enough.

Watch as journalists, newspapers and TV idiots act no different to those they expose and steal your stuff, alter it, go after their own but similar story and you get nothing in the way of thanks for it.

Well I did say the whole blog was a trap?! Remember? LOL!

I have now confirmed that high blood pressure is linked to Fibromyalgia and in so doing discovered a new drug, Milnacipran (brand name Savella) that is reported to have better affects with Fibromyalgia sufferers than the totally cheap crap and wrong drugs they fob you off with, like Gabapentin and Amitriptyline.

It seems that this new Milnacipran works on specific neurotransmitters in the brain that are affected by Fibromyalgia Syndrome which itself is partly driven, or mostly, by not having the sleep where your body repairs itself, including the brain itself.

Yeaahh ... imagine that next time your thinking about your friend or family member having something you do not believe or think does no exist, because of idiot medical ... umm experts? I think not.

I know because I went through it for 13 years, though it turned out I had had FMS for closer to 20 years!

I am not going to get into the number of things the NHS destroyed by being both idiots, deaf and liars because I have mostly done that already. Spent 3.5 years almost doing that on this blog ...

... saving money? I think not!

It also mentions the other drug which is the only one that work on the cause of Fibromyalgia, lack of restorative sleep, Sodium oxybate (brand name Xyrem).

Please note that on the page in the link below that Gabapentin is Neurontin, the latter being the brand name which they seem to fail to mention.

Sodium oxybate (Xyrem) is the drug that Dr Kirkham, specialist ion Fibromyalgia at Guy's Hospital, had, to my complete shock, never heard of. I told him it was a shock to hear that as it is the one and only drug that deals with the core problem for people with Fibromyalgia.

In other words it is not only dealing with the pain, not masking it, but deals with he fatigue too. I think this goes double for Chronic Fatigue  Syndrome which I believe is just Fibromyalgia Syndrome in its early stages,

If you have come here about the drugs I mention of Fibromyalgia or Chronic Fatigue, or other subjects for that matter ... you can search the archive! Lol.

So I am thinking about all that ... plus the two other things both concerning large amounts of money, one I do not want to be involved in and one I thought I was and now I am not ... how long for and why not I am in the dark about.

Of course as I stated previously my life has been made a living hell by the naysayers made up with those with damaged egos and those jealous with envy who do not want it to be true.

For the first time in several days I pop in to get something from a friends store and am on in serious back pain. I then decide to head to town for a brief pick up and head home. I bizarrely consider catching an unusual bus route home but miss a bus.

I am then walking down a long straight road I use and I get a third of the distance along it when ... WHAM! No George Michael has not crashed into another Prontoprint, or whatever it was, I get a sudden attack of one of my many other pains straight into my right foot!

I cannot walk! No buses down this road either! I stop for several minutes, lean onto my walking stick and wonder how a human is supposed to deal with this amount of pain, stress and thoughtlessness of others before trying to carry on. Two steps - bang, bang! Darn it this is seeming impossible.

Now here is the bit that no one considers nor asks about ... what do I at times like this? Well I have my walking stick and I stand there and think that there must be a walk that will keep the pain from firing off.

I walk with the heel on the right foot and try not to put the ball of my foot onto the pavement, it does not always work.

I limp and lean hard and my arms get tired and I switch arms and I feel light drops of rain on my face and think "please, no! Not fucking now!! You have made things hard enough at a tough time already, do not fucking rain now, its all you have done for week on end!!"

I look at the pavement stretching off into the distance. It suddenly looks a very long way away.

I have to make three major stops of several minutes, more leaning and questioning, along with a half a dozen stops of a few second here and there.

Despite actually thinking this was going to be the first time I was going to fail to get home., because of my location far from a bus stop, I struggled, bit my lip hard, got down deep and I worked through the pain and limped all the way home.

Oh how I wish that we could get just a week or two of some clear skies and wind free! You have no idea how much I so want some of those so that I can get out on my damned bike!

Because the other things I have to deal with, harder when your avoiding people, is the ever so annoying boredom!

The link to the drug I researched that holds the link to high blood pressure and Fibromyalgia along with the listed drugs above ... yes including the ones I get refused, like Pregabalin (brand name Lyrica) and the mentioned Sodium oxybate (brand name Xyrem), click the link ...

http://www.ukfibromyalgia.com/treatments/medication.html

THE FRUIT BEARING TREES

It is a tiring thought at all the ideas that I put into practise that I know will take time and effort but have trouble doing...enough.

I feel like I have been at mt blogs for half a lifetime and wonder to the day things will all fall into place?

It does not help that I have had an extrememly unproductive year and to give an idea of this my YouTube videos should number over 2,000 by now but hardly krept up from the 1,100 or so from one year ago. Considering my one YouTube account acts primarily as a back up for a dozen blogs on a dozen subjects, that...is...terrible! Lol.

I should have been in a very good position by now but due to one thing and another this has not quite reached the heady heights I wanted it to.

Now I have to admit that yes it still could have done. The factors that meddled with things could have been batted away with a simple swipe of the hand. But this would require....how do I put tthis? Help.

During 2015 this very notion of help...or really more correctly support, will become more prevalant and it is hard to explain why right now.

Much of things that I have said seem cryptic throughout the life of this blog and they were quite deliberately so. It might seem very long winded to many but this simply could not have been helped not just because of the size of the enemies I went up against but because of the people I have tried to convey all this too.

People to me seem to have a very difficult time comprehending proof put before them. Why? I simply do not know. If I did my life would have been so much simpler than it is and has been. If everything was easy and straightforawrd I would never, EVER have to have started this blog. By that I meant I simply only had to go to the news media and the job was done. I suspected, however, that they were corrupt also based purely on their respective owners so I could not rely on that.

They did as I feared they would do, nothing...nothing at all not even a letter to say I was a raving lunatic, lol. Hmm or an email as I contacted each and every one of the big names in both formats. It was merely a test to see what was what with the news media and I am afraid each and every one failed. The odd thing is I only ever had one conversation with what I had, prior to the blog of course, and that was with Max Clifford's secretary!

So yeah you could say that the corruption was spread wider than even I thought it had and people thought I was mad, lol. No just smart, able to see things others do not and...I like to think...a visionary. True that the jury is till out on this last one. Until 2015 I would wager?

I, rather annoyingly, do not work. Or to be more accuarate I do not have a job. As I said this is most annoying. I thought that working on this for so long it would feel like I had a job, was doing something, was contributing to society (you see that?!) and helping others. It does feel half the time like I am helping others. It does not, however, feel like a job. But then I am not entirely sure what a job is and whether its somethintg that suits me. I think a career would be more apt a term in this instance.

My point is, is that I have wanted to do something for sometime and I simply cannot find anything hat fits in with everything I have going on. I mean the health, the other rubbish and ... other things besides. A career is not the only thing that I cannot fit into this web of crap I call my life and many others are plainly obvious as you delved further into my older posts.

I thought now that the winter has arrived I would be planning out my next big thing knowing it was a full gone conclusion but as yet I am not. I have to hope that I have a good Spring and Summer 2015 and next year the nest things will be falling into place?

Of course next year means nearing 3.5 years and this opens up a whole new can of worms and then some. Three and a half years that all this has been made available along with anything else I have acquired in the next year. Hmm I could go after a follow up investigation to my knee? Oh, listen to me 'a follow up'? I forgot, they left that diagnosis out of the letter from Guy's Hospital and I have still YET to listen to the all important part of that recording?! Hmm hold up there a minute?!

Right a little work in progress here but I have am finally listening to the damned tape! Takes me soo long to get around to things ...

Currently having trouble pinpointing the yelling out due to knee but found that at...

38 minutes and 14 seconds that he mentions I have the knee problem.

Its annoying the quality could be better in places but I could hardly stop and say "Ooh just a minute while I just fiddle with the audio recorder I am secretly recording you with?

The intention was to get a letter to the GP that was different to what was said on the day. If no one had realised this, sorry I did think it was obvious and sorry if it was not.

OK I think I was looking in the wrong half of the recording, it is...errr over 55 minutes long and I did think it was in the last 10 or 20 minutes? It appears not! Looking like it will be about 20 minutes in, if that and I know this because I have just been asked to get undressed at 15 minutes in. He leaves the room at this point and towards 16 minutes I am having a chat with the trainee. That starts of clearer and then dulls a little but you can still hear what is being said. In fact with the right equpiment you can here everything I think. My audio gear is pretty good, but could be a lot better and I am playing it on two old Acoustic Energy Aego speakers which are diminutive in size but produce a good quality sound.

I talk about the book Figuring Out Fibromyalgia by Ginevra Liptan around 19 minutes into the recording and am still waiting to hear me yell out in pain. I should be hearing the words, please stiffen your legs?

God, how can the loudest sound be so bloody hard to find?! LMAO!

Thirty minutes in and it must be coming up?! I am, being asked to do things with me legs I remember and I was on the hospital bed laying down. Maybe I did not yell out as loud as I remember? Lol!

Found it!!

Bloody hell at long last, now let me just double check the time to exactly when in the recording?

At 31 minutes 26 seconds he asks me to stiffen my leg.

The yell is at 31 minutes and 31 seconds, he states I have a knee cap problem at 31 minutes 45 seconds.

In there somewhere he also does the same thing to my left knee and I am very wary about doing the same thing and getting the same amount of pain. However to me surprise it does not hurt at all?!

The same could not be said for the right knee though and it bloody well hurt like hell.

And NOW for those that did not want to download and listen through 56 minutes of boring banter here is, and finally though I promised months ago the edited portion of that I speak of above.

So to add to the Fibromyalgia the dozen pains I experience the other 100 annoying irritations from it, the vomiting and heartburn from the Hiatus Hernia and Oesophagitis that now needs investigating once again is the second spot of an NHS Doctor of my right knee problem.

Remember the first was Dr Saksena at Chase Farm Hospital and I then ended up with a rather rude, thinking himself scary while still suffereing from delusions of grandeur, Dr Tai and the cancelled MRI for the right knee because they said I did not turn up, a LIE, and then when referred to Barnet Hospital they ignored it and WRONGLY looked at my feet, wrongly x-rayed me as if I was an idiot and then WRONGLY diagnosed it and disagreed with me on something that is well documented...

Here is the 'You have a knee problem!' I still cannot hear what he says and think now he never mentioned it so ...

http://www.wuala.com/allnights/Evidence/NHS/Guys%20KNEE%20PROB.mp3/

Now I do seem to be asble to find the test that he did which seems to be the same except it states nothing about pain in the test, no matter how many times I find and read about it.

Lachman test is the name it appears to be called but it states nothing about pain but does state that the Doctor will place his hand on your lower thigh just above your knee. Sometimes it states that the knee is bent and I could be wrong but I am pretty sure my leg was straight when this was done?

http://www.webmd.com/pain-management/knee-pain/physical-examination-of-the-knee

The pivot-shift test, anterior drawer test and Lachman test are used during the clinical examination of suspected ACL injury. The Lachman test is recognized by most authorities as the most reliable and sensitive test, and usually superior to the anterior drawer test.^[13] The ACL can also be visualized using a magnetic resonance imaging scan (MRI scan).

An ACL tear can present with a popping sound heard after impact, swelling after a couple of hours, severe pain when bending the knee, and buckling or locking of the knee during movement.

Though clinical examination in experienced hands can be accurate, the diagnosis is usually confirmed by MRI, which has greatly lessened the need for diagnostic arthroscopy and which has a higher accuracy than clinical examination. It may also permit visualization of other structures which may have been co-incidentally involved, such as a meniscus, or collateral ligament, or posterolateral corner of the knee joint.

- Wikipedia; http://en.wikipedia.org/wiki/Anterior_cruciate_ligament_injury

The term for non-surgical treatment for ACL rupture is "conservative management", and it often includes physical therapy and using a knee brace. Instability associated with ACL deficiency increases the risk of other knee injuries such as a torn meniscus, so sports with cutting and twisting motions are problematic and surgery is often recommended in those circumstances.

- Wikipedia; http://en.wikipedia.org/wiki/Anterior_cruciate_ligament_injury

Now if you have not followed the letter I got from this Doctor Kirkham from Guy's Hospital did not state a single thing about the knee, the test of it nor the pain I experienced from the test on my right knee. This right knee is one that I have given details of previously and several people were present when I did the major thing and it 'popped'. It may have been present previous to this I simply cannot remember. That popping took place over ten years ago because my father was present at the time.

The letter, laso to be found on here, also did not state that which he did at the appointment in that he had no problems telling my Doctor to prescribe Pregabalin.

I still have not been put on it but then I have not asked my current GP about it and decided to give a combination of Gabapentin and Amitriptyline a go first, though Dr Kirkham stated that I could take the Amirtriptyline with the Pregabalin.

THE NICE EFFECT

I am currently out. Doing a favour for a friend and I am now done. Typing this from my mobile phone and I was explaining about the recorded delivery letter from the GP.

One thing I keep thinking about is what to post about the reasoning, week because it's crap at the end if the day.

"It's expensive" oh really? What £10 per pill? £5 per pill? I know that this threshold had been secretly reduced and where does it end? Fifty pence per pill? There would be no need for GPs eventfully. You just need hospitals and a department that posts out the pills which then stops anyone from acquiring pills they have no right to.

So prescriptions which can be stolen no longer exist and therefore another headache dealt with.

The link below has a story about NICE, National Institute of Clinical, oops sorry Carer Negligence stating that Pregabalin should be given out and states that it should be prescribed if Gabapentin worked but did not over side effects.

Oddly it mentions the other drug which worked but making me sleep to the point of narcolepsy symptoms and that there are similar drugs.

Now OK my previous ... previous GP, John Gubbay, never got the chance to explain that, of indeed he ever would, due to accusing me of being mental and then violent with help from the GMC.

Note how much violence and madness was involved this time around. Making that the GMC only have themselves to blame for complicating that and giving out the wrong impression, oh dear. I never expected them to do thaaaat?! Lol.

Just like I thought that this time around my blog address would find its way through note they take they should have read a lot mitre than they did.

This is a prime example of how people dull to help when themselves by simply not taking the time.

Yes there are many reasons this behaviour is rife these days but I am not going to go into them because I do not know which people fit which excuse. Again something for budding journalists to go after!

Hmm now I wonder how many budding journalists have any of their own suspicions and how far and wide they spread? I wonder if any GPs up to questionable shenanigans who end up reading this start to wonder?

Lol.

Anyway as you can see it does state on the webpage that Pregabalin is prescribed on the NHS. The recording dies have a Doctor at Guys state he is happy to prescribed it. It then is not and the knee is omitted, oh do very bad a move, and all clearly heard on the tape.

This just leaves one more like post if my plan to work out and letters to turn up...

The decision on my Personal Independent Payments based on a letter from my latest GP who never possesses my medical records!!

Lmao!!

http://www.pulsetoday.co.uk/nice-rethinks-pregabalin-over-cost/12741305.article#.U6QRNOBwYm8

EMAILING THE NHS PART THREE

I do not always reveal everything I do, either on here on to those I am at odds with. Now I am going to say that my methods are very plain to see on here. Very plain and I have not hidden that fact in fact I actually like the fact that ... some things are plain see.

I said a long time ago that I mentioned a great deal of things and then buried them with many posts but that they are here? 

A late friend of mine who died of kidney cancer and was appallingly treated prior to his death, leading me to wonder who does get treated well in the NHS, was the driving force behind me doing this and this started prior to his death. You can find me speaking about him on here and you can search 'Old Ken' though some referred to him as 'Red Ken' as he had very socialist views. We used to discuss the good things and bad things of being a socialist, as I am not one despite how it may sound on here at times. I hate people pigeon holing things which is why I dislike politics ... no HATE politics and politicians so much. 

As an example of this was the stupid statement in the media recently where they reported that Ed Milliband was stated by the public in a survey to not being Prime Minister material?!

What?!?! Are you serious?!?!

Sometimes I think that these statements are just attempts to stop someone getting in and see the public as just no more than sheep and think if we keep saying something long enough the public will think how we want them to?

Now first off I need not remind you that I hate politics as I just stated as much and I am no fan of anyone in particular though if pressed I would state Nigel Farage. Therefore I am not promoting Ed Milliband but I will however defend him in this instance with just a couple of lines ...

Oh so everyones choices in recent times have been spot on have they and everyone that has ever been voted for is perfect?! Well go on then ... name one?!

Even the Messiah that is Tony Blair has been shown to have been crap and I am sure this will only get worse over time and in all honesty the media need to stop making it look so bloody obvious that they act like those two in Wayne's World whenever they get him on a satellite link for his comments on the country.

Umm they do know that we have been heading for this crisis for years and that he was in power all that time so why the feck you would want to ask him is anyone's guess?! A man that ended up putting the country in debt while he himself now turns out to have an obsession with making money?!

I will tell you what my grandmother said about my grandfather in this respect ... "I do not know what he thinks happens when he dies? Maybe he thinks he will take his piles of cash with him and there will be a bookies in heaven?!" before rolling around on the sofa in fits of laughter.

I think I have made my point and now for an email I have just sent to two departments within the NHS as their ignoring me is getting more peculiar as the recorded delivery letter I received from my EX GP states that they have contacted NHS England and let them know?! That is more than the last one did who gave me a phone number and an organisation that did not seem to exist, at least the phone number did not and the name of the department was quite different. Took a fair while to find them.

Also as I stated beforehand I am way, way, WAY overdue an answer about my Personal Independence Claim and the last I heard was that they had written to my GP?! LOL.

Remember this GP Surgery never took receipt of my medical records and this is clearly spoken about on the recording. Like I said on the day Doc but will expand on it, the go-between bodies have been proved to be utterly bad at handling complaints like mine. Note the recent link I posted about NICE now recommending the drug I was refused and that I stated this refusing of drugs is a false economy. Ooh that is nice of them to say, is it not and with such great timing too!

You have seen my contact the General Medical Council and you have seen at just how good they are at handling complaints and there actions only benefited the GP, or so they thought at the time. You have seen me contact the PHSO several times and the comments they made and in March sign an authorisation letter to handle my complaint, yet I have heard no updates in nearly four months now other than the fact that my now EX GP got a hold of my blog address miraculously and then fibbed about it. You have also seen evidence of my contacting NICE (ooh the Internet and IT lesson again) and not getting much of anything in the way of a response.

Currently PALS are supposed to be involved yet again and I have already spoken to them about this kind of thing that went as far as the end of my garden. You end up thinking 'Oh why bother, next time I am just going to accept it!' and this I realised and why I kept on and on over this.

Cannot wait to see what Atos and the DWP now state as I have emailed them and I am going to switch my focus to them now and barrage them with emails and letters!!

Oh and what was with that member of the public saying how wonderful Universal Credit is?! Lol! Did he get paid? Locals should be on the lookout for a guy singing on while driving around in e bright red Ferrari 599 GTO! Lol.

Oops someone had a little moan about my smoking on the phone and said "I thought you said you would never smoke again?!" and I said "I know! (laughs) It is all this unexpected miscalculation or my fincances (but for a bloody good thing) and what happened with the latest GP, after all I did not really expect this once I was with them and went to Guy's Hospital."

I then explained about the wrong information given for the nicotine gum, which I had forgotten to tell him, in that I was told that it was NHS policy to not give them for more than three months. He was shocked to hear that and I think he realised just how stupid a rule that is. But was shocked further when I explained that I had told the Doctor this was odd as I had currently been on it for more than a year and that I was told you could have it as long as I needed it.

I then explained that since I registered I had asked for three drugs and had been refused all three. Funny that?! Lol!

Nicotine Gum - Not given for more than three months yet had not prescribed it at all.

Excessive Sweating - No such drug exists err I do not know what it is called I just know someone who is prescribed it?!

Pregabalin - Whereby a way over the top set of events occur to make me look like a liar and I am refused the drug with a cocky knowing look on my face. My poker face is a damned site better I can assure ... oh wait?! I proved that one did I not? LMAO!

Among others were there is no department within the NHS for Fibromyalgia, same chap, Dr Kumar senior, that stated there was no drug for excessive sweating.

Then of course there is the fact someone told him my blog address and it was not me, despite how the letter sounds like the wounded animal syndrome.

Then there is the odd turn around after insisting he would not refer me to Guy's Hospital until my medical records turned up in the next few weeks yet a sudden change and a phone-call to refer me off and I thought 'well that is odd?' Hmm odd indeed! Seven months later and no medical records and that is perfectly normal?! Jesus, they do have high opinions of themselves while having a low one for patients?! Especially when it comes to intellect! Lol!

Hmm let me fink! What else? Well there was a sudden Jekkyl and Hyde change in attitude of a couple of people and only just remembered that one! Damn this Fibromylagia! Lol! I am not going to go into that as it really is insignificant and I have just realised that with each surgery I have left I have been more pleased about leaving it than the last one. On this occasion I do now think that someone contacted the surgery some time ago now due to that sudden change in the temperament of these two. I mean this was not just a minor change this was a black to white change that took me aback. They went from being extremely friendly and nice to shirty and evasive from one meeting to the next. Yet I fully declared what had gone on previously as if to say 'if you do get a call please do not try anything and tell them where to go?!'

Maybe it was just a coincidence that two separate people went from hot to cold like that and it was not recent either. No this was around ... February! I registered in November I think and has an appointment on the 4th December and each time I sat in there I hoped to high heaven I would not get the same treatment as before!

The only option I have left to get a Doctor that is not like this is to be very ... up front, shall we say, about what will come next.

I alawys chuckle to myself though sometimes at the 'cat's got your tongue' of the 'rabbit in the headlights' reaction when they strike and I strike back?

This times the best one yet as the grapevine has gone silent! Hmm maybe I should try this with all those moronic outfits that send out that incessantly boring junk emails?!

 ... 

EMAIL ...

Dear Sirs

I seem to have had the whole lot of the public services go completely silent at the same time.

Strange that it would coincide with everyone realising not only what I have been doing but how much I have done and how long for.

Now I am not sure if I am contacting the correct department here but ...

1 I have had yet another GP Surgery kick me off prematurely and right on top of being due a repeat prescription

2 I have had yet another GP tell me lies and on top of that state NHS rules that were not only not true but in complete contrast to prescriptions I was currently receiving

3 I am sorry that no one likes the fact I am smarter than they are and that I can spot dishonesty a mile off.

4 It really is strange that I was spoken to as if I should be appreciative I have a Doctor and given third rate drugs and cannot even acquire the second tier drugs for my condition of Fibromyalgia and that you specialists have strangely not heard of the single drug that works on the condition they specialise in.

5 I was refused ALL THREE DRUGS I requested under my present Doctor and a very lame attempt by the NHS to now make me look like a liar failed miserably because I not only fully expected you to do this but also gave you a false sense of security.

6 I need a GP that is not two faced and that place themselves and their egos in first, second, third and fourth places in their priorities list and have an ounce of common sense, which in all honesty I have yet to find at 45 years of age! I am not kidding here either!!

7 You, or some department within the NHS that is for certain, has been feverishly plotting against me to no avail and I hope that they now realise that this was folly and that any attempt to continue this will also fail.

8 So I now need YET ANOTHER GP and you had better pick up the phone and find me one that is decent, honest and professional and does not sit in their surgery as just a GENERAL practitioner and think that being a Medical Doctor trumps all else when it comes to intelligence?!

9 I do not care if I have to catch transport to get their as long as the Doctor has a good reputation and not like the last one trying to short change patients on medication so they cna have a fancier practice than the others around them, thereby leading them in under false pretences.

10 The attitude was that it was OK to call me a liar and yet calling them out as liars and with proof was like committing murder?! You have no idea the damage that has been done now to the health service and that which will continue to be done.

111 The levels of delusions among health staff regarding their grandiose self esteem and the absolutely terrible double standards is nothing short of astounding ... sooo ...

12 Let me tell you as an expert in MY FIELDS that this is really going to backfire on you! Now this is MY area and not YOUR AREA, which your not very good at in all honesty! Like the GP letting it slip that I did not see a specialist and then when I realise what he just said and repeated it he then said "No I did send you to see a specialist!" which was extremely odd and tied in with the weird fact that the Doctor I spoke to had rather CURIOUSLY not heard of Sodium oxybate?! Now how the hell than can be I do not know!

13 As an example of the above I shall explain that it takes months for a post on a blog, any blog, to 'sink in' with the public at large. I should also tell you at this point that I am followed by Doctors and authors all over the world. Some of that which I have only posted in recent months has not yet begun to boil with the visitors but will so over the next couple of months. As for that which I am posting right now that will be late Autumn onwards. I get people leaving comments only just reading something I posted 6 months to a whole year beforehand.

14 To sum it up entirely I challenged a number of GP's to do the right thing and that I would endeavour to reveal any corruption and misleading of patients that was going on. IN turn they did not deem this important enough to take up with those that pay them, i.e. YOU! I do not like being misled, lied to and not only having my diagnosis being avoided for thirteen years but now that they have been found out am STILL being refused a SECOND TIER drug in Pregabalin, first tier being Sodium oxybate. I thought mentioning that I was aware of Sodium oxybate may deter any further attempt to falsely label me but it turned out to be a waste of time.

If you have no idea what I am talking about then ... ohhh boy! You had better take a look but I warn you that any correspondence to lie about anything I know will receive a rude response from me as this wil be an insult to my intelligence. An example is that the last GP claimed that I gave him the blog address, umm well no I did not I only mentioned its existence and did not mention at all what was on it what the address was or what I was doing! SO someone WITHIN the NHS told him or the PHSO did or indeed PALS. No one else knew. Oh yes and here is one other thing that I quite deliberately did not mention to the GP on the day just like I failed to tell him about the second recording device, the second one he saw did not record ...

I had a CD on me with not only the recording but also with the address of the blog written on the disc, you might want to ask yourself why and how I was so well prepared for his onslaught of me over his bruised ego? You had better think mighty hard about that one as it is rather damning but I will not state in what respect it is.

I realised a long time ago that I was being lied to and it was not that hard because GP Surgeries contradicted each other but had adopted the extremely bad attitude that all surgeries had the same rules, when nothing could have been further from the truth. Questioning any rules was responded by quoting 'this is NHS policy' or rules or whatever crap they wanted to give out.

I also have around five hospitals with each Doctor contradicting the last and I have a letter here which is somewhat of a miracle and written with divine intervention because ...

1 It was vague about my Fibromyalgia diagnosis when on the day points about my anatomy where shown to a student

2 An extremely painful test was done on my right knee something he spotted by sight and he was not the first one to do so, Dr Saksena also spotted something and yet while the test caused me a great deal of pain it was omitted from the letter to my GP?! As was the fact he said he was happy, a little too happy in fact it now appears, to prescribe Pregabalin after I stated I did not want Gabapentin as it made me ill. Foolish to then offer a lower dose which would do nothing and my alarm bells rang like a madman, good job I was recording then, eh?

3 I have warned all public services about their conduct and lying when I have had dealings with them and I have also long since warned them about IT and the Internet which was all conveniently ignored. So I decided to not only catch you out for the lying misleading and heartless organisation you have become but I also gave you a bloody hard lesson about ignoring IT and the INternet at the same time along with shattering any delusions which seems to spread faster than Ebola?!

I look forward to being emailed another GP. Do not put me with another one like the last three dozen!

I had better not have a hard time with any withdrawal symptoms either as I might remind you that everything I do and everything I say and when I say it goes on the blog! So all those I thought in cohoots with each other that everyone thought crazy is now being proved right at this very moment because you have all gone deathly silent at the exact same time!

This was so easy it was child's play and to think for the last three years I thought that I would end up spotting someone following me in a car desperately trying to get videos of me walking normally? It was never going to be achieved but I thought I would at least catch you trying? Seems none of you had any idea of what I was up to. Or maybe my changing carousel kept you all thinking I was attacking someone else and so just naively kept your heads down thinking I would go away?! Well a blog never goes away I am afraid, its permanent as long as it gets a regular rise in visitors. As this rise has gone from a dozen each month to over 10,000 each month and continues to rise it will not be going anywhere fast.

Any lame legal attempt to attack the blog will also backfire and it might be better to realise that whatever can be thought up I have long since thought of myself and planned for.

Oh and want to hear something very weird as far as backfiring goes? Well the refusal of nicotine gum and the recent realisation that yet another GP cannot be trusted or the biggest name in Hospitals has stressed me out so much that I have started smoking again!!

LMAO!!

Yours

Martin Haswell BSc