FIBRO FOG LEADS ME TO RLS

Well what do you know?!

After reading the long list of symptoms for Fibromyalgia and discovering the associated memory problems with Fibro Fog I decided to look it up. The latter not the former.

http://www.webmd.com/fibromyalgia/guide/fibromyalgia-and-fatigue

I found this page and in the list of symptoms is another one of my complaints I have also had a LONG TIME!

Restless Legs Syndrome! Oddly now that I typed it my usually bad memory is telling me that I have linked this RLS up previously with a different condition. This is awfully funny, good job I can see the funny side of things, as I was told by GP after GP that no one knew anything about it or what causes it and I myself discovered what irritates mine and that is CAFFEINE! I can still get mild RLS but if I drink too much caffeine late in the day my night time would be far more miserable than it normally is, well some of the time it is.

Ahh now I remember it was linked to Charcot Marie Tooth Disease and for me it was the cherry on the Bakewell Tart and why I was so convinced I had found the condition I was afflicted with.

You see each time I made a mistake it was based on everything I had ever been told by so called health professionals within the NHS!

Because no one could figure it out it seems highly probable that it was something unusual and rare.

Because little is known about...hmm... RLS and CMT was a rare condition I had thought that must be it. The 'hmm' was to remind me to type this sentence as another thing that has been driving me crazy is that my typing has been very progressively been getting worse and it has driven me mad because I try doing things at the speeds I always have. But every now and then I make a series if mistakes and almost seems as if I have forgotten where the KEYS are for certain letters on my keyboard every now and then?!

But I have been around computers since my first Commodore VIC-20 which must be over 30 years ago now?

It should also be noted, for anyone that reads this who has not picked up on it, is that I have been given a totally different drug to that I had, or that I wanted. It just so happens that they hit on one of the only two drugs that WORK with Fibromyalgia?! It also transpires that this was done at a time a couple of months AFTER I had revealed I had been recording hospital visits?!

Now maybe it is just me but Fibromyalgia is NOT a rare condition and even I was familiar with the term and I even told my brother's first neighbour I was familiar with the name Fibromyalgia when she explained she suffered from it. Now had it turned out that I suffered with Charcot Marie Tooth then it would have explained away some of the NHS mistakes with just being naive but there still would have been the lies among all that.

But now and after 13 years I have let the cat out of the bag so to speak and the VERY FIRST appointment I have AFTER this I just so happen to have been given one of the two drugs that work on my conditions. Only the affects seem to come and go unfortunately but I cannot ignore those few times when my felt had never felt more normal than they had for over ten years!

A WOBBLE AT THE DENTIST

Apologies for tardiness but here are a series of recordings I have not put up and I am trying to figure out if I put up the Neurology Appointment as it was still on my phone?!

Annoyingly the Dentist recording where I go a bit awry which then lasts a week is really crap...

To save time it is around 39.40 on I sway a bit and he asks if I am OK and then suggests I rest in the waiting room. At 42.30 I go to leave and asked by reception if I am sure.

I do not think this is anything to do with Dentist in any way.

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/DentistWobble.mp3/


After pain and the A&E visit I go back to Dentist for Metronidazole.

It helps for awhile but my tooth ache still persist but is on and off and I think this is the CMT. I think I had better email the Dentist as they said they would have to refer me to hospital to have it out...

QUEUE CMT and my history with GENERAL ANESTHETICS and I am reluctant and in pain, go figure!!

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/DenistTWO.wav/

A BAD DAY YESTERDAY

Oh my word that must have been one of the worst days of my usual ailments I have ever had...EVER!

After going from a week of not being able to stay awake night before last I did not sleep at all. Annoyed by this and not wanting to stay in all day feeling like crap and being miserable all alone I decided to go out on my bike to catch the morning sunlight up at Lea Valley Park and get some wildlife on film and photo!

Also nearby there is a TK Maxx store and I was overdue a new jacket and thought I would get one more outdoor-sey and a little camouflage like but not ARMY camouflage I hate that!

Only I got up there too bloody early, it was also bitter bloody cold, the cloud cover not supposed to arrive until the afternoon suddenly appeared around 8am and the sunlight was gone?!

Added to the bitter cold was an even colder and quite strong northerly wind and I ended up on the grounds of the old ruins of Waltham Abbey itself where a very nice old gentleman walking his lurcher dog stopped and chatted for about an hour.

Eventually he was getting too cold, shook my hand made his farewells and off he went which I did not mind him keeping me busy as I had decided not to go n my nature hunt, it was too cold and the light was crap.

But then I realised I still had an hour and a half before TM Maxx opened?! So I convinced myself to have a very, VERY slow cycle INTO Lea Valley Park the entrance being immediately opposite TK Maxx.

I venture too far getting up near the goose hide before coming back. At the northern edge it seems to have gotten colder and stronger this bone chilling wind and several old pensioners on bikes complete with their grey hair greeted me good morning before then complaining about the bitter wind and temperature in April?!

Cycling back to Waltham Abbey I had realised I had done too much yet again and yet did not feel too bad when I entered to park and yet another reminder that I cannot do too much. I knew it would end on a bad day but what could I now do?

I have to live, you cannot live by sitting on your backside and regardless of what the politicians say that they can live on £55 per week thats an outright lie as I corrently cannot do it on £100 a week and am struglling to by the bits I need to improve the blogs on here to make money as well as my YouTube account that...

...I am beginning to realise I am being ripped off for and should have received my first payment MONTHS AGO?!

Hopefully after the 5th May and the 5th June have passed I will know for sure whether this is the case and as to how, why and WHO is doing it. The important point is I KNOW it is happening but cannot do much about that until more data comes in.

I got to TK Maxx and the two jackets I saw in the Enfield store were ... NOT THERE!! In fact as far as outdoor jackets go and the size of the place that had nothing under £150 I liked or would be of use to me. Though I should me receiving about that figure for my endeavours by now but am not and will not know when I will I can not spend that much money.

Now getting tired, angry and fatigued I left and I knew I was in pain from both my groin and a frozen shoulder I went into McDonalds to get a meal so I could take more painkillers.

I cycled to the Enfield Town TX Maxx store and wondered if I was going to make it. At one point the Heavy Duty D-LOCK I had purchased from Sainsbury's two weeks earlier had proved to be the same as another lock I had purchased from the same store the year before to be made of extremely sub-standard tools, materials and engineering when the holding bracket snapped clean off sending the big D-LOCK smashing into my left knee, leading me to swerve and almost crash, which could have then damaged both my expensive camera and binoculars, both work tools now!!

I could not believe it, tutted used several expletives out loud and then shouted "ehat a fucking world these people have turned it INTO!!!" got back on my bike and continued on. As I was approaching Enfield Town I was going in and out of consciousness on my bike but was relieved to get there. Locked it up, thereby giving my frozen should a bloody good rest. Bent over doubled and twisted my shoulders around to try and free up the tightened muscles, looked at people staring at me oddly and the cursed the fact I had left my walking stick behind, as I had not planned nor thought I would be out this long.

but right now I needed a drink and at least I was a lot closer to home now than I was earlier?! So I got the money I needed out of the ATM, crossed at the Pelican Crossing, bought a Root Beer and a Raisin & Biscuit Yorkie bar, took more painkillers and headed off to TK Maxx. Got in there and the coat I had decided to get on seeing it a week earlier I now realised was NOT suitable at all?! I was in pain at the time and rushing and had given it a quick look and at £30 thought it perfect but it had not enough pockets!! DAMN IT!!

I cycled the last couple miles home with nothing I went out the house for, still fighting a bitter wind, feeling cold in my nether regions despite using long Johns under DENIM JEANS?!

But what was REALLY DISCONCERTING was the fact that my eyes kept closing as I was riding and I was fighting to stay awake on the bike despite the bitterly biting cold wind and the masses of pain I was now experiencing?!

I had been fighting to stay awake as I did not want to sleep during the daytime and then be up all night. I thought I had left that problem behind but apparently not and when you have trouble being mobile for very long then burning enough energy to sleep becomes a pain in the fecking arse!

I managed somehow to get home and I do not recall much of what happened but I know for a fact that I did not get to see neither of the two Family Guy episodes nor the America Dad episodes despite me being on my bed LONG BEFORE they started?!

I woke up today at 1am and have now not gone out, but have a bug to get out as per ususal, because my landlord comes at 4pm for his rent and I need to give it to him.

Now I have made an appointment to see my GP but will not be until a WEEK after he gets back...

Ooh how bloody useful that is I just have a day of hell and I still have an inordinate wait for an appointment I made four days BEFORE my day of hell?!

Now when I see him I am now going to tell him straight about the pain and the help I have needed for sometime....ohh thinking this is a good order to catch him out actually. He WILL be negative (unless he has personally seen this blog of course) and say "there are none, there is nothing" which I will record and put on here of course. I will then get a little frustrated with him, as I am bound to. Then I will show him the Neurology letter and ask how the guy KNEW me before I even walked into his room?! Why dis he lie to me that Domperidone was the ONLY drug available for vomiting and dizziness?

Yup APRIL really will turn out to be revealing....not forgetting EXPLOSIVE!!

LMAO!

Happy Days!!

LMAO!!!

GP TWO WEEK PLAY AWAY...AGAIN

Well I went in my surgery to book an appointment with my GP in the hope if catching them all out red handed...

But lo and behold he is away AGAIN for two Weeks for the seconds time in 6 months I am sure of that.

Bizarrely I also seem to have walked in for the second time just when he has two Weeks off still?!

Well I'll be a monkeys uncle what are the chances of that?!

Oddly I found myself on the end if a lecture from a trumped up receptionist who decided to be patronizing but got it wrong each time.

I nearly said "look lady, don't come across that your all intelligent your just s bloody receptionist and the Doctors are mostly devious of intelligence to so cut it out!!"

Lmao. But I did not as I believe that is a rude thing to do and belittling despite the fact they are belittling without knowing the facts.

I then said that two Weeks was too long and could I see someone else and she said no only emergency nurse?! Was told this before I remembered but now I had a valid problem with this. I pointed this out by them saying...

"well hang on I've been given pills that will ruin out soon what is one supposed to do then?!"

Now forgive nd if I'm wrong but this is a question about a problem that necessitates an answer so why did I them get the reply...

"well you should be more careful with your pills and make sure you do not run out?!"

This is very common for receptionists, except for my last Doctor who was great as was her staff. This despite the rumour being spread around the chemists deliberately about her which was false!!

So I ask a question to a receptionist and get a sarcastic lecture belittling me in front of the public...

...red rag to a bull, you think?! People will never learn that I ask NOT THE PERSON to go down this route with and I answered...

"Whoa! Wait one minute there...my pills are ALL on repeat prescription but these were only given to me Friday as I was taken to hospital by a concerned friend who gave me these pills..They gave me ten days worth and though to last me until I see my GP but it now seems they underestimated that!"

A now embarrassed receptionist then asked if I had a letter to which I said no I have a pink carbon copy of the prescription and she said just bring it in.

Only this had made me realise that this could screw things up worth my plan. But then I'm now wondering that my GP's second disappearance for two Weeks might mean I have to rethink my plan anyway.

You see he, and not just him, had a 180 Degree U-TURN with me I found highly suspicious. He is one of three people who took a Mayer of fact attitude towards me, without the facts I might add, and even accusing and a little sarcastic. He also showed himself to be dismissive something I experienced with a different doctor recently.

One other member of the health staff gives off a level of confusion without knowing it.

My suspicion if that some idiot in my past, inserted into my medical records that I was either a hypochondriac or making up my ailments. Now I asked about this outright when I knew for sure I was deliberately being fecked about around 4 years ago and was told no.

Of course its possible that they all just want to fob me off but the confused one does not want to do this and genuinely cares. She is the only one out of several dozen I've met if I'm honest.

The trouble for them is that whatever is actually going on I can work out what it is or all the possibilities and plan for them all.

Some, none or all if them may be aware of this blog. If aware it may explain why my current GP keeps disappearing and why he had a sudden and nervous change if tact the third time I was in there. He also got nervous and turned away when I said I think I have CMT. He refused to refer me to Professor Mary Reilly and anyone else despite me telling him what the Podiatrist said?! But then on the next meeting did an about face after receiving the Podiatrist letter and sent me to Neurology and said make sure I mention CMT?! Odd thing to say!

The Podiatry was also very FUNNY with me like I was lying or deliberately wasting their time. Well they can think that son they wish they will only destroy themselves. I have given the NHS every opportunity to coercer this over the years and no they are shit out of excuses.

I'm but a gambling man and I don't need to gamble when the combination and permutation mathematics pot to the list of ailments I have, CMT lists and the odds on me NOT having it and the odds of winning the lottery would be a great deal less than this coincidence.

Also hedging Mt beta is that fact that even in some crazy outcome that it is NOT CMT it still remains that there IS SOMETHING!

After all u would be bloody stupid to go through all this to find answers. If I was a court liar or hypochondriac I could manufacturer something a great deal more obvious and listed and widely know as being debilitating, lol.

So there are no excuses whatsoever and there is no way around this blog if indeed they are stalling while trying to think up a way to stall me, come up with a lie our tactic and avoid any repercussions.

What they fail to realise if this latter version if the case if that they only succeed in making the damage being done to themselves as being exponentially worse the longer they go on with this path.

You would think that three years our more into a recession that putting things off only makes it worse in the end.

EMAIL FROM CMT INTERNATIONAL

NO NAMES!!

You see it IS the case that the ailments they WANT to know about they are VERY SELECTIVE about.

EDIT BAD ENGLISH LOL!! Selective about what they wabt their staff to diagnose. Two people never heard of CMT, for instance and if they get caught blame it on the front line staff who were BLISSFULLY unaware of this condition or that condition.

EDIT 2: Think about it if you are a member of the NHS staff?! For the love of god stop being a jobsworth with a hangman's noose around your neck?!?! Look down and see the noose!!!

EDIT 3: This applies to ALL PUBLIC OFFICES!!! Local Council, Police, Ombudsman etcetera ...etcetera!

EDIT 4: Are you a SHEEP or are you a HUMAN BEING WITH A MIND OF YOUR OWN?!

EDIT 5: Now you know what I was leaning towards with the WHISTLEBLOWERS?!

Awareness campaigns about health conditions should NEVER be taking place nor needed at all and is disgusting that someone needs to do this.

I for one never realised this before but I do now!

She will be pleased to find out later in the year, or even just three months time, that I will do a great deal to make many aware of not only this practice and to a great deal of people.

Also I am well aware of the PCTs and am now in a very good position to do what I need to do. It matters not who in the NHS are aware of this blog and of the things I put here as this is how I designed it, NOT to fail!

They can only react one of two ways when the time comes and each way I win!! Give the game away or fall for the trap, there is no other way...

...or sort me out and hold your hands up high and admit to things and defeat!

They are the three choices I have given them. I have never told them these are the only three choices they will get. When they get them depends largely on whether they know about this blog or not, LMFAO!!

I for one am going to love it when the time does come and not long now and of course I will be recording it. EVEN STATING I am intending on recording it is itself a TRAP!!

It has long since been over all I have allowed them to do is dig down a little further on each visit, lol. The object of the exercise is to win, for good to prevail and for evil to lose. Despite not being a religious fruitcake (no just a fruitcake then? lol) the term EVIL still applies. That is what it is and for people who are supposed to be DOCTORS this kind of inhuman behaviour is not only not on but at an end. LMAO!!

Do not mess with a Grandmaster! Hiiiiiiiiiii-YA!!

HEAVY EYELID UPDATE & CMT INTERNATIONAL EMAIL

I heard back from the Charcot Marie Tooth people and was told that my GP is talking rubbish, exact quote but no names, lol. But then I already knew this!

Was told that Professor Mary Reilly gets her patients this way and I told her not to worry as I am about to catch them all in the act and absolutely red handed. I now have the means and the method and a plan has been concocted that is pure brilliance. Now I just need to make an appointment and attend and the rest will be child's play quite literally.

They also said that Professor Mary Reilly would likely not answer my email for fear of not treading on the toes of other professionals?! So I said if I meet any i would let them both know!!

LMFAO!! A dig only at those I have MET, you understand.

Well the eyelids closing still persists and I have wondered if I maybe should not have switched over to caffeine free tea bags, caffeine aggravates Restless Leg Syndrome as I stated quite some time ago in the life of this blog.

Maybe if I had stuck with the caffeine maybe this really distracting sleepy eye lid thing would not be nearly so bad as it is?!

It is very, VERY distracting and every now and then I have to push my head to the bac until it comes to rest on the sofa and then close my eyes! It is a bloody battle to keep them open and its just grows ever harder and then impossible altogether and very weird indeed!

I do not know if I mentioned but the several hours I was at the hospital alone my eyelids were like this the whole time but when my mate returned I found it easy to keep them open, but then most of the horrid feelings and pain seemed to subside and typical it was while I finally saw the Doctor?! Oops I digress I meant to say that I did not actually sleep at all and yet I was terrified I would and wake up to find my rucksack had been stolen as it contained my Barr & Stroud 8x42 Bird Watching Binoculars and my Olympus SP-820UZ Bridge Camera which are my two prize possessions currently.

Would be this HP Pavilion DV7 laptop if it was not so bloody crap! LOL.

Just bloody typical I am back to normal just as the Doctor finally sees me?! Lol!

ODD HEAVY EYELIDS FEELING

This is a weird one this!

One of the things I have been getting is this heavy eyelids!

I think my previous remarks about feeling sleepy are not entirely correct ... or accurate. My eyelids and head feel heavy and if I was to be as accurate as I can be I would not say they were like lead more like they were made of stone.

I have just been stirred into a consciousness by my phone beeping from a message or notification. For the last 30 minutes my eyes have been closed and my head resting back on the sofa but not asleep.

Trying to do ANYTHING on the laptop at all ends up with me finding it harder and harder to do and my eyelids get heavier and heavier all the time until they just close and I simply cannot keep them open. But O do not always fall asleep?!

Hmm it is now happening again as I typed the last sentence in the last paragraph?!

Oh yes I have also experienced this mild tingling on the side of my face but it is NOT a stroke! Lmao! Well I did not think so and neither did the hospital.

Just remembered this and thought it was worth mentioning on here.

Did a search and came across Myalgic Encephalomyelitis or M.E. but I had a lecturer friend who suffered from this and I do not think it is that.

I am sure it is something to do with the fatigue and the Charcot Marie Tooth Disease but now I have read about M.E. I suppose its not beyind the realms of possibility and yet another thing that is it turned out I had that the NHS should have spotted in the last dozen years plus!

LMFAO!

A KING SIZE HEADACHE

Well Timmy must be about because someone is hitting my head with a Mallet or at least that is what it damn well feels like!

I seem to have traded the other illnesses and pain, or at least much reduced versions, for one hell of a headache this morning.

So I am making a cup of tea and taking even MORE PILLS, lol.

Taken 50mg Tramadol already an hour ago...

Taken Metronidazole

Taken the Prochlorepzine which according to my GP does NOT exist.

Now I will take another 50mg Tramadol and 500mg Paracetemol for this headache which I have to move very slowly and gingerly as to not aggravate it!

Of course I do often get headaches in the morning but not like this and of course for those that paid attention the CMT is a cause of that as you do not breathe properly at night and YES there ARE pills for that!

Now Metronidazole are the only drug on the complications list with CMT in my book that I am familiar with. Quite how it complicates things I do not know for sure.

Now what I do know is that muscle relaxants are a bit iffy because, and obvious hen you think about it, this relaxes your muscles and with CMT you have messages from your nerves not getting to your brain and vice-versa so that diazepam could have a far greater effect than it otherwise normally would.

So if you take at night and your diaphragm does not operate as it should then your not breathing as you should and CO2 gets re-absorbed into your body and you will wake with a headache!

I still have not studied the entire book so am not aware of other complications right now. Of course there IS the possibility that I do not have it...

...but it IS my body, MY symptoms and I have the whole bloody lot of the lengthy list that goes with CMT going back not just the 12 years with my feet but going back over 20 years.

In other words if a PROPER test was done and it came back NEGATIVE I would bloody well eat my hat!!!

How I spent over twenty years gradually acquiring the dozen or more symptoms of a rare disease like Charcot Marie Tooth Disease of which I only became aware of a couple of months ago is.... well lets be straight down the line here its just not possible is it?

I mean consider the list of symptoms...

Feet Problems
Lower Leg Problems
Knee Problems
Back Problems
Arm Problems
Hand Problems
Morning Headaches
Reactions to General Anaesthetic (combined anaesthetics FOUR TIMES I know of)
Reactions to Local Anesthetic
Feelings in hands and legs can be MISSING - Harm Myself without KNOWING
Pins & Needles
Restless Leg Syndrome
Hand tremors

Without going through the book these are off the top of my head!

There would be a full list on another post somewhere about this blog.

LOSING ON THE SWINGS & LOSING ON THE ROUNDABOUTS

I am home and I MAY have spoken too soon?!

The throbbing jaw and tooth which I have not felt anything from for probably about an hour as returned shortly after arriving home!

Also just as I was leaving my friends store I also felt a little light headed and wondered whether that was the start of something regarding the Metronidazole and the Charcot Marie Tooth Disease, if there are any side effects with these two present that is.

I do not feel dizzy right now and I like to think the bitter cold wind against my face caused that flare up of throbbing. It has died down a little now and is odd in that as well as the throbbing there is a throb within a throb. Oddly my mind is telling me something similar to this has happened not long ago and I guess I may well have posted about it.

The throbbing builds into a crescendo before abating again until ...nothing. Then returns and builds to a crescendo before abating again...a throb within a throb?!

Th tricky part is working out the levels of each crescendo compared to the last one which is the only way to work it if the whole thing is building or abating. Pain in the ars....jaw that one!

Annoyingly I have completely forgotten to get milk while I was out but I was messed around a fair bit.

After all I was at the Dentist at 9am and they asked me to return at 11.15am and then I went to retrieve the Metronidazole and thought the TWO bags being placed within the carrier bag in Lloyds Chemist was a bit big. Got to my friend's store only to find I had to things in a bag that were nothing to do with me and belonged to someone called ....one minute I took some pictures on my phone ...

Marian and the pills were Topiramate 50mg and an Oral Solution of 300ml (200mg/5ml) of Sodium Valproate.

When I then returned all the way BACK to the chemist the girl looked at me and I said "oh you realised then?" to which she gave a nervous grin and nodded before hading me the tiny box I was expecting. "Here" I said and placed my bag on the table..."What's that?" she replied and it became clear she had NOT realised at all..."Well these are someone else's medication you gave me, a woman called Marian" and her eyes went wide in horror!

I am changing the saying 'you cannot get the staff' to 'There are millions of staff you just cannot afford it'?!

The odd thing is I was thinking today about this latest wriggling to get out of diagnosing me again, well that IS how it appears to me, they cannot even staple the paperwork in the correct order.

Whatever it is that they, or their commanders in chiefs, think they are doing is just kinda funny as well as it being infuriating. I was out of it when that letter came the other day and even my friend who then later took me to hospital, and THEN returned again, was annoyed when I told him what was in the letter.

He was annoyed that someone was rude to me several times while I was barely conscious. He was annoyed when I stated that they tried to catch me out by asking several times HOW I had got to hospital?!

Lastly he was obviously annoyed when he strongly stated to a Doctor how bad and just what a state I was in and it was he that text a brother of mine who rang me last night and he was furious too stating...

..."what the FECK are these people PLAYING AT?!"

Well it is NOT Doctor's and Nurses that IS for sure!

After all I have been out again TODAY after spending all day in the hospital and i have managed to acquire some antibiotics I think WILL help but if I am wrong and they do not this pain is really bad when it builds up and how long do I have to wait before I hope to get shot of it?!?!

I al already tanked up to the nines on Tramadol and that has ZERO effect and not enough on the ailments I take it for?!

You have had a year of so many million passing through the health service experiencing this and the rest of 2013?!

Yeahh I think NOT!!!

LMAO!!!

Obviously high salaries are only paid for the levels of naivety and stupidity along with total incompetence. LMAO!

As for what they think they are going to achieve, the powers that be that is? Well I CAN TELL them this...

...IF I was manufacturing all this and was THAT WAY inclined you STILL WOULD NOT BEAT ME so...

...whatever it is your up to, STOP! Give up now, hold your hands up and play ball.

Do not say I did not warn you?! You hold your own spades and your still digging at your feet. That daylight is beginning to get dim if it is not already out of sight completely. When your far enough down you will realise that a ladder does not exist that will free you from your confines!

I will also inform you that MY LIGHT is a lot bigger than YOUR LIGHT!!

LMFAO!

Pain, Pain Go Away...Come Again Another Day?!

It has been forty minutes since I took the Metronidazole and the throbbing had died away now.

Added to this I can take Asia of drinks without flinching or tilting my head to one side and holding by breath.

Dentist thought he would have to send me to surgery up the hospital. I thought the Metranidazole would work and I was right.

But there was a seconds reason for taking the metronidazole and that is it world far better with be than Amoxicillin and people with Charcot Marie Tooth Disease should not take it!

I like to call this system "KILL OR CURE"

I do not know why you should not take this antibiotic when you suffer from CMT and readers might think this not wise...

But there are times wired kill or cure is much not appealing than the alternatives and we are not speaking of one single health and pain issue but THREE!

One course of this antibiotic can cure a great deal, answer a great deal and to cap it all...REVEAL A GREAT DEAL.

IT WORKS A DAMN SITE FASTER THAN THE NHS!

Actually that statement is wrong as you need to actually WANT TO DIAGNOSE AND TREAT SOMEONE in the first place and court go around the houses to avoid you knowing what they already do!

So right now things are feeling much better and no thanks to all day on hospital yesterday when I tried to tell then it could be a bad infection.

Ever onwards, upwards and forwards.

LETTER & AUDIO OF/FROM NEUROLOGIST

Now I told you about this ...appointment. I also stated I recorded it well now you can compare the exact words of an NHS Doctor with his written words along with the fact that I describe certain things in detail and that he has totally ignored them.

An example of this is EXACTLY how my road accident went down and he states that I was just simply 'knocked down' with no mention of a car and could well have been PUSHED OVER by another KID?!

He states I was pushed over onto my side when I said nothing of the kind and the fact of the matter is I travelled UP the bonnet, UP the windscreen and ONTO the roof and then along the roof I fell OFF the side and DOWN onto the tarmac... WELL ITS ON THE DAMNED TAPE?!?!

Also note that with the amount of symptoms I now possess that there is little desire to collect all data and therefore place it within my records?!

Oddly and just today a Nurse at Chase farm was rude to me several times when I was having trouble stringing three words together and fighting to stay conscious?!

If it turns out that one person in my history with the NHS has uttered one SINGLE SOLITARY DEROGATORY WORD and I have never been allowed to defend myself by members of staff I will not rest until the NHS as it stands today has been reduced to smouldering ashes!

Because only the dumbest morons would think that I has spent 20 years collecting, or inventing, ailments that just so happened to all be connected to Charcot Marie Tooth and well they should not be in a position where they are responsible for people's health that IS for sure!

THE AUDIO OF NEUROLOGY APPOINTMENT:

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/Neurology.mp3/

Looking more likely you are all being SHAFTED is it not?!?!

Cannot just be ME?!

Well this letter turned up this morning and the pages are in order, despite it seeming otherwise.

The second page was on the top and STAPLED to the first page which is underneath?!

I KID YOU NOT!!

It contradicts previous specialists, previous GPs and only mentions POSSIBLE trouble with ANkle Jerk because I stated they had already been tested and did not react at all?!

He ALSO STATED that though  he says he does NOT THINK I have CMT that this does not mean I do not.

He says he will send me for CMT tests but the letter looks like he sent me for something else?! Like Carpal, Tarpal Tunnel Syndrome?! He had better not!

I am afraid that his glance at me in the main building I am now convinced he recognised me from a picture he could not possibly have had and that is why I thought immediately he was Dominick Mort, as you hear me state on the TAPE!!!

I was and am being set-up!!

Good for me...bad for them!!

Page ONE was actually PAGE TWO and VICE VERSA?!?!

BAD DAY TAKES A TURN

Oops so that pay was on the wrong blog, lol.

Pitfalls of using the useless Android App version of Blogger a will as this shite phone, lol.

So earlier I went upstairs to watch a film and with heavy eyelids I could boot decide what you watch and fell asleep. I woke up about 8.30pm and had to go out to get things I failed to do earlier!

I was panicking a little as it was view dark and bloody cold and wondered what I would do if that day finally came when it was too difficult our I collapsed?!

Turned out things were not too bad exhort for the pain in my tooth that was fast greater than BEFORE I visited the Dentist, fucking typical of the NHS but doing jack fucking shit for years SMS when they do they make it fast worse than it was previously, that is the attitude today and then the government are ready to put a boot up you're arse and you're suppressed to be grateful you have been seen and go out to work and pay them buyer taxes they can go and squander in something no different to a roulette table for the rich and powerful.

Oops I digress, as usual.

On the way back I grabbed a kebab as if had not eaten all day and was worried fatigue would be the next thing to occur. But I crossed the dual carriageway and was just feeling relieved things had improved when a sharp pain in my right groin had me pull up sharply and my limp get far worse and getting the last few yards to my home looking increasingly impossible?!

It is there times that are hard to put into words how difficult to explain WHAT they are like. I have asked about what to do at moments like this with hospitals and GPs and you just get blank looks.

Do when you can't walk any further our can't get home or out to get your food...

...who you gonna call?

Ghostbusters?

You might as well as every single member of the NHS I have put this to seen to regress back to their ancient primate origins and make monkey noises and life the ability to communicate a string of words together.

Oh yes and I remembered while limping home...

...it turned our to be the first stroke of luck in write awhile when I remembered that for the first time ever, well I think, I RECORDED MY DENTIST VISIT as I thought I was going to be palmed off of doing the work on my teeth as I had been last time our asked about doing the £200 hygienist work. I did not but well that I referred to you should be able to hear once I get it all up, including being asked if I was ok a few times and told to sir in the waiting room.

About time a plan coincided with an odd and worryingly revealing occurrence!

Should be up over the weekend.

AUDIO: NEUROLOGY APPOINTMENT

Well here it is...or will be once the new program to link it is installed....Wuala!

LOL.

A Little late uploading it and then linking it in here, well four days late to be precise, lol.

http://www.wuala.com/allnights/Evidence/Evidence%20MP3/Neurology.mp3/

Ahh and there it is...

...still working out the little difference in the Ubuntu Linux OS and every so often you run something and there is a pause and I am reminded of Red Hat and wondering whether or now need to alter things in a Terminal?! LOL.

Sometimes, or at least so far I cannot remember, it IS just a pause, lol.

MISERABLE DAYS OF GREYS

Well its been a long rotten and painful day. I had my neurology appointment and not sure what to make of it.

I passed a guy in main building and thought he was the doc I was there for. Get given really bad directions by totally clueless receptionist. No signs anywhere and I ignore what I was told and head towards different physiotherapy department I was under lady time.

I see building saying Urology and think ill ask in there. Can you tell me where Neurology is? I ask. Yes your in the right place! She answers. No not Urology I said NNNeurology! I insist...

Yes it is here we have Urology and Neurology but only had one stated outside and I can't believe my luck as I'm now over 500 yards from main reception.

While sitting there I turn on the phones recording app, yes I RECORDED IT, I strip off clothing as I'm out of breath and being cooked when all if a sudden someone steps into the building and its the man I looked at earlier I oddly thought was the Doctor I was there for?!

I though "if he appears and calls my name I'm going to ray my hat!!"

Well it turned out I NEEDED the fibre?! Lol.

When that guy does call me in we have a chat and he is not convinced I have Charcot Marie Tooth and I state that I find it incredible and unlikely to think that I just so happened to have developed all the same just if symptoms as CMT.

He does admit that because he THINKS it is not what affects me does not mean that it is not that...so much so that he now fully intends to have a series of tests performed on me....at the Royal Free Hospital which involved some electrical testing like the Tarsal and Carpal Tunnel Syndrome Tests.

Also oddly he does what seems like a thorough test and includes my reactor muscles. He says they are all fine and I say "Well that IS odd! According to private Chiropractor my knees are delayed and the Podiatrist stated my heels did not react at all...NOTHING!

He seem surprised to hear this.

He mentions the look of the litter legs from wasting and I then say "oh champagne flutes?" which causes a raised eyebrow.

My head so spinning as he has contradicted nearly everyone I have been sent to for several years and I try to get him to contradict my GP in stating he says that done people NEVER find out what is wrong with them and he agrees with this.

I say "ooh bore hold on a minute here. This is the 21st century and with the science and technology available today I cannot really accept that statement! Or does it only simply to the NHS?" He says no the NHS have access to everything and again I hear something I do not believe and decide not to make any more remarks.

His insistence to send me for the tests for something he thinks I do not have among with guys public schoolboy accent makes me start to wonder.

After I have left I notice the dark and dreary sky and how miserable it looks si recall how I saw this chap 500 yards away in a different building and suspected he was the Doctor I was to see. I even told him this when I first entered and you can hear us speak of it on the tape!

It is then I recall that s he was walking along with a woman and chatting he looks sty me and does a very little double take. I think it was this I picked up on and as I eventually passed him I thought he was the Doctor I was to see though we had never met previously.

The odd thing is this is the only sensible and scientific reason I suspected he was this Neurologist. That glance at me and that ever so subtle double take... But...

That would them mean he recognised me and as I started we had not met previously and no picture of me exists in my medical records.

As mad as it sounds suddenly all the little facts point towards me being well and truly expected and prepared for.

The doubting of the possibilities if what I have seemed a little much too. You heart new counter things he says with triassic possibilities but with no reaction.

You also hear me state after being told done people never find out that I did think for many years that this works mean I had a condition our injuries never before described by science and that I would therefore become a fascination to Doctors and Specialists sd they could then study me and write a scientific paper and make a name for themselves?!

Rather oddly this does not cause a reaction either which suggests that all Doctor's befit hand fall into one if two categories...

1) They were well aware of what I have but did not, out were forced to, me being aware if it and/or...

2) They were not really confident our capable Doctors to study something new and unknown to want to take interest as this would then expose them not being for to be Doctors?!

Welllll I typed and/or but it can really only be I've our the other.

You will also note how I remark about being given drugs you do not want and he states that Doctors are ordered to give certain drugs and are told off if they do not?!

So no evidence if corruption there then?!

Now things are a little slow as I turned my kaori into two computers, just go with me on this too tricky to explain. Now the NEW part, Operating System called Ubuntu and a Linux Operating System based on UNIX, so like Apple, lol, works but took a week and now has screwed up Windows 7 and of course and just sd I complained about no hard coot of Operating Systems given with laptops is recipe for disaster....now I have a DISASTER! LMAO!

So no games, no Skyrim or any enjoyment right now just frustration, lol...

So I ended up at Sainsburys after now painkillers and upon editing it is pis pouring down with rain and cold. A thousand times I've taken out an umbrella and not used it and today is a rare occasion as I don't bloody have one!

So u get home soaked through and child and with the joys of spending my seventh evening attempting to get Windows working again when out dawns on my during this that Windows had been deliberately designed not to work with the LINUX OS and they have even charged me for this fecking mess and kept me from having a hard copy of the disc which would have had be sort out out in a few hours.

Now I an not sure how rio get around this and fecking fed up with being at the shit end of the stock because corporate twats like Steve Bullmer wants to behave like a butter as he did in the military and just railroad anyone else who might be a threat to Microsoft's dominance no matter how small they are.

With LINUX its a bit more than that as it is actually FREE and exists because the people who created it and worked tirelessly on it did it because of their dislike you're Microsoft.

Indeed it is this reason for its existence that certain companies who are now using employing very cheeky and sneeky methods in an attempt to make money out if something they did not really have a hand in creating and if you decide to do that it will backfire and cause them no end of trouble.

Problem with the world? Took many people want millions if pounds while doing feck well for it and then moan and point the finger at the jobless and disabled people over things they have no control over and get one to two hundred quid a week to live on?

Well hand on a minute you get thousands and possibly tens thousands a week or more and you for on you're fat arse too!

The difference if they are in no perdition to open their mouths because they CHOOSE to sir on their fat arse while still the money rolls in when the vast majority if the jobless and all if the disabled have NO CHOICE IN THE MATTER!

Now that is the difference and will prove KEY at done point st just how God damn thick and naive these people really are.

Yeah I had a pretty miserable day, lol.

Still you gotta soldier on...ooh sorry Mr Bullmer...no pun intended...HONEST!

Lol.

THE DEFINITION OF A COLD DAY IN HELL

Well how would I describe that now I have come up with a catchy title?!

Well...

1) Wake up in the morning but the friend your expecting does not turn up...

2) The People interested in buying your stuff claim to get back to you but the emails fail to arrive...

3) Forced to go out due to another incompetent and lazy trickster of a department of the DWP claiming to be SEPERATE of the DWP...

4) Attempt by local Post Office run by Sri Lankans to rob you of £10 and then walk to your friends store foa a tea and a chat...

5) While their lower legs start to ache really badly and after downing one lot of painkillers I now take a second lot, head in my hands a few times and hold my legs up in repeated attempts to stretch various muscles but to no avail...

6) Not wanting to waste the day and good light I bail from friends as standing still is causing too much pain even with painkillers...

7) I walk up to local forest close to my home and try to get some shot of animals for my YouTube account and BLOGS and HEAR then SPOT and FILM a Greater Spotted Woodpecker!

8) Already decided I will NOT walk to whole circuit I end up doing that yet again, as the best spots always occur on the far side of the field. I have now sat down and crouched several times and telling myself the second lot of pain killers will kick in at any moment.

9) I finally get home in pain but the Internet is playing up and all my photo editing software is NOT rotating my photos though I have done that and they are the correct way up when I save them?!

10) I am sitting here in pain and wondering why I have felt like this 5 days in a row now and wondering if that is it for me as far as the Winters are concerned and always knew that one day I would spend my last winter on my legs?!

11) While wondering this the Internet is now refusing to do anything and I have spent hours trying to upload content which is all towards finding an income that the government has illegally take away from me.

12) After sevral hours have passed deciding on taking more painkillers which I try ot to do when I am indoors and glancing at the clock which now says 21:23 and wondering if I will EVER get these low res photos uploaded and end up doing what I normally do and put it off until tomorrow?!

13) While wondering that I am also wondering how I will EVER get through to a boody self centred GP in that I cannot handle this pain any more and try to get through to him that THAT was my last WINTER and I need help amd WILL DO by next Winter?!

13) Then I am wondering if I will even get through the Spring and SUMMER and that will switching to the bike more often now stop this from happening?!

14) Wondering if I should put off the GP and wait until my Neurology appointment in three weeks time and my Physiotherapy appointment four days before that one and speaking to both of them, though the physiotherapy is only concerned with my back?!

15) Images of WHEELCHAIRS and being stuck in this tiny house flash through my mind and wondering if I will EVER survive this from happening...

16) Wishing I could spend just 5 minutes alone and in turn with those responsible for all that has happened to me right up to and inlcuding George Osborne and David Cameron...

...just FIVE MINUTES Worm your Honour HIMMM AND MEEE ALONNNNE?!

I would make them see the error of their ways I can assure you of that if the above was ever possible!!

While at my friends store he got angry with someone outside and shouted "OI NO!! DON'T PUT THAT STICKER ON MY SHOP!!!"

I wondered what he was on about and he said guys go around putting stickers on shops that they had nothing to do with?!

I said what do you mean?

This guy was Arab and could not speak a word of English and I walked outside to see what he was doing?!

On the empty shop next door he placed stickers on the windows and this was after being dropped by a van RIGHT OUTSIDE the door of my mates shop before attempting to put the stickers on right in front of us.

They get money from our taxes to set up a business, about £200,000 in total minimum. Then they open up a business and then go around placing sticker adverts on businesses without asking their permission so that the work looks like THEY DID IT?!

My friend then showed me the REAL STICKER on his shuttering, that is what the stickers were referring to, and he showed me marks where he had arrived at the shop and found someone had placed a sticker there.

What is worse is that they use some special glue on this stickers that makes it really hard to get off?!

But my friend gets aggravated by this and the fact it is non-English speaking foreigners that do it and gives it a DAMNED GOOD GO, but never gets it all off entirely

See for yourself...

He actually put TWO on the shop glass of the empty building next door used for producing drugs previously by other foreign born immigrants?! I kid you not!!

Someone beat them to it and somebody completely different beat them to it on the other window?! LMAO!

The Local Council, Enfield Council on this occasion, are quick to fine people for dropping fa butts and not closing their bins correctly but here you have an absolute disgrace of abuse with PHONE NUMBERS PLASTERED ALL OVER and where are they?! Fecking nowhere as usual giving out Parking Tickets like Confetti!

Here is a tip...of there are a dozen different stickers with their phone numbers on them it is therefore not only fecking easy to locate them but also ONLY ONE OF THEM DID THE JOB!!!

DUMB FECKS, your all bloody useless and do not have the brains you were born with...I could teach MONKEYS to do your jobs!!!

The above photo shows the shuttering on my friends store. The YELLOW label is the REAL FIRM to so the work. The the left of that you can see a series of marks were men have placed stickers in an attempt to steal customers of the real company to do the work by making it look like THEY had performed the work.

Of course once you have phoned them and paid then realise that this is NOT the same company you have to try an get your cash back from them?! Because Trading Standards and all these QUANGO bodies are utter crap and the real waste of the taxpayers money, along with the morons who give £200,000 to each of the immigrants who then run around and pull crap like that?!

Above is the left window and there is another on the right hand window and I took this only SECONDS after he did it.

The odd thing is that the look of confusion on his face when my friend said not to put a sticker on his shuttering as if it was perfectly OK to go around and lie and cheat this way?!

Madness!!

My friends store is in Baker Street in Enfield and even in this shot you can see the marks and these are the ones he DID NOT CATCH doing it.

We then had a long conversation about it and I was GENUINELY surprised at this behaviour and he was JUST AS SURPRISED that I was NOT AWARE IF IT?!

He said it happens all the time and he has stopped DOZENS of guys from doing it and they are ALWAYS FOREIGN, Arab in origin and can NEVER SPEAK ENGLISH?!

They have only been at this location for TWO YEARS TOO?!?!

ON MY HEAD, SON?!

Well I FINALLY got around to picking up the football that the Physiotherapist told me to get?!

Picked up this morning from Sports Direct as soon as they opened their doors for business at 10.30am. Bought this Sondico ball, a size 4 apparently worth official being size 5, for £2.99 our you can get two for £5.

I went in there the day before but annoyingly did not have enough with the change I had, new I should not got that can of Emerge, lol.

Went into Toys R Us but it was mad as the footballs were far more expensive until I saw several baskets with different prices and one for £1.99. But a member of staff started there was not a single ball, he THOUGHT, so I had to leave it till today. He gave me an odd look that I did not want to spend fifteen pounds on a Mitre even though I told the Pratt that out was rolling around on for my back and not for winning the World Cup with?!

Lol.

If Lionel Messi wants to poor round for Tea and Kick about in the local nearby playing fields I will go back and buy the most expensive ball they have but its only to roll around on while placed in the middle of my back!

Tried it few times and it seemed the obvious thing to do while discussing it with the Physio but now I have tried several times I am not so sure but will continue for two Weeks until I see her again.

Felt a great deal better when she manipulated my back and was OK for a few days. Last several days had been agony though and had to cut short several things I have had to do.

Combined with the fatigue feeling and then the flu like virus which seems to have passed now to say it was somewhat difficult was an understatement.

Now the race begins to counter NEXT WINTER and the fact that each one is harder than the last. I say this each year for the last 3 years only to have my plans scuppered by moronic idiots. This time, however, I have my own plans and back up plans to them and they have a head start, one of them has a 7 month head start and you ate reading it right NOW!

Hehehe.

Spring and soon summer and weather warms up from tomorrow and I start squeezing to my bike with greater frequency taking the strain of the parts that drive me to distraction during winter. It is a relief to come out of still that cold weather and get back on the bike again!

Well unless, touch wood, nothing hours wrong that prevents me from using the bike like self injury out theft if it for starters, haha.

NEUROLOGY APPOINTMENT LETTER FOR CMT

There you are and after nearly blowing a gasket with Chase Farm Hospital's call centre and then told there has been no referral letter come through... here it is.

Even when they are right they are immediately proved wrong, lol.

Been thinking about this thing more and more lately but not with respect to me but the rest of my family...

A few things have been somewhat curious but what I can say here is that myself and two brothers suffer with painful backs and have done awhile now. Not sure of my sister in all honesty but we all have varicose veins and circulatory problems.

Of anything else they experience I do not know but I do know of one cousin that suffered from knee problems for years and I am sure if I remember correctly having a discussion about why it still hurts when I think they went through an operation on it to have a fragment removed.

I have had slightly dodgy knees for years until one time and pursuing an upset father, no was NOT me, my right knee snapped and I could not put any force on it for several days. Walking out of the question. Of late my knees are weak and more so in the summer and though they hurt when walking I am damn sure it is NOT the walking that aggravates them but instead the CYCLING! Many things have been an absolute bastard to understand over the years due to, on the one hand, a kind of delayed reaction with some things and one activity causing a pain while then attempting another later!

This is true of both knees and feet and even my back can act up when I least expect it and then ask myself why as I have done nothing to provoke any pain or seizing or locking up. Same is true for upper back and shoulders but I now know this is a delayed reaction, or constant weight at the wrong angle will bring it on quicker. What I mean by that is that the rucksack over one shoulder will have my shoulder freezing up in pain. Using both straps over shoulders and a harness across the straps it will take a great deal longer before its severely uncomfortable.

This is the most important page and I left out the other two, with my PASSWORD and other details and obviously also edited this page too.

SCREENSHOT: DISABLED CONDITION LIST FOR PUBLIC OFFICES

Hmm now here is something I never thought of doing and am so annoyed I did think of this previously?!

I AM an IDIOT and as you can see NOT infallible either!

Now here are three screenshots from a website I have been on for a number of years now and the web address is ...

www.ablehere.com

I never really tell many people about it and do not use it a great deal but every now and then I get an email from it as I did today. In case you are wondering... Yes the bloody sad pathetic Africans pretending to be English or American women even go on here to con money out of disabled people!!

Once in I realised my disability had been down as 'other' since I was a member because I simply did not know and have not known for the 12 years since it started to really cause me problems. Of course some things I experienced I now realise is down to this go back 20 years or more but had not realised these were due to something and most GPs, whenever I mentioned it, would just roll there eyes or hand out pain-killers and such like.

EDIT: A-HA!! Found that device I mentioned in the last POST!!

VIDEO: MY PARTY TRICK - CHARCOT MARIE TOOTH?!

A little video I have been meaning to do for some time now I finally got around to.

Now rather annoyingly the amount I can feel does tend to fluctuate somewhat and on this occasion I could not do my trick quite as long as i normally can and I would estimate about 10 seconds shorter than normal.

Posted here as part of an upcoming plan and also that maybe someone some where might spot something that visits this blog. I will also add that I have mentioned that I have had sudden trouble sleeping lately and also that my Restless Leg Syndrome has been back with a vengeance on some nights. Oddly this all occurred along with the stretching I am now doing so I know not whether this is linked or merely a coincidence at this moment in time.

END GAME: WHAT THE NHS DID NOT WANT ME TO KNOW

In my last post I had forgotten something that was vitally important but this has turned out to be OK because it has allowed me time to give this some serious thought.

Now remember I strongly believe I and my family may suffer from Charcot Marie Tooth Disease which leads to muscle weaknesses and not joints. I should also point out, provided I have not remarked on this already which I probably have and there is also likely AUDIO of me stating it to health professionals, is that I have always been confused that I get all these aches and pains but NEVER is it in a joint, closest being this painful clicking in my ankles but now and then.

Well in my research I discovered something else and along the lines of my remarks that if the CMT has affected my back then this could have caused problems with the Vagus Nerve which affects your breathing, emotional response (like fight and flight responses or fear and anger), along with heart rate and swallowing. As I also stated that compressed 'enough' it can cause sweating (had told Doctors I had problem with this few years back) fever type symptoms, low blood pressure and feeling like a heart attack and bad enough passing out.

Well there is another physical condition that can cause pressure on this Vagus Nerve and it just so turns out that this is something that NOT ONLY DO I HAVE but have requested an operation for it for over twenty years now and is spoken about throughout these posts and down to my involuntary vomiting?!?!

Remember I was REFUSED the operation and the very odd thing is that like one or two others this condition is normally associated with senior citizens!!

Now I shall go into detail about how and WHEN I first suffered from this condition and I was in my late teens. Around 16 I had just returned from living in Brighton where I was forced, by the government, while there to join the Youth Training Scheme, as it was known back then. This YTS was based in Marmion Road in Hove and eventually I was placed with a removal firm called GB Liners.

Only when I returned from living in Brighton, or Portslade to be more precise, I started suffering with heartburn that over time become more painful and a lot more frequent. It became so bad that my grandmother urged me strongly to register with my FIRST ever Doctor as an adult, called Doctor Tennekoon, who was also her GP though she hardly saw him.

I did and over time I was given drug after drug after drug, so this would have been around 1988-ish, and eventually I had to demand that he refer me to hospital which he did. After series of tests and the FIRST of TWO Endoscopy's, the other many years later, and a Barium Meal Scan it was discovered that I had a Hiatus Hernia.

For the next twenty years I asked various GPs, every single time I had a new GP or new clinic even, about having the operation but was told it would never be performed even though my original hospital Doctor (Dr White) at Whipps Cross Hospital thought I needed it while he openly admitted that the specialist, a Mr Pietroni (if I recall his name correctly) thought I did not! I also and may have mentioned it on this blog that when the Barium Meal was being performed I heard a Doctor, who was standing behind a seated nurse both looking at the monitor, state CLEARLY ... and I QUOTE "I have never seen one that size before?!"

Now I asked about this statement when I went saw various people afterwards but never got an answer and was told they did not know what I was talking about. Also I have no idea to what that Doctor referred to. It may well have been the Hernia itself or could have been something else as on this type of scan I dare say they get to see a fair deal?!

So imagine my shock when I find a website where it was being talked about that a Hiatus Hernia can place pressure on this Vagus Nerve. Also consider that I have often referred to the fact that I can vomit involuntarily and that I was told this was down to the Hiatus Hernia by Doctors but had NEVER read about this myself?! I was told this was Oesophagitis Grade C and I thought no more about it.

But the vomiting feeling I had Saturday night was identical to the vomiting I get from time to time and sometimes several times a day only this time it was combined with strong feelings of other things I often get from time to time like the blacking out, which I have done in local Sainsburys from time to time (have done for years and was told it was cannabis use the FIRST TIME?!), Nausea, Fatigue and SWEATING!! ALL SYMPTOMS I HAVE EXPERIENCED FOR YEARS IN MILDER FORM and never all together like they did Saturday.

Well now is that not interesting?!

The Hiatus Hernia can place pressure on the Vagus Nerve which itself can explain half of the symptoms I have had for years. The Charcot Marie Tooth Disease, itself could be the or indeed combined culprit, eventually affects your back and this is where the vast majority of the Vagus Nerve is to be found.

Simple.

So how is it that this nerve, despite all the symptoms I have told Doctors over the years and feeling like I am sounding like a Hypochondriac, has NEVER EVER been mentioned in ANY conversation over all these years with all these so called experts quick to roll their eyes at you?!

Interestingly is that the Hiatus Hernia was not the ONLY hernia I had and one other that popped up, quite literally in fact, was my Inguinal Hernia which can easily kill you by causing Gangrene, was IMMEDIATELY operated on to my shock and horror and I even stated to my current GP, Dr Debbie Dressler, well I have asked for my Hiatus Hernia to be operated on for 20 years and told no, so why so quick to operate on this .. to which she said this one will kill you!

Indeed when I was checked over prior to the operation I was told that the muscle wall in my LEFT groin were also week and that I would have to come back and have a mesh placed in that side too before I get ANOTHER INGUINAL HERNIA?!

At this point I thought 'what the feck is going on with me?!'

Oddly I never got called back for the other side of my groin, curiously especially after what I was told. I also always said that it was all these little areas that seem to get affected and that my ligaments and tendons seem to not be 'all that'.

So now with some careful thought it has become much clearer to my understanding as to what is going on but GPs, and I mean ONE AFTER THE OTHER, have been quick to REFUSE ME POINT BLANK and without so much as batting an eyelid a referral for an operation?!

Indeed if you recall that my current GP asked me to come back in a couple of weeks time when I remarked about the Oesophagus and my vomiting as, and I QUOTE "THAT NEEDS TO BE SORTED OUT!" and I walked out of my current clinic thinking that after all these years I was finally going to have the operation that eluded me for so long?!?!?! I was over the moon!

But just as I have stated so many, MANY times on here an about face was to be performed with an air of nervousness to. When I went back and I MAY have recorded this I said "but you told me to come back as my vomiting and Hiatus Hernia needs to be sorted out?! That is WHY I am here and now you are saying there is NOTHING you can do and cannot refer me after telling me that was what you wanted to do?!"

Indeed when he originally asked me to come back he uttered the exact same words he did when i walked out of his clinic the last time, the time he contradicted himself, and I QUOTE "We WILL get to the bottom of this!"

I think now that they have got to the bottom of this a very long time ago and that I cannot believe that THAT MANY health professionals can be that naive and THAT STUPID! I think they have been under instruction for the longest time NOT TO ADMIT TO ME what was really wrong!

Of course when it come to why there are a couple of possible reasons and I think it funny that when I state what I have done on so many occasions that, the faces change but the lies and tricks remain the same with each public office springs to mind. This is exactly the same that Wirral Council have done for years that once they realise they missed something bloody obvious better to put peoples lives in danger including children rather than admitting you was wrong which would cost you dearly financially.

Now put THAT exact same theory into THIS scenario with my health and it seems to be a perfect fit and uncannily similar, don't you think?!

WHAT OTHER EXPLANATION COULD THERE BE?!

Now I also wonder that if they have managed to figure out about what I have been up to and are indeed watching this blog at all realising what I have now discovered may cause someone, somewhere to come out of the woodwork to 'deal' with this blog?!

Are these the final pieces of the puzzle I have searched for regarding the NHS all these years?!?!

Well I for one think it is HIGHLY LIKELY and maybe it is not so that the DWP can save money by NOT giving me DLA all these years but actually from the likely legal action for damages that could arise from my realisation of the truth?!?!

What I also find interesting is this...

I CANNOT BE THE ONLY ONE THIS HAS HAPPENED TO?!

Important Point: Many of the ABOUT TURNS have occurred AFTER my notes have materialised too?!