Wednesday, 20 January 2016
NEVER THE PAINS SHALL MEET
In fact it is true to say that I have several ongoing personal battles.
I have a couple of health conditions, possibly several, that render me into world of disabled people and more details about this will be forthcoming throughout this year, 2016.
First and foremost is Fibromyalgia and of the 200 odd possible symptoms I have around 120 odd that could be attributed to this condition. It is not a nice condition. Not in my case. The combinations of symptoms from those 200 are, as you could imagine, endless.
Do not think 'pain' when you read symptom. A symptom is what it states.
However as well as the obvious pain symptoms others can fall into other categories just as bad if not worse than the ones within the pain category.
One category that should be obvious is feeling ill.
One other is embarrassing.
Another one is bloody annoying and very distracting and then there are the mild ones.
I experience half a dozen pains across both my feet and the same pain in each ankle, calf muscle, both knees, hip, lumbar, thoracic and neck region along with shoulder. That is sixteen pains straight off the bat. I am working with them, around them and battling to find solutions all the time. I do not get a great deal of help.
Moving into the illness category, that I am to focus on for this post, I have three symptoms that include nausea. One of these I realised recently was occurring in the late afternoons and was linked to not eating enough throughout the day. In other words worse when I had not eaten anything at all.
There are two others and I have covered both of these many times but I do not think I have covered them together.
One is literally feeling sick to the point of throwing up but without any dizzy sensations at all. Quite weird. This was initially linked by the NHS to Oesophagitis, Grade C. Though many years later one honest GP pointed out that the Lansoprazole medication I took for it was only supposed to be taken until the Oesophagus healed up and not anywhere near the 12 years I had been taking it. I pointed out that stopping the pills would result in me having the bad heartburn I also get with it.
Another symptom I get, which I do not think I initially linked to my Fibromyalgia, is that of motion sickness. I have had this fro a child but only ever occurred when I wa the passenger and if I never ept my eyes on the road.
A few years back that started to change.
I started to get occasions when the motion sickness would just appear even while watching the road while showing an extreme polar opposite to a few times when I simply would not get affected at all. I could even take my eyes off the road on some occasions and still not become affected.
Around a year or so back I would even get this bad motion sickness without even travelling in any kind of moving vehicle whatsoever! Now that was worrying.
There often odd symptoms I have that I have often worried might start occurring at the same time that was extremely worrying and had felt lucky that they had not.
Two days ago this changed.
I had started taking Metaclopramide many months ago and two days back a friend was driving down to Gravesend in Kent to drop off his son at his girlfriends house. I decided to go with him. I was OK for most of the journey going there and had taken a pill. Before I left I had the feeling of throwing up, always accompanied with coughing, that I mentioned that seems to be brought on by any trapped air within my stomach. So I rarely get trapped wind pain as the vomiting comes on long before this happens these days. On the way back from Kent I started to get the motion sickness and by the time we got to Waltham Abbey it was bad. I was also getting the vomiting feeling too and this was the very first time that these two things had both occurred together. Really the only time the motion sickness will then pass completely would be several hours after stopping being in a moving vehicle and often only after a night's sleep. Though not every single time but mostly.
Worrying.
Getting to me also is the fact that my back pain has gone from something that occurs a few times a month to a few times a week and for a large number of month now an every single day thing!
I race and battle to find solutions to these things while battling to remember to bring them up with those I should do because of one other symptom that causes temporary short term memory loss. Do not even get me started.
So two days ago the two most obvious symptoms to do with feeling ill both occurred simultaneously for the very first time.
I can honestly state that I have lost count of the number of times when I have asked myself how our own bodies can be so effing cruel to us and why on Earth we would evolve bodies that can cause such an array of symptoms with each one driving you beyond the point of distraction to the edge on insanity on occasion? How on Earth so many things can occur within one individual is beyond me and how it has gone unnoticed, disregarded and ignored by the mass populaces for so long is even more staggering. Head shakingly staggering considering the number of so called scientists that have existed for the last few hundred years plus.
Te funny thing is about this occurring now is that I had thought that a couple of months before Christmas, 2015, I would be in a position to actively pursue solutions in a completely new and NHS-less way. I have not and I do not know why just yet and now one of my fears has actually come to light.
The NHS have previously first ignored, fobbed off, wrongly diagnosed, diagnosed but not divulged and lied about my symptoms. Oddly I was asked recently if the lies were simply them getting it wrong? Well apart from the fact that would mean almost every health professional I had ever met on the NHS being an incompetent twat, around three dozen or more, no. Not when one admitted falsifying an ultrasound (on tape and on here) and another admitting that they do under orders from high up in the NHS, definitely no! I would not need the times when things were admitted to me to now that they had been lying. I simply cannot state how long for beyond around 18 months.
As for the things promised to me that then never materialise the list is endless and goes back twenty years. Oddly each and every Doctor has not considered either the consequences nor even the possibility that I might spot this and might do something about it!
Even more bizarre is the fact that they never stopped to consider of the NHS would hold their hands up if a patient either realised the truth or caught them red handed, blatantly in the act?
These are supposed to be educated and intelligent people? Each one I have met also act as if a medical Doctorate or degree trumps all other scientific degrees and Doctorates on the planet! They do this even when I point out that I was offered a Doctorate, I stupidly turned down, that involved Computer Science creating a simulation to train surgeons on how to perform keyhole surgery, so was in the world of medicine and surgery. In other words you have to be fully educated in BOTH fields, or at least will be by the end of the project.
I tell them this and it gets forgotten.
Maybe I should take my Degree in with me when I first go on a GP Surgery's register because maybe they think I am lying? Lol!
I was offered the Doctorate by Peter Pasmore, my graphics lecturer, at Middlesex University back in 2000 because my thesis was a computer system that stored data on the animal kingdom, of which I am also an expert and have several blogs about. Oops. I did state from the outset that everything I did was connected and part of a bigger plan?! Lol. Which incidentally got interest from several zoos and museums both here in the UK and overseas including the USA.
http://repsamphibsfish.blogspot.co.uk/ MINE!
http://understandingtropicalorchids.blogspot.co.uk/ MINE!
http://britishwildliferare.blogspot.co.uk/ MINE!
http://myastronomyastrophysics.blogspot.co.uk/ MINE
All backed up with my YouTube channel and I also have several other blogs covering other topics to boot! Oh dear!
I already have other combinations that have gone on for years but have been worried for bloody years that these combinations might, over time, get other things occurring with them.
It is hard to imagine how unbearable things would be become with the increasing frequencies of symptoms overlapping in these ways.
So you can see that things are something of a battle. No. a series of battles and I try to work hard towards something while trying, all at the same time, to uncover the truth about corruption and help other people who are victims?
Things do not always go according to plan and when they do not II have to ... improvise ... a lot!
Through all the negative sources and naysayers into the ring and you might just start to get the idea that things are not an easy or a free ride?
I often have to change direction and plan things differently. I suddenly found myself with a gaping hole of several months right through winter, not good, that I had to fill. I am also in need of a new high powered zoom camera preferably before the Spring arrives so I can photograph and film animals.
The fact that my getting around is extremely limited due to the pains, motion sickness and embarrassing symptoms along with a lack of a car is a major pain in the butt!
Once again this should have all changed a couple of months before Christmas and it did not and there were several posts pointing this this up and coming big change. A change that I decided would take place in mid February at the very latest, though I still do not know the reasons why there is a date, or two in fact, in mid February that are both constants and would strongly hint to things changing at that time.
Both are birthdays!
For the time being and looking more and more likely to be the case for the rest of 2016 I have to keep trundling on. At least for another 18 months and then...who knows?
Wednesday, 4 November 2015
A NAUSEATING UPDATE
Woke up around 3.30am and felt the nausea from the get go! Damned annoying!
Was due to visit a friend and as I opened my front door to leave it was raining. Great! Then I wondered if the low air pressure had some link to this damned nausea. I seem to recall it being heavy cloud the last few times this damned nausea occurred. Might just be coincidence.
As it has done each time it has occurred it persisted all day and was a bit iffy at times and I had the urge to vomit again. Last night I started rubbing heavily into my neck and I remembered a few times some months ago when I woke up digging my fist into my left neck. I seemed to be leaning heavily to really dig in deep to something. When I woke up fully I thought I was dreaming doing that?
Some days or weeks later, I do not recall, I woke up doing the same thing and just thought I was dreaming again. It was a little like the Twitcher devices, if I remember their name correctly, they use on a horses top lip. Like a wooden vice that you tighten which looks barbaric when watching one being used but presses on some gland that releases something that calms the horse. I remember have this odd nice feeling as I was digging my hand into my neck and thought it was some memory about a thoroughbred/appaloosa cross horse I used to care for.
One morning I woke up quicker and found I did have my left hand on the left side of my neck and was indeed leaning heavily into my hand so that it pressed into some tender region within my neck.
Whether this has anything to do with the nausea or not I do not know. It is not a million miles away from ground zero to the kink in the central nervous system that causes the Fibromyalgia Syndrome I have and all its many odd symptoms. As, of course, the nausea is within this region then it all starts to look a but suspect.
But syndromes are called 'syndromes' for a reason. They are not fully understood so it may not be listed anywhere that there is a link but does not mean to say it definitely is not linked.
Now it is 72 hours, from Monday morning but for some reason I thought it was Thursday this morning and not Wednesday. Yeah I get that a lot.
So tomorrow is squeaky-bum time, Friday the look of defeat time and then wishing to God I had moved to Sweden a few years back! Lol!
Something else I was going to type, forgot it, remembered it again and then forgot ... oooh I remember ... when I get the nausea I cannot even look at my computer monitor and even a TV screen without feeling ill!
Oh and Fallout 4, a PC game, is out on the 10th November and I will be so pissed off if I still have this nausea when that is released! Not looking good as I have had it for weeks already now!
Just had a phone-call from my friend to say I left something at his place too! Yeah I do that a lot too.
In fact my record number of returns to my house because I have forgotten something, after leaving to head somewhere, is four. I often wonder when I will break that record and it is damned frustrating when I do it. Two returns are quite common.
I am amazed of late that I have kept to all my appointments ... umm though I keep missing my Fibromyalgia Support Group meetings, lol.
Thursday, 10 July 2014
SWAYING THIS WAY AND STOP
Monday, 7 July 2014
THE TWO PRONGED ASSAULT
This really needs to be placed in my Fibromyalgia Two Zero Two post but is kind of the epilogue, lol, to this post too.
a second and determined go with the two pronged assault resulted in vomiting ... AIR!
Friday, 6 June 2014
IF IT IS NOT ONE THING
I did the things I needed to do yesterday, did not sleep particularly well arose this morning and went to retrieve some things from my friends store that I forgot to acquire yesterday. After about an hour I started feeling nauseous so I left and went to the library.
After awhile I was feeling OK and then I went home. It had turned warm and I was soaked with sweat when I got in the house. I pulled out a table I want to get readyt for something next week and put on my laptop to play a game. While playing I started feeling nauseous again and it started to become distracting. DIstracting to the point that I kept rolling my head and neck around listening to the familiar crunching in my neck. AFter awhile ot just got worse and I started to feel cold instead of hot while still sweating.
I tried to rest my head and turned off the game and let my head fall back to the settee and rest my neck but the nausea and cold sweat has persisted. I cannot really put an illness to it other than maybe food poisining.
The one thing about Fibromyalgia, I am not sure if this is linked to it, is that there are a number of things that are just fecking horrible and when you are bad with it you think 'no this is the worst of the symptoms!' until you get another particular thing and then think the same with that and so on.
I have taken more Tramadol than normal the last 12 hours but still well within the maximum dosages for the period and so its not that.
The temperature outside got quite hot and the sun was on my head and neck while walking home, or limping I should say, so not sure of I have heat stroke?
Cannot remember if I have eaten so working my way through a packet of Cherry Tomatoes which were really meant to go with cheese in sandwiches, lol.
My taste buds are off kilter too, I know that much.
Thought of something to post about on here on the way home and cannot remember what it was now either!
Boy I feel like absolute crap and I hope to God this is not another bloody symptom of Fibromyalgia ot go with all the others?! Over the last twenty years I do sem to have slowly acquired a new symptom every few years with almost all of them down to FMS. I have often got nausea with it but not quite this bad and indeed nausea to thwe point of blacking out is what I often get but this is nausea to the point of feeling sick and wanting to throw up instead which for me is worse as I hate feeling sick.
Think far too much to drink to the point of being dizzy and going to pop at any point, chuck in a cold sweat and your as near as dammit!
Oooh now I remember I managed to almost walk past my GP Surgery and forget to go in to make an appointment ... well almost! I have now made that appointment and I have a little plan for when I attend that appointment.
This is going to be, quite bizarrely an exact re-run of what happened at my last GP over the lies about the ultrasound test results. The GP there, John Gubbay, was given the choice of lkistening to the evidence which as a Doctor and carere/healer to his patients he should have listened to. He chose most unwisely.
Now let us see how this GP chooses to side?
Saturday, 22 March 2014
THERE IS MY MATE HUGGGGHIEEEE
Sunday, 26 January 2014
I DON'T LIKE SUNDAYS
I still do not feel good.
The weather is absolutely atrocious.
My plans for tidying up my extremely messy home have been slowly heading south for the winter!
I do not know why I still feel nauseous to the point of feeling sick.
I keep doing little things and then stopping and it is not going anywhere very fast. I have things to do on several of my blogs too including the recordings from Chase Farm Hospital oh and shock of shocks a couple of videos too. Oops no four videos and am behind at getting pictures up too! Oh and there is a horrid smell in my kitchen which is the combination of something becoming ever more unspeakable I have now dealt with combined with that damned washing machine what leaks water inside it which goes stagnant. Oh that is because I had to open it.
Well at least I have a wading machine full of clothes on the go at long last!! Lets hope I am still conscious and capable when it's done?!
In the meantime I am glancing over at my laptop and trying to recall what devices I now need and where they are in my house.
Still I am listening to a Best of, of Creedence Clearwater Revival I got in Sainsbury's a couple days back. Oh yeah I want to sort out some music on my Sony Walkman too!
Boy I hope I shake this feeling off and oh for the love of GOD I wish it would stop raining long enough so I can start using my bike again?!
Oh God, the bike! Something else that is old and needs replacing! I might make an active attempt to try and find a second hand one that I can get to?! Trouble with me doing that is some twats will just not say it how it is and I do so hate that. But this had been made worse over the years because it's a fecking pain in the arse, more accurately a pain everywhere EXCEPT my arse, getting anywhere!!
Oh yes that reminds me, I have a Freedom Pass to apply for and have to email the DWP ripping crap out of them for not sending me a PIPS form!!
Happy Days.
Sunday, 21 April 2013
SICK OF SICKLY SICKNESS FEELINGS
When I was a kid and right up to adulthood if there was one thing I hatred it was being sick.
If there was one thing that kids did that I did not it was spinning on the spot to make yourself feel queasy, not me.
Roundabouts in children's playgrounds and local parks were something I never went anywhere near. In fact I remember getting on a ride at a fairground with a couple of cousins on the seat in front and it was horrid and terrifying and I wanted to jump off, despite being 12 feet in the air.
So to think these days I feel sick and am sick a hell of a lot is pretty much a nightmare for me fairly often.
That is how it is right now and I have a damned headache too boot! I am fighting off the urge to go running to the toilet to vomit everything up...
Oh dear..
Tuesday, 26 March 2013
I'M SO DIZZY MY HEAD IS SPINNNING!!
I had a friend arrive today and I opened the door quickly and I spun around and bent over to do something and then came up at an acute angle and as I did my head SPAN like a top and I nearly went OVER and dropped to the ground!
Was the same chap that too me to A&E last Friday. He asked me how the funeral went for our friend and I then had to explain that I could not go due to these dizzy spells. Though I did state and will do so here that to refer to them as 'dizzy spells' does not really do them justice and is an understatement!
I had planned on going out to have a chat with the Dentist and book that appointment with the Doctor and maybe just handing in my prescription for the anti dizziness pills, Prochlorperazine 5mg, so that I get some more but no I feel like I am going to be sick at any point and has been like this for an hour so do not want to go out at all?!
Catch 22 if EVER there was one!
Now wondering if I should take a second pill so that I have taken 10mg n the hope that would help enough to go out and hand in this prescription?!
I did do some research on the advertising to nail down a few facts, which I should have done some time ago and spurred into action by the patronizing hired help on that Google AdSense forum. Seems I was right and I have listed a load of details down to keep an eye on and see how it all turns out.
Right I get too embarrassed at going out when I think I am going to vomit for sure. I always have this fear every time I go out and it is a real possibility and happens fairly often. If I g somewhere where a lavatory s nearby and NOT a public one then this is great.
Anyone that thinks there is not a problem with going out when you have this vomiting problem well all I can say is that each time you go into a public lavatory and for the next year then get down on your KNEES in each one?!
Then after a year then think that I would have done that, that many times in the course or two to four weeks?!
Another one is travel across London say about 10 miles with NO CAR and do that without standing still?!
Or try carrying an Umbrella, Walking Stick AND shopping?! LOL.
Then imagine while doing all this you have bolts of pain in your foot arches, sore stone like pain in your left foot, stinging and/or aching in your groin and sharp or intense pain in your back, shoulder and neck?! Oh and the painful clicking i your heels when descending stairs too! LOL. In summer pain in knees when on foot caused by use of a mountain bike.
Go one I dare you?!?!?!
LMFAO!!
Friday, 22 March 2013
A DAY OUT AT ACCIDENT & EMERGENCY
I did not feel good at all this morning and feel like crap right now!
My friend turned up and after he saw me an hour into his stay he insisted he took me to hospital which I pretty much wanted to do anyway.
My tooth and gums are playing up to and were this morning also.
After a rude nurse initially saw me, now completely out of it and had spent an hour trying to stay conscious so that I could hear my name being called I spent another hour fighting to stay conscious while feeling bad.
My friend returned to the hospital, to my surprise and I was able to stay alert much better than before and the I was seen and checked over and felt alot better.
Series of tests and listening to lungs and then a heart trace was performed, look in my ears and all, they tell me, was normal.
They then tell me they are going to give me tablets to stop me feeling dizzy which also turn out to treat for vomiting and ...wait for it ...Anxiety Disorder?!
Only some months ago when I asked my GP if there were any other drugs to help with the dizzyness and vomiting he said no only the Domperidone.
Another GP who has LIED and bare-faced lied.
I am also somewhat certain that I had recorded him when he said that so that must be on here somewhere?!
A loo on Wikipedia shows that there are not one or even TWO but SEVERAL drugs for vomiting and dizzyness.
I have copy and pasted an excerpt from Wikipedia here and you can clearly see it states that...
" It is critical for the physician to find out what type of dizziness the patient has"
" Most patients will be prescribed anti-dizziness medications such as Antivert (meclizine), Valium (diazepam), Xanax, Phenergan, or Compazine"
Both the above can be found at ...
http://en.wikipedia.org/wiki/Labyrinthitis
Spinning dizzyness can be Vertigo?! Great!!
Or Ménière's disease, also causing Vertigo.
Of course and naturally so and after what the Neurologist said I am wondering of there is something here that us behind everything instead of Charcot Marie Tooth?!
Well I was told several times that all my ailments could not possibly be linked, but after no less than TWO, possibly MORE, GPs have been caught lying to me and one taking my private X-Rays and stating there were no other ant dizzy-vomit pills other than Domperidone (used for travel sickness) but actually turns out there are TEN or more I just cannot trust anything any Doctor, Nurse or Specialist either in the NHS, or otherwise, what anyone says any more!!!
The pills given to me are Prochlorperazine 5mg tablets.
I am now unable to deal with the tooth problem as I spent all day in Chase Farm Hospital's A & E Department which did not seem a problem around 3pm but now all my teeth are aching and I feel so fecking ill that I am scared to take even one single solitary pain killer!
Here is a scan of the prescription for the Prochlorperazine pills and if you think that is great wait until the next POST!!
