FIBROMYALGIA SYNDROME BREAKDOWN

It has been a long time since I published any details regarding my symptoms and findings for people with Fibromyalgia that come here.

So I did a list, and I included my other odd symptoms, a detailed breakdown of the condition along with the drugs I take as well as those I am supposed to take.

Remember and for those that do not know or narrow minded, regardless of what you read or find there is only one single solitary drug that works on Fibromyalgia and all of its symptoms. Just one for all potential 200 symptoms.

As anyone with Fibromyalgia will tell you, including those I am told never get out of bed at all, it is a horrid condition. Just think about it, any number up to a potential of 200 symptoms? Think about what having quarter of these symptoms must be like?

In my case I get over half of them!

There will be people far worse than me!

I learned how to deal with my own condition and later found out that this is what they tell sufferers to do, like cycle and light exercising.

Unfortunately and for well over ten years this caused hell in my life as family and friends thought I was making things up. A couple years back I bumped into a nice Scots fellow online, now on my Facebook list, who had the same condition with the same effects on both family and friends.

Yet he had suffered for a couple of years. Two or three if I remember and that in itself is bad enough.

But imagine what 13 years is like?

I would LOL if the memories of it, what few memories Fibrofog leaves me with, were not so bloody bad. Lol.

Ailments list, Cause, on Medical records or not

PAIN

• Both Feet (Plantar fasciitis symptoms in reverse, Fibromyalgia) – ON RECORD
• Metatarsalgia, left foot
• Both Arches (Fibromyalgia) [two pains, one stab one ache] - PAIN ON RECORD
• Both Ankles (Snapping, Achilles Tendinitis?) - PAIN ON RECORD
• Right Knee (Physical Problem) _ PAIN ON RECORD
• Left Knee (Less than right, Fibromyalgia)
• Hips (Fibromyalgia)
• Groin Right (Inguinal Hernia repair) – ON RECORD
• Middle/Upper Back (Collapsed Discs) – PAIN ON RECORD
• Base Neck (Osteopenia/Fibromyalgia Source region) – PAIN ON RECORD
• Outside of right hand ache
• Locking middle TOE left foot (Inverted) – PAIN ON RECORD
• Night Cramps (Calves) – ON RECORD
• NOTHING IN ARMS (Thank God)

PROBLEMATIC

• Memory Loss (several daily, Fibromyalgia, Fibrofog) – ????
• Vomiting without warning (Oesophagitis but Fibromyalgia though memory theory?)
• Heartburn (Hiatus Hernia 20 yr, Fibromyalgia through memory theory?) - ON RECORD
• Nausea Blacking out Standing (Postural Hypotension, pain behind eyes) – ON RECORD
• High Blood Pressure (Fibromyalgia)[from hight to low above-blackouts] – ON RECORD
• Sensations of seizures (normally when standing but while falling asleep lately)
• Insomnia (dogged for over five years, OK last year) – ON RECORD
• Get tired in Body
• Mind always on the GO

EMBARRASSING

• Skin Conditions – ON RECORD
• Scalp Condition – ON RECORD
• Oral problems (an ace) – ON RECORD
• 'Too embarrassing to mention' problem (bleeding) – ON RECORD
• Diarrhoea – ON RECORD
• Constipation – ON RECORD

OTHERS

• Feeling, irritation above right eye (feels like lump)
• Varicose Veins
• Tight feeling hamstrings
• Aching calf muscle, right leg
• Occasional shaking hands
• Heart Palpitations
• High Cholesterol

INSIGNIFICANT OTHERS I HAVE FORGOTTEN ABOUT

• The number is unimportant but there were in excess of 100 when I went though a Fibromyalgia checklist of 200 symptoms
• There is another more complete list that exists on this blog from a couple of years ago, do a search on Fibromyalgia is your interested
• Had periods of depression and anxiety I just remembered so there are two! Lol.
• Symptom does not always mean pain!

DRUGS

• Methocarbamol (for back pain, latest and seems to be very, very good!)
• Tramadol (for Back Pain)
• Gabapentin (for Fibromyalgia)
• Amitriptyline (for Fibromyalgia)
• Atovastatin (High Cholesterol)
• Ramipril (High Blood Pressure, still 170 give or take)
• Lansoprazole (heartburn, had many different types)
• Metoclopramide (for nausea)
• Quinine Sulphate (for Night Cramps)

DRUGS ACTUALLY FOR FIBROMYALGIA

• Sodium oxybate (only drug that provides RESTORATIVE SLEEP, i.e ONLY DRUG!)
• Milnacipran (research shows it has better effects on the pain in Fibromyalgia)
• Pregabalin (modern version of Gabapentin not meant to cause illness, nauseas side effects)
• First one not allowed, except for Narcolepsy
• Second and third NOT APPROVED?!

EDIT: VERY SIGNIFICANT TO FIBROMYALGIA DIAGNOSIS

Completely forgot about these lately as had no issues, 48 hours after typing this had pain putting kettle on one morning!

• Pain on Upper Side Shoulder Joint (raising arms more than 10 degrees)
• Lump feeling Under Side Shoulder Joint (arm pit, wearing pullovers or even t-shirts)

ALSO FORGOTTEN

• Had Costochondritis (You really, really do not ever want to have this and I constantly fear its return, when I do manage to remember I had it! Hurts like hell the more you breath in more than around 33%, wondered if oxygen would help?)

BREAKDOWNS

• Kink in the central nervous system I the neck
• Gets kinked even further, physical injury, whiplash
• Scrambles signals to brain (does not CREATE signals, i.e, MAD)
• Loss of restorative sleep
• Any combo of all bodily functions not kept in check
• Prognosis is this will get a lot worse getting into older years
• Had it twenty years
• Asking about it 13 years
• Doing fuck all about it now and as it is getting worse!

So this is only part of the reason I spent 15 years keeping records and the last 8 recording everything and the last 3.5 years publishing most of it on here.

So I believe that Chronic Fatigue Syndrome is the early stages of Fibromyalgia Syndrome and therefore the same thing. Because one seems like the other with a longer symptom list.

MY MATE, THE SOD

Yup, so much is he that they named a law after him!

I am a little fed up as he is always hanging around and driving me nuts. He only ever strikes just when I am about to do something else.

I was planning on a new camera in a few months time, which did not work out, when my one took a bloody tumble and I am still, trying to get it replaced. Of course I need that for all of my blogs and my YouTube channel I have now spent 3.5 years working on.

Of course I am still missing several items and the necessary space to all that I want and am capable of doing.

I left the house today forgetting something else, as I more often than not do. My Fiio hi-res music player and RHA headphones. So back to the house yet again and annoyingly when I thought it was about 10am was actually midday! Grrr.

Rummage around and no music player. Must of left it upstairs then? Umm ... no!

Oh, it is in my backpack? No. Inside pockets? No! I used a different bag? No! I have put it down somewhere and placed something on top of it? NO!

Crap!

Last time I remember seeing it, ... I THINK, was the morning before yesterday when I was picked up by my brother to go birdwatching. He called me 'Go, Go Gadget' and 'Inspector Gadget' because of all my devices and wires. I told him there were still half a dozen or more gadgets I did not bring out, like my audio recorder, radio scanner ... umm other Windows phone and probably others?

Where does 'sod' come into all this?

Well I was hoping to get an Astell & Kern AK Jr at some point which I would be doing about now if it were not for the fact that I desperately need a camera and the camera unfortunately takes precedence.

Yeesh!

How I do not know but it always, and I do mean always, happens like this. I start planning something, start working towards something and then something else comes along and goes wrong just about the time when it is about to go right!

ALWAYS!

Like some bloody court papers I was meant to get a hold most of last Summer and then should have done in November only for that to go south for the winter and not even knowing why that is.

I listen to music most of the time when I am out to take my mind of the 100 things that often go through it. Half a dozen or more of these are pains, either dealing with them or constantly worried they are going to flare up. Or the half a dozen symptoms that are 'hope a crack in the floor opens and you fall into a bottomless pit' embarrassing!

Jesus! I am going top miss having that player.

The only upside is ... or bloody well should be, is the fact it is Spring and the warmer weather means I should be out on my bike with my ... faulty camera most days. Except it is not good weather and we have only had a couple of full days and a few half days of decent weather.

Rain, rain, nothing but rain is all we get lately and even several of the sunny days have had rain at some bloody point! Should be good for the wild British Orchids but I am betting it will rain right through the periods when they are in flower and I wont get up there?! Lol.

Damn this Fibrofog and Fibromyalgia, it really is the bane of my life in so many ways I lose count! If someone was to ask me in how many ways I get driven nuts by my health I would say ... well four, except one of them has so many bloody ways on its own that I cannot even give you a number!

Over a dozen that bog me down I would say. Both feet, right calf, shoulder, memory, vomiting, skin conditions, umm two others, oh yeah ... and that one lol (not telling on those three), high blood pressure, postural hypotension, light sensitivity, sleep problems and umm am I forgetting anything? Memory, lmao!

Several back problems, lumbar, thoracic region (middle) and neck.

Physical problem with right knee.

Severe heartburn.

These are the main ones that are in the forefront of my mind.

Jesus, why is it so effing hard?

JESUS, why is there no EFFING HELP?!

I keep asking but I never get an answer, from anyone else, nit only Jesus.

Steps to getting help ...

1. Find organisation that claims to be advice/action in your field, ask for help ...
2. Get told they do not actually do that
3. Ask them why
4. Get lies or crap in answers
5. Ask them about deliberate mistakes I lead them to make
6. Get told to ask 'x' organisation
7. Go back to '1'
8. Repeat
9. Repeat Steps 1 to 8 a dozen times before you realise ...
10. None do anything, they all lie and their names are intentionally misleading
11. LAUGH YOUR ARSE OFF
12. LMAO!
13. Then realise you gotta just keep doing this crap even though it hurts in more ways than one!
14. Feel like sticking your head in a mincer

FORGIVING FEET

Well that was a ... relief!

The pains seem to be a lot less intense this morning. Though to be fair I can't recall what they were like yesterday morning. Lol.

Yesterday I didn't take my pills, which I annoyingly often forget to do if I don't leave the house. I forget many things daily ... often several times a day and I'm so tuned to take my pills just before leaving the house.

Today I did manage to leave the house. Yesterday the poison occurred while only wearing these mad slippers I have. Once my shoes were on things seemed easier. The pain was there and there was an area of intense pain on the south east corner of my right foot, as you look down at them.

I had more of a limp than I usually do and admittedly I didn't do a great deal walking while out. Got on a 217 bus to get to a shop 50 yards from the stop I got off at. Went into the Juice Shop, had a chat with the guys for fifteen minutes after buying something and then left. Got the 217 back home, got off at Sainsburys to get some sugar, oh I mean real sugar not that there is a woman ... anyway, went home.

By this stage the intense pain had eased off somewhat.

What is odd is that each time I come home my calf muscles end up feeling tight and painful, like I've run a marathon. Despite doing bugger all and I keep telling myself that once I'm cycling again, which is great for Fibromyalgia, this will stop?

My calf muscles have been doing that for months now and I've used up a large tub of cooling gel for fatigued muscles I've had lying around.

I felt for many years that my pains, Fibromyalgia is very likely to get progressively worse, will leave me confined to a wheelchair by the time in in my early sixties.

After a few years I started to think this might occur in my mid fifties and before too long thought it could happen by the age of fifty.

I have wondered if this could happen earlier and yesterday was one of a few days were I wondered if it might just occur at any time?

It's not a nice thought.

Thinking your body and mobility is ticking away like a time bomb with a clock that suddenly jumps around all over the place.

I could not live being wheelchair bound. Mostly because like everything else in my life, help and support for certain things seem to evaporate as I approach the times I need them. I've spoken enough times here and other places about how disabled people with serious mobility problems are treated. Only recently I've spoken about them having their cars taken away.

I don't care much for the excuses.

You simply don't treat disabled and vulnerable people the way they have been treated in the UK. There are no possible excuses.

You cannot claim not call yourselves civilised not claim your running not creating a civilised society when you behave as such.

Once again, there are no excuses. Even if any of them were naïve to believe your claims before voting you into power. What has occurred within the UK and globally is not their fault.

I've never voted for any of the main three parties, sorry I'm not as native as most and never have been, so I can state things and kick your arses while questioning how, why and the amount you get paid. I can, will and have lambasted idiot groups also taking taxpayers money that claim that MPs deserve a bloody rise in their salaries!

I've some things I intend to talk about regarding the NHS in the coming weeks.

After a series of visits I've no referral regarding my still high blood pressure, two weeks after quitting smoking I registered 168/111 on my blood pressure monitor. This while taking 10mg of Ramipril.

No, not that. The subject of my back and neck pains I've told Doctors about for far longer than I have my feet. The latter started 14 plus years ago to give you an idea.

I've been promised something I never got, attended a physiotherapist for physiotherapy that wasn't. I've had a back x-ray which was bizarre and rigged to shore nothing that couldn't have reached the physiotherapists by the time I attended.

I had a row, brief believe me, with a receptionist with a holier than thou attitude and sat stunned and speechless while being lectured and patronised.

I asked the Doctor what the results to the x-ray were stating I know what they will be. Well it turned out I didn't!

I spoke previously several times about brittle bones affecting many members of one branch of my family. I also always mention that despite falling from tall buildings, cycling accidents, other accidents and being knocked down while cycling quite badly by a car and have never broken a single bone.

I also don't recall anyone in my family branch ever having a broken bone either. Unlike another branch were each member have had several breaks and limbs in plaster.

So imagine my surprise when the only part of the x-ray that was performed correctly showed osteopenia, possible early osteoporosis or brittle bones, in my neck?!

So now and in early March, 2016, I have to have a DEXA scan, Double Energy X-Ray Absorbtiometry or something.

Me?! Stunningly bizarre!

Trust me when I state I had at least two conversations about the X-Ray being performed wrong, even with a stuttering and mumbling radiologist who stated they only perform weight bearing x-rays when requested.

How convenient!

Once these scans are all done I'll post more details about what took place in each case and what was said by who and where.

And you thought I had not been working on anything lately?! Lol!

I'm always working in things but often these take time, which seems to take longer the further into my grand plan I get.

I know full well why this is.

As I said I'll get to that very soon.

I'm also planning on starting up several things this week, along with getting back to sending of a second wave of letters to certain agencies. The latter is a month later then I planned.

There are also some other explanations to certain plans that are looking overdue. Well these are coming too this week and this one is a Whipple three months late, at a wild guess.

I expected the explanations for this to become obvious to all visitors of this blog via other channels. But as far as I know these other channels have failed to materialise. Though I don't exactly keep my ear to the ground!

Oddly I expected to be moving home about now and moving 100 to 150 miles north to be closer to someone so I could see more of them, then me whenever they wanted and and to help more.

I when acted as well as refrained from acting and even had a shortlist of items I was going to acquire based on all this.

I was absolutely convinced of what happened and what was going to occur and when and I've certainly got some of it very wrong.

Up until now this looked to be wrong in the timing only. It won't be long before it will look as if I've got most of it wrong.

So instead of escaping I'm confined ... indeed trapped in a world of fools that's often beyond unbearable.

The weather had been relentless and extremely unhelpful and limiting to me that has driven me to distraction. As I told someone a few days ago who was also vending about the frustrating weather, I used extremities while looking skywards. As if someone would answer out something would change?! LMAO!

What I wouldn't do for a couple weeks good weather for cycling?

I do also still need tools too and I'm working towards acquiring them in the next couple of months. 

All fourteen months later than planned!

Better late than never? I hope.

THE STATES OF THE PLAYS

Will I am living the brew game I ordered .. NOT!

After it supposed to turn up by Friday at the latest it has now failed to turn up on the day that Amazon quoted that it would!! Three days late! Lmao!

I wish I could be bothered to look at what complaints others have about Amazon these days but just cannot be bothered!

In fact this now inevitable demise of Amazon annoys me because it used to be a good company, ooh weaker what am I saying? No one seems to know how long they have avoided taxes in this country?! The UK that is. So we have been saving money but sleep walking into our own cesspit of demise as a result of this and other companies.

In fact if you looked at the nationalities of all the owners of the companies I have had issues with and the company that secretly runs so many public services I bet 99% of then are American?!

Hmm cone to think of it how much money did we spend on those pointless wars?! His is it we got into those? Oooh wait a minute that was the Americans too and Tiny Blair blowing out taxes to be certain of a job after he quit as Prime Minister?!

This reminds me that I was given a copy of The Daily Star today. This is the first time I have been handed a copy of that newspaper in awhile and when I opened it up, what did I see? A two page article about the NHS and how it's on the brink of collapse?!

I think that if the Tory Party so much as mention the word 'privatise' someone should throw ... manure at the houses in Downing Street! With a banner saying you talk crap!

These ... institutions were once great but have been used by greedy aristocrats, or just this that think they are, to earn huge salaries and this had grown in number of greedy, lazy and quite incompetent people and there seems to be a lot around suddenly, who have grown in number by employing family and cronies to maximise what they can syphon off?!

Now privatising will do what differently exactly?!

They talk such utter bullshit, this situation with the NHS has been created this way for years way into Tony Blair's rule, yes rule, and possible before? What annoys me is their is a culture to keep things exactly the same but put a different label in it and that there are tens of thousands of petiole getting away with very serious crimes that considering the state the country is in is treason! No matter which way you slice it, they have manipulated, lied, mislead and ripped off the British Public with grand scale fraud and I am speaking individually here!! No mincing words here.

What my previous two GPs did, asking with other Doctors I saw while registered with these two, was utterly atrocious. Sitting there taking taxpayers money with the attitude that it is perfectly accostable fur then to lie while taking the salaries out if the taxpayers money! Absolutely despicable of these two Dr Kumar and Dr Gubbay in Enfield and the latter having a while surgery that thinks the exact same! Forget the fact that this earning even higher amounts asked them to do this they did it which is just as immoral and illegal not to mention breaking of oaths by a list of names write literally longer then your arm!

Though I do not want the NHS to collapse, yes my actions and pays probably consigned it to the history books, but I had to divulge what I knew. It could not carry on and was to rotten and I would get the pleasure of setting a lot of Doctors tossed into the scrapheap never to be allowed to be Doctors again! Well in the long run that is, Time was not built in a day.

Also Mr Cameron and you Torry tosspots, well I assume you are because your supporter who guest speaks on Sky News and works for the Daily Mail sounds like one and completely and utterly wrong ... 80 to 90% of the time...

We do boot have the infrastructure not technology in place to have the existence you keep banging on about and have almost everyone working! First of you have to stop lying for a start and have companies that are corrupt that enforce this in their staff! Why?

Because it's wrong and immoral and you cannot bleat on about how to run a country if your immoral! Sorry but that's it and that's all and there is no argument against this. Added to this you have all the religions who have honest followers ... yes OK there is that one religion that has two faced followers and thinks it's OK to take charity, no honour our self respect, claim to be honest and then stab you in the back as soon as you turn around ... let's leave that one religion that is being 90% of the world's troubles and deaths (outside of natural disasters).

All other religions practice honesty towards others even those that will not be brainwashed. These will not want to lie for a bunch of rich immoral people! Makes you wonder where they managed to find all the employees then?! Lol! No traditionally though front line staff won't know, which is why my job had been so difficult and long! Attacking these front line people the way I do with such venom ... will make them stop, take notice and think. Once they do they continue to think and talk about this with others, even if the call me a complete prick. I simply don't care, they would be wrong anyway and as I continue to state and have done from day one this is not a popularity contest, it's not about me either! It is about the truth, the bigger picture and what is really going on in this country.

To be able to heal anything you need all the facts, all the variables as otherwise you simply either fail to come up with the correct formula or keep coming up with ones that fail!

These are the sorry of simpleton things that these arseholes in money, power, politics or any combination simply fail to understand and have continued to fail to understand while the British Public suffer every worse?!

Also I do this because even those that are suffering unnecessarily do not even realist it!! No question marks here and that woman from that disagreement about drugs could be a prime example of what I have stated all along?! If she quoted wrongly based on what her GP told her then there is a GP that has got away with lying to bit just one patient! Well think about it ... he won't just have one patient, will he?

Now think also do you think that she is the only one that has been lied to and had no idea?! No there will be tens of thousands ... no that's not right and I was going to then type hundreds of thousands but this would not be correct either! No this will be in the millions! Many millions! This is what I have tried to state for a very long time now and what I get angry about is that many of you don't want to accept it when it's bloody obviously true and I hate that this is happening to you because we should not have to sit there wondering which of the top professionals, be they Health Professionals, Police or any others are being fecking honest with us!

Do you know what you will have to do if you realise that none of these have been honest with you, or even just some? Have you any idea whatsoever?! No?

Well feck me you really have an aversion to reading, don't you? Because you would have to do absolutely everything that I have done on here, which is why I went to great lengths to do it for you all!

The funny thing is I let things flow quite deliberately believe me. Also believe me when I state that absolutely any labeling of me when I have been on a rant is completely missing the point as I have stated and also would be wrong. A bit like those remarks made by a certain charity recently that ended up as slander! I shall explain ...

I have Fibromyalgia, oooh I can hear the groans already in unison, but that is the key point that should have picked up upon by anyone with a brain. I have Fibromyalgia and I toe this blog about things I have to contend with while having Fibromyalgia!

Are we there yet? No? OK.

Fibromyalgia can cause a countless lust of painful areas of which I have in my feet, upper and lower legs, knee (other had separate issue from Fibromyalgia),  hips, two thirds of back, shoulder!

Fibromyalgia can and will eventually cause short term memory loss.

Fibromyalgia causes lack of restorative sleep as well as Insomnia on top and then Restless Leg Syndrome as well as the rare Restless Arm Syndrome.

Fibromyalgia causes Anxiety Disorder symptoms and Depression.

Are we there yet?! No? OK.

WHAT WE HAVE HERE IS A FAILURE TO COMMUNICATE! RIGHT THEN!

Anyone with any of the above will be constantly frustrated and angry and that's without going into the many dozens of other symptoms.

This also is not going into the server heartburn and pain in my groin, nor the fact that I will need surgery on the other side of my groin because I know the other Hernia will pop at some point and I know what to look for ... ooooooooohhhhhh!

Oh yes the morons that lied about the ultrasound showing another inguinal hernia did not think about that before lying! I am not down as getting scared about anything that could be fatal and am laid back. I also know what to look for with Inguinal Hernia because I already had one already!

So a bit weird that they were not upfront about it? Not when they have a different agenda to make me look dishonest? Many asked me why they did it and I said 'how do I know? Go ask them!' I do have a very good idea though but I never wanted the annoyance of rolling eyes from people thinning themselves far more experienced in these things as I have been surrounded by experts all along right under my nose!

YOU!! You are the reason they lied. Because they wanted YOU to think that I was unreliable and dishonest, mad or anything else they could label me with. The NHS are not the only ones on a mission to ... dirty my name, for want of a better term!

The Department of Work and Pensions/Atos/ICE, Police and several Local Councils (at least three but I do mention at least four on here) have been no doubt trying to do the same!

The Police have resorted to do this by using my daughter! Bad play and one that will only end in tears and careers. Not mine!

But the most important part of Fibromyalgia is that of the mental anguish! Ooh yes this was the Ace in the Hole in all this! Indeed it was an OK Doctor that have me the idea, after being nagged by others, to start this blog! Yes she was a Psychiatrist that had a dig at me fur waking into the clinic as I was totally sane, lol! I had done this several times over a year because I could not understand why I had lost control and did bit like it nor the feelings I was getting. I understand it now but only through my own endeavours. The NHS wasted hundreds of thousands of pounds getting it wrong ... well I believe deliberately avoiding diagnosing me and knowing full well for at least a year before I discovered it!

I am fully convinced that Doctor John Gubbay and Dr Dominic Mort knew full well what I had, Fibromyalgia, as likely did the Doctor who performed  the Electromyography and Nerve Conduction Studies at Royal Free Hospital but am only half convinced by the last one.

I know think that Dr Huq knew and it was demanded that she lie to me which was why she quit airing her disgust of the NHS. Unfortunately for the NHS I had already performed a preemptive strike by showing Doctor Huq, who I was friendly with as I was her staff, the letter that stated in a roundabout way that she was incompetent because she could not fill out simple forms!

Whatever it was that the NHS top brass demanded of her it was a mistake and this was exactly why I showed her the letter to her raised eyebrows and voice! I told her not to worry as I knew the moment I read it that it was a falsification. I stated that I had known that they had been lying for a number of years but had been trying to find a way to prove it. I had still yet to prove it because I alone could not just scream it from the roof tops and have everyone believed me, of no! So I pressurised, pried, prepared and then waited for my chance to get them to totally contradict themselves. Of course I had to get them to state a list of things without the anger or madness they claimed in in a normal and calm conversation. I did that repeatedly and now that chapter is done. It was really done a long time ago but I always wanted that last great and completely obvious along with incontrovertible evidence of it.

My prediction of an unholy trinity within the UK has plenty of evidence fur the other two mentioned, the DWP and associated organisations, ICE making it easy to screw all the other Ombudsman,  asking with Local Councils because these benefited the most from the corruption of the NHS.

GET THE NHS AND YOU GET IT ALL!

For other things like freedom of speech and crazy illogical and slanderous ... sorry libelous things against me well ...

A bog is in essence an online diary.

These tend to be confined to subjects for the most part but not what they were initially created for. It was just a way for petiole to hit things down online and advertise them to all.

But if we leave that alone for a moment and consider that Fibromyalgia scrambles you're brains signals on every conceivable way, many the specialists have not even considered, then you have to consider what this blog is ...

This bog is a psychiatric breakdown of what it is like for someone with a condition that causes a while list of pains, mental health issues ( that do not include lying, hallucinations or anything else) to live there every day lives with all the necessary things they have to do along with that the public services force them to do because of our overpaid laziness!

It is also an psychiatric breakdown of what it is like for someone with these issues that makes them angry and on tender hooks daily when those that we are mean to trust and rely in for support actually bare faced lie to us!! It shows our reaction I the betrayal we suffer!

Oops!

Of course the beauty here is that I have been underestimated on two counts ...

Firstly I was underestimated and by that I mean my intelligence and the letters after my own name of a Single Honours Degree in a Scientific based field.

Secondly my condition of Fibromyalgia was underestimated because Fibromyalgia covers just about all pains, if not all?! It also covers mental health too! Do you know what this means?

It means I have the ability to attract every single patient with just about every condition possible, or 90% of them thereabouts, onto this bog!

Now earlier I could hear the groans in unison only now I can hear the "Holy crap!" in unison! Lol!

I stated a bloody long time ago and repeatedly so that I wanted this to be rough! The thoughts, the spelling mistakes ... the lot!

Because I wanted petiole to understand how done people can think things at times they do not really believe. I wanted to show that under stress, mental pressure or pain people can lash out. Oh I did lash out, trust me on that and most, if not all, deserved it. In fact if you think about it the taking notice and waking up may have helped them in many occasion. I truly believe that this will reveal itself in time.

I think a great many things will reveal themselves in time!

Take that double page feature in The Daily Star regarding the NHS? Do you realise just got many things I have bleated, attacked, ranted and rampaged about have ended up in the media? I have noted dozens long after I covered them and I do not keep score!

But why was the story run? Is it because of what I have done or in spite of it? Was it deliberately leaked to admit to some shocking things so as to hide far worse things? Who knows? I don't!

What I have been doing, what I always did and continue to do is see, discover and reveal the truth. There was only ever so much I could with with my current limited mobility range and finances. Probably why they have refused all the support I should be getting?! Probably why I will be refused this yet again when others with only one of my conditions and that itself being only a suspected condition got paid thousands of pounds and I won't?

I will probably get nothing from the Parliamentary Health Services Ombudsman but the way I handled them was to make them show themselves to also be corrupt and performing grand scale fraud along with ask other Ombudsman so the fact I get nothing after insinuating I would get a substantial amount is OK. Because it means I caught someone else out being corrupt.

Unlike all those that have been caught out by myself and the many other decent and honesty people out there I did do this to help my country and the British people. I had the skill-set and balls to do it based on me being forced into a corner for twenty years like a scared and wounded animal.

I stated previously that they created me and now you for understand how they did this, hopefully?

By being so utterly depraved, greedy and lazy to boot they got only created me but I also manipulated them to carry on being greedy and even cockily warned them while posting this all on here just to make them look even incompetent than they already are!

This is the absolutely guaranteed end result when you or a bunch of self obsessed half wits that truly do believe money grows on trees yet cannot perform simple mathematics who are dishonest, fraudulent, far too ambitious and give jobs out to idiots they know or family friends even more incompetent than they are!

I will tell you one other thing I can fully guarantee that my truth does ... I fully guarantee you that it hurts! It hurts a hell of an lot but the pain had not reached its peak yet, not by a long shot! Not as far off as you may think either!

About a year I would say. We have this run up now to the General Election and whatever happens with that within a couple of months of whoever gets voted into power they would have then realised that I have covered everyone's backs with career poison?! Lol! So any rubbing off each others backs will end in utter disaster!

Because there is the undying want to protest in this country and it had been done all wrong and piecemeal. Over the next year hundreds of thousands of people will realise that they have done this all wrong. The different factions and campaigners need to come together in a common cause. They need to act and work together. This will truly create something that will be talked about in history books for hundreds of years!

Provided mankind has not destroyed itself or disappeared up is own backside during this time?

If your aggravated by of words being placed in here I apologise,_I did try to keep an eye out and corrected as many as I could.

If you really want to complain then send you emails to one of the biggest names of them all ... GOOGLE! LOL! As stated before it's there Android OS being utter crap ... no, no any fans can be quiet and keep incorrect fanboyism thoughts to yourself, I don't take prisoners!

Only two people were stupid enough to leave negative comments in two years and their ... hmm lets say quite obviously incorrect comments are chest to see, but silence makes me look guilty, scared or both. So I have them a digital dismembering. Anyone who have done wrong and ate on here, in posts or silly comments, I get feed up with explaining to think before opening the flood gates. I already long since stated I can't be wrong on here or proved wrong because only I look like an idiot at the end of the day.

I am not infallible and not am I perfect, hmm though I wish a certain someone would see me as this lol, and never have I claimed to be. I do get things wrong but I strive to keep this to a minimum.

Those that want to challenge me have to make sure that want to do the same!

I might sound to bold for some but to those I would say this befit they say, hmm or think, something silly ...

Sorry I did not realise there was a mitre obvious way to fight and beat almost all public services and the biggest retail names out there?! You will have to list your blog or website where you did better?

I started out with a plan not to be beaten and to show everyone everywhere the truth, because it's the only true way things will change. Not just hearing the things you want to and wandering if into the darkness for another few years before realising you have been filled again!

The last twenty years had for strait worse and it will continue on unless it is firstly revealed and then stopped and done now! Because if we do somehow survive this without dealing with the issue directly then it will happen again and survive this we might, survive the next one we won't!

It's bad because if the amount of people there are. They band together into groups to do underhanded things and the more in a group the bigger they get. This happens at both ends too! Only to group at the top grown in single digits while those at the bottom grow in tens of thousands.

It is inevitable that the larger of the group will ... kick off and the bigger that group is the worse it will be and no amount of crooked, fraudulent rich people and their personalised and also crooked and fraudulent Police forces will be able to stop them! With each week they get outnumbered by an every growing ratio.

In the last five years this difference has rapidly grown due to the fact that the Police have awarded themselves so much money over the last twenty years out of greed that they have not been taking anyone on fur awhile. Not even the Paper Bag Police either!

The larger portion may have had the rough ride for the longest time of all but those at the top while sucking the blood dry will in time have the roughest rides of all and will realise this with the sheer numbers and no point standing there looking worried either.

The press you have had along with the press you will have over the next 6 months to a year will only have the people even angrier with you.

Now take a guess who will be to blame for that?!

MORE THAN A PAIN IN THE NECK

Oh my word!

I do not know what had been going on the last few days but I have one hell of a pain in my neck!

I had intended to go cycling but first the wester lookee fine then there was some clouds and then I got tired. That annoying tiredness where I want to fall asleep on the sofa which like my grandmother is quite unlike me and yet for a couple of years now it is becoming much more frequent. I do suspect that the Amitriptyline might be affecting this, causing the increase in frequency that is. The sleepy days are not exactly new but have increased, partly why I do not like starting in. Well along with the boredom and the psychology of thinking if I do not do enough I will not sleep which then gives me an unspeakably horrid time the next day. Sometimes two.

So I ended up doing some housework, switching from a bit of tidying to a bit of washing up and getting done much needed clothes washed. In between all this I did stints on the computer but kept getting a really stiff and painful neck to the point of feeling sick.

What was bloody annoying is that I had gone to bed lady night hoping it would be give in the morning as I this yesterday too!

I have been changing things about and wonder if maybe the new positions are the cause of the neck issues? Oddly enough in trying to budget I did not buy the thing I wanted so bought something £15 cheaper. 

Unfortunately as much as I like the new gadget it might be a mistake? The gadget is in a position for me to use but has two differences to the one I originally planned. Height and length!

Oddly enough I decided that if this gadget was not suitable for its position I could get the original one I wanted at a later date and use this one I have now elsewhere.

I was not bargaining on this much aggravation and difficulty though! Now I am just using my tablet to type this out while laying on my back relieved the pain has subsided a little and I am not flinging my head back while starting at the ceiling while my right hand furiously squeezes my right rear quarter of my neck hard in the good that something my give/move/free up and the stiffness would simply evaporate. Instead all that evaporated was any hope that I could ease its intensity and it only got worse.

Gee whizz! Lol! I had my annual bath (joking of course!) during all that too! The diary of a fibro guy never reads the same twice! I imagine it is like that for women too? I really need to come into contact with those that suffer from Fibromyalgia, but in reality I secretly hope that there is no one else in the world that has to endure this!

Hmm maybe tomorrow? Maybe I will get out? Then it's three days until a payment arrives that allows me to all but finish Project Zero.

Which reminds me! I have a fair few videos I need to upside to the computer!

Hmm now where did I leave my Tramadol?!

A SIMPLE QUOTE ABOUT FIBROMYALGIA

This morning I was just perusing my wishlists on my Amazon account when I spotted a book, thrown up by Amazon as I have researched books quite heavily on this subject, on Fibromyalgia. I was not familiar with the title or the cover so I had a quick look.

However what I found was a rather interestingly written synopsis for the book I thought I would include here on a post along with a lonk to the book.

This brief paragraph explains to the absolute letter what it has been like for me. Bear in mind this is not for a year until they discovered it. Nor is this for two or three years until the diagnose it. No, no, no this is for thirteen years until it is I that diagnosed it and then realising I have suffered with it a great deal longer than those thirteen years. Also asking useless hospitals and GPs within the corrupt NHS about these other symptoms also.

In fact if you persue this blog a great deal and you head back in time through the archives you will find that the comments below are not only listed a great deal during the life of the blog but I list key points, ones that I REMEMBER OF COURSE, that go back over ten years.

There are millions of women and men worldwide who suffer from an invisible disease called Fibromyalgia. Often times these Fibro warriors hear insensitive questions/statements from family and friends like… “But you don’t look sick.” “Why do you stay up so late?” “Why don’t you want to come over anymore?” “Just push through it.” “Are you faking it?”. Michael R. Holien has written a little book to help usher people toward compassion and ultimately make people aware of this real and debilitating disease. Loving Those With Fibro will give you practical ways to love people struggling with Fibromyalgia.

This is just one single aspect of the utter turmail that has been my life thus far with Fibromyalgia and a prime example of the deteriating affect your life can take because a string of greedy people with titles that they do not deserve and should be stripped from them decide that telling a few white lies here and there and a bit of fobbing off is OK to save money.

As if to rub it in even more the title of said book is none other than ...

Loving Those With Fibromyalgia ... by Michael R Holien ...

and with this very brief post I can sum up not only how difficult it has been made by the NHS and its army of lying and incompetent Doctors the majority of which do not deserve the title. The the word difficult is something of an understatement and really does not do the nightmare justive. Lol.

Remember this is just one aspect, forgetting the never ending bloody list of painful areas along with the distracting and somewhat annoying symptoms.

I think on this aspect and at the best possible time for my pursuits I rest my case.

The Amazon link ...

http://www.amazon.co.uk/gp/product/1499294239/ref=s9_newr_gw_d79_g14_i2?pf_rd_m=A3P5ROKL5A1OLE&pf_rd_s=center-7&pf_rd_r=0TVTQDR299VNDMRX0N10&pf_rd_t=101&pf_rd_p=455345467&pf_rd_i=468294

PS Do not forget that the Oesophagitis, Hiatus Hernia with the Heartburn and Vomiting along with the Groin Pain from an Inguinal Hernia Repair and now another Inguinal Hernia since lied about along with the, now separated from Fibromyalgia, knee pain I still need to listen to the tape to see what it is of course are separate issues.

Fibromyalgia + 4! Not including the inguinal hernia that shows no symptoms whatsosver. But then they generaly don't other than a popping feeling and protuberance. It is Gangrene and death that Inguinal Hernias can cause, if the popping and protuberance is ignored for too long. So don't! Lol.

LAYING OF TRAPS & GROUND RULES

Right then! After finding out that Fibromyalgia could also explain other problems I have, like my forgetfulness with FIBROFOG, I decided the best thing to do is create a DIAGRAM and a LIST!

Especially as just today and along with a County Court Form to Northampton over a faulty phone I also sent in the reply and request to help of NHS England! So I might just be in the thick of it very soon?!

Now first up is a diagram that consists of all the areas of my body I have had problems, most of which I have never been given an explanation to and many also lied about.

After the diagram is list from 1 to 22, had no idea it was that many but knew it was over 10, of the problem areas. One of these only occurred once and some do not cause much pain if any at all. I listed them all just in case there are those with a madical background that may spot what a great many Doctors have not.

Current thinking is Fibromyalgia until either I or a Doctor rules it out with good reason.

NOW ONE AT A TIME PLEASE AND SINGLE FILE...

Pain Area Descriptions...

1 – Forgetful, Headache, Anxiety, Depression, Seizures

2 – Blocked Nasal Pasages most nights lying in bed

3 – Sudden Vomiting (OESOPHAGITIS)

4 – Crunching Painful base of neck and frozen shoulder (HAVE PRIVATE X-RAYS)

5 – Severe Heartburn from (HIATUS HERNIA)

6 – Pain in mid section of back (HAVE PRIVATE X-RAYS)

7 – Pain ONCE from not being able to breather in more than 30%

8 – Black area on ULTRASOUND that causes me pain

9 – Hernia DISCOVERED on above Ultrasound but no pain or popping feelings

10- Hip pains that can be severe in certain positions or just aching, - PRE-HEEL PAIN

11- Thighs can be fairly painful some days with a strong aching

12- Outside of right hand can ache, pucking up saucepans painful

13- Aching at the backs of my knees, Hamstrings??

14 – Varying degrees of pain in knees arund outside of patella

15- Restless Leg Syndrome (NEUROLOGICAL DISORDER) – PRE-HEEL PAIN

16- Rare but EXTREMELY PAINFUL spasms that only occur while asleep but wake up screaming.

17 – Clicking pain, Achilles Tendinitis?? - PRE-HEEL PAIN

18- Pain in the ball of my LEFT foot only, Metatarsalgia

19- Flashing lightning like pain or sometimes aching on the dorsal area of arches

20- Flat of Heel Pain which gets PROGRESSIVELY WORSE the more I walk or stand and NOT EASIER as in Plantar fascdiitis.

21- Problem with right ear, pops a lot in cold and damp weather, hearing less than the other side and putting in SILICON in-ear buds when using headphones I lose the hearing totally!

I had self diagnosed... because it become apparent that many Gemeral Practitioners and even Specialists ranged from not very good to bloody incompetent....

Morton's Neuroma but ruled out.

Dupuytren's Contracture but I quickly then ruled that out

Charcot Marie Tooth Disease but ruled out via NCS and Electromyography

Current thinking now is Fibromyalgia due to this affecting memory (called Fibrofog), causing fatigue, lots areas of pain and other things all of which I experience. ROYAL FREE HOSPITAL and CHASE FARM HOSPITAL.

NHS Diagnosed...

Tenosynovitis (Wild guess at Whipps Cross Hospital)

Plantar fasciitis (String of GPs insisted despite my disagreeing) eventually dismissed

Pes Cavus then dismissed by next specialist St Michaels Hospital

Neurological Disorder which was later dismissed by next specialist by lying. St Michaels Hospital

BACK PROBLEMS in 2 areas, later changed their minds (HAVE CHIROPRACTOR X-RAYS)

Inguinal Hernia immediately repaired, told I would get one other side

Inguinal Hernia: then denied. Not admitting there was a black patch in pain area

Organic Anxiety Disorder

Depression

Oesophagitis Grade C (Endoscopy)

Hiatus Hernia (Endoscopy & Barium Meal)

SPECIALISTS...

3 Rheumatologists

4 Orthopaedics

3 Podiatrists

1 Back Specialist Physiotherpist

5 Physiotherapists

1 Neurologist (Discharged before testing for all neurological disorders?!)

Tests and other procedures...

Tarpal and Carpal Tunnel Syndrome (do not know names of tests)

Electromyography

Nerve Conduction Studies

Orthopaedic Insoles – TWO DIFFRENT OCCASIONS

Corticosteroid Injections (VERY PAINFUL)

Ultrasound Treatment

Night Splint

X-RAYS, X-RAYS, X-RAYS and I now glow inm the dark!! LMAO!

MRI Lumber

MRI Mid Upper Back while lying flat the results contradicted Back Specialist, Chriopractor as well as PREVIOUS X-RAYS?! Lmao!

NOTES: Numbers 10, 15 and 17 all appeared PRIOR to my PLANTAR FASCIITIS which includes both my heel and arch pains. Also thse get WORSE the more my feet are used whereby everyone tells you, and all books state clearly too, that the pain gets EASIER the more you use them. SO either all that state this are complete morons or it is either NOT Plantar fasciitis or being brought about from something else.

DRUGS...

Oh please no!! It has been thrteen years minimum lol I could not possibly recall all of them!

I'M SO DIZZY MY HEAD IS SPINNNING!!

OK nicked that line from a CD single I had years ago...err was that comedian guy whose name escapes me as my head really is spinning!

I had a friend arrive today and I opened the door quickly and I spun around and bent over to do something and then came up at an acute angle and as I did my head SPAN like a top and I nearly went OVER and dropped to the ground!

Was the same chap that too me to A&E last Friday. He asked me how the funeral went for our friend and I then had to explain that I could not go due to these dizzy spells. Though I did state and will do so here that to refer to them as 'dizzy spells' does not really do them justice and is an understatement!

I had planned on going out to have a chat with the Dentist and book that appointment with the Doctor and maybe just handing in my prescription for the anti dizziness pills, Prochlorperazine 5mg, so that I get some more but no I feel like I am going to be sick at any point and has been like this for an hour so do not want to go out at all?!

Catch 22 if EVER there was one!

Now wondering if I should take a second pill so that I have taken 10mg n the hope that would help enough to go out and hand in this prescription?!

I did do some research on the advertising to nail down a few facts, which I should have done some time ago and spurred into action by the patronizing hired help on that Google AdSense forum. Seems I was right and I have listed a load of details down to keep an eye on and see how it all turns out.

Right I get too embarrassed at going out when I think I am going to vomit for sure. I always have this fear every time I go out and it is a real possibility and happens fairly often. If I g somewhere where a lavatory s nearby and NOT a public one then this is great.

Anyone that thinks there is not a problem with going out when you have this vomiting problem well all I can say is that each time you go into a public lavatory and for the next year then get down on your KNEES in each one?!

Then after a year then think that I would have done that, that many times in the course or two to four weeks?!

Another one is travel across London say about 10 miles with NO CAR and do that without standing still?!

Or try carrying an Umbrella, Walking Stick AND shopping?! LOL.

Then imagine while doing all this you have bolts of pain in your foot arches, sore stone like pain in your left foot, stinging and/or aching in your groin and sharp or intense pain in your back, shoulder and neck?! Oh and the painful clicking i your heels when descending stairs too! LOL. In summer pain in knees when on foot caused by use of a mountain bike.

Go one I dare you?!?!?!

LMFAO!!