THE DOUBLE X-RAY

I apologise for being a bit ... distracted of late.

I typed out a few posts on my word processor with the intention of posting them up in a few days time but have not done this thus far. They are several days late but will go up in the next week.

As of right now I have been pre-occupied. With ... other ... things. One of these is vaping.

Though this is not going to be about vaping I will state that something on that is coming soon, as I have acquired several more things and tried several more flavours. I am also planning on a couple more things and several more flavours over the next week and the week after.

So I am not sure whether to do something now and then do another or leave it until I have acquired my planned bits and pieces.

There will also be included a funny story about my loss of taste as far as vaping is concerned that was quite bad. I will also throw sarcastic comments towards those that like to think they are experts and simply have to see themselves sound intelligent by coming up with solutions which turn out to be statements of fact. Oops!

No today I just want to explain briefly that I have indeed been tied up with the NHS once again and that I have had an odd comment I have expected more communication from. The latter has not occurred just yet but I am half expecting ... something.

No, I went for an x-ray of my neck and back and of course me being suspicious expected foul play and foul play was exactly what I got.

When I attended a GP appointment I said that I 'know' what the answer will bve for the x-ray but let me have it anyway.

Now I will just say that an x-ray of my neck was performed while standing up and then I was walked over to a bed and another x-ray machine, laid on my back in a foetal position, so my back is even more stretched out than normal, and had another x-ray performed. Well ... there was a series of x-rays and the radiologist actually said "Well, I have a shopping list for you today" which I found odd especially as my back was not x-rayed while standing.

I pointed this out and he said that they only do "weight bearing back x-rays if it is requested". Thereby passing the buck, so to speak. A lot of that happens so they can get away with their crap.

However the reply I got from my GP was nothing short of a surprise.

Other than arthritis, yeah, yeah, I also was told that in the neck x-ray they picked up on Osteopenia and that I would need to attend a scan called a DEXA, Double Energy X-Ray Absorptiometry.

Osteopenia is a bone thinning and what they call the intermediate stage between normal bone density and ... errr BRITTLE BONE!

Now if you have read enough of my posts you will note that way, way back and several times I have mentioned how not only me but many family members have never broken bones?

I have been hit by a car quite badly, up bonnet then windscreen and along the roof and off the side onto the tarmac, and fallen off roofs as a child and never broken anything. Well another branch of my family is quite the opposite and all suffer with brittle bone! I always remember one limb or other being in plaster and we did not see them that regularly!

I also explained that when I saw the film called Unbreakable with Bruce Willis and Samuel L. Jackson it made me think about my own bones and that of my second cousins. It seemed to be a mirror image of that of the films storyline but except took place within the same family.

So when my GP asked me if I had heard of brittle bone disease I replied "Your joking, right?!"

I then went on to explain that which I have told him previously as well as several other previous Doctors of both GP surgeries and hospitals. Really, really good at taking vital and important notes these people. Though are really good at doing the wrong scans, performing scans the wrong way and scanning the wrong areas. All of which I have since proved several times each.

So I am a little ... confused ... well not actually. Though I do have a theory I will not get into right hear and right now. Just want to state that I do indeed have a theory on this.

Now I have a DEXA scan coming up and I have already been wondering exactly what they will scan?

I mean to say that if they are worried enough to send me for this scan and it is linked to my back then it stands to reason that they would scan my whole back?

In fact going on first hand experience with family members with brittle bone you would think thata they would scan every single inch of me? After all they only did my back.

Now here is where it gets a little ... weirder. Where exactly was this Osteopenia location? The base of my neck!!

I will repeat, the base of my neck. Anyone care to hazard a guess, except for those of a particular ailment who will be all over this already, what the significance is of this location?

The base of the neck is where the kick in the central nervous system is that causes Fibromyalgia Syndrome that stops us sleeping correctly, non-restorative, and gives us pains anywhere in our bodies, causes memory lapses (Fibrofog) and all manner of other conditions and symptoms including that of the skin.

There are a possible and I should say 'KNOWN' symptoms of which I have around 120 and a couple not mentioned absolutely anywhere I believe is down to Fibromyalgia.

Now do you see my confusion?

I have a possible condition that never has inflicted my family branch in any way not even close but does badly affect another.

The location is in the base of the neck where the source of my Fibromyalgia Syndrome.

Both my back pains and my Fibromyalgia pains I have complained about for well over 15 years and got so bad that I approached a private chiropractor and that must have been over 5 years ago now?

Hmm? I have droaned on longer than I thought! Lol.

So here is the letter ...

Oddly enough I never imagined in a million years I would be doing this or have gotten this far.

I thought that in March of this year, 2016, I would be off moving somewhere some distance away and be approaching private Doctors to repair the damage that the NHS have done?

However that appears to have not taken place and nor looks to be happening so a few months ago I thought I would take another stab at getting the NHS to look at some things and see where that goes.

Despite the fact that I have stopped smoking and vastly reduced my nicotine intake and taking 10mg of Ramipril my blood pressure is still testing high. Seems to be between 140 and 170 Systolic and that is ALWAYS after resting a while. But it does not seem to be enough to worry anyone and I am told it is because of the Fibromyalgia it occurs and why I have not been referred.

It is funny because I thought that a high blood pressure kills you eventually regardless of what causes it and I know it is what killed my father in hid mid fifties and I suspect my Uncle who died about the same age as my father.

Factor that along with being stuck in because the weather is cold, miserable and bored out of my mind with nothing to do, cannot cycle and need a new Nikon P900 bridge camera, at the very least, to continue my photography and filing for all my blogs and YouTube account and you can imagine things are ... frustrating, somewhat?

Oooh I do not believe it, the sun is shining! Not for long, I bet?

FORGIVING FEET

Well that was a ... relief!

The pains seem to be a lot less intense this morning. Though to be fair I can't recall what they were like yesterday morning. Lol.

Yesterday I didn't take my pills, which I annoyingly often forget to do if I don't leave the house. I forget many things daily ... often several times a day and I'm so tuned to take my pills just before leaving the house.

Today I did manage to leave the house. Yesterday the poison occurred while only wearing these mad slippers I have. Once my shoes were on things seemed easier. The pain was there and there was an area of intense pain on the south east corner of my right foot, as you look down at them.

I had more of a limp than I usually do and admittedly I didn't do a great deal walking while out. Got on a 217 bus to get to a shop 50 yards from the stop I got off at. Went into the Juice Shop, had a chat with the guys for fifteen minutes after buying something and then left. Got the 217 back home, got off at Sainsburys to get some sugar, oh I mean real sugar not that there is a woman ... anyway, went home.

By this stage the intense pain had eased off somewhat.

What is odd is that each time I come home my calf muscles end up feeling tight and painful, like I've run a marathon. Despite doing bugger all and I keep telling myself that once I'm cycling again, which is great for Fibromyalgia, this will stop?

My calf muscles have been doing that for months now and I've used up a large tub of cooling gel for fatigued muscles I've had lying around.

I felt for many years that my pains, Fibromyalgia is very likely to get progressively worse, will leave me confined to a wheelchair by the time in in my early sixties.

After a few years I started to think this might occur in my mid fifties and before too long thought it could happen by the age of fifty.

I have wondered if this could happen earlier and yesterday was one of a few days were I wondered if it might just occur at any time?

It's not a nice thought.

Thinking your body and mobility is ticking away like a time bomb with a clock that suddenly jumps around all over the place.

I could not live being wheelchair bound. Mostly because like everything else in my life, help and support for certain things seem to evaporate as I approach the times I need them. I've spoken enough times here and other places about how disabled people with serious mobility problems are treated. Only recently I've spoken about them having their cars taken away.

I don't care much for the excuses.

You simply don't treat disabled and vulnerable people the way they have been treated in the UK. There are no possible excuses.

You cannot claim not call yourselves civilised not claim your running not creating a civilised society when you behave as such.

Once again, there are no excuses. Even if any of them were naïve to believe your claims before voting you into power. What has occurred within the UK and globally is not their fault.

I've never voted for any of the main three parties, sorry I'm not as native as most and never have been, so I can state things and kick your arses while questioning how, why and the amount you get paid. I can, will and have lambasted idiot groups also taking taxpayers money that claim that MPs deserve a bloody rise in their salaries!

I've some things I intend to talk about regarding the NHS in the coming weeks.

After a series of visits I've no referral regarding my still high blood pressure, two weeks after quitting smoking I registered 168/111 on my blood pressure monitor. This while taking 10mg of Ramipril.

No, not that. The subject of my back and neck pains I've told Doctors about for far longer than I have my feet. The latter started 14 plus years ago to give you an idea.

I've been promised something I never got, attended a physiotherapist for physiotherapy that wasn't. I've had a back x-ray which was bizarre and rigged to shore nothing that couldn't have reached the physiotherapists by the time I attended.

I had a row, brief believe me, with a receptionist with a holier than thou attitude and sat stunned and speechless while being lectured and patronised.

I asked the Doctor what the results to the x-ray were stating I know what they will be. Well it turned out I didn't!

I spoke previously several times about brittle bones affecting many members of one branch of my family. I also always mention that despite falling from tall buildings, cycling accidents, other accidents and being knocked down while cycling quite badly by a car and have never broken a single bone.

I also don't recall anyone in my family branch ever having a broken bone either. Unlike another branch were each member have had several breaks and limbs in plaster.

So imagine my surprise when the only part of the x-ray that was performed correctly showed osteopenia, possible early osteoporosis or brittle bones, in my neck?!

So now and in early March, 2016, I have to have a DEXA scan, Double Energy X-Ray Absorbtiometry or something.

Me?! Stunningly bizarre!

Trust me when I state I had at least two conversations about the X-Ray being performed wrong, even with a stuttering and mumbling radiologist who stated they only perform weight bearing x-rays when requested.

How convenient!

Once these scans are all done I'll post more details about what took place in each case and what was said by who and where.

And you thought I had not been working on anything lately?! Lol!

I'm always working in things but often these take time, which seems to take longer the further into my grand plan I get.

I know full well why this is.

As I said I'll get to that very soon.

I'm also planning on starting up several things this week, along with getting back to sending of a second wave of letters to certain agencies. The latter is a month later then I planned.

There are also some other explanations to certain plans that are looking overdue. Well these are coming too this week and this one is a Whipple three months late, at a wild guess.

I expected the explanations for this to become obvious to all visitors of this blog via other channels. But as far as I know these other channels have failed to materialise. Though I don't exactly keep my ear to the ground!

Oddly I expected to be moving home about now and moving 100 to 150 miles north to be closer to someone so I could see more of them, then me whenever they wanted and and to help more.

I when acted as well as refrained from acting and even had a shortlist of items I was going to acquire based on all this.

I was absolutely convinced of what happened and what was going to occur and when and I've certainly got some of it very wrong.

Up until now this looked to be wrong in the timing only. It won't be long before it will look as if I've got most of it wrong.

So instead of escaping I'm confined ... indeed trapped in a world of fools that's often beyond unbearable.

The weather had been relentless and extremely unhelpful and limiting to me that has driven me to distraction. As I told someone a few days ago who was also vending about the frustrating weather, I used extremities while looking skywards. As if someone would answer out something would change?! LMAO!

What I wouldn't do for a couple weeks good weather for cycling?

I do also still need tools too and I'm working towards acquiring them in the next couple of months. 

All fourteen months later than planned!

Better late than never? I hope.