THE DAMNING OF A DUO

Right now .. I have been working on something.

I have talked a lot lately about being screwed by the NHS and the DWP. I have also talked about how I am trying to help my family .. a mother that has my disability it now turns out, REMEMBER THIS BELOW, and three 'C' scares to get through. After that is a historical court case for domestic violence to get through which was only recently. After recovering from that she found out he thirds child was seriously autistic, then that she had my disability .. then the 'C' scares and then that the fourth child was autistic.

All that and with a needy-boy that is a pain in the arse himself, over-active and winds the two autistic children up, his older brother, approaching puberty, up and screams like a girl ('bitch' in is mum's words) when he does not get his own way or asked to go to bed.

When cannot stop food being wasted in large quantities and nor can we .. keep the house clean .. or form being flooded.

My friends and family are often open mouthed in shock when I explain the situation.

But then as I have stated there is my situation and I have long since reminded readers of my disability known as Fibromyalgia and how it is more serious that they would have you believe.

Now I published a very long list of symptoms a very long time ago now and on their I had somewhere around 119 to 121 but my right knee turned out to be a physical problem so was knocked off.

Other things I thought were separate things, because the NHS told me so, have long since been confirmed to be a number of wrong diagnosis and/or lies.

I also knew that the word 'Syndrome', if you do not already know, means it is not properly understood and in fact the name for it is completely wrong, meaning Painful Muscle Fibres.

Now if you THINK you know about Fibromyalgia even if you know someone afflicted with it .. then you had better think again.

My daughter did not really believe half the things I was telling her and I could hear a number of 'Oh my God!'s as she was reading something on the Internet. It is not just the three 'C's she has to worry about but a whole list of other things besides.

Well she was reading a new list for Fibromyalgia Syndrome symptoms listed on an Australian site, of all places.

In fact this list is called ..

The Ridiculously Long List of Fibromyalgia Symptoms

It has 279 symptoms listed!

It is missing some.

As it turns out the NHS have been lying to me again by omission! Nice!

It turns out that my new chest pains, heart palpitations and irregular heart rhythm, just lihe the blood pressure and cholesterol, cotochondrytis and others, are down to my Fibromyalgia Syndrome.

So is a while effing list of stuff y daughter has been wondering about for a very long time, some of which cause her intense pain ..

Now what I am going to do is copy and paste this list .. with numbers in brackets in BOLD going up one at a time with the symptoms I get.

I am then going to edit this post at a later date .. adding a second numbered system in RED stating symptoms in .. someone else. All of which have been missed for years by the stupid and inept .. or lying and corrupt NHS. Tryig not to identify problems like CPRS, Fibromyalgia Syndrome and CFS/ME by only insisting on dealing with one symptom at a time. Easy to discard previous symptoms and not make the connection .. except ..

I kept ASKING about these connections for FOURTEEN YEARS and as told several times it was NOT POSSIBLE ..

Though you have Fibromyalgia, CPRS, CFS, Paget Disease, Charcot Marie Tooth Disease and many others that do have a long list of complex symptoms that can be connected.

DOCUMENT ..
WITH LINKS AT BOTTOM

FIBROMYALGIA SYNDROME SYMPTOMS

AUTONOMIC NERVOUS SYSTEM/ENDOCRINE/IMMUNE/HORMONE

1. Abnormal sensitivity to hot or cold Allergies (nasal, other; new, increased or worsening)
2. Canker sores (frequent) Chills and/or shakes when hungry (may occur instead of feeling hungry)
3. Cold hands and feet Feeling hot or cold (1)
4. Often Flu-like symptoms, on-going or recurrent after initial gradual or acute onset; includes mild fever (99.5-101.5 F / 37.5-38.6 C), chills, extreme fatigue after minimal exertion Hair loss (alopecia) (2)
5. Herpes simplex or shingles rash
6. Increased susceptibility to infections
7. Low-grade fevers (3)
8. Low blood pressure (below 110/70) (4 – Postural Hypotension)
9. Low body temperature (below 97.5) (Don't Know)
10. Lymph nodes painful, swollen (in neck; under arms) (5)
11. Night sweats (not related to menopause or fever) (6)
12. Orthostatic Intolerance (neurally mediated hypotension) (Don't Know)
13. Reactive hypoglycaemia and insulin resistance
14. Thirst, increased (7)
15. Temperature irregularities; often feeling hot or cold irrespective of actual ambient temperature and body temperature; low body temperature (below 97.6 F / 36.4 C) (8)
16. Thyroid inflammation (acute thyroiditis; hypothyroidism; Hashimoto's thyroiditis) (Don't Know)

CARDIOPULMONARY/RESPIRATORY/CIRCULATORY

1. Cardiac abnormalities (mitral valve prolapse; myocarditis; tachycardia; palpitations; dysrhythmia) Cough Dyspnoea (out of breath) or shortness of breath (air hunger) after minimal or no exertion (9)
2. Heart attack
3. Heart palpitations (10)
4. Heart pounds so hard it shakes body, bed (11)
5. Pulse skips (12)
6. Serious rhythm disturbances of heart (13)
7. Sighing, frequent, not related to mental/emotional state (14)
8. Stroke Vasculitis

CENTRAL NERVOUS SYSTEM/NEUROLOGICAL/NEUROPATHIC/OTOLOGIC

1. Abnormal CAT, MRI and/or SPECT scans (I THINK SO!!)
2. Alcohol intolerance (15)
3. Aseptic meningitis "Brainfog"; inability to think clearly (16)
4. Difficulty moving tongue to speak (17 - Rarely)
5. Diminished or absent reflexes Fainting or blackouts; feeling like you might faint (18)
6. Headaches (frequent, severe, recurring)
7. Hearing fluctuations (sounds fade then return) (19)
8. Hearing changes, often from day to day (need to turn up, then down, volume of radio, TV) (20)
9. Joint or arthritic pain not relieved by NSAIDs (ie, ibuprofen) (21)
10. Libido (decreased) (22)
11. Light-headedness, feeling spaced-out (23)
12. Migraine headaches
13. Muscle twitching (24)
14. Noise intolerance (25)
15. Paralysis or severe weakness of limb (26 – Fibromyalgia Rubber Legs?)
16. Paraesthesia (numbness, tingling, crawling, itching sensations) in face, head, torso, extremities (27)
17. Photosensitivity (28)
18. Radiculitis (Don't Know)
19. Seizures; seizure-like episodes (29)
20. Sensory alterations (hyper- or hyposensitivity) - smell, taste, hearing (noise intolerance) (30)
21. Severe muscle weakness (31 - Rare)
22. Syncope (fainting) (32) [Not mentioned by anyone to be linked to my Fibro]
23. Tinnitus (ringing/noises in one or both ears) (33)
24. Touch or weight of clothing on or against body causes discomfort or pain (34)
25. Tremors, trembling (35)

COGNITIVE FUNCTION

1. Becoming lost in familiar locations when driving (36)
2. Difficulty with simple calculations (e.g., balancing checkbook) (37)
3. Difficulty expressing ideas in words (38)
4. Difficulty moving your mouth to speak
5. Difficulty making decisions (39)
6. Difficulty following directions while driving (40)
7. Difficulty remembering names of objects (41)
8. Difficulty remembering names of people (42)
9. Difficulty recognizing faces
10. Difficulty following simple written instructions
11. Difficulty following complicated written instructions
12. Difficulty following simple oral (spoken) instructions (43)
13. Difficulty following complicated oral (spoken) instructions (44)
14. Difficulty integrating information (putting ideas together to form a complete picture or concept) (45)
15. Difficulty putting tasks or things in proper sequence
16. Difficulty paying attention
17. Difficulty following a conversation when background noise is present (46)
18. Difficulty making and/or retrieving memories (long/short-term memory deficits) (47)
19. Difficulty understanding what you read
20. Easily distracted during a task (48 The Oh My God Symptom!)
21. Feeling too disoriented to drive (49)
22. Forgetting how to do routine things (50)
23. Forgetting the use of common objects (such as, what to do with the shampoo when you are standing in the shower)
24. Forgetting how to get to familiar places (51)
25. Impaired ability to concentrate (52 - Rarely)
26. Losing your train of thought in the middle of a sentence (53)
27. Losing track in the middle of a task (remembering what to do next) (54)
28. Poor judgement (55)
29. Switching left and right
30. Slowed and/or slurred speech
31. Stuttering; stammering
32. Transposition (reversal) of numbers, words and/or letters when you speak and/or speak
33. Word-finding difficulty (56)
34. Using the wrong word (57)

DIGESTIVE/HEPATIC

1. Bloating; intestinal gas (58)
2. Decreased appetite (59 from time to time and when stressed)
3. Digestive chemicals (acid, enzymes) reduced or absent
4. Oesophageal reflux; heartburn (60 Wrongly Diagnosed as Hiatus Hernia in late 80's)
5. Frequent constipation (61 Periodic)
6. Frequent diarrhoea (62 Food Dependent)
7. Food cravings (especially carbohydrates, sweets) (63)
8. Food/Substance intolerance (64)
9. IBS (65)
10. Liver function impaired; mild abnormalities
11. Increased appetite
12. Nausea Spleen tender or enlarged
13. Stomach ache, cramps (66 All my life and I am 49 nearly!)
14. Vomiting (67 Wrongly diagnosed as Oesophagitis)
15. Weight gain or loss (68 Both)

EQUILIBRIUM/PERCEPTION

1. Bite your cheeks or tongue frequently (69)
2. Bump into things frequently
3. Difficulty discriminating printed matter despite proper vision correction
4. Distances (difficulty judging when driving; when putting things down on surfaces)
5. Dizziness or vertigo (70)
6. Dropping things frequently (71)
7. Disequilibrium (balance problems) (72)
8. Impaired coordination Loss of balance when standing with eyes closed
9. Perception (not quite seeing what you are looking at) (73)
10. Some patterns (stripes, checks) cause dizziness (74)
11. Spatial disorientation
12. Staggering gait (clumsy walking)
13. Words on printed page appear to jump off page or disappear when staring at them

EYES/VISION

1. Acuity changes not related to prescription changes
2. Blind spots
3. Blurred vision
4. Conjunctivitis
5. Diminished visual acuity in absence of actual vision change
6. Drooping eyelid (75)
7. Double vision
8. Eye pain (76)
9. Flashes of light perceived peripherally
10. Optic neuritis or atrophy
11. Oscillopsia (image jiggles)
12. Prescription changes more frequently
13. Pressure sensation behind eyes
14. Red and/or tearing eyes
15. Retinal damage
16. Slowed accommodation (switching focus from far to near, near to far) (77)
17. Spots or floaters not related to migraines (78)
18. Swelling around eyes
19. Uveitis and/or iritis
20. Wandering or lazy eye

HEAD/NECK/MOUTH

1. Bell's palsy (facial paralysis, one or both sides)
2. Bruxism (grinding/clenching teeth) (79)
3. Canker sores
4. Dizziness when you turn your head or move (80)
5. Dry chronic cough
6. Dry eyes, nose and mouth (sicca syndrome)
7. Pain in ears, palate, gums
8. Periodontal disease (Possibly)
9. Prickling pain along skin of jaw
10. Problems swallowing, chewing (81)
11. Runny nose in absence of cold, allergies (82)
12. Sinus infections (83)
13. Sore spot on the top of your head
14. Temperomandibular Joint Syndrome (TMJ) (Yes if this is Jaw .. was under hospital for operation they then cancelled)
15. Unexplained toothaches (84)
16. Xerostoma (dry mouth) (85)

MUSCULOSKELETAL

1. Arthritic pain that migrates from joint to joint
2. Carpal tunnel syndrome (Was tested for this)
3. Frozen shoulder Intermittent joint swelling (86)
4. Joint aches (arthralgia) (87)
5. Joint pain, without redness or swelling (88)
6. Loss of tone "Lumpy, bumpy" long muscles
7. Morning stiffness (89)
8. Muscle aches (myalgia) (90)
9. Muscle pain, stiffness, weakness (91)
10. Pyriform muscle syndrome (Don't Know)
11. Reduced range of motion (92)
12. Stiff neck (93)
13. Writing causes pain in hand, arm shoulder (94)

PAIN SYMPTOMS

1. Abdominal pain *Chest pain* (95)
2. Generalized pain (96)
3. Joint Pain (97)
4. Pain that migrates from joint to joint
5. Pain/stiffness at C1-C2 (top two vertebrae) *** Shooting or stabbing pains **** (98 Tested for this 8 years ago and 12 years ago!! Lied to gain!)
6. Painful tender points (FMS: 11 out of 18 tender points) (Probably – Cannot recall)

PSYCHOLOGICAL SYMPTOMS/MOOD/EMOTIONS

1. Abrupt/Unpredictable mood swings (99)
2. Anxiety or fear for no obvious reason (100)
3. Appetite increase/decrease (101)
4. Decreased self-esteem (102)
5. Depression or depressed mood (103)
6. Feeling helpless and/or hopeless (104)
7. Feeling worthless (105 – Why I started blogging .. well one reason)
8. Frequent crying for no reason
9. Helpless/Hopeless feelings (106)
10. Inability to enjoy previously enjoyed activities (107)
11. Irritability; over-reaction (108)
12. New phobias/irrational fears (109)
13. Panic attacks (110)
14. Personality changes (labile, irritable, anxious, confused, forgetful) (111)
15. Phobias (irrational fears) (112)
16. Rage attacks; anger outbursts for little or no reason (113)
17. Suicidal thoughts or suicide attempts (114)

SENSITIVITIES

1. Acute or abnormal reactions to medications
2. Alteration in taste, smell, and/or hearing (115)
3. Chemicals (alcohol, medications; lower tolerance for) (116)
4. Food sensitivities (117)
5. Increased perception of and sensitivity to noise (118)
6. Light sensitivity (119)
7. Sensitivity to odours (able to detect and/or react in concentrations far lower than before and that healthy people cannot smell)
8. NOISE sensitivities (120)

SKIN/NAILS

1. Abnormal scarring
2. Acrodermatitis (Don't Know)
3. Chronica (Don't Know)
4. Atrophician (Don't Know)
5. Blotchy or mottled skin
6. Bruise easily
7. Bruises may take longer to appear, and/or longer to fade
8. Bull's-eye (Erythema migraines) on light skin (resembles a bruise on dark skin)
9. Dermographia (minor scratch pressure on skin leaves vivid red welts)
10. Dry, itchy skin (121)
11. Easily scar
12. Eczema or psoriasis (122)
13. Fragile nails (123)
14. Frequent skin irritations (124)
15. Lymphadenosis benigna cutis (Don't Know)
16. Nails that curve under or downward
17. Overgrowing connective tissue (ingrown hair, adhesions, thickened/split cuticles, cysts, fibroids)
18. Painful skin (abnormal/excessive pain when scratched or rubbed)
19. "Paper" skin (feels fragile, tissue-thin when rubbed)
20. Rashes on body, face
21. Vertical ridges or beads in nails (125)

SLEEP SYMPTOMS

1. Abnormal brain activity in stage 4 sleep (?)
2. Altered sleep/wake patterns (alert/energetic late at night, sleepy during day Difficulty falling asleep (126)
3. Difficulty staying asleep (frequent and/or prolonged awakenings)
4. Hypersomnia (excessive sleeping)
5. Myclonus (restless leg syndrome; occasional jerking of entire body) (127 No Mention of Restless Arms Syndrome)
6. Nightmares (frequent, extremely vivid and/or disturbing) (128)
7. Unrefreshing/Non-restorative sleep (129)

UROGENITAL/REPRODUCTIVE

1. Decreased libido (130)
2. Discharge from breast or galactorrhea
3. Endometriosis (Don't Know)
4. Frequent urination (131 At times)
5. Incontinence (132)
6. Impotence (133 – Rarely but hard to Judge as single 14 years)
7. Infant: premature; low birth weight; low muscle tone; failure to thrive
8. Interstitial cystitis (Don't Know)
9. Miscarriage or stillbirth
10. Painful intercourse
11. Painful urination or bladder (134)
12. Pelvic and/or rectal pain
13. Prostate pain
14. Swollen testicles
15. Other symptoms worsen before start of menstruation
16. Worsening of PMS (N/A)

OTHER

1. Abnormal or other changes in sweating (135)
2. Activity level reduced to less than 50% of pre-onset level (136)
3. Burning sensation (internal or external)
4. Changed voice (137)
5. Changes in sweat odour/body odour (138)
6. Delayed reaction to overactivity/exertion (onset 24-48 hours after exertion) (139)
7. Electromagnetic (EM) sensitivity (electrical storms, full moon, affect function of electrical devices)
8. Fatigue, prolonged, disabling, made worse by exertion or stress (140)
9. Fibrocystic breasts
10. "Galloping" cholesterol and triglycerides (141)
11. Hair loss (not related to age, hormones, diet, medication) (142)
12. Hands hurt excessively when put in cold water (143)
13. Handwriting changes, altering signature and/or other writing (144)
14. Hoarseness (145)
15. Painful, weak grasp that gives way/lets go (146 Reported to GP/DWP over Decade ago)
16. Periods of concentrated thinking causes physical and mental exhaustion, increases pain (147)
17. Sore throat (148)
18. Swelling/Idiopathic oedema (fluid retention syndrome) (Dad & Nan had)
19. Symptoms worsened by extremes of temperature (hot, cold), stress, and/or air travel (149)
20. Symptoms change focus from time to time, like infection is moving through the body
21. Thickened mucus secretions (nose, bowel, vaginal) (150)
22. Thickened "sleep" around eyes in mornings (151)
23. Very attractive to biting flies and mosquitoes (152)
24. Weight changes (usually gain) (153)

My Added Two Penneth ..

MISSING & POSSIBILES

1. Plantar fasciitis type pain but in reverse (154)
2. Achilles Tendinitis (155)
3. Metatarsalgia (156)
4. Arch Pain (157)
5. Costochondrytis or Chest Wall Pain (158 – Only occurred once and hope it effing stays that way?!)
6. Recent links to DYING YOUNG through .. (Not happened yet but did to Dad)
7. Increased Risk of Cancer and .. (Undetermined and previously tested via Head MRI)
8. Suicide

So there you have it ..

A possible 283 Symptoms provided I have them all listed?

They did not have them all listed and I know for a fact that Pplantar fasciitis is a symptoms, or can be, of Fibromyalgia Syndrome – Ginevra Liptan, Figuring Out Fibromyalgia you can find on Amazon, purple cover.

I have 153 of their possible 279 and in all honesty .. there are many I had to answer 'Don't Know' to!

Fibro Network Page ..

http://www.fibronetwork.org.au/fibromyalgia/symptoms/more-on-symptoms.html

Downloadable Symptom List in PDF Format ..

http://www.fibronetwork.org.au/images/downloads/The%20ridiculously%20long%20list%20of%20Fibro%20symptoms.pdf