I hope you enjoyed the title?
Now this is a run through of Fibromyalgia and all that I can remember thus far and all the pitfalls to watch out for if suffering with Fibromyalgia Syndrome.
It may turn out that large parts are helpful to others with disabilities too, if so then I am glad to be of help.
Well now let me see.
Wanted to do this
for awhile now and it will be several days before I finish this using
OfficeSuite Pro. I used to use QuickOffice until Google got a hold of
it and ruined it like they seen intent on doing everything else. Week
that is after they have concentrated on it to make it plush and
lively to get everyone hooked before moving into the next in the list
of world domination, lol.
As many of you now
know I am well aware that I suffer with Fibromyalgia but that I have
had this a very long time now. A very
long
time indeed.
In
what seems like an eternity I spent many a month which soon became a
year trying to understand and link together the various things that
seemed to be going on with me. I never understood quite how so many
things could occur with one person she scientifically it seemed
impossible, let alone improbable.
I
pleaded with a while string of Doctors in that time in a long list of
surgeries and hospitals but to no avail. After awhile I thought I
must have something ... exotic, rare and maybe even unique? I figured
that there must be medical scientists that like myself in my own
fields of science strive for the puzzles contained within, looked for
the out of the ordinary either it out our desire to discover and even
just after making a band for themselves in a medical journal
somewhere. When the series called House M.D. came along starring Hugh
Laurie I found myself watching a character that would be similar to
myself has I decided to study medicine.
Those
that know me and this that have known me long enough know that I am
interested in many, many fields. Many of these are sciences and are
themselves an unusual skill set to have with Herpetology,
Ichthyology, Batrachology and Astronomy/Astrophysics being but more.
A diverse set of sciences in their own and then you add my BSc Single
Honours Degree of Applied Computing and though I got screwed over by
Middlesex University my grades were a damn good Upper Second and a
rare Distinction for my Thesis, which I included the Animal Kingdom
in and still have to code today.
I
strived to understand many of the unexplained puzzles in each subject
and find answers to singer while still looking for answers to others
to this day. Obstacles of life and all that jazz.
The
symptoms I was afflicted with were many from mildly annoying through
to severely disruptive right up to passing out from to painful. As I
said I could not understand how one could be afflicted by so many so
silent many years trying to work out if they could be placed into
groups to get the number of ailments down from being utterly
ridiculous to something bordering believable and I mean to me. To
others was a whole different story.
Now
one difficulty I was warned about was that friends and family would
not understand and that I would get a hard tune if it. However Dr
Tahir failed to mentioned what writing happen if the condition was to
stubbornly remain and be accompanied by ever more being his predicted
couple of years. I spent years and years being dictated to by people
on how it was who had also spent years not wanting to listen or
understand it, just as that Rheumatologist did those many moons ago.
I
have no doubt now that there are a huge number of people that will
read this, if what a caller had told me is correct, that will know
exactly what
I mean and can totally relate. In my own world I had people scorning
me for thinking I could argue with Doctors, showing a complete lack
of understanding of what a degree actually is, despite the fact no
one could give me a definitive diagnosis. It was my body and if I say
they are wrong then I am sorry they are wrong. But through a selfish
desire to bit want to hear about my conditions which they only got
because they did not listen in the first place priced to me by making
statements if me doing things I simply was not capable of doing then
they would bit have had to. So an injustice, for want if a better
term, was being performed against me when really it was there narrow
sighted attitudes and selfishly not wanting to deal or accept it
because it was not happening to them and I was getting the because
they did not want to hear it.
Now
many people could list dozens of excuses as to why this is but I
would simply counter with saying 'well if you did not want to hear it
from me why did you bit go and read about it?' but had our of this
statement ever got uttered to anyone I would then only hear a set if
Kane excuses about their own lives despite lacks of any health
conditions. Then I would interject and then state 'well hold on a
minute, I am now hearing about all your issues being thrown at me as
an excuse for your complete lack of willingness to understand someone
that dues have q genuine reason for their actions, or indeed lack
thereof'.
People
truly are strange and even those closer to gone than you might think.
But no matter. It never change the facts and you cannot verbs or
sheer the facts to fit your own failings. Because failings are
exacting what they are and that is failings and if anyone dues not
like them then they need to do something about them and not project
suit life issues onto others in the hour it's accrued as an excuse
for what is an essence someone who simply cannot be bothered unless
it is all about them.
So
there came a time when the ailments piled up and were either way down
the list of priorities on the health to-do list our kept secret
because they simply could not handle what they had airway been
provided. There were times when this simply could not be avoided and
one tine was when my right over just went one day with a ... sound I
cannot recall, could have been a pop, might have been a click? But it
was in front of several petiole I knew and I could not out weight
down on my right leg. The last time I could not out a for on the
floor I had just been struck by a car and careered yo the bonnet then
the windscreen and if the side of the car, or so I was told because
between the point of impact on my left side until secrecy minutes
later when I was washing up lying on the tarmac I do not remember
anything. Bystanders explained what had happened, stool do not know
where that car cane from to this day! I was fourteen.
It
was after this the first few things started to pop up and being young
and naive it never occurred to be that these new annoying pains had
anything to do with that accident.
Fast
forward fifteen years and several more knock and whiplashes later and
suddenly I had a growing list of things.
Now
the fact I started asking then moved on to pleading before then
begging it is well documented of late on here just how that went, for
the thirteen years of asking and arguing that these were all
connected, but what I wanted to do in this post is add things as and
when I remembered them off things I linked together.
Now
there were many times that I managed to link activities and even toes
of food consumed to the appearance of symptoms. These often were
mentioned to Doctors who latched onto my findings with both hands,
body language tells you a great deal if you take the time to
understand it. The best example of this was being told no one knows
what aggravated Restless Leg Syndrome and I informed then this was
not true, it was caffeine.
In
recent years every Doctor I met seems to know this and lives telling
me and clueless to the fact that I discovered this. YAWN!! Lol!
If
you search through the thousands of posts you will also note that
without raiding it to begin with cycling was aggravating the knee
condition and this was mentioned secretary times to health
professionals with blank looks. It escaped my notice fur a fair while
because the cycling aggravated the condition but this condition only
surfaced a day it two later when I was walking because my one has to
be fully locked to fell the pain, something that simply dues not
occur while cycling! Duh!
Another
one that airings to mind if petiole being completely unable to take
in a single sentence, which in all honesty is not only rude but
completely insulting to the person trying to explain things, when
they then say ..."Well if your feet
hurt
how cones you can cycle? " to which they would then get
offended, despite being rude and offensive themselves, when I then
say "How many fecking times do I have to tell you?! The pain is
in the heel which you do not use to cycle, hence why Plantar
fasciitis sufferers take to cycling!"
After
you have answered this question several times to the exact same
people you internally shake your head in utter frustration and rip
their heads off and then your the villain.m All because they could
not remember the simple fact that the PF condition affects the heels
and somehow they have thrown his they ride bikes as kids.
The
reality is and many people will know this is that the twisted
question transgendered into something rise when your brain processes
it to "Your a fecking liar, that's why I keep adding you to
catch you out. I have to SFU this because I have been a cocky big
headed twat, despite us all accusing you of this, by claiming to to
many people that you have nothing wrong with you and my who won't let
me be wrong! I don't want to look like a twat fur opening my big gob
so I am going to just keep insisting that you are instead!"
Well
maybe that's just me?! Lol!
There
in essence is both the psychology and the mentality of those around
you ... if your unlucky! In the end you get so distraught that the
help and support from those that should give it that when the
Fibromyalgia affects your anxiety and depression which is bought on
by mental stress and anguish added to the pain, the lack of support
because of overblown egos can cause a breakdown. Then the naysayers
decide then that your mad too, lol.
I
know this only to well as I have lived it over and over for over a
decade and the one individual that should know this and completely
understand and offer you help if your Doctor. But you all know what
happened with that idea. So when you suspect that Doctors and the NHS
already know your condition but have left you in a limbo that makes
hell look like Paradise and you state this they know too well if the
frustrations that would addict people in these given situations and
the levels they would get.
So
I was accused of violence and I was accused of madness which could be
easily applied to the conditions of anxiety combined with
frustrations along with depression combined with a breakdown.
If
you know what a patient has and he becomes a problem when he or she
realises that they have been refused helpvso that we can line our
pockets we anyway have the labels ready to also ask over him. Plus we
are Doctors, who will actually be brave enough to doubt us?
Now
your getting the idea as to how Jimmy Savile fit away with things for
so long? He had not the capabilities to hide himself, but Doctors did
and do.
I
moved to Enfield in 2007 and before I moved here I suspected bullshit
was going on everywhere in the NHS. Indeed I saw it and heard it
many, many times at the First Road Medical Centre. I just did not
want to believe it was true. It was unthinkable and ridiculous but I
had to not only face the possibility I was bang on the money I
realised that I was the only one that could do anything about it. I
longer to hear on the need that they had found something out and with
each year that passed by become suspicious of the new media too.
I
had hoped upon moving to Enfield in a whole new Primary Care Trust
that maybe this time the shenanigans would not occur, but knowing
looks from my first to women GPs and I Peru much knew that no matter
where I went the song remained the same.
So
I had spent years completely ignoring what Doctors told me and trying
to piece the puzzle together myself. I thought that maybe if I could
I could then expose the NHS fur being the incompetent/lying twats
that they are? At times it seems impossible especially with my ever
decreasing ability to recall shirt term memory I would Dutch the idea
through frustration fur months better resisting it again. It became
apparent that to help with the memory recall and to help catch the
NHS red handed a series or records would need to be kept, I would
often forget what was told to me in meeting and appointments and in
the beginning I used a little black book, yes that little black book,
and then recordings as I acquired a smartphone to be able to achieve
this. Unfortunately some of the overpriced crap now being sold to
naive members if the public that walked to work repeating 'I so want
an iPhone, I have to have an iPhone, I cannot wait to show of my
fashionable iPhone' in their heads getting a device that was capable
if doing so may thugs they would never use it for the manufacturers
that parted you with the overblown handset price had anyway decided
that you were not to use certain smart aspects of the decide and
switched then off. A tech issue that so many famous tech sites and so
called tech experts took either fecking ages to take up our failed to
raise they were doing this at all.
So
the phone needed to be rooted to ashore the blocked abilities to be
available, iPhone junkies will know this asv jailbreaking as well
Sony PLAY STATION owners. Odd because it is not illegal, but then
finding out and then dropping the device you have them the best part
of av grand for is illegal, but no one dues anything about this
either.
So
I was on my own. I had to bit only keep a list of ailments, so long
it would later shock me, secret bit I also had to work in secret to
begin with. When I later had everything I needed what do you think
started happening?
The
naysayers who could not even bother to read a web page on my blog
would then say 'Well WHY either they do that?!' to which internally I
would think 'Of for feck sake!! Are you only ever going to believe it
when it's toy that's just been rodgered from behind?! It's on the
fecking blog and so she the fecking recordings!!' but I would utter
'Well why would you expect me to know that? The recording is on the
blog ... It's 'X' amount of minutes long, go and listen, that's what
it's there for.' in a calm way when internally I was thinking ' feck
me, if everyone is like you this country is fucked and if you cannot
understand why people are emigrating your going to get fucked too and
I am going to Australia to live!!' Or whatever country I was thinking
about at the time. Hong Kong even got on the list at times.
Yes
I was very alone on this one but then I always worked better alone
because the saying 'their is no 'I' in Team' exists because most are
self obsessed and crap at working in a team. I am but finding the
right prior would be too hard. Even groups campaigning to want to
change things fur the better were no different, it became obvious
that egos were a big problem! The message I received was 'well if I
can't do it you definitively
can't!'
One
man broke this mould who became a friend when he said to me 'do you
know I thought how can one man do this when groups of many people
have failed? Bite I have seen and read along with heard seventeen of
your posts and recordings I thought 'hell, bit only will this guy do
it he will do it alone!''
I
never forgot that Mike! I will be forever grateful for those immortal
words!
Now
fur my time understanding my condition that one I realised was
Fibromyalgia it became an it easier to link things together, fill in
the gaps and figure out where I went wrong. Unfortunate this had not
helped me see yet because you still need the support.
This
means a Doctor who thinks about mitre than themselves for one.
Taking
away the quite unnecessary and write unfair stresses that are
not of
our making and caused by bad governing of government both nationally
with the cabinet and house of commons, no balls to put a stop to
things or powerful people/celebrities, or local government, where
greedy and lazy councillors think that their public owes them a
luxurious living for sitting on their arises composing that they
cannot get a Gabe to work on their PC so drag a man they have put in
charge of the departments because their two self obsessed on greedy
across the building to sort it out and pulling him away from
something important!
Hmm
did you think that was pretty descriptive? Well that is because it is
true and happened at Barking and Redbridge Council, hmm it let me
see, I was told the sorry in 1997 and the friend of mine left to run
the IT Detainment at Barking College having had enough of council
corruption.
If
your reading this Bill, yeah some things I do retain fur a very long
time, lol. Always remembered that story and I went on to hear a lot
more. Workers within the Department of Work and Pensions would have
one person covering six counters telling the ever more frustrated
public they were inundated and under-staffed while an old mate of mine
was waking by a group of them standing around our of site for an hour
taking about where they were going the following Friday for their
drinks do!!
That
one cause a prolonged pause of confusion on my face before bursting
into laughter!
I
date day there are a lot more stories like that numbering in the
hundreds if not the thousands? To think these are the petiole that
look down their noses at you and even disk down to you for not having
a job? Yeah it's hard to get someone to pay you a decent salary fur
standing on the wrong side of that COUNTER?! LMFAO!
So
stress in Fibromyalgia is a major issue for aggravating a number of
symptoms while lack of support is responsible for causing a number of
others.
In
effect many symptoms of many conditions are actually being
deliberately aggravated by this we turn to in times of need.
Ah
now then! I beer you were wondering why I was exposing all that? This
is titled Fibromyalgia Syndrome 202 after all?! Well it is shot the
aggravating of the symptoms and I have covered several ...
Caffeine
NHS
LOCAL COUNCILS
LOL
But this is
probably do they can then lake you as a nutter add padded cells are
cheesier then private rents, and so is the food!! Lol!
Things
become easier to deal with once you are aware of the obstacles you
face and that is the Simone and humble beginnings of any stressful
situation or condition and I did state I would help in these respects
... and so I have!
Though
I am not finished yet!
The
next thing to get your head around is your daily routine! I cannot
emphasise this enough but what I can do is explain why.
Over
doing things is the
name of the game. The trouble is their are absolutely no signs to
show you that your are.
At
the exact same time if you have issues with getting to sleep then
this is a double nightmare!
The
day after no sleep at all is absolutely a living hell in itself!
So
you have to be controlled and if you have decent understanding and
support this will make things so much easier. Pace yourself and if
you have the time keep distances in mind and get a bike! Absolutely
get a bike!! Do it now! Lol.
Now
here is one other major, major thing and they is dehydration, do not
allow it to happen you will suffer. At the exact same time avoid
caffeine and it's in about every study beverage known to man, out
Englishmen, because they are mostly American and we are back on the
subject of black holes were gonads once resided and governing the
country!! Coke, Lucozade and energy drinks ate out ... especially
after around 3pm and make sure you do drink after this time but no
caffeine ... AT ALL!
If
you like your coffee or teas I am sorry but so did I! Go caffeine
free. Have both ties of tea or coffee fur mornings and afternoons. I
would be surprised if you do not notice a huge difference after two
of the days of being strict about this?!
The
other thing is food. This like many others but more so, is easier
said than done. I do not always manage it admittedly but avoid bashed
type foods especially sugary ones. Limit yourself to begin with,
don't think you have to go while hog. Baby steps is best and befit
long you will notice it gets easier to change things about. This way
you king find things to exchange BSD things fur that you find
acceptable and enjoy.
Again
this is easier if you have help. If you live alone you need to get
organised. The thing to remember is out things you use regularly in
areas between your hips and Luis when standing straight. I know we do
not like bending or crouching if we have enough if the Fibro issues!
Of you leave things and they puke up you will then become more
adverse to doing them until they drive you mad.
Memory!
Hmm well I leave things right by the street door and still manage to
forget them and the only way around this is to become more organised.
This will go out the window if you get sleep issues and don't for a
night. Nothing around that problem that I have discovered orifice of
the primary drug for Fibromyalgia that no one had heard of ...
Sodium
oxybate. This is the only drug I am currently aware of that deals
with the very core issue of Fibromyalgia. No not the Pregabalin I was
rather incompetently touched it if receiving, that's only a second
rate drug fire Fibromyalgia. Sodium oxybate puts you into the deep
sleep the rids you of the symptoms but it's weird in that you have to
wake up several hits into your sleep and take a second pill to keep
you in the refreshing sleep mode, no and
not REM SLEEP. Beyond
REM sleep is a deep sleep where your brain does is own household
chores, it did not do it's chores and when sedge we have trouble
going out own. Toxins, memory cells, muscles and everywhere in the
body guess through a process of being cleared out. Possibly of the
substances that causes a misfiring of Substance P that convinces or
brain of pains in our bodies that are actually not there?
Yup
if you have not rescued that millstone yet the pains ate not there,
but they are. Because the end result is the same due to that
misfiring substance P. There is no difference in our brains
perception in which the limb, hand, foot, knee, shoulder, back dues
indeed hurt like hell. The only difference between Fibro pain and
normal pain is the sign off inflammation easily detected by a drop in
the red blood cell count.
A
blood test is performed whereby they count these red clod cells and
in the event that inflammation, pain/damage, exists the body produces
more of other substances, like white blood cells for one, to desk
with the inflammation in which case red blood cells drop in number.
With Fibromyalgia the red blood cell numbers are normal.
Also
of bite odd that Charcot Marie Tooth Disease can have done similar
symptoms and Lupus was also mentioned in the same possible diagnosis
as Fibromyalgia to one women I spoke to recently?!
Note
that is all I can add for now but hopefully remember more and add
them before I post this up, it is the 26th June 2014 and let us see
how long this takes?
I
have wondered whether much of the condition is to do with during of
this Substance P because of a memory of a condition or pain you have
suffered in the past, this would fully explain just how you can have
so many symptoms and his they are diverse.
But
then I say Substance P but not all symptoms of Fibromyalgia are
painful ones, ate they now.
Now
I am going to list the symptoms I hate the most and ensuring these
had made me Curtis over the years. Finding out I have been ensuring
these because of fecking money has made me hunger and baying for the
blood of the guilty. Pathetic squeaks about how we have only just met
and that I am expected to go through the lengthy process from the
start and the refused will just want me to skin you alive and hand
you from the nearest tent pole and not Kerensky note sympathising
with that only serves to make you, the Doctor, look like the chump
that you are and not worthy if the title of Doctor. Bit when your
periods of your time being far more important than the inordinate
amount of time your patient had waited and expected to wait yet
again.
I
would start looking for a new career as soon as you can and it is not
often I give warnings as a year from now you will not be able to
practise medicine again.
Note
their are a myriad of symptoms and some might not be painful but of
these done can be annoying and quite distracting. Preventing someone
who has difficulty falling asleep from ... Taking asleep.
In
no particularly order are ...
Feeling
nauseous for hours and sometimes days on end
The
pain in the heels
The
sudden lifting like pain in my arches
The
aching in my knees
The
sudden pain in my right knee that can cause me to collapse and/or
unable to walk.
Vomiting
without warning (the feeling nauseous and waste of food you may have
spent a lot on and the extreme embarrassment in a very public place!)
Insomnia
(no sleep causes extreme nausea and often headaches all next day)
Restless
Legs Syndrome (As can prevent me from sleeping, causing nausea all
day)
Sudden
intense heartburn (reportedly unable to differentiate from a heart
attack, oops this might not be Fibromyalgia but I should not have had
this for twenty years!!)
As
well as these symptoms being the worst of the Fibromyalgia to deal
with and that last one which may not be down to Fibromyalgia and
instead my Hiatus Hernia and Oesophagitis there are a couple of
others ...
Aching
in my right groin from Inguinal Hernia Repair that now had black lump
that showed on an ultrasound scan they later lied and stated did not
exist!
New
Inguinal Hernia also appeared on ultrasound and like black lump was
also lied about is the only bloody thing I have that causes no bloody
symptoms whatsoever!! However I emphasised on them lying about the
ultrasound test result because, and I am not sure if it is the same
for women, this Hernia can kill you!
I
have airway had one, hence the repair. But the only fecking thing the
NHS ever touched and they made it painful and a constant problem
where the symptoms you get from this hernia are a sight popping
feeling and a noticeable ... lump!! Lol!
So
they spent twenty years telling me I have nothing wrong,
Fibromyalgia.
That
I have a Hiatus Hernia but refuses surgery fur twenty years.
Took
something I did not know I had and turned that into a big issue for
pain too!
Refused
me the correct drugs for all of the above which include ...
Sodium
oxybate, I never held out much how for Pregabalin but knew they would
lure and chest to me about it.
Pregabalin,
well it could have worked.
Cannabis,
oh did I not mention? This is a listed drug that helps with
Fibromyalgia and if you research my archives this is fully documented
by me long before I even had a sniff about Fibromyalgia. It is listed
as a bonafide drug for Fibromyalgia so I have been refused all three!
I don't care add to the reasons now anyone opinion on Cannabis add a
drug or the false claims to it's effects on the mind, it's utter
rubbish and raising yourself over and over will not change it!
It
can, however, bring to the surface issues that were already there,
just as alcohol can do but this kills your kidneys and you just as it
did Old Ken.
Harping
on about things that are against the facts or reality is nothing
more them a selfish desire to curve you wants and wished into
others! So part of the amoral crowd no matter how much you hide it!
Trying to make an argument for your opinion when it's wrong in an
attempt to make you sound smart and correct only had the opposite
effect. Unless the person tour taking to is a blithering idiot!
I
hate hearing people say "No! It's like that because of this?"
Oh you have worked out all the factors have you? Performed all the
calculations have you? Worked out distance, speed, volume,
quantities, rate of decay and anything else that maybe necessary have
you? Or is it that you just fecking feel or think your right and love
to project into others?
I
have merry so many people that absolutely have to argue the toss that
they are right when they are not even in the same sea as the
continent they are aiming at! They do not even have inflatable
armbands and are dining like stones.
At
these times I have to say nothing and make out that perhaps I am
wrong, yes me with all that I have done, all that I can do and with
so that is on here I have to play dumb just so as to not argue.
Because it's pointless they're not listening and sometimes do not
want to at all and there is no point in trying either.
So
I let them think they are right when I know they are wrong.
Now
remember that with some people they have complained that I am the one
that knows it all and thinks he is right? What you have to remember
is that this is an opinion given based on my data on my life, my
health and what I have had to endure because blood sucking (Android
don't like 'sucking' lol) tossers in British public services think
they are due huge salaries while doing next to nothing and lying as
well as preying on the public for it?
Whenever
I get into a disagreement with someone this is ineradicably what it's
about our it is something to do with something I have covered on this
blog.
They
do not give the benefit of the doubt at all and added to this ...
...
they fail to appreciate that on the occasions when I do get ratty
about it this is because I can best shrine in an argument but that
this is made difficult by the last symptom I have yet to place on the
list which itself, as any Fibromyalgia sufferer will tell you, is
fecking frustrating all in its own.
Short
Term Memory Problems or FIBROFOG!!
The
funny thing is, ladies and gentleman, is that I am expecting to be
called inconsiderate and uncaring and selfish by a number different
and small groups over the next month or two. Many of these I have
gone back to being silent with and have not been told about that
recent information I posted on here.
Added
to this those that would love to hear themselves stating that I am
not a Doctor, despite how many times I have proved them wrong (36 at
latest count) tricked them, leaf them into traps and laid them out on
a slab on here for all to see, week they suddenly become Doctors
because after the initial shock of my diagnosis they have retreated
back into doubting Thomas' and some even think that Fibromyalgia is
nothing based on what they can see. Like I have stated so many times
on here I do not know why I have bothered to do all this because I
have experts ask around me that like to complain about me?!
LMFAO!
What
the idiots fail to realise, ladies and gentlemen, is that this is
exactly the blind stupidity and the attitude that the rich, powerful
and government want you to have.
That
old saying 'seeds of doubt' must have been wiped from the
consciousness of mortal men and women with a ray gun whose previous
owner is none other than Stan Smith of the CIA?!
LMFAO!
So
there you have it. A report on both the fundamentals asking with the
advanced topics of Fibromyalgia Syndrome and Chronic Fatigue Syndrome
along with Hiatus Hernia and the effects of Plantar fasciitis
symptoms on all this with the PF alone being a huge problem in itself
that no one, not family or friends will understand at all and think
they know it all when you do.
Dr
Tahir, Whipps Cross Hospital circa 2002-3.
Now
to finish up here a little explanation about remarks I have made in
the past.
I
have stated a fair few times throughout this blog, half a dozen to
dozens I just do not remember, that I have often felt like I am
searching for something?
I
cannot really out into words that even I understand as to what this
is. Sometimes I think it is a support group that meets up once a
week? Sometimes I chuckle to myself and think maybe it is a hippy
commune? Sometimes I think it's Greenpeace or some Eco-Warrior group?
Sometimes I think and long that it is done unknown group of like
minded scientists that can relate to me as I could them.
Now
with all that I have stated here maybe finally this can be
understood? In recent times I had several friends. Out of these only
one understood me and in my family only three understood me. Every
single one of these people passed away.
Of
the friends I currently have there is one single subject of mine that
I have in common with all of them. Someone I sorry of know locally
had something about his person today that made me think he was into
something I was that was nothing to do with animals. Unfortunately I
never got to ask him. Long story.
Oddly this is a man who himself had
seen the corruption and asking with being a victim of it himself
witnessed a young man of only seventeen who worked where he did who
to his own life because of the company he worked for! He himself had
also had a court battle over his own job and health and he won.
But
of curse your supposed to work yourself to death for wages that are
not enough to pay the exorbitant prices for things that ate actually
refurbished, used and faulty crap anyway?!
Surely
and do I pray to a being of a higher order or what, well there must
be one somewhere he just knows nothing of our existence, I cannot be
the only person that sees all this?
In
fact as well as being told I won't win, tonight, even after the half
million followers announcement?! Duh! I was also ... damn and darn
it!!! I fecking forgot what I was going to type next?!?!
I
will say that a statement was also made that I should not get help
because I am able to work! Reasoning? Because I worked on this blog
and it's my fault I do bit earn money because I exuded not to?! They,
DWP, would say that I could get a job working from home, yes because
there are so many on offer, and that because I get about on a bike I
can work.
What
the chap in question failed to realise was that by saying they cab
use the excuse that you can work from home this would then show them
to completely so away with helping anyone with a disability at all!
Except in very few cases that is!
The
best part about it were two issues one which will be obvious to
disabled people reading this in that Disability Living Allowance is
not means tested while the other is even better than that ... he
receives Disability living Allowance and I personally think he had
far, far less reason to receive it than I do?!
Also
he missed one vital piece of data in all this and this is well
documented on here by me and goes right the way back to the beginning
and this is the part that this that get shirty and forceful about
their opinion seem to forget, it is not only on the fecking blog but
what is on the blog is that I never, EVER expected to actually get
either Disability Living Allowance or Personal Independent Payments
and fully existed to start making my own money long before I even had
a decision.
Because
I knew that they would completely drag their ferry easy over the time
they are supposed to decide by a factor of four, which the
Independent Case Examiner Ombudsman to the DWP, independent but oddly
located with the DWP building somewhere, do not think I'd an issue at
all. I would like to know what the feck they think is
an
issue.
Oh
I just remembered what was said to me tonight, I won't win because
there would have been others that tried and did the same thing as me!
LMFAO!
Sometimes
my brain goes into freeze frame and just goes 'Whaaaat?!' So no one
will ever win because there will sideways be someone somewhere that
tried it before them?!
Jesus
bloody Christ! I am never speaking to anyone locally about this bog
ever again! Lol! When I got frustrated by this line if talk I got
told 'oh your problem is you don't like anyone disagreeing with you
or trekking you how it is?'
No
I don't like people making arguments based on idiotic statements, I
have no issues having intelligent arguments in all honesty but when
someone is giving out lines like that and then when trying to dish
back you get 'No, no, no!' That is not a discussion and is not even
an argument!
Oh
and before you ask, umm or just wonder ... no none of then read the
blog, lmao!
Lol!
Simply unbelievable the number of glass houses out there it truly is,
arguing about things they know nothing about regarding conditions
they have not a clue about and over whether money shuttle be received
that they get anyway and I had to be told there were things wrong!
I
would not even know the best way to describe this but hypocrisy based
on stupidity dies bit really do it justice!
One
really is the loneliest number that there ever was.
Now
tonight and earlier today I was removed of something else that I have
not covered this fat and desire done being mentioned before while
others are not thus one belongs in the latter group.
Think
of it like Repetitive Strain Injury or I sometimes add a Turbo to
front of that and this may be different things that being it on, even
if Fibromyalgia causes both.
Now
this is like RSI in that anything from a limb to a digit seems to
hate doing something to often.
I
also get something to do with very little feelings of irritation to
do with the slightest feelings, which feel amplified to the point of
irritation. To get a basic idea think of the childhood fable about
the lady who sleeps atop a dozen mattresses but still feels the
presence of a single pea placed under the bottom most mattress.
1)
Turbo Repetitive Strain Injury,
2)
Irritable Amplified Tactility Syndrome (my naming lol) and
3)
Restless Arms Syndrome (affliction when Restless Legs is bad enough,
err normally?!)
One
last thing is this ... not irritation as such but less so an annoying
feeling along the lines of an itch similar to that of Restless Legs
Syndrome. I currency have it in my forearms and hands and I used the
stylus to my Tablet PC to presses into my hands between my forefinger
and my thumb very hard out of frustrating and the to hit a spot that
seemed to relieve the feeling momentarily.
The
same is achieved when done with my forearms.
Of
course this, or the latter part of that explanation, could be down to
the a Restless Arms version of the Restless Legs Syndrome but for two
things ...
I
only ever get Restless Arms along with Restless Legs Syndrome and
added to this I have not had anything in the way of caffeine since
around midday today and it is 1am now as I tie this out.
THE
EXPLANATION TO THE NARROW MINDED AND PRICE TO SUDDEN DEAFNESS
Take
it from me, do not argue with someone with Fibromyalgia as it will
not go down well and I assure you that you do bit fully understand it
nor appreciate it. To think I was warned about this attitude with
others regarding just one symptom but that there are over one hundred
should just go to show unless your utterly stupid, completely self
obsessed and selfish or just enjoy an argument or winding people up.
You
certainly should not argue unless you have read at least two books
and spoken to charities and associations for the condition! Well they
have to be good fit something other than making money out if the
conditions?! Lol!
I
am in total sympathy for anyone who had Fibromyalgia and especially
if it causes Plantar
fasciitis (like add bit the same at all) symptoms.
Because PF is a pain in the arse all on its bloody own key me tell
you! Combine that symptom with several others and I am feeling your
pain daily!
If
you also are surrounded by people that do not read, listen, listen to
half of what you have said but will still argue their point on the
subject that involves you they have not bothered to read about then
you are not alone. I know this frustration too, only too well!
Then
there is the boredom. Sometimes I get racing heartbeats along with
anxiety too which I know is to do with Fibromyalgia too. This is
where the fight or flight issues come in to it to, though I am
thankful when nothing and no one phases me at all! Really I am and
wish it was stubborn and remained constantly.
I
guess it is where my heroic type outlook and charging into evil
people and organisations without so much as a bye or leave owes its
existence to Fibromyalgia?
In
all honesty I have been staggered at the attitudes of people that do
not suffer with afflictions, even though some of then received money
that they claim others are not deserving of while being fully fit
themselves and doing very physical jobs.
I
have no idea why such attitudes exist but I do have two theories for
it.
One
is that they are themselves feeling guilty that they receive what
you, or I, should be receiving. A prime example of why the welfare
state had needed an overhaul fit a long time. Far too much hypocrisy,
thigh their staff are risky in denial over what is so bloody obvious,
and far too many different benefits, rules, procedures, protocols,
forms, hoops, obstacles and anything else you can think of.
The
other possibility is that they have become so brainwashed that they
actually just trust things the government or the very bad public
services wasn't then to believe, thereby doing the job fur them. When
you get this with front line staff we call them jobsworths. Someone
somewhere will have to come up with an equally funny title for there
naive morons. Wantajobsworths?! Lol!
This
is of particular annoyance to me because these naive British people
are not sticking together as one and still at each other throats over
egos based on false beliefs. False beliefs is what they are and in a
case very recently where I was told I just do not like being told,
though his argument was based on things not even relevant to his
argument, despite being about and angry with this it is I
that
then had to calm things down and change the subject because the only
way of winning the argument is to point out just what a dunce he is!
Thus was not my fault but his that he out himself in this position by
insisting and being adamant on views based on facts that were not
relevant.
The
funny thing is that he was very eager to become pals and I was
extremely cautious about this and what I told another friend about
this was that it has the hallmarks or Mario Mark II! It is turning
out to be exactly that and heading down a similar path.
Oddly
the guy receives Disability Living Allowance but stated I should bit
get it and that the Job Centre or DWP can say that I have been
working on this blog all this time. This was how he became stern with
me about it and I was angry with his ridiculous argument.
Let
us first the fact that I have not earned money for it and leave aside
the fact that I have no idea how many hours a week that I have worked
on it. I type fairly fast and mostly in the evening while in bed...
Yes
let us forget about those things and state that he made a remark abut
being fit enough to be able to do a job because I cycled. Except I
have explained cycling and Fibromyalgia several times to him. Let us
forget that too!
The
one sole reason I would not have to explain to anyone intelligent
because they would have already spotted this but Disability Living
Allowance is not means tested! Ergo you receive it for support even
if you do work and earn money. Of course you should not get it if you
earn over a certain amount. My old employer did not claim it despite
needing not one but TWO walking sticks to get about after being
stabbed in the base of the neck. Neither did he claim carers money,
for me.
Also
the man arguing has nothing notably wing with him and I was told he
has a ... personality issue no one can give him the name of desire
asking for years. He has limited sight in one eye which I was not
aware of. He drives and works which involves climbing ladders.
He
gets DLA, thigh admittedly he says this is for a string of things.
However
he had no interests whatsoever outside of animals and dies not like
anything on TV at all, no science fiction, no comic book stuff,
horrors, gangsters or anything and thinks this is normal.
Not
interested in science, astronomy, computers, computer games,
football, angling, martial arts nor anything else. Not just nine of
the things I am into outside of animals but none at all.
Now
the fact that he had bit been told what his problem is I find a
catastrophic failure of the NHS, or just another example of them
trying to save money on possibly drugs.
When
I realised this lack on interest I mentioned it to a mutual friend
who himself has no idea and he found it completely bizarre too!
However, and as I have found out several times, he gets enjoyment out
if bring confrontational over certain subjects?! Despite having no
interests which seriously limits his ability to learn.
In
fact in this instance I an state that I am the exact opposite in
having way too many subjects I am into and have been into for a long
time. When it comes to arguing about the rules, regulations and being
fair in Britain we are polar opposites in every way you can imagine!
Every way. I told a friend that suddenly I did not know what to talk
to him about! I cannot go around just talking about animals all the
time I would get bored. I have takes about animals since I was about
4 years of age and took up 90% of my life for a twenty year period! I
dearly love animals but the periods for discovery of the new and
different subsided a long time ago for varies reasons any long term
expert would tell you. Yes I am currently planning to change this
with the help of blogs but right now it is a little way off still.
Not long but a few months off.
So
my primary subject right now is right here and right now, but it is
obvious I cannot talk to him about this.
In
essence this is yet another black hole for sufferers of Fibromyalgia
because along with the list of symptoms we can acquire we get the
dressed Fibrofog. In the case of the above and someone is arguing
with you and you know damn well that you are correct but your
struggling to recall the important bits which only gets worse with
the stressfulness or arguing. Made worse when the reasons thrown at
you are not even bloody relevant! From someone that is receiving what
you should be getting. Support.
Now
I have often for into conversations with people who mention a symptom
they have with their illness or affliction and I will say 'oh I get
that'. In recent months I have responded by saying 'oh I get that,
are you sure you have not got Fibromyalgia?!' then laughing. This has
gone on for a very long time mostly without the FMS line. I started
to realise two things here and one I have previously touched upon.
Trying to be extremely thorough here on Fibromyalgia!
In
saying that line I started to sound like my father who a great many
people took the piss out of even including me on occasion. I feel
both guilty and angry about this, guilty because he was telling the
truth and angry because he should have been getting much more support
then he did and he died at 56 as a result of this. Now my Uncle Paul
also died at a similar age and his situation may or may not have been
similar? The coincidence was enough to make other people start
looking at the next one in line and nagging them about going to
Doctors for checkups.
That
was me! I am 45 and ten years away from the ages my father and Uncle
died!
Food
for thought.
Now
the funny thing is about this is that I first of started drumming
into them with gusto that I was very fit where they were not, but the
truth is Fibromyalgia will make you look lazy! I was obsessed with
not being like my father because of the terrible life he had when he
was older which became worse over time and if you doubt this then
simply ask any one of the 500 plus individuals present at his
funeral! Or the fifty or so that were unable to turn up our unable to
be reached!
Yerr
I really do kid you not here and even my siblings and I were balling
at the turn out for this!
So
I had to work out a series of exercises I could achieve without too
much aggravation but I also wanted the exercises to benefit something
else to do with my interests at the exact same time. I never did it
to ... look good, that was just a fringe benefit!
To
my surprise as I built up the exercises gradually this seemed to help
with the Fibromyalgia?! Many symptoms were not as intense add they
normally would be and thus was not only a surprise but also along
with the other benefits became the drive to keep going!
Hmm
cannot remember if they worked fur the sleep thing but then it was
not as bad then as it is now.
I
have lost count of the number of Doctors that have commented on my
physique one way our another but to the chance to be vague about it
to make a letter look like there was nothing wing with me with lines
like 'Than you for sending me this pleasant and fit gentleman!'
All
the letters are scanned and on here and liars should not lie on paper
and hand this to a patient who had memory issues and holds onto every
little thing because of that! Lol.
For
this that have not discovered this yet exercise of a light basis is
extremely beneficial to petiole with Fibromyalgia, just do not ask me
which symptoms because I do not bloody remember! Lol!
There
in lies the rub because food also seems to play a part on this
dreaded condition most people don't have a Danny La Rue over (if your
not British this is a famous drag queen but cockney slang fur not
having a full... bloody clue).
Exercise
needs time and did needs both time and money! THE
BLOODY END!
So
when your stressed out, running around because public services have
now decided they have a God given right to be both lazy and vastly
overpaid while health sufferers of any kind need to now be Olympic
Gold Athletes, lol do you like what I did there?!, you end up losing
focus and getting if the wagon, so to speak.
Getting
back on us an absolute nightmare and in my situation impossible so my
current method of exercise is solely also my method of transport, my
Mountain Bike. Well the crappy one, not the really dreamy nice custom
built one if a kind one called a Litespeed Ocoee which appeared in
What Mountain Bike Magazine after it was built with my name above it
in lights!
Nahhh
that one was defrauded or of me for a parking ticket asking with tip
of the line hinge cinema equipment after breaking into my house and
attacking me on behalf of a local council who break far worse laws
than petiole that they fibre fit quite literally fuck all.
Whereby
another one of that argumentative chaps ... arguments falls flat on
its face using simple and mere morals as my argument. So with just
about everyone I have come into contact with both public and private
breaking God knows how many less each and being very immoral and
inhuman to their public or customers ... now WHO should I go and work
for now?! LMFAO!
Maybe
that is the problem with Britain, it's list the right to call itself
Great because naive people and idiots keep voting in the wrist kinds
of people in power? Purely because they tell you that to vie for
anyone else they will not be capable?
Capable?
Think about that while also thinking of the things I have uncovered
which I state once again were going on while Tony Blair was Prime
Minister! Think about it.
Now
I ask if you to provide resins in the little box below what someone
else or a different party would do that would be so utterly worse
that everything that has been done already?
Now
have a look around Europe and even further afield and ask yourself if
they're are any examples you can use to go by?
Fear
of the unknown should never be an option and you should
instantly decide
against anyone that uses this as an argument. Harbingers of Doom!
Yeah funny that, this was one argument they note have to cross off
their list they were going to label me as once they could not avoid
me or this blog any longer?!
LMAO!
I
decided to stop that segment there as I needed to go out and pay my
rent. But I was looking for my shoes to put in which then somehow
changed to my shorts and I went downstairs for then which then in my
head switched back to shoes, asked myself why I went downstairs for
then when I know they are in my bedroom and then remembered I went s
that urgeries looking due shorts I was already fecking wearing!
*sighs*
NAUSEA
(of
which appears to be two types?!)
One
of a number of things that Fibromyalgia does for me, or more
precisely to me, is cause a number of things I absolutely hate and
dues so in one when I am doing the one thing I enjoy doing above all
else. Bit also did it at other times but it is quite peculiar.
I
always hated feeling nauseous and sick and like so many other things
I might say I can hear the 'so, everyone is like that' echoing
through living rooms throughout the land. Will I hate it that much
that getting completely paralytic on alcohol is not something I do
and avoid at all costs. I do like to drink though but not just go mad
and is a rare thing for me for many a year, except at certain
functions and get togethers and not always. I simply hate it.
So
imagine what it is like when you street getting this without having
to get pissed but always to the point where if to much alcohol you
swear, never again?! Now imagine that taking place daily?!
Yup!
Only
it did not follow what seemed to be it's own rules. It very weirdly
comes and goes and I wish to Good there was mitre going than there
was coming.
It
is for the most part exactly like that of mouton sickness and indeed
thus is the other thing that sets it off! SDI the two main things fur
setting it off are
1
Computer Games
This
is a weird one and is really distracting but when the addictiveness
of the game is battling the feeling of being sick it is quite horrid.
This comes and goes and also varies depending on the game, rather
bizarrely! All three dimensional first person view games but one
could be much more prone to causing it then another.
2
Passenger in Vehicle
But
never while actually driving. This occurs a lot less if I keep my
eyes on the road and this I'd true for cars, buses and coaches. Prone
to sea sickness too. Now what is odd is that ...
This
had become worse over the years and sometimes cones on easier than
others. I took my eyes of the road a couple of times while with a
brother and not going far and the feeling was really bad, I feel out
the car at his place in Hertford and took hours laying on a toilet
for before getting well enough to go home. Was terrified of the
return journey.
Other
times I can get away with taking my eyes of the road more often and
if feeling sick and nauseous can recover in moments by concentrating
on the road for a few minutes. This difference had become very wide
and very noticeable in recent years to the point of head scratching
as to why this is.
I
have it right now from gaming!
So
it's quite unpredictable and unfortunately congress on far more often
than not but I find this fact write fascinating and determined to
pinpoint why this is at some point! I have discovered a while list of
things never explained to me by the NHS and one is the Vegas Nerve.
The
Vegas Nerve is an extremely long, meandering and intricate nerve that
runs from the throat and the while length of the spine. One day I had
an extremely bad case of constipation I never thought could be so
painful and so uncomfortable. It went in for hours and I would have
welcomed sudden death during this. Because a number if really bizarre
and never befit experienced things occurred...
I
was in considerable pain and it simply would not move, add in bowel
movements lol, and I do not know why. I had to do unimaginable things
because it became seriously bad. I had also taken a laxative as I
thought this was what was done, umm NO, and a brother ran it round to
me. It had the wrong effect as now it was going to move desire the
pain and I started to fell severe pain and attempted really hard to
not push but my body started to ignore my attempts at control and it
became quite involuntary.
As
the inevitable steered to happen I raised up, stated to feel what I
can only describe as both hot and cold at the same time and feeling
quite sweaty and clammy. I then had this urgent need to syrup of all
my clothes and kept splashing water over my face. The pain suddenly
intensified to levels not thought possible by myself and I lurched
up, uttered something like 'feck' or some other thing and the next
thing I knew I was lying on my side by my bath having passed out. I
simply laid there competent drained of energy while starting at
myself in the mirrored wall wondering what the FECK had just happened
to me?!
I
still do not know all the details just yet but that, ladies and
gentleman, was the effects of to much pressure on the Vegas Nerve.
Hmm thinking I have been spelling it wrong now and that it is Vagus,
lol.
So
whether this nerve had anything to do with the nausea I do not know
for sure, but it does seem likely.
What
I have also noted is that when I am feeling sick I tend to grab the
back of my neck with my right hand. In utter frustration and
completely fed up at times I squeeze this hard in some vain attempt
that something will get freed up and the feeling would dissipate.
After awhile I then noticed what seemed like a lump which seemed to
be a little tender which seems to alter the nausea when squeezed or
pressed hard. This lump also appears to be on the ... oh crap I just
realised that a side of my body which comes up so many times with
every issue I have had risen again without my insistent realising it.
This is well documented and retorted on here, was spotted by my late
friend Ken Bunn and is the right side.
ADDITIONAL
EDIT on Other Nausea:
Right
now I was reminded yesterday that there is a slightly different kind
of nausea that is weird to say the least. Whereas one is like the way
too much alcohol effect the other is different. It is … hard to
explain but can induce vomiting pretty rapidly, which just hows how
odd my non-nausea vomiting is because I can just … POP with very
little warning. Now I tried to remember certain aspects of those other
nausea but have now forgotten! God damn it! No wonder it has taken
over 110 years, well approximately, to get anywhere and the NHS are
still clueless, and I do mean literally so when they are not even
aware of the only drug that has a positive effect with no side
effects!
END
ADDITIONAL EDIT.
If
you missed it in earlier ... much earlier posts everything I have
either appeared on my right side first and was followed by the left
side a year our the later or only sorted in the right side, all apart
from the metatarsalgia which is in my left foot.
Right
foot, right knee, right groin, right hip, right ankle, right hand and
now right side of neck unless I have forgotten some. On the left what
occurred but to a lesser degree and later were the left foot, knee
hip and even groin while this was first predicted by Martin Klein but
later lied about occurring by Darren Francis both of Chase Farm
Hospital.
Obviously
some things will be central like the back and oesophagus. The only
thing that occurred bilaterally immediately and equally, as far as I
can remember, is the Restless Legs Syndrome and the Restless Arms
Syndrome.
Yes
you can get it in the arms too!
Now
in fact I have accidentally hit upon an extremely key point that I
had totally forgotten about and quite possibly the midst key point of
all in ask the symptoms I ever experienced!
In
Restless Legs Syndrome you get the itchy, shaky and ... week Restless
legs and this only occurs at night in bed while lying down trying to
sleep. Sound completely mad and it is and it's not painful but it is
extremely horrible.
If
it's driving you
mad
then so drinking anything, and I do mean anything meaning tea coffee
coca cola and Lucozade, with caffeine in it for two days and see what
happens.
After
suffering with this for a couple of years it stated to feel as if I
was feeling it in my arms but this was complete madness to me as
after ask it's called Restless Legs
for
a reason! But before long it was obvious that I was getting this in
my forearms!
Mentioning
this to this that knew of the condition and one of these being a
member of my family, and I was meet with puzzled looks no doubt
because of the name. I starred to one, my sister I think, that I know
it sounds mad and I am well aware it isn't supposed to be legs and I
have never ever found anything mentioning it occurring in the arms.
Bit
I did though, eventually. Take a wild guess as to what condition the
one single documented mentioning of Restless Arms Syndrome was linked
to?
Fibromyalgia!
Forget
the fact they within weeks of causing a right storm within the NHS
and further the fact that I had just been prescribed two drugs
consecutively that not only both whether but the only ones to ever
work on my foot pain and finding it they were the only ones to have
any effect in Fibromyalgia, being both Gabapentin and Amitriptyline
as listed in Black's Medical Dictionary. Forget the fact that
heartburn is listed as a symptom as is my stubborn skin conditions,
dandruff, insomnia, depression, anxiety, nausea, vomiting, Plantar
fasciitis (reverse symptoms) knee pain, back pains, shoulder pain and
dozens of others I collected over the years. No!
Restless
Arms Syndrome ended up being the most notable of symptoms of them
bloody all!
Quite
unfortunately it is difficult to find all relevant data in one place.
Impossible in fact but one very experienced American Doctor wrote an
absolutely mind blowing book I can not recommend highly enough.
Forget about trying to stick to British books, Doctors and Authors!
Forget anything that may have been stated to you by British Doctors
starting that American Doctors and medicine should be avoided add
they are all mental, lol as it was described to me at Royal Free
Hospital. I have not met a figure Doctor, yes even at Guy's Hospital
which is supposed to be oh high repute in Fibromyalgia but as drugs
has never been heard of I am afraid that is not exactly correct.
Nope.
This
lady Doctor tells a compelling story of hire she studied medicine
while trying to find out what her own condition was. Time after time
she drew a blank until someone suggested Fibromyalgia! Then on
discovering this is what she indeed had then discovered the condition
was frowned upon and was the butt of all jokes where she was studying
by senior Doctors and lectured who write simply should know better.
I
have letters after my name that mean scientist and I turned down,
second worst moment of my life ... maybe third lol, a Doctorate
whereby I would have been coding software to teach keyhole surgeons
on his to perform surgery, yes I kid you not.
As
a scientist of any kind you should not make jokes regarding theories
or conditions that have not been disproved. You run the risk of
running your own reputation, dumb arses, as well at looking like ...
DUMB-ARSES!
Lol!
So
there you have it in a nutshell, in a very big nutshell.
Quite
how the nausea come motion sickness can be so very bad and easy to
trigger off one minute and not the next is currently a mystery. It is
likely that tension build up in our around the area of note in
Fibromyalgia in the neck near the base may play a large part?
It
had not been a year yet since I discovered and diagnosed that I
indeed do have Fibromyalgia and yes I did not need the NHS nor Guy's
Hospital to tell me this! I only orchestrated that appointment to
find out about and be prescribed Sodium oxybate, which no one had
heard of despite it being the only drug that deals with Fibromyalgia
and already given it for sufferers of Narcolepsy. Failing this being
possible then getting prescribed Pregabalin was second choice on the
agenda and see how that worked out.
But
the fact that the NHS thought a very good option was available to
them to discredit me in a very major and highly illegal, improper and
unprofessional way, bit to mention utterly despicable for Doctors and
Health Professionals to even attempt to do and don't it completely
incompetently against a patient that warned then several times that
any attempt to do so would backfire ... BADLY
was
to tempting to resist and totally over confident!
Oh
well, you cannot say I did not warn them?!
They
are still doing things quite incompetently and in a very self
destructive way because when enough people see what your did them
they see what your are. Then this'd that thought they could his
behind a famous brand they have systematically ruined the name of
Erik bit serve as a good shield any further.
This
week have a knock on effect that I intend to use to make absolutely
aware of any or all conditions that have been conveniently and
repeatedly swept under the carpet. There is a huge list and I know
several friends, ooh yeah they really should have read more if my
blog as I do have a network lol, that have conditions while know shut
others they have been campaigning to get mute widespread recognition
of. I told them I would help them in the end and hopefully they will
read this and see that I always make good on my claims as well add my
innuendos.
But
I will point out that which was obvious to be and I can now say with
certainly without drawing legal letters from the NHS!
The
simple fact is that these obscure but tricky debilitating conditions
are not widely known or accepted because they do not want then to be.
This is the NHS we are taking about here and there have been many
occasions through the decades that a single effort cities have held
each and every one of. But they did not.
Quite
hire the varies societies fur each if these conditions have not
realised this, worked around this and called foul play I do not know.
Maybe,
just maybe they have been far too busy making money out of those with
the associated health conditions to actually concentrate on getting
the job done all the suffers have been waiting patiently for then to
do?
I
have achieved half a million in two years and I have no famous name
and not do I have a famous or catchy logo..oh OK I kinda do now have
a catch logo and used it over on my LinkedIn account, lol.
Hmm
I should really incorporate it over here and on so my blogs?! Lol!
Right
now it is ... oh crap 3.20am on Wednesday 2nd July 2014 and I have
been working on the report, albeit raged right now, for a week or
more and have added to it four times currently.
Now
I doubt I will be able to add much more to this before it is
punished. However editing will most certainly happen at later points,
and must tag it so I can find it easily, once I have worked out
various things and also acquired new data and separated the what from
the chaff and the utterly ridiculous and incompetent.
Ciao!
THE SMALL PRINT:
Those thinking after reading this that this is the entirety of my problems and complaints?
Oooh no, oooooh no, no, no, no, no! Just, NO!
I suggest you use the search field and try ...
DWP, Atos
Local council Corruption, Enfield Council, Waltham Forest Council, Epping Forest Council, Wirral Council
Police, Police Corruption, Metropolitan Police, Merseyside Police
Bailiffs, JBW Group, Equita, Capita
HMRC, fraud
Ombudsman:
ASA (Advertising)
GMC, NICE, PHSO (Health)
LGO (Local Government)
FSA (Financial Services Authority)
Ofcom, Ofgen, Of ... anything! Oh Oftel.
MI5, GCHQ (Secret Services)
