You have no idea how much trouble I have had with people in my own life and it is the same old fucking trouble I have always had.
Quite bizarre is that they see me as bad because I am the harbinger of bad news .. when really these things have been allowed to continue because they think that the heroic thing to to is to stick your head in the sand .. because of feelings.
Nooo that actually costs lives and not only have I told them this over and over and over again while they argue while refusing to look into it and then projecting their fears onto you and then blaming you .. this only gets worse. This blog is testament to me stating this for a very, very long time and I have been stating it a lot longer.
Presently there are two very real things going on .. one visual with a lot of victims now speaking out and another scientific. The second I have been busy writing a series on to do with the poles shifting, moving and decreased Sun activity. This has the potential to be so serious I wonder if it is behind the absolute crazy shite going on in the world right now?
No one understands it .. everyone is looking for an answer .. the answer is likely to sound completely crazy .. my answer is crazy but with scientific evidence to back it up.
'People demand the truth but have limits to what truths it is they actually want to know' .. yeah I said that!
So the Gilets Jaunes in France? "Oh yeah its about fuel tax" is what I heard to which I would say ..
Nooo its not!
How fucking long have I told you not to trust the media
Have you NEVER heard the term 'fake news' and ..
Well they scrapped the fuel tax rise .. and they are still protesting sooo what is it now?!
One day I might actually get an apology for the decade plus of shit I have had to contend with?
But I have messaged them .. with links to NASA and the National Geographic, who I so wanted to work for, about the second thing.
Here is a video I have now sent them about the first ..
French lady lawyer who states that is is about how the French people are treated, the disabled people . the children .. the violence .. the EU and the lies and one other thing ..
OH YEAH THEIR FARCKING FAKE NEWS!! Courtesy of TheHoundog on YouTube ..
Most people I know have no idea there is a Yellow Vests UK or where it is occurring and when I mention it they do not even seem to care ..
But its like people on Twitter say .. no one gives a shit until it happens to them or someone they care about ..
Except .. in my case it has.
So still pro-EU? Still against Brexit?
LATE EDIT:
"Paypal and Twitter you seem to be doing everything in your power to destroy everything in our society and push us towards conflict" - TimPool 12:47
And not just me any more but I have stated this for several years.
I also do not think they are oblivious Tim. Have Hollywood been oblivious to losing money but still pushing an agenda? Is Macron oblivious to country wide Gilets Juanes for 15 weeks?
So then .. intentional civil wars, #ProjectDistraction .. or both?
It's edging closer and closer but will it break while my daughter and I still live and breath?!
There is talk in reports with both sites of The Canary and The Disability News Service of a scandal that will hit the DWP ..
Covering up the deaths of welfare claimants.
Murder is murder .. it is not reduced to even manslaughter purely because of methods or reasons and if it were anyone else in society carrying out actions when they knowingly know it can lead to death .. this is murder.
Manslaughter is when you cause a death by an action not intended or thought to cause death and normally in cases of serious neglect. Like saving money.
A good example of this is the cladding used in Grenfell Tower.
This talk of a scandal coming out, oh please God say it is so .. yeah OK I am not religious .. but I am desperate lol, at a time that has a weird coincidence to it. Because I read talk about the UK holding a disability summit here?! Say what now?!
A summit? For the disabled?
I certainly hope it is not leaders from other countries looking to save money where they ask Theresa May ..
Foreign Leader: "How did you get away with it?!"
TM: "Oh we spent years putting it into the pubic's heads that they are a drain on society, the financial crisis would end tomorrow if most of them died and there taxes would go down if this happened. Once, of course, we made everyone into amoral twats while working them into the ground"
Foreign Leader: "Just .. putting that into my .. notebook!"
So a summit and a scandal to hit the UK?
You simply cannot make this shit up!
There may come a stage where I myself have nothing to lose as well as nothing to love for and they really, really .. REALLY do not want to put me in that position.
If I lose someone I simply wont want to live any longer and I have gone through so many periods where I think I am going to lose them all that I start fantasising about what I would do when I get angry about it.
I should seek help from anarchists because they would bloody love me if it ever came to this point .. a shame I could not get help beforehand though!
Never have associated with anarchists and .. pretty sure I never met one .. or at least they never admitted it to me if I have.
I would only associate with a group if they were people that believed in true fairness to all and recognised full that which is plain to see. That it is not.
Well there is a report with a figure but it does not look right to me.
After the Disability Rights UK article in the last post suggesting that people were mostly happy with disability assessments a report was published with some number. That number is 4,000 or just so you do not think there is a typo, four thousand.
I had totally forgotten bout the Work & Pensions Select Committee of which I became involved letting them know of everything that went before and everything that was, or indeed was not, going on currently. After a cut down report they asked for more and stated they wanted to publish it. The late Michael Meacher MP also wanted to use my data in January 2013 and asked for permission to do so in the House of Commons to attack Iain Duncan-Smith. How long since IDS quit his job? This started long before I was asked by Michael Meacher if he could use my story. How long has this been going on then? How many times has the dishonesty of the DWP and their hetnchmen, like Atos and Capita, been reported? But they seem to be just catching them and reporting on them being dishonest now?! Do the court involved get there moment in the spotlight? After all you have to be incompetent to miss this for so long and if you did see it should have dished out some court orders to these people?
So .. most people were happy with PIP and ESA assessments were they? Four thousand complaints just in the weeks or two months at most after the Work & Pension Select Committee asked for them? This is not taking into account that most people would not have noticed the call for people to contact them, I nearly missed it myself. Nor does it take into account that these assessments have been complained about for several years beforehand.
Also and as someone pointed out on DPAC's Facebook page .. "Did anyone ask us?!" The answer is no .. they did not. Well done, Disability Rights UK for missing out that other disability chairities were not asked to ask their members. Where was the pinned request on DPAC's Facebook page, or Black Triangle's or Disability Rights UK for that matter?! I did not see one. In fact I cannot recall how I discovered it .. might have been messaged, notified or tagged by someone on Facebook? Might have stumbed across it on a webpage myself? Might have been emailed with the link from one disability group or another? I simply cannot recall.
So .. still being fecked over or not provided service and support by all the above. Just some little mention in some little article, all of which avoided like the plague by the TV News groups, that never gets followed up. Almost as if we were intentionally being mislead by those publishing some of these articles? You do have to ask yourself this question.
Oh and .. when your a disability assessor one question you can ask and get away with is this ..
"So when did you catch Down's Syndrome?"?!
Umm .. recall me banging on about how they are not qualified to assess disabilities and how they are not even general medical professionals not even to GP standard, let alone specialists?!
Well there you go .. another point I have been proven correct on.
I was kind of tied up, with pubic service failures and gathering evidence trust me, for four months and busy for six months before that. I still kinda am .. or at least have things to achieve but I am pacing myself. Due to memory and health issues.
So I recently posted articles about PIP being re-reviewed, Atos being found guilty of lying and a few others.
Oddly I came across a report on Disability Rights UK's website where it states that MP's 'find' claimants are 'mainly' satisfied with PIP & ESA assessments .. but there are problems.
Out of dozens of people I know only one has not complained but he is the only one that has not been assessed in recent times and therefore .. STILL on DLA so is ruled out. That means that 100% thus far disabled people have complained.
What I hate about the article is it seems to be portrayed as it is a fact. Like there is nothing wrong with assessments, or at least very little which can be expected of anything like this ..
Then I would like to point out a particular court appearance I experienced with a biased judge called Judge Mark of the HMCTS ..
Explained ..
I did not attend assessments as there were between five and forty miles away
Later found out they had assessment centre two miles away
I did not travel five to forty miles because everyone knows they lie and well documented and reported as such online
Now being reported on widely and nationally so
But three very lame and amateurish attempts to label me as a liar
All failed, none mentioned in report all of which on here .. I think?
I have no issues posting and publishing things because I have nothing to hide and am honest about things that occur. No point in being dishonest and .. well you would soon get caught out and the HMCTS, DWP, Atos, Capita and Maximus all seem to have forgotten one simple rule followed by one fact ..
Liars require a damned good memory
Due to Fibromyalgia and Fibrofog my memory is shite
Need anyone say any more?
Maybe, why so long when I have pointed out the facts for several years?
A second case of
perfect timing in less than a week.
One was someone that
should now better with me that could not understand how you can
attend a hospital appointment and they are not quite sure why you are
there.
Listed as inadequate
and this is in a flurry of Doctor and hospital visits I have never
witnessed the likes of on just a couple of weeks. I have know many
people who have died and some of those died of cancer and I have
never .. EVER seen medical staff move like this!
The latest was a woman
on DPAC's Facebook page that did not really see a problem with any of
the public services I am involve with and suggested the problem was
me. Lol. Obviously does not read the tabloids or watch the news.
Because there has never been anything wrong with the public services
anywhere .. EVER?! Oh, wait? No it is anywhere from every other week
to every other day.
Not to mention the fact
that recently that there as the revelation that lung cancer
screenings had been fecked up and now the NHS has contacted all
trusts about it.
Like I aid to y
daughter .. no mention of how long these mistakes were filed away and
then there is the question of how much damage has been done in the
interim?
Then early this morning
I spotted another news issue and this time involving disabled people,
though whether this is a section or not I do not know, and the
resigning of Theresa May's Social Mobility Commission. No less than
four of them, would you believe?
It seems nobody wants
to end up with these horrible labels they will then have trouble
removing and it is interesting that it is moving up the ranks.
They cite the lack of
progress towards a fairer Britain as the reasons.
Funny because as far as
I can tell it has been heading in the opposite direction for more
than ten years.
It is also funny
because it has gotten to this .. bizarre stage and yet the mainstream
news media has not remarked on any of the stories, well 90% of the
time, since this started. In my personal experience this started
long, long ago. Well before I moved to Enfield which was in June 2007
and therefore way before the financial crisis started.
In fact when I look
back at the start and despite the sheer shock and unison of 'o's and
'no's coming from the House of Commons when the financial crisis was
announced, it was almost like they knew.
They started to attack
the helth conditions that not only included people unable to fight
back but had likely no one who would understand what they were saying
and even support them in fighting back.
Patients with mental
health problems.
I feel pretty sure that
is where it started and because it was the easiest target for them to
go at without repercussions. Legal Aid had also been slowly
dismantled years before too so even less of a chance of any
comebacks.
Once this was achieved,
one Psychiatrist I had spoken to only realised late on they were
attacking those with mental health issues, they could then move onto
the next group.
The clever plan here is
that they might move onto a number of groups before they were rumbled
and that even when they did people would point the fingers in all the
wrong places. At the time this was the private company appointed as
assessors, Atos Healthcare. Now only known as Atos.
I knew the truth but
many disability group members did not. They thought that by getting
rid of Atos or making the DWP and government aware of what Atos was
doing would have them gotten rid off and that very literally
over-night. I knew this was all wrong too.
Among those to resign
are former cabinet ministers of both the Conservatives and Labour!
I wonder if others
might follow?
Well look, for the love
of God, at the number of governing bodies, watchdogs, ombudsman and
chairites in each and every case. They have done nothing and with
little or feeble excuses in each case. These number into the, very
literally, many dozens. Even the health service alone has four or
five bodies, maybe more? PHSO, PALS, NICE, GMC, CQC and possibly
others? There is five and I have been wrapped up to no avail with the
first four of those five.
Hear that, dumb-arse
woman? I have been involved with four out of five health service
watchdogs and they have done nothing. Not even asked for the evidence
I claimed that I had.
Yeah .. I have my ways
when I am pretty sure I am dealing with an organisation that is
basically a con, payig themselves salaries of either the taxpayers
money, winds me up the most, or from public donations, winds me up
almost as much.
Hmm come to think of it
I wonder how many of those donations are made as a tax dodge anyway?
The DWP have at least
one, ICE or the Independent Case Examiners but if you are dealing
with them, plan to deal with them I strongly urge you to check their
email addresses. They run through the DWP's mail servers .. or
through their buildings, in other words. Not really something you
could truly call 'independent' now, is it? I do not know if there are
others. CAB are absolute crap with the DWP .. unless your unable to
speak English.
The Local Councils have
the LGO. Or Local Government Ombudsman and I am fairly sure there is
at least one other body. Oh of course .. Ofsted .. where children are
involved. They have listed this council as inadequate sooo where are
the others and where is the LGO?
Well all know about the
Police and the Independent Police Complaints Commission. Yup a big
nada and bullshit from them too!
Scope?
Disability Rights UK?
Age UK?
The list goes on.
Then there is the
private side to from advertising to energy and on to communications.
And even bailiffs. I have had reasons to contact the watchdogs and
ombudsman for each of these not to mention many more besides. ZIP!
So will these four
resignations within that one commission be followed by more? Will
those on the verge of having enough, moral ones that is, then follow
suit? Will this be followed by the amoral ones that get too scared
that they will be exposed as amoral and before doing so quit to keep
up the charade, and assure themselves their next career, all start
walking out too?
One can only hope and
only time will tell.
Notice how no one
within the either the reporting or the discussions about the EU
divorce bill has mentioned anything about disability rights? They
have not even spoken about human rights, well not about their native
people and as I already stated .. nothing on disabled people or even
children, for that matter?
It is simply disgusting
and the one and only thing that keeps me going, other than four
children and a daughter who is constantly feeling ill and/or in pain,
is that other people with a high standard of morals and are not naïve
or beavering away on their on plans to do something about the
injustices with absolutely everyone.
Being secretive towards
your own people simply does not pay and in the long run is doomed to
failure. Because they never stop at the obviously lies, like things
involving the secret services which could be questionable anyway,
they start thinking they can lie about the next thing and the next
thing and then the thing after that.
Before you know it they
are lying half of the time and everyone knows it but somehow accepts
it for just the way things are.
They think it is not
directly affectig them yet and they still have their jobs soo .. what
is the point and as one naïve woman put it to me “It wont ever
change” and “You cant change anything!” leading me to ask why
in the fuck she bothered even going on the site where people are
trying to help each other out? Yeah .. every insists on thinking like
that then yes it wont ever change.
It is a self-fulfilling
prophecy.
I do not like people
giving the wrong advice, or that people are naïve and walk around
with blinkers on and .. I certainly do not like self-fulfilling
prophecies!
So I thought for a
couple of years about either creating a website .. the company used
was not very good in their design, or a blog. There was also the
possibility of a YouTube channel. So I started a blog .. then another
blog .. then another blog and I ended up with twelve. I had already
technically had a YouTube channel I only ever uploaded the odd video
to. So I started to get more filming when and where I could and start
slowly adding to that.
I am not an idiot. I
did not think I as going to change things over-night.
Though there was the
possibility that when the government and its bodes inevitably
discovered what I was doing they might change things? They might have
done in small ways?
What I was aware of was
that to change things in the UK alone I needed as many people being
aare of my blog and my recorded data and documents that I could. This
would mean that it would at least have to being the millions.
Even with the viewers
being in the single figures when it comes to millions there would
inevitable me more aware of me because .. well people .. talk. Surely
you know that Surely THEY know that?
Whether these millions
had to be in a single blog or across everything I was not sure.
I did think that with
some of my exposing early on that I might reach a million in a year
or two? But this has turned out not to be the case, unless someone is
messing with the figures being reported to me?
But I do not nor can
not think about these possibilities of someone messing with me
because .. I jut have to keep going .. somehow.
My other blog have
taken a hit of late through doing the things others seem to be
shirking their responsibilities over.
But I am seeing the
signs, finally, that this is getting harder and harder for them and
with Iain Duncan-Smith resigning that was a first as well as a
surprise.
So .. is a barrage of
label dodging about to take place?
I have already
witnessed a backlash against governing bodies and charities on
Facebook and I have been predicting that one for a very, very long
time. Before I even started blogging 5.5 years ago and more likely
around 13 to 15 years ago.
Oh and my daughter
bumped into some people down in the town centre here, told them about
her own story and then about me .. seems they want to talk to us. I
was given a newspaper and thought .. 'ooh this seems strangely
familiar' only to have it confirmed when I looked at their website
address that they were a far left group. Well I am assuming ..
far-left.
Remember what I said
about the history of revolutions? Well take a look at their website
address …
Even the Financial Time
has reported on these Social Mobility Commission resignations but
then .. they are bean counters that failed to see the missing beans
and .. this involves politics and Theresa May directly and sooo ..
means uncertainty and so mean money .. so yeah, once thought about
not that surprising, lol ..
I've been hearing this for many, many months and possibly even over a year? A bit hard to recall with my short term memory issues.
Muscular Dystrophy UK, or something, is reported by the Independent to be stating that 900 cars, yes that's nine hundred, are being taken away from disabled people every week.
I really am at a complete loss to how there had not been not one but several major things occur over this previously. Like large scale protests and reported on the TV News repeatedly?
But I guess the government figured tens of thousands of disabled people are not able to get to our even able to perform a protest.
No question mark at the end of that last sentence because it's the only realistic answer as to why the government did this.
It's because of this attitude towards the sick and disabled that I have my one and only concern regarding leaving Europe. But then being in Europe didn't do any favours to us. But at least now we can point fingers at people and label them as evil as in the EU they can pass the buck to people that were never elected.
I mean this is like they are borderline taking away the human rights of disabled people, if they have not done so already...
So what chance do you have if you ever fall on hard times or find yourself out of a job?
Considering a think tank was recently reported by Russia Today to state that the UK is sleep walking into another financial crisis that will be worse than the first one ...
... and they are the ones that led us into this as they are supposed to be governing at the end of the day ... but they want to make the public pay for their mistakes while still paying them substantial salaries.
As I also stated when David Cameron talked about changing the welfare system to be fairer and bringing in Personal Independent Payments to replace Disability Living Allowance. I said that it was a good idea and was all for it Provided that is what he intended and was not lying. Except when I read about the 'Personal Independent Payments' name I started to get worried that it was all a lie to take away the responsibility for disabled people.
If you are going to slowly remove responsibilities for everything, which the Conservative Party has in both its tenures with Margaret Thatcher and then David Cameron and now Theresa May ... then why are we giving you money?
There will come a point when our taxes will be doing nothing more than paying their wages to just talk shit and funding weapons and the armed forces. The latter of which many do not agree with any more and over time more and more people do not see the need for them. Other than to stick our noses in where we should stay out. The absolute piss-take of this is that they do this claiming to be helping the people of said country when they do not even help the people that cannot take care of themselves right here in the UK.
Except there were all those people that felt sorry for David Cameron when he did that speach to announce he was quitting.
I find it quite bizarre that people can have sad feelings for others that themselves have no sympathy for anyone else at all.
I currently am
seriously lacking in both energy and motivation.
Oh and it seems I still
cannot type worth a damn.
I have noticed that
since I have been stuck indoors weekends I have also been forgetting
my pills too and think that there must be a link here?
I have had a series of
shocks this week both good, well one, and bad, in this case many, and
yet have failed to put together a single post for my blogs over the
weekend.
After initially
acquiring a solicitor for the very first time ever, since 1994, I
would have thought I would have been more positive and have more
energy. I have needed milk and this was obvious from yesterday,
forgetting to get it on Friday, and not been able to get out to the
local shop in two days.
What surprises me is
that normally when I discover something shocking I am normally typing
out a post almost immediately or the first chance that I get. In the
last few days I have had two that re in the forefront of my mind and
have to write a post about either of them.
These are …
The treatment of
Peter Duut and
A little known
fact that close to 10,000 died in a few years after their ESA being
affected in 2011
Pete Duut was a Dutch
man married to an English lady who worked in the UK for years as a
Carpenter, I think it was, who was then refused help by the DWP after
some 12 years of working.
You can read more about
this man and his wife here and I heard this directly from Laurel Duut
who I met via DPAC's Facebook page.
It was sickening to
read about how the DWP first tried to wriggle out of supporting them
and then deducted money that came in from the Netherlands from the
Dutch National Survivor Benefits Act.
If this does not sound
bad enough Mr Duut also became ill throughout all this which was from
an undiagnosed cancer that he died from, seven months after being
refused help from the DWP!
This was just a few
days ago and then yesterday I was watching a video someone, Victoria,
made of themselves in Richmond Park who had just attended some talk
about treatment of disabled people, with a Tory MP, who explained she
was puttinng her affiliation, of what capacity and who I cannot
recall, with a Disabled Charity and job at risk by stating the whole
thing was a farce and that the Tory MP left half way through because
he wanted to get to some protest about a runway at Heathrow. Yeah …
THAT runway!
I remarked about how
this serious event on how the disability were treated would NOT get
on the mainstream news, that Tory MP's actions seem to suggest he
KNEW this, and that the runway would and that was why he cut and run.
It also highlights in a
very major and shocking way one of the long list of things wrong with
the mainstream media. I remarked on DPAC about how the TV News lovers
to talk gossip, celeb shows, celeb news and reality TVV shows when
there are serious abuses of human rights that have not just led to
deaths, not dozens or even hundreds but thousands of deaths.
In fact that figure of
NEARLY 10,000 deaths is from a report by the DWP THEMSELVES in 2014
and I can guarantee the number of deaths has risen in frequency since
that report. The government's Damien Green says it has not but
disability groups say that it has.
Well if you killed
10,000 people that were on ESA alone and not even dive into PIPs or
pensioners then you must be hitting way above your target My Green?
Either that or you and your predecessors have been doing things VERY
incompetently?
Funny that I mention a
Dutch benefit is it not?
Funny that a country
much smaller than the UK manages to pay one of its citizens not even
residing in the Netherlands any longer?
Funny how other
European countries manage to have welfare states and I not recall
hearing frrom anyone else that theirs is being eroded and that people
are dying? Or, come to think of it, that their disabled are being
punished?
Anyone would think that
we in the UK are NOT doing as well as you like to make out to the ret
of the world? A UK government being misleading? Well, I never?!
I also informed them
how someone I know thought that the UK's problems would disappear if
a large part of the welfare state did. Well they actually put this in
a far more shocking statement that involved two sets of the most
vulnerable in society dying. Yup, dying.
In an almost knee-jerk
response to this someone posted up some figures that I for one never
stopped to consider before. The fractioning up of the welfare system
in relation to the size of the group it serves.
In fact I have a copy
and past of what was posted on DPAC's Facebook page … posted by
Samantha ..
State
Old Age Pension - 36%
Other
pensioner benefits - 6%
OK,
that accounts for 42% of welfare spending.
Child
tax credit - 10%
Child
benefit - 6%
Working
tax credit - 4%
Housing
benefit - 11%
Income
support - 4%
Council
tax benefit - 3%
Disability
Living Allowance – 8%
All
of these benefits are payable to people who are in work. So that's
another 46% accounted for.
So
what of the remaining 12% of the welfare budget?
Well,
2% goes on carers allowance (ie people who work hard caring for
relatives and thus saving the NHS a significant amount of money) and
4% goes on employment support allowance (payable to people that even
ATOS declare unfit for work)
Other
welfare payments – 3%
Job
seekers allowance – 3%
So
the "work-shy" get no more than 6% of the welfare bill
(incidentally, most of this 6% would love to have a job but are
unable to get one).
Nearly
half of the welfare state payout is to do with pensioners.
Hmm
and those that everyone likes to list as lazy only make up 3% of this
number, though I have only ust noticed there is no Universal Credit
listed which leads me to believe these figures were pre-introduction
of said benefit?
Whether
these are right or wrong it matters not and only shows that not all,
or even anywhere near half of, the welfare state goes towards
unemployed people most of which would want a job.
Would
this then not beg the question how in the world they think they are
going to pay off that humongous debt they ran up with … this?
Like
I said previously and will say it again … learn to math y'all!
You
could take every pensioner and benefit claimant out the back and
shoot them, my God in my situation I would rather take this as the
MORE humane option, and you will wont pay off the debt in ten years!
They
did what we normally get scorned for doing and taken to court for
doing … borrowed far more money than they could ever pay back if
the money ran short.
Hang
on? But … we were given these loans by banks that should not have
given them to us because we would be unable to pay them back and get
taken to court for it?
But
THEY do it and what do they do? They start at the bottom of the pile
and start taking money from us and when they find it hard we find
ourselves in court over it …
Does
that not sound like they want everyone else to pay for their
mistakes? Tell me … as the future unfolds and as mankind is
supposed to progress and evolve … are they going to KEEP doing
this?
OK
then tell me this … do away with the welfare state and shoot
everyone on benefits and when that does not work for those of you
that love throwing stones while living in glass houses … who do you
think they should turn to next to wring money out of?
One
of the last shocks was something being posted about that I myself
have talked about for many years … no not the cost of repairing
Buckingham Palace, though that DID get mentioned too. No it was the
charity fundraiser Children In Need and someone questioned the money
and the celebs involved!
I
simply could not believe this so I chimed in with y age old, on my
posts anyway of the following …
How is it
that every year the donations breaks its own previous records even
in a recession
Why do
Celebs with enough money to run a third world country for a year
give up a day of theirs for free to guilt trip everyone else into
giving money and everyone is supposed to worship them for it
Add up all
the money made over the last 15 to 20 years and it is … a lot!
There should be a series of bloody fortified castles scattered
around the UK that kids can live in and feel protected
If
your a bit confused by that second one I suggest you look at all the
shocked American celebrities who all appeared on TV in favour of
Hillary Clinton as US president and having meltdowns because half the
nation did not agree with them which therefore must mean no one loves
them?!
Yeah
I mentioned that which got a few people commenting.
I
am totally amazed that others re seeing this, though I have waited
over a decade to see this mentioned in a public place. Friends did
not see it at first but some years back they started to realise the
hypocrisy of it all.
So
it has been a series of shocks.
First
a good one that … really does not feel like a good one. Maybe I am
just so used to failing that I simply cannot believe it until it
happens?
Also
there is the uncertainty regarding the 3 to 6 month period until said
legal representation produces a result and that is if there is any
result at all. In that tie I have to continually jump through hoops
and I am not sure if there is any recourse to my health causing an
issue.
My
health problem already did, though I was surprised it managed to go 6
weeks before a screw up, when I arrived an hour late for a meeting I
was so sure I was on time for! I even sat in the local park smoking
for an hour and went for something to eat. I then had to sit for like
an hour so I did not force anyone else to wait, which was only fair.
Remember
to support those that are protesting against Heathrow's third runway,
or is it fourth? That is because being annoyed by noise and having to
move is so much more important than starving to death, stress,
anxiety attacks and suicide.
It is like one of my
limbos … except this one actually feels more like a limbo than any
of the others and I feel somewhat … lost.
I have had everyone bar
one that normally does contact me over this and a mate is messaging
me right now and I told him I have no clue what is going to happen
now.
I just feel dazed.
I am also confused.
I simply do not know
what to do now. I have some options open to me … but not much in
the way of options and I think I will have to speak to a couple of
people I have recently been speaking to, to ask them.
One of them will
probably prevent me ever going to court again but in all honesty and
as I said to a friend .. there is never a chance that I would use HM
Court & Tribunal Service ever again, not after that. I have been
told by a few to appeal and I told them that, that was the appeal one
friend said it cannot be it is too soon. I assured her that it was
and I said “Y'know I thought the date was very quick and thought it
would likely be somewhere between November and January”
After all the Citizen's
Advice stated it was far too soon for them to send a representative
with me, after initially telling me that they would send one. This is
why I complained to Citizen's Advice about their handling of this.
The failure of sending
someone as they said that they would was bad enough but they left my
dangling on something that set off my anxiety attacks once again
which led to my legs not working for an hour, told me they would
likely give in or I would win the tribunal which were both wrong.
Also the more I think
about the tribunal the more I realise she failed to ask about or
mention in passing, proving she simply was not interested.
I absolutely guarantee
she is if the brigade that believes the government is right to screw
over disabled people to save money. I have absolutely no doubts that
if asked privately she would agree with what the Tories, George
Osborne and Iain Duncan-Smith was doing. No doubts. You know when
sometimes you meet someone and you just get these bloody big signals
from them?
This was all about the
money too … not the health conditions and I am pretty sure I did
not even utter the word 'Fibromyalgia' and I am pretty sure she
didn't either.
Not only was I trying
to explain my various symptoms to someone that simply did not
understand them or the condition she clearly was not interested.
I simply took the whole
hearing as an attempt to call me out as a liar on everything.
So according to her,
that … judges logic, I insisted on experiencing a group of symptoms
for 13 years, though other symptoms were connected and went back far
longer, … yes waited 13 whole years before I then decided to turn
around and say it was Fibromyalgia.
I waited 13 years
before declaring what it was.
Oh and do not forget I
managed to fool and manipulate an entire GP Surgery, get sent to
Guy's Hospital and then fool a Fibromyalgia specialist called Dr
Kirkham who was based in their Rheumatology Department.
Yeeeah … if I could
do all that I would have been a millionaire well over a decade ago …
the fucking morons!
I mean … really?!
That is the best you can come up with … really?! Jesus H Christ
this country really haas and is still going to the pits.
I have just had my
landlords, plural, here and they were both astounded as I told them
what happened at the court. The … lady of the two told me that I
should appeal and that this was terrible treatment. They said I
should try and fight it. But what with?
I feel very much burnt
out right now.
My tank is empty.
Though I did achieve
something I had wanted to for a very long time.
Just that I lost my
first case and the situation is … well diabolical to put it mildly.
My word … it is going
to take me days to figure out what I have to do or will end up doing
and that is if I can think of anything at all.
Not waking up tomorrow
would be kind of … nice and .. final.
Except I would have to
make some arrangements as I have a … very big collection of stuff I
would need to … well think of it as passing on the baton. Not
really into athletics but I do not what a baton is. Probably spelled
it wrong though? Lol.
I swear to God if I was
a religious man I would have sworn to God that I had just had a
meeting with the spawn of the devil himself.
The funny thing is that
many of the support group for Fibromyalgia I was at looked a damn
site fitter than me and none carried a walking stick around with
them, though this might have changed over the last year. They are
under the impression that Fibromyalgia is a bona fide disability and
I hope to God if they ever get their money stopped and attend a court
hearing that they do not get the … person that I got.
I could have raised my
left sleeve and showed her the many scars and slashes on my upper
left arm but I literally looked at her and though “you simply would
not give a flying fuck!” and so I did not.
Any time I did try and
explain something there was this turn of the head that showed
disinterest and whether she had decided I was a liar, for whatever
reason or agenda, before I entered the room or not she was certainly
giving me every signal that she thought I was.
It was plainly obvious
to both see and hear that she was not going to listen nor accept
everything and spoke to me in a way that has not been done since I
was in nursery school or primary school.
If I was to say it was
both patronising and condescending it would be a gross
understatement. How she could be a judge of anything at all is beyond
me. Maybe she spent all her life handling purely financial cases or
something? Or just spawned in hell like I stated earlier?
If I am ever forced,
and I would have to be forced, to ever attend a HM Court &
Tribunal Service … umm tribunal again I am taking crucifies and
holy water.
I feel so burnt out and
spent right now. I could really become an alcoholic, really I could.
At least it would numb the pain better than any of the wrong crap the
NHS gives me!
I thought I remembered Theresa May saying something about changing things.
Will it seems she had been quoted, or someone remembered what she said and repeated it?
Had this link below end up in my Facebook notifications. Theresa May is quoted starting there will be no more welfare cuts?
The question mark is quite deliberate. Does she mean that she will stop ruining the lives of those afflicted with disabilities?
Or does she mean it won't get any worse than it is right now? In other words it will stay exactly the same.
Some reporters really need a lesson in the English language as a statement that there will be no more cuts is preposterous...
... Because you simply cannot cut it deeper than you already have.
It's only a matter of time before some foreign media pick up the story of how they have stealthily attacked disabled people and that the mainstream news media have somehow avoided it all.
Pretty impressive missing this story as it started when Tony Blair was in power seven years or more ago.
That was when I not only first noticed it but soon after discovered from other disabled people the attacks were coming in waves.
Those with mental health issues were the first to have everything taken away. At the time I even met mental health professionals who has no clue it was going on but soon realised. One stated she checked all patients under her clinic and found all had, had their money cut.
This was around 60% of their weekly money gone and it didn't stop there.
Even at the 60% they first cut I'd like to see evidence from George Osborne of the same percentages from the wealthy, banks and all others responsible for the shit we are in?
I'd ask him quite directly and sternly but you can bet I won't get a single example.
Then I'd give the twat something else directly he would fully deserve!
Deserved for the absolute cold hearted attitude and callous nature he has shown towards human life and suffering.
I'm a strong believer in telling people what they are and to the point of getting a reaction of guilt from them. If not then they should be shown in another way that will make them take notice.
I believe messages should be given and if all else fails then you do things in a more dramatic matter. If at first you don't succeed, try, try again ... until they do get the message.
In my opinion he should go to prison and it will remain one of the biggest injustices remembered by history books of the future.
Then they are running around preaching to the world media and other countries about human rights?
They should be bloody shot! Metaphorically speaking, lol.
Yeesh. Why can boredom
be so bad as to almost be painful?
My sister was telling
me very recently how bored she has been on her eternity leave and
said it must be really bad for me and how do I do it? The simple
answer is I don't, ,not really. I do have periods when I do cope with
it. Unfortunately that is slave to one thing I have no control over …
the weather!
There are other factors
to that come into play … outside influences, organisations suddenly
deciding you have to jump through hoops. Your health which can be
only very seldom or very frequent. The weather can be more or less
frequent if you are particularly sensitive to it, as I am.
A mental health
specialist was surprised to learn of my many interests, skills and
knowledge while at the same time surprised at my lack of direction
and boredom. Especially as I also have blogs that I work on in many
of my subjects. But I also explained how they get neglected.
To many it might have
seemed like a my musings were that of a deranged conspiracy theorist,
except that it was never that far fetched and I planned to acquire
the evidence and executed those plans. They never really stopped.
While I am typing this
out I am also trying to listen to documentaries on sub-atomic
particles, just finished listening to a speech by Miko Kaku.
Theoretical Physicists
are always explaining what they do know about sub-atomic particles,
what they are trying to prove, via the Super Collider and Large
Hadron Collider, about sub-atomic particles and, more importantly,
what they do not know about sub-atomic particles.
We have all heard about
the Higgs Boson, or God Particle, but there are still things we know
little about and things that are only theory, like Gravitons and
Sterile Neutrinos to name but two.
I remember being
pleased with the announcement of M-Theory to make String Theory …
well kind work and I remember thinking of the 'M' stood for Membrane.
I think the scientist that came up with it did not divulge the
meaning of the 'M' until much later and when he did he said it stood
for Magic.
I very much look
forward to the creations of greater test apparatus for extra solar
planets, gravitational waves and more surprises from sub-atomic
particles and how they all work. If I manage to live that long of
which there are a couple of question marks over?
Back down to Earth,
quite literally, I have to somehow fend off a triple assault on my
life that has sent some of my symptoms into overdrive.
Back to wondering why
my brain, or body, tortures itself so much and so uncontrollably over
things that it should not. Things happening which I should take in my
stride but instead have uncontrollable breakdowns over. That is one
question that is made up of three different questions.
I have complete morons
to deal with that think themselves so clever when the reality could
not be further from the truth. You can explain this to them of words
of minimal syllables but they are still unable to comprehend. The
mind boggles.
Then there is the other
question and that is … just what exactly is going on in my own
brain that has been boggling my mind for many years?
I may well be about to
find out, unless these morons I speak of think its perfectly OK for
the public to be lied to and cheating to go on because they believe
there is a greater cause that only involves money. More so than human
life or suffering … provided they can get away with it or that they
think when the public find out they are too selfish for any reactions
to take place that allows them to just carry on regardless?
However some things
cannot be buried away and lied about. This is because there is an
ultimate conclusion that cannot be avoided and that, of course, is
death. They simply cannot lie and say there is nothing wrong when
they know you will die from what it is they have lied about.
Unfortunately for me, though it does not quite feel that unfortunate
you might think bizarrely so, death may be the result and those
results are … on their way.
After this weekend of
the 17th and 18th of September will be the
period of a week or two when you think you might get that
phone-call as that is when the
results would have been received. Unless, of course,, it happens
sooner.
Many
like to play down these possibilities while forgetting that they are
in fact possibilities and the signs I have had and what I had read
seem to suggest they are much more likely than usual. The times that
things are done and the speed that the NHS moves is fixed. Those are
the facts and they have even stated them, rather stupidly, on letters
and on notices on their own waiting room walls. I did not put these
there, the NHS did. I can only go by what I read and the fact is that
the NHS takes forever to move a single muscle. This is also not the
case this time around and so a third reason that makes me pause for
thought.
But
things will be what they will be … you cannot cheat fate.
Personally
and if I am given a period of time I will spend it enjoying myself
kicking the big three public services in the nether regions so hard
and for so long they will be feeling me into the next century and
beyond.
I
can also tell those that think they know everything while being
experts in very few subjects, if any at all, “I fucking told you!”
These
things do not need a cancerous tumour to take place as I am sure that
some cysts can in time become dangerous, if not quite as dangerous as
cancerous cells building up in your head? A tumour and a cyst are …
lumps, for want of a better term, and pressure in the cranial area is
pressure in the cranial area and not good at the end of the day.
The
Arachnoid Tumour has popped up as another possibility and maybe there
are others I have not been able to come across and research? What I
am looking for is something that matches 5 or 6 symptoms and maybe an
extra one?
I
could just as well be looking for two things to match these symptoms?
Forehead
irritation, eye socket irritation, ears and nasal problem, blackouts,
seizures and in the case of a brain tumour … stomach pain, though
quite how that last one works is a complete mystery to me.
Not
only am I expecting the head MRI to answer at least three or four
questions … possibly one to all of them, but also the EEG scan
should show something is up. Because I jerked three or four times
from pain, which is not exactly what it was looking for I do not
think, but it is something I get and happened while having all the
electrodes on my head. Pain signal goes to brain, brainwaves are
being monitored while it happens and so boom! A reading. Might not be
linked to the seizures but I received strong pain signals while
seated doing nothing so should be noted by health professionals?
So
like when I was told there was nothing on my ultrasound test of my
groin I will know they will be lying. There was not one but two
things on the ultrasound test of the groin and they lied about both
of them and then admitted it … while being recorded by me. Thems
are the breaks with me I am afraid.
If
I can speak to the Neurophysiologist about the Large Hadron Collider,
sub-atomic particles, how Graphene works and other areas of science
it is not a stretch to imagine that I first cannot be fooled and
secondly prepared for it just in case I am?
I
have always been
prepared for it just in case I am. In fact I had to kind of 'wait it
out' so to speak to see if they would ever attempt it again. It is
all in the planning and the details.
I
just did not know that my bloody anxiety would come back to dog me
just when I was about to blow onto the scene again with both old and
new … umm, material.
Part
of me thinks that this will all really e the test of all tests of the
system and the attitude towards human life and human suffering.
After
all I am being attacked from all of the only three sides that are
available … outside of legal action against my blogs that is. I
have pains in my heels, arches, ankles, hips and back and added to
this a seriously screwed up short term memory and skin conditions. A
few … accidents that have the chance of occurring as well as
embarrassing ones I have to deal with. Added to all this are the
blackouts, seizures and difficulties with heat and humidity that has
me sweating buckets and also another embarrassing thing.
Let
us be honest here for a moment and for arguments sake sate I was able
to do a job of some kind … who in the world would bloody employ
me?! Anyone that would, would be one hell of a brave person! Just the
memory problems alone would be a big no-no.
I
left my house forgetting to take my medication on Saturday morning. I
got ten minutes away when I realised I had left a lit cigarette on
the side that was a real fire hazard. I had no choice but to go home,
then could not find my keys only to discover them hanging out of the
damned lock! This memory issues occurs several times daily … not
now and then but daily.
Just
that alone would put off almost all employers, quite unfortunate but
very true.
Factor
in all the pains and other things and then the fact that my condition
means that I do not sleep like normal people. Even the physiologist
that performed the EEG on me knew the importance of restorative sleep
and was fascinated when I explained how Fibromyalgia sufferers never
get it and even more so when I explained we are not even allowed the
only prescription drug that can deal with this problem.
Except
there is a much of morons that seem to be able, and like, to tell you
what you can and cannot do?! They also do not like being directly
called idiots or you inferring that they are idiots. Well sorry but
if you open your gate and say something your not sure about but with
conviction because that is your job … then your an idiot.
Whenever
I am watching any documentaries to do with particle physics and the
evolution of the universe it always results in my brain putting
something into contrast.
Today
it is that we have habits. Habits that some naïve people and morons
alike think we can just switch on and off. I have always wondered why
we cannot switch them on and off so I get annoyed with those that
think that we can.
For
instance I have picked back up what was a very old habit and that is
smoking. I cannot quite get my headd around the fact that I have
become so reliant on this habit yet again. I know the cause of the
reuptake but it still baffles me as to why it is. It is more or less
a nervous habit. Yet it does not really do a great deal for nerves,
depression or anxiety and yet still we can end up feeling like we
would not be able to cope without it. I am sure this is true for many
for many other drugs and therein lies our biggest problem.
For
years and years TV, the news media and the medical profession has
harped on and on about how unhealthy these drugs are and done there
best to get people to kick their various habits.
All
those years and all that money and yet they have never decided to
tackle the root cause of the problem and in fact quite the opposite.
Life
has been filled with complications with more and more things to do,
more and more things available to us and more and more in the way of
bills, taxes and responsibilities. It became apparent a long time ago
that this became too much for people and as this number of things to
keep track of increased to the problem of bad habit forming has
grown. You can also add much to do with crime into this equation too.
Yes, not all addictions are down to this and nor all crime but a very
large percentage of each will be.
But
and as I have stated in the past we have continued to do things in
old fashioned ways and allowed more and more things to pile up onto
those we already have to deal with.
When
your financial situation has certain … constraints then pressure
starts to build up and I know this to be true and it has become more
and more apparent as the years have gone by.
This
is primarily because of my ever more failing memory. But there came a
time when I realised that even without memory issues all of this
would put pressure on anyone.
Morons
that do not realise that companies and public services are not very
good at things and do not ggive a crap that they are not very good at
things often make mistakes. But companies, public services and morons
all say “Ooh put it all on direct debit, then you do not have to
worry about it!” which is good if you have a large amount of
disposable income. But a large percentage do not or at some point
find that their disposable income has evaporated. Maybe they were
fortunate enough to see this coming and maybe they were not? The end
result is the same though as you still have to end up juggling and
you have to remember everything.
We
simply cannot take too much on board and we are not very good at
multi-tasking, at least beyond a point that is. You have all the
trials and tribulations that comes with your career or job and if
your in one, those of a relationship as well and maybe even children?
But
you still have all this exxcess stuff to keep track of and on top of.
In
recent years and with the Internet and crafty video games console
companies and social media among many other things the amount of
things your bombarded with from the Internet can swamp you to the
point that you feel like your drowning.
It
is funny how all these large companies just think that everyone has
large amounts of money lying around doing nothing that they can dip
into at their hearts desire? Anyone owning a Sony Playstation has
found themselves having to pay a monthly fee as have those owning
Microsoft's Xbox One.
The
one thing that you can be certain is that the number of these
companies wanting a monthly fee and the number of taxes the
government want money for will both increase in amounts and in
number.
Of
course while your doing all that and juggling everything your told
how bad you are and how we are all going to run out of food in a
decade or two?! Wait … why keep telling us this? Because they do
not want to have to deal with it and we have to take responsibility
of all this too?
I
sometimes ask myself what exactly it is that governments actually do
that actually benefits the societies that voted them in? They look
after each other, owners of big businesses and believe their bollocks
and do very little for anyone else that means anything.
Just
as I predicted on here David Cameron and George Osborne not only made
no difference to the national debt but actually managed to make
things far, far worse. They went just as I thought they would, though
later than I thought, and still things actually seem worse right now
than they did when they were in power.
I
also stated two things and one is that the destruction was done long
before them with Tony Blair over many years and that you would simply
get someone else who thinks themselves way smarter than the last one
and prove this not to be the case. Mainly because many have realised
that Tony Blair screwed things up, as well as commit a few sins along
the way, and everyone is a lot smarter than they were.
That
does not mean to say they are smart enough and that still remains to
be seen.
Now
we have Theresa May and whatever cronies she has surrounded herself
with … oh I do hope I am wrong about that.
One
day I would like to see a change come about to truly make things
fairer along with an apology to all disabled people in the UK about
how they were treated and tricked.
Ever
since Tony Blair was in power the government were creeping up behind
disabled people with a large club to bang you over the head with
while you were not looking.
I
know that in the beginning Doctors and Specialists were not aware of
this actually happening and I know this to be true because I have
conversations with several of them. One even stated she suspected
something was going on and had to do her homework before realising
that it was.
Then
the reports started to come in from far and wide that Doctors,
Specialists and Nurses were being asked to lie about patients. This
was so that the NHS saved money and the DWP saved money and indeed
those that were doing this asking were from the DWP. It also become
obvious to me that this would then save money for every local council
too, as they provide support services to the disabled.
The
fact that they did this while continuing to receive very large
salaries from the public purse themselves filled me with rage.
Contempt for these people simply is not strong enough a word for what
I felt for each of them. The attitude was if their salaries from the
public purse was theirs by birthright? That they were of a different
species to everyone else? That they were far more superior and far
more important than anyone else.
And
he wondered why he got booed at the London Olympics?
The
same rule applies to put an end to all this and that is that a large
enough section of British society simply needs to realise the truth.
Oh and give a fuck about anyone else other than themselves that is.
Still
working towards that and it feels like it has been forever and a day.
Now
I am going to go back to another of Brian Cox's lectures on particle
physics, this time at Cern.
My bloody word … this
morning was the worst morning so far!
I was up around 6.30am,
not a good sign I will get to in a moment, and downstairs scouring a
very unusually slow Internet for help.
I have had this in the
past, I most likely mentioned previously, and it is one of the worst
feelings in the world and pain is preferable to this. I think this is
why people 'self-harm' because I have considered it both now and
previously. Along with the ultimate way to switch things off for
good!
Back when I had it
previously I had terrible trouble sleeping at all. Considering that
the Fibromyalgia Syndrome I suffer with fairly badly is because we do
not get any restorative sleep at all, this was not good. Of course at
the time I did not know it was Fibromyalgia despite the 7 years of
asking. I had to go and find out for myself and when I did realised
that my GP at the time knew what I had as had everyone I had seen in
the NHS for two years previous to this.
So at the end of the
day I was left to rot, in pain physically in over a dozen places,
terribly embarrassing symptoms, memory that fails to function and
with anxiety that made you want to take your own life. Yeah I got
angry with the system because I realised it cheated and was full of
people with no heart, feelings, compassion or capable of regret.
Every single little
thing you need to do starts to become a 200 Meter Olympic sprint!
Every time you think of something you have to do and I mean anything
… the anxiety strikes. Every time. You think about shopping you
need, a bill you have to pay, having a bloody bath or shower?!
If you go to any site
catering for mental health issues it will have a list and one that is
always present is 'You find normal daily activities difficult'. Or
something to that effect.
Combine that with 6
foot pains, knee pain, back pain along with embarrassing sudden
vomiting flaky skin and with the worst possible embarrassing thing I
rarely mention second only to being drugged to unconsciousness and
taken to the high street and waking up there naked.
It is something that
you wont want to admit but that you can .. involuntarily .. do, do to
yourself?
Then add memory loss
that occurs several times each day.
So this morning was
really bad .. I am not one for self-harming, previously going
straight to suicidal and sort of have, but I wondered if there was
some relief in it today. Because …
I left the house to
drop off some cheap coffee to a store owner I know. After a bit of a
chat and telling him I might admit myself to hospital, though asked
myself why I would bother. I also had en Employment Support Allowance
application form that the Citizen's Advice … oh crap, .. right I
have emailed the Citizen's Advice Bureau. I had forgotten to do it.
Same old, same old.
I took an ESA claim
form to the Job Centre as was instructed by the Citizen's Advice but
they refused to take it as I have an ongoing thing with them. They
guy also told me that Employment Support Allowance was only a
temporary benefit and that people had to be re-assessed. Interested
now that he said that I asked the guy how often do people have to be
assessed? He said “Every 13 weeks” and I said “Where? Here?!”
and he said “no, an outside company does it” and I replied “oh
you mean companies like Atos?” he made some remark about how they
are not so involved in it anymore but basically said in a roundabout
way that it was. A company like that. I then stated that it was
stupid to drag people with disabilities all over the place every 13
weeks if they had conditions like mine that were incurable. He made
some of the crap excuses, jobsworth stylee, and I could have told him
that I know they have asked people and me to go places like Ilford
and even Chelmsford in London boroughs. Itt is not really worth the
effort and mostly they do not have the common sense to agree with
what you say anyway, despite how bloody obvious it might be.
I was in pain and
feeling somewhat … out of it, or stoned even, as I was getting
about but the pain seemed to have an effect at lowering the anxiety.
Due to this and realising it had, had this effect previously I wanted
to continue walking until I died.
I then thought 'perhaps
this is it? The reason people self-harm? Perhaps I should try it?'
Anything .. absolutely anything is better than this!
Except perhaps the pain
I was getting in my stomach recently? My GP held to fingers, I think
it was, into my waist on my right flank and asked me to cough.
Something hit his fingers that was not supposed to, apparently. Hence
why I am still awaiting one more hospital letter.
Each time I have grief,
pain from my stomach, anxiety attacks and difficulty getting about I
ask myself why it cannot be something that just kills me. Though this
is still a real possibility from the blacking out and falling
unconscious for ten to twenty minutes at a time. Find out at some
point in August, possibly.
I literally thought
this morning about walking in front of a bus or a lorry but this
would not be fair on the driver and witnesses on any bus. Would be a
harrowing thing to put people through.
Good God, I wished I
had known I was still capable of having these anxiety attacks! Also
about any threat to my home!
Hmm .. I am finding
something out for the first time now! I shall explain ..
Now first off for a
time and was about to look for someone I could talk to about certain
things .. my blogs for starters. I had an idea to start my own
business some years back and even way back then, before they kicked
me off wrongly for 7 years, I asked for help.
I do not have to tell
you this as many others, albeit begrudgingly at times, will tell you
or admit that I am not only good at what I do but also how many
things I can do and know about. Well I do have thirteen blogs and do
not cover every topic I am into or know about.
I have also thought
about doing something part-time, which really is all that I could
handle with my conditions but I do have to be careful over certain ..
things. No one wants to sit on their arse doing nothing all day and I
certainly don't. I even thought about asking the Citizen's Advice on
my next meeting with them about this … is like a kind of help,
advice and support role?
This is all proved
because of the existence of my blogs which also show what I can do.
I would dearly love
something to do .. I really would and struggle to find things to do
most days, as the weather is crap as opposed to good where I would be
out and about on my bike with two cameras, one a massive 83x zoom
Nikon and the other a waterproof camera that is more or less
identical to a GoPro.
I cover both these
purchases on my blog and my YouTube channel.
Well I was surprised at
the pressure that the DWP and their ESA were putting on people and I
decided to go and have a look around the Internet.
The
good bit: they can offer wellness classes such as walking groups,
CBT, help with CV preparation, training to change occupation - all
sorts of things.
This was an interesting
part of a web-page I was looking at.
The
other group of people on ESA will have been placed in the Support
Group (a misnomer in my view, as they don't get any 'support')
because they are deemed too ill/disabled to participate in any work
related activity.
This was another
interesting one but I am so negative about these people, hear so many
bad stories and have heard them lie to others, to me and even on TV a
few years back. Documentary about Job Centres that claim they have
lots of jobs but were proved to be all fake. Turned out to be very
old jobs but pretended that there were jobs so that they could screw
people on benefits that were actually looking for work!
This is so wrong to the
point that everyone ever associated with this that carried out this
shit should be fired on the spot. I would love to have a Job Centre
to go to, to genuinely speak to someone about help. Tried it when I
was registered disabled several years back and they told me that
despite me being disabled there was no help available?!
Well that shows how
much they cater for people with disabilities looking to either work
or start their own business?! Fan … tastic! Not!!
You
need good medical evidence for any appeal, and it needs to be
specific to the grounds of your appeal, not just saying you have
Lupus. It is not about your condition(s), but about the functional
difficulties you have because of the condition(s).
Annnd … worrying.
If you have a condition
then it comes with problems, symptoms and implications. Including
Lupus and I find it strange that they mention this because I know of
someone, a friend's sister, who has this. She was on DLA and like me
and tens of thousands of others was kicked off. Also just like me she
fought for years, not as long as I at 7 years, to get it back and
did. When I mentioned to this friend that the DWP were singling me
out yet again and now going after my Incapacity Benefit she told me
they were doing the exact same thing with her sister, yet again?!
She even had an MP help
her and write to and complain to the DWP! I think the MP even
accompanied her on a visit. Now that is an MP I would like and would
also like all MP's to be like. Not just swanning around with on
overflowing feeling of self-importance!
The
good bit: they can offer wellness classes such as walking groups,
CBT, help with CV preparation, training to change occupation - all
sorts of things. It does not involve being told to apply for jobs.
They cannot ask you to do anything that would make your condition
worse. There is really nothing to be afraid of. If they push you in
a direction you are not happy with, complain to their manager and
complain to the Jobcentre.
The good bit about
that? “They cannot ask you to do anything that would make your
condition worse.' The webpage.
Apart from asking a guy
that can have a potential two dozen black-outs per day, in constant
pain and on loads of medication for it, forgetful beyond belief and
can do,do oneself or vomit all over someone to drag his arse across
London to submit to a medical assessment!
It is literally a
contradiction. So your disabled and they ask you to travel several
miles on several public transport vehicles so that you can have a
medical assessment to see if your fit?
If you Do turn up then
your fit and if you don't … they cancel benefits, despite being
accepted as disabled a year previously? For an incurable and
degenerative disease?
Dr Kirkham at Guy's
Hospital told me, and audio recording of it on here, that he has
patients that are quite literally bed ridden! I really, really did
not want to hear that.
He told me that he
could tell I had, had Fibromyalgia a long time as I had worked out
that cycling is good as you need light exercise and that you cannot
do too much nor too little. The latter is one of many reasons why I
could only manage something part time but even that would scare the
crap out of me.
I do not want to be
sitting on my arse all the time, I do not want to be in pain all the
time and nor do I want to be bed ridden!
Over doing things
normally shows up, not immediately which is the weird thing, 24 to 72
hours after the over-doing it. Or more accurately 'flare-ups'. This
can come in any number of forms and simultaneously too.
So I have no issues
with doing something .. part time but it has to be somewhere I can
reasonably get to by a single bus and not in busy hours or by bike.
If the latter then somewhere to place my bike is obviously a must.
There are many things I know about and therefore many things I can
do.
Be bloosy typical if
they placed me in the Lea Valley Park Authority?! I would like
working with and for nature but I have a little bit of a history with
them on here. I know they are on a bog con, plant British Orchids and
then probably go to each local authority the park runs through and
asks them each for £Millions.
They are also really
bad at park management and I have lost count of the number of people
I have spoken too that live locally to the Lea Valley Park, some even
knowing a thing or two about nature who complain to high hell to me
about their management, or lack thereof. I have even given them some
free advice that they ignored but did reply to my email and told me
lies about areas of the park being all natural. This particular bit
has not only pond liners running underneath the ponds but also a
tough liner running several hundred metres! I kid you not.
So the ESA have this
WRAG thing, Work Related Activity Group? Sounds good as long as these
people have a helping hand and not a cattle prod to force you with.
I notice they have CBT
which will be for sufferers of mental health problems? Yeaah … CBT,
or Cognitive Behavioural Therapy, is good in theory … except you
have three problems …
It does not
always work
It generally
is for people who stress out over spilt milk and not those that
suffer attacks over pretty major issues
Any medical
professional in the mental health areas think this CBT is like some
sort of magic when in fact it is nothing more than snake oil … or
placebo effect mechanism
I belong to the latter.
Nothing will help you until that major threat goes away and you are
re-assured that all is well. Or it is proved to you.
With CBT you are given
tasks to do … you know … tasks that are not important and you
have difficulty doing the mundane normal daily activity ones? Yeah …
that is stupid. How can I concentrate on a series of tasks when I
have one driving me towards suicidal thoughts? The feelings do not
stop until the threat is gone or you take medication for it.
Now if you were
extremely unfortunate to be someone that has to live with what I am
experiencing all the time and without any major threats of being
homeless or starving to death … yeah Cognitive Behavioural Therapy
might work in a good number of cases?
I found that with some
strong believers of CBT that if you cannot focus on it then their
attitude is that you obviously do not want to help yourself so they
cannot be bothered with you. If we could help our bloody sevles then
we would not have gone to them in the first place!
Someone really needs to
sit each of them down and explain how the Internet works and that you
can find out just about anything .. for free. I know because I have
been using the Internet and had email addresses as far back as 1997.
1996 even when I did my Access To Computing course.
Now on the Fibromyalgia
Action UK site it states that the DWP, or rather the assessors, are
treating Fibromyalgia sufferers unfairly and are requesting people
contact them with their experiences!
PIP
claimants are being forced to travel long distances to unfamiliar
places in order to have a face-to-face medical assessment, due to a
shortage of assessors and assessment centres and a computerised
booking system which ignores claimants needs.
The inconsistencies of
the DWP over Fibromyalgia being a disability has run for years …
ask them outright and they state that it is. In a support group I
attended but keep forgetting to attend any other for the last ten
months or more I was the only one with a walking stick. Lol.
In the group there were
teachers that did not realise it was a disability and was having
trouble coping with her teaching job. She was advised, while I sat
there, by another group member who worked for a local council,
possibly Enfield, that they local authority and school need to cut
dowen her days so that she could cope. She was often reduced to tears
over her condition.
She showed absolute
surprise it was classed as a disability and when she asked the lady
advising her if she was sure everyone in the room said simultaneously
“Ooh yeah, it is!”
Hi
Lisa, i have fibro and i am getting DLA it took me a while to get it,
i was refused untill i was asked to go to a medical by the DHSS and
asked for a home visit, after this visit i re- aplied and had no
problem getting it.
Some
people get turned down more than 3 times but just keep appealing the
eventually you should get DLA.
All
of the best, keep your chin up
CHORLEY
Here
is an example of someone getting DLA for it, though I was refused
despite having a rare form that affects my feet along with other
things.
I
applied once for DLA with two spine curvetures, a hernia,
fibromyalgia and irritable bowel syndrome got turned down have not
bothered since, Then my medical for being on ESA consisted off
wriggle my fingers and toes gently then raise both hands to touch my
shoulders slowly and gently , bend forward three inches slowly and
gently, lay down on a couch provided and lift my foot 3 inches off
the couch ... I was not let to be able to speak each time I tried to
speak I was loudly spoken over I knew within the first very few
minutes this medical is a complete fix
There a lot of stories
like that one .. a lot.
Basically the DWP and
government want to save money and they are bing opportunists and if
your being opportunists to that extent and the experiences are as
different from person to person with the same condition then they are
not being fair and obviously not medical specialists.
Surely there is a law
for pretending to be medical specialists?
If I bought a house,
spent money making it look like a GP Surgery and advertised as a
private General Practitioner or even a specialist … without
qualifications of any kind I am damn sure I would go to prison at
some point.
Yet time and time again
with plenty of medical professionals around the sufferers to get
things from you have to be and be assessed by people without
compassion and without medical knowledge or even an understanding of
conditions. Be that understanding cold and clinical or warm and
compassionate.
Hmm it seems that
according to the Fibromyalgia Action's website there is going to be a
documentary about people with Fibromyalgia which is a high profile
programme looking at disability benefits and the impact the changes
are having on people's lives?
On the following
Fibromyalgia Action webpage are a few instances of people with
Fibromyalgia and even one celebrity model, Jo Guest, who speaks about
the illness ruining her life and career.
I will have to look out
for that documentary about Fibromyalgia and see if I can get someone
to tape it for me? Maybe it will appear on YouTube? Ooh that is an
idea?! I can search for Fibromyalgia on YouTube!
If your treating people
that have the same illness differently then you are discriminating
against them in another way. It is as simple as that. Whether this is
race or class or even unemployed people it does not matter. A Single
Honours Degree in Applied Computing and turning down a PhD working in
the world of medicine does not win you any brownie points!
Now I have mentioned my
memory loss, known as Fibrofog, and I have stated very clearly and
repeatedly that I fully understand the frustration people get with
Alzheimer's Disease even the early stages. Your loss of memory causes
stress, irritation and anger.
In the video above one
woman states that she was experiencing memory loss to the point that
she thought and was scared that she had Alzheimer's.
It also states that do
not understand it and there is NO CURE for it, as I explained to a
warm and lovely lady at the DWP who phoned up someone with memory
problems asking them why they did not do something. Hence I get angry
and I did with her. She denied it when I said they clearly had no
knowledge of Fibromyalgia at all and were not capable nor qualified
to assess anyone with this debilitating condition.
This is why I have
never been shy about showing my frustrations and anger because you do
feel this all the time and you simply and scientifically cannot turn
it off. We really wished we could.
How about one woman
that starts of in tears over the constant pain? Well look at this
shorter video on Fibromyalgia Syndrome …
Umm … WOW!
The lady crying talks
about not being able to handle heat and feels hot to the point of
burning all the time. She also states that she has two air
conditioners, something I have stated several times I would die for,
but still has trouble.
That is the first time
I have heard anyone mention trouble with being hot like me!
Another one mentions
Restless Legs Syndrome which I have along with the much rarer
Restless Arms Syndrome. I think these are basically the same thing
and if you are bad then you get it in the arms as well as the legs. I
would like to bet that only arms affected is extremely rare or even
non-existent?
One states that people
with Fibromyalgia require a lot of care and attention … yeah and I
live on my own! I have stated so many times on my blogs and to
Doctors how hard it is living on my own.
The very short version but there can be up to 200 odd symptoms ... hard to believe andd was for me but when I went through a checklist of every possible FMS symptom I had close to 120, though when Guy's Hospital diagnosed it they disocvered my right knee was a separate and physical issue. Go figure!