EXPOSING THE DESPICABLE

I never thought things would get anywhere near as bad as they are.

I'm currently in a situation where two members of my own family who are just young children have been diagnosed with Autism. Not one, which was bad enough, but two.

I made a sacrifice, fought and still fighting against my health issues and anxiety to be here and have been here over a month.

The first visit and decision was made around six weeks ago.

It has cost me money I hadn't budgeted for in a time where I was spending a lot of money to effectively start my own business and go self employed which I was then stabbed in the back over by the Job Centre and DWP.

Yet the odd thing is that I've made this move because of my family being stabbed in the back by the NHS, local council and DWP.

I've realised the schools are not too fucking great either, since I've arrived.

I've also been informed that a sufferer of diabetes I know back in London who had already lost one leg had his disability money stopped. Told to me by another diabetes sufferer I know who thought nothing would happen to people with diabetes. Who himself was put out of work over two years ago. 

Who previously was a social worker for 25 odd years.

So even the professionals are being affected now, little by little and one by one. No one will escape this the way it is going.

But it still came as a surprise to read in a BBC News report linked below of Hayley Smallman and the despicable way she is treated over her daughter Holly Smallman.

Holly is afflicted with some complex health issues that are both life-limiting and life-threatening and yet there is no support available out of hours?!

What I find most interesting about the report is that Hayley Smallman states something I have constantly stated for well over five years now ..

"I am not a clinician"

It's staggering that over time we have been expected to be ever better specialists when it comes to health. We should be able to self-diagnose and identify whether what it is that affects us is an emergency or not!

I myself had to self-diagnose after getting fed up of asking a long line of clueless Doctors over a period of 13 plus years what I was afflicted with.

After having my own diagnosis confirmed by Guy's Hospital after some blockades to prevent this diagnosis I then realised symptoms I'd been having over 20 years were down to this Fibromyalgia Syndrome nonsense.

To make things worse my daughter has been having almost all the same symptoms as me even down to the short term memory problems. Yet she has not been diagnosed with Fibromyalgia despite the fact that she has a particularly dangerous symptom that I do not. Well as far as I know. Recurring blood clot in the legs.

In case you were wondering ..

Yup .. two of her children, my grandchildren, are the ones awaiting a diagnosis for Autism we were first told about a couple of months ago.

Added to this I'm expected to find out in a couple of days that I'm being stabbed in the back again ..

Despite me making the sacrifice and far flung relocation while suffering myself to help my family. 

My family the public services have been fucking over for years now.

Even Wirral Council have been sending social workers here but actually do nothing. In fact I'm pretty darn sure that Wirral Council are doing this to look for things. They were previously  chastised over my daughter and, of you look, have been declared as inadequate by Ofsted themselves.

As these bodies are reluctant to give such rulings on the public service they .. watch .. things must have been bad?

Except .. what has happened since they were declared inadequate? Well if anything had happened, of anything had improved then I'm sure the locals would have informed me.

Yet from what I understand many mothers still live in fear of social workers and the council.

So I am now in a family of six and only two of those are not disabled ..

• Me, grandfather .. Fibromylagia with foot pain, short term memory loss, high blood pressure (Hypertension Stage 2), postural hypertension, irregular heart beat, anxiety attacks, back pain, chest pains and many others
• Daughter .. Fibromyalgia is one I now recognise and many symptoms I experience plus a recurring blood clot o her leg
• Two grandchildren out of four to be imminently, at least I hope it is imminent as it has been six weeks or more, diagnosed with Autism .. just an audiology test to do on each

I saw this on the BBC and thought you should see it: 'I'm dealing with life-threatening situations - but I'm not a clinician, I'm a mum' - http://www.bbc.co.uk/news/health-41927703