Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Thursday, 26 December 2019

COUNTRY OF THE SHAMEFUL


Thought about writing this one a couple of times. Did not know very much abut what had happened and chances are there might have been, though I had hoped not, more developments over Christmas.

There were.

Once again British public services let us down only this time it could have proved fatal. In fact several services not only let us down but have continued to do so.

  • NHS
  • Police
  • British Justice (about to again today Thursday 26th December)
  • Local Council

All the above are responsible for what just happened and are responsible for the whole thing in the first place along with others that have occurred.

In fact I can tell you, and then if they are reading this that the 12,000 followers I have now built up around world both have been and will be utterly shocked to the core upon hearing only parts of our story.

Often tell them that what they heard or even the length post called 'Country of the Damned' they get to read and hear recordings in is only a small part of the story. It has also gone on since 2011 though technically started in late 1994. In fact you could argue it goes further back than that.

Failure after failure after failure I would not have allowed to happen had I been aware back then just what utter failures and incompetent, corrupt idiots the public services of the UK were.

Spent years with people I know thinking I was mad when I first realised though today all but one or two realise I was right all along.

Trapped with family that either I hardly hear from, none rang me yesterday and two have not rang me for months, I had a call fro my daughter.

Now with a new witness and someone close to the situation I spoke to on the phone my daughter cried and two lines I recall hearing as she sobbed.

“They have ruined my life”

“I have no family”

Could not even begin to describe what if felt like to hear that or a few hundreds other lines I have heard over the last 20 years, the vast majority of them in the last decade.

Despite people being shocked they tell me to carry on fighting as if it was a single short-lived event and are not affected by it any longer. Always told them there will be something else down the road because the authorities of the UK have become a joke and a massive waste of taxpayers money.

After domestic violence from a Muslim husband he went to jail. We were told he would be inside for 9 years. He got out in fourteen months. He got looked after by the authorities including Wirral Council, was given a home and the Liverpool Echo tabloid gave him £20,000. Yes you read that right. You can read more in the post I mentioned above.

We never got anything in the way of support and I mean anything and I have a disability the public services decided was not any longer, my daughter was later diagnosed with the same thing which is Fibromyalgia. She also had cervical cancer from her ordeals and Trigeminal Neuralgia while I have heart and memory issues along with severe back and shoulder pains that limit me getting about.

Here is an NHS list of the top 20 most painful conditions and not only are we both on it several times but my Fibromyalgia is particularly bad. Has affected my feet for around 15 years now, the memory is a pain like I could not describe too. But also its now affecting my heart and I am losing the feeling in my right foot.


My daughter also has one child placed with a paedophile. One with his evil grandmother. Two others are autistic.

I have tried to start my own business several time and was stabbed in the back over it by the authorities each time.

My daughter has tried working and going to college.

She moved away from her area and now lives in Wales.

Now what occurred was that no local NHS Dentists would let my daughter register herself or her children and she tried this for 6 months. Were issues with GP Surgeries too.

Eventually a couple of times she was forced to go all the way back to the Wirral .. which must be 90 miles away?

Only the last time she bumped into her husband who accosted her in the street demanding to know where she lived. Members of the public had to separate them.

The he started turning up at the homes of people that knew my daughter demanding to know where she lived and one was her mother's house with my daughter present and the Police got called. His name is Lukman (though this alters) Yasin-Khalil and he is a cousin who is gay, called Adnan, that my daughter thought she could trust. I had warned her not to trust him a couple of years back.

Now I am told he attacked my daughter and left bruises on her arm. I said “told you not to trust him, didn't I? These people really do think they are the master race and above all others” to which she said “yes”.

Accosted by a man that is still supposed to be in prison to which she relocated many miles away to get away from she is then forced to bump into because of all the authorities above.

Authorities that have consistently and repeatedly failed us for a decade.

Now I am told that not only is he in court but that as the Police are only aware of one breach he will be let off?!

Yes sir, British law, the courts and judges along with the keystone cops really know how to deter these people from recommitting the crimes they carry out.

My daughter has new friends and upon hearing the story they simply cannot believe it. Added to this she now has a new love interest that my daughter wont tell her evil mother about and her husband knows nothing about.

In fact after the first run-in she cried to me down the phone because she was scared he would turn up over Christmas, find him there and someone would get hurt. Someone would most certainly have gotten hurt. I can assure you of that.

He would ring us from Walton Prison two or three times a day. Yeah that news report about them stopping the smuggling that appeared in the news was total fabrication.

Now would you believe I got accused of having incestual relations by this animal with my own daughter? He has also had fights with other men he though were too friendly with my daughter.

So yeah I can assure you someone would end up in hospital if not killed and yes this is the man that the courts let out, public services helped get him a home and was given a cheque for £20,000 while I myself lost £20,000 while we both went without any help or support whatsoever.

Was supposed to be living with my daughter and now I am not thanks to the lack of support and for awhile now have no access to health services, believe me I have tried everything, and no income as well as losing £20,000 plus.

Trapped in London in a place I do not like very much.

All of that would also never have happened had my online incoming not been frozen since 2016, so now more than 3 years since it froze.

Lost 90% of my belongings too in storage I could not get out two years ago. No home, lost my car and business.

So went onto social media to try and see if I could get offered help while all the while attracting more followers to send to my blogs.

Except even that has been messed with by Twitter and now the others too. And yet ..

After a hiccup I have now attracted close to 12,000 follower in 11 months, so not even a year, which has caused my many blogs to get far more visits then they ever had before. They still have adverts in place too so someone is getting paid, no?

Many years ago many people thought I was insane as they just did not think my stories could be true and oddly enough I anticipated his by acquiring recordings, again on the post called 'Country of the Damned'.

Like my daughter has stated 'they have destroyed our lives' and it seems destined to turn out that I cannot get enough people in my blogs until they have destroyed enough of other people's lives too?

Unfortunately I had hoped to forewarn other people of the danger out their for their children but I have had to work my backside off because people have just not shared our stories enough.

Social media giants might be completely behind this, they certainly had meddled and I know for absolutely certain that I have lost between 5,000 and 15,000 followers. Twitter was the worst for knocking these off and its been in the many thousands. On others I have lost several hundred on each and currently I have not been able to log onto Parler for four days and I know it works as I have followers on other platforms check this.

In case they deleted the news stories I have some screen-shots to go with the links and, luckily for me, the Liverpool Echo published a photo of Lukman.






Wednesday, 2 May 2018

AN AUTISTIC REVENGE

It would appear a test fur Autism is on the horizon?!

This seems to be coming about due to the idea that it might be down to a hormone deficiency? I think that's what it said but check the link below.

I've recently realised that they have been lying about Autism in diagnosis.

I'm my own first have experience .. first were off the charts with each of several tests. Then a curious report turns up stating that the child is just six months behind. This was a little after an assessment by a paediatrician was supposed to take place, except she didn't turn up ..

.. when she did ten days after the report was received she then announces that the child has no Autistic traits at all and just a little behind?!

That's the first time she's seen the child in four months and maybe the first time ever?

So after not believing what we were told and then seeing more and more of the traits over several months they then state it's all utter crap?!

So is the paediatrician an idiot or liar or is the person that first said she was Autistic an idiot or liar and all the tests that followed all flawed and therefore a waste of time?!

Of course .. it could be the case that I was lied to? I know there are people I know they believe that is the case and after several years I've not been able to prove then wrong. In fact they was proved to be correct about one single thing. Of course this opened the floodgates for a second over this.

Then .. came the chance to prove everything else to be true but .. as the story always seems to go .. excuse after excuse and delay after delay.

Still waiting.

Now there was supposed to be something taking place .. soon. But I decided to wait and see?

In fact if I had any confidence in this my health condition would not have flared up. Or at least not to the level that it flared up to.

I would have been still producing photos, as I've not processed all the pictures I took on my last day out. Which was well over a week ago now. It drives me nuts knowing there are still photos and that I first kept forgetting them before the severe anxiety made it impossible for me to go through the post processing stage.

That's just two of my long list of symptoms .. memory loss and severe anxiety.

In far the anxiety becomes a set of phobias .. more or less.

So .. now if this test for Autism emerges .. are we going to discover scores of children have been lied about in their diagnosis? Or are they going to figure out ways of rigging these tests?!

Autism test and treatment on horizon as scientists find hormone deficiency link http://flip.it/cmmM08

Monday, 23 April 2018

LIES IN PROGRESS

I cannot believe what I was told on the phone today!

After being in hospital for three days in the trot for a suspected blood clot for someone who has cervical cancer and a mother looking after four children ..

"Ooh no blood clot in your leg but we're concerned .. can you now go to A&E?"!

Are they fucking serious?!

That's three visits over three fucking days .. waiting for hours for the umpteenth time and they send her to somewhere where she will have a six hour wait?! And who looks after the children and due the things mothers need to do? The Cheshire Cat?! Mickey Mouse?!

Jesus!

She refused to go and they kept asking, why? Really and truly they asked why.

This was Arrowe Park Hospital on the Wirral and I told you I've been there and got treated like crap, promised loads of things none of which were seen through and had a very bad vibe in that hospital. I never wanted to ever walk through its doors ever again.

I thought that the hospitals in London were bad?!

Well it's just been proved to me and I'm afraid it gets worse ..

After being told my granddaughter is Autistic which I didn't believe .. until the very next time I laid eyes on her when she got excited and started arm flapping.

Over the next few months we saw more and more things. As did the school and the social workers who were the ones that informed us.

Many tests were done and it looked bad. Real .. bad .. a test result of over 70 meant Autism and she scored 225!!

A paediatrician was supposed to see her before a final diagnosis. Long wait .. put of the appointment at the last minute from January until April. Last week she failed to turn up. I get told she was there today and suddenly .. she states something I saw in a very recent report and said to a shocked teacher
"Oh I see no Autism traits, she's just a little bit behind"?!

I could not believe my ears!

Bearing in mind this is from a daughter I had to listen to while she told me that she wanted to throw herself out of a window and kill herself, several times lately.

Her life as well as mine really have turned into the lives from hell.

Three things have been acknowledge by her Doctors ..

Fibromyalgia of which they said they would refer her and just like the lies and tricks I've had .. six months later no referral.

Cervical Cancer they missed .. because of the minimum age and seemingly gets worse each time they look at it. We originally diagnosed as Stage 1A. What it is now is anyone's guess.

Blood Clot they have long since known about and you get fucked about for three .. fucking .. days?! And they can't understand why you can't give to the remainder of your third day?!

Are you people fucking born morons?!

No .. what I need to tell my daughter, we got cut off because Facebook Messenger is garbage, is that this is, obviously a lie, a conspiracy and can only be down to one of two things ..

Me and this blog ..

Her Cervical Cancer as they are scared that being reported on for her cancer, maybe even he death and then being fucked about with a severely Autistic child would cause too much of a public outcry.
Funny is it not that the pediatrician can't get to my granddaughter in four months .. fails and then turns to again within a week?! Funny that .. obviously not that booked to then?

Even if she is right, which she's not and it's a lie, we didn't refer my granddaughter. We didn't think she was Autistic. We were told she was. Neither of us believed it and thought it must be a mistake. Then we started seeing things. Then more and more things surfaced. Behaviour went down like a lead balloon. Well .. others said she was and made the referrals. She also failed all the tests, speech and language. Others including three supposed helpers who did fuck all, all see her behaviour. The destruction. The violence towards others. Inability to have a conversation. The schools noticed and not one but two.

So ..

If everyone incompetent bar the pediatrician?!

Is every single one of them from all the different support departments, two schools and Digital worker department all fucking thick?!

Don't forget this is after moving over suggestive abuse that was pretty bad and made the local newspapers .. there's a link in a previous post if you can find it.

Un .. believable.

I knew it was going to be bad judging be her voice. I told her I was going to record it, which I did.
I need to ask her if I can link it in here and people can hear for themselves?

Though I'm not sure if things are getting through as my numbers are behaving very oddly and ..
Well .. let's just say I've been in contact with someone who is .. questionable and shows done of behaviour and doesn't do themselves any favours ..

I called them out too and they admitted two links .. not one but two .. to .. government and somewhat .. clandestine departments.

Young mother dies of cervical cancer NHS missed and took too much time on then it's discovered they made mistakes over Deep Vein Thrombosis, deliberately neglected Fibromyalgia her daughter's Autism was lied about by the NHS after it was already spotted by receive else and all the tests proved it??

How about that for a headline?!

Admittedly it's a bit long for this world where everyone suffers from TLDR in anything longer than an SMS or Tweet.

Recording of conversation got an agreement for publishing ..

She is my daughter but I still have to ask permission .. even from her .. but as someone who acquired a contract signature, no more than that for now, has done nothing ..

https://drive.google.com/open?id=1flNyAR6kQmuVfgjZNI-0sGf1CgG7fLbH

Sunday, 26 November 2017

THE EVIL THAT IS

Well after escaping, or at least thought we had, three bullets sent our way by the DWP via their hired but ever more reluctant thugs, the Job Centre, it seems one was waiting for me.

It first thought I had dodged a bullet hat was purely manufactured by the DWP, Job Centre and NEA themselves but they still decided to fire it anyway.

I also first thought that it was not as bad as it could have been before realising that .. yes it is as bad as it can be because they cannot go the 'whole hog' on it. At least not at the present time at any rate.

What has happened is that I received a letter, a series actually and see below, when I finally got back to my flat after several days of not being able to get back there.

During this time there was on Doctors visit that went from ten minutes to over an hour because in realising the mother of four had a disability which was responsible for several things that had them stumped they found something .. else. Something that had them concerned to go demand that she has a blood test straight away at a hospital I am now due to go to for another serious illness. One that has me stopping after about 50 yards trying to get to a local store.

This does not include the things that we already know about with both of us .. and there was one other thing. One involved the eyes and one involved the .. stomach region. I am not even sure which of the two the blood test was for the young mother of four children had to have.

As for the children .. yeah there are the good moments. These are, albeit, far to fleeting. Often it feels like your caring for the devil's spawn and sometimes I get looked at with a face that tells me that someone is almost at their wit's end. I can fully understand that and oddly this was something I had tried to avoid happening but and once again and thanks to the authorities lack of help, insight and outright care and at just 24 there are four children to deal with. In a house that is far from suitable and neither is the house that is possibly about to be moved into.

The two youngest girls with autism are 2 and 3 years of age so not only is there the communication problem, they do not understand why their mumblings and blubbering of words while having a meltdown, are not understood.

Then there is the switching off or pulling out of electrical sockets when you ever say no to them, which is refusing to give them a whole pack of biscuits to themselves, full multi-pack of crisps, a full mug of juice 75% ends up on the floor or carpet and everything else they lay their eyes on. This has resulted in a considerable extra expense and neither one of us knows how to deal with it. I am almost convinced too that the vast consuming of mountains of crisps is very probably the worst thing on the world?! A slow burning fuel that lasts and lasts and I am sure fuels much of the meltdowns, fights and balling for tens if minutes at the tops of their voices?

Then there is the wetting themselves, the older of the two, when simply being told no. This not only goes on at home but occurs on a daily basis at school. Having been here for 5 or so weeks we actually got a shock the other day when we were told for the first time that she had not wet herself at school. Bearing in mind school is like from 9am until 11am or so, so only two or three hours at a time.

Then there is the things that they do with their excrement that has not only started with one but is rapidly increasing. Now the younger of the two has started to do things too. It makes you want to .. vomit and you often heave uncontrollably. It is something I had personally never heard of an now I am in a home with not one but TWO of them doing it. One still wears a nappy but has taken to digging around inside it.

Unfortunately this seems to stem from their father and a relationship that several years ago I had tried to prevent from happening. Now, it seems, like everything else caused by the lazy grandmother who not only caused but encouraged all this, I am paying for it. As is my daughter, of course.

Odd then that this person had been insisting lately that there was nothing wrong with either of the girls. I lived 250 miles away while she lived 3 miles away and even I could see that there as indeed at least one problem. Well I am sure that I had published posts after first meeting them and then while back in London before actually moving here that three of the children were a problem? You might have to check and see but it turns out that this is certainly the case with two of them. SO I town one day the grandmother and the cause of all this witnessed the older girl having a meltdown, showed a look of shock on her face, turned and walked away. Some help, huh? I have posted about this woman for a very long time now, five years, and explained how she was the instigator in all this and despite being defended by the equally responsible council the council now do not trust her.

After the grandmother walked away and after she eventually returned .. she simply said “Oh .. I did not know it was THAT BAD?! I don't know how your going to deal with that?!” to which she was then reminded that the younger of the two girls was EXACTLY THE SAME!

I was not there but I dearly would have loved to have been!!

The only thing that she has said since she has been here is .. “How does your Dad feel about me?” in some vain hope that there would be a reconciliation. As I stated to a few friends up here, who do not like her anyway, after everything she had done to first me and the horrors that my first YOUNG teenage daughter and no adult daughter has had to endure .. “No [EFFING] WAY!” Even if she was slim and extraordinarily attractive.

So no .. just to re-emphasise what I have previously stated .. there is no one up here at all and is the sole reason why I am here. All other relatives are scattered to the four winds and not heard from at all, much as I would like to chat to some of them.

Also there was an accusation that money was going missing from a great grandmother's account and she was dragged in about it to the social services. As per usual she got away with .. it, not going to say 'murder' as I do not want to tempt fate here.

So the sole two carers with serious illnesses that could turn fatal at any time to four children, two with autism, one needy, extremely selfish and constantly asking for odd are stealing it leading me to wonder if he has a tapeworm or an eating disorder. To the point that a social worker asked if she could see if there was food in the house as the youngest of the two boys and not a focus of the social worker department, who never turn up half the time at the house or at all for chair meetings, is always telling her is is hungry.

He is also the thinnest of all the children so that tends to suggest to me that an eating disorder is not that which is the issue here.

That's about all it amounted to .. that and an apology around two years ago at the end of a previous court case with the council.

Or perhaps the best one is having meltdowns in public with members of the public giving you looks like your a bad parent, resulting in my witnessing my daughter tick off people for said looks on occasion.

Added Note: After an initial pause that led to me going to the local shop .. twice and still .. forgetting something some things have occurred.

First off .. the needy boy spent the whole time I was typing this out, from 8am until around 10am, demanding breakfast, crisps and cereals. That was not really worthy of a mention. What was was first of all us discussing that the boy may have some sort of problem or even tapeworm due to the constant demand for food, seeking out food, constantly opening the fridge after dragging a chair from the dining room to get up into the cupboards. Then we discovered that a whole loaf of bread that I bought only yesterday was gone .. completely. Everyone was asked about it but of course we got denials from the two boys. Then we were going to make a couple of cups of tea from the milk I bought yesterday when there was still milk in a previous bottle when I returned with it. There was around two pints, or a little less, of the semi-skimmed milk and my daughter said .. “We can't have a tea!” I was confused and she held the bottle out to me. I was thinking it cannot possibly have gone off and smelt it and it smelt OK. In fact I realised that it smelt a bit more than OK and said it was .. fine. She then asked me to drink it and so feeling sure of myself I did. “It's fine. Oh wait .. that is Banana milkshake?!”

He had taken chair into the kitchen, got a hold of the Crusha milkshake and poured a large quantity of it into the remaining milk. Normally godawful in taste and like 90% of other things, except the Coca-Cola drinks oddly enough, it actually tasted .. normal!

A face-palm was what I did next and out I went to retrieve more milk.

This is a constant thing that occurs and I only have to spot a chair in the tiny kitchen and I wonder what it is we have run out of as someone who has been at it without asking and where that all now might be. Being all over the floor in the hallway and the dining room is a fairly common place to find stuff. From bread, toast not eaten, crisps, chocolate milkshake, apple or orange juice or any number or indeed combination of other things are normally lying in wait.

Then as I stated there is the excrement. Which can happen several times in a day.

Then there is the wetting themselves of the older of the two with autism. This occurred three times .. maybe even four, I lose track at times, in the course of a single day. A .. single .. day! That is three sets of clothes than need washing in a single day. One out of three children.

I can keep on going about the absolute nightmare's of having to do or deal with anything with them and that is without me going into anything that happens collectively.

In fact the needy and annoying boy of leaning over me as I type this, knocking my arm and knocking the laptop causing me to make corrections every few words. Now he is pointing at the keys and asking what each button does. This is after being reprimanded by his mother for being annoying and to stop it or he is going to go to bed earlier than normal.

What is annoying is that he does end up getting his own way and then is in the face of the others teasing them about it .. or teasing them about something he has been given. Try that the other way around and he is louder and higher pitched than a 6 year old girl. Two friends of my daughter are parents to a 6 year old girl and her and needy-boy cannot be in the same room for more than 30 seconds without having a screaming match. Despite the capabilities of your average 6 year old girl needy-boy has her beaten down to constant remarks from the parents of the girl.

  • Your worse than our daughter
  • Your louder than out daughter
  • We hear you more then we do our own daughter
  • Your higher pitched than our 6 year old daughter!

Are just some of the things I hear them state the tree or four times a week they are here, especially on Friday's when they spend the evenings here. Good .. God, that often ends up being a nightmare.

Just yesterday the older of the two with autism was diving down my pockets for money and I let her do it. This ended up on the floor at some point where needy-boy and the six year old girl picked them up. At one point the girl dropped a coin and the needy-boy picked it up and was gloating that he had more. Then he dropped one and the girl reclaimed it. Oh my God .. the hysterics that followed were not only well overly dramatic but the .. volume! I then explained that he was wrong in claiming that it was his coin and that he had taken it from him. I pointed out that by his own logic that if it is on the floor and HE picks it up that it is his. But suddenly the rules had changed. Now if he drops it and someone picks it up it is still his. This was a logic that I first tried to put to him but would not have it. But now that it suited him .. he wanted to apply it.

So for the next, almost, two hours four adults and an older brother tried to explain this to him but he was not having none of it. Because it did not suit him. That was the other night and not the first time that things like that occurred. Just the one fresh in my mind.

So today he gets fed after a constant two hours of nagging and then .. dropped honey all over the floor as he was fecking around as per unusual. He then started bouncing around the living room like a mad thing and I pointed out that this usual behavioural pattern of his seems to be after he was fed and that I wondered if it was food related. Then my daughter said something odd “I have wondered whether or not he has ADHD?” Attention Deficit Hyperactivity Disorder.

This was followed by me explaining that out of 12 people that I have met since I have been here .. five have autism, one has a disability, one has a personality disorder of some kind and one is up in the air with the ADHD thing. I have also seen many people who were obviously afflicted by one thing or another since I have been here. Even these others being forgotten about we have a ration of over 50% here. This is not .. right. In any reality.

I stated that I wondered whether there was some truth to things being in the tap-water? I had heard things in the past but had always put them down to the tinfoil hat brigade. Also I used to visit Woodchurch a lot twenty years ago but that things had changed a hell of a lot from around fifteen years ago. Even my daughter's Nan admitted to e that she could quite not believe how things had gone downhill in the ten years since I used to visit regularly. It appeared the .. same. But just that the people, attitudes and the .. trouble and crimes committed had increased .. vastly.

But with all of that .. I am being kicked in the teeth and therefore my daughter and grandchildren are going to be kicked in the teeth.

I said to my daughter this morning that unless I was able to sort this mess out I the next three months I will have no alternative than to return to London. Because after six months I will not be able to pay my rent any longer .. it is as simple as that!

As have been typing this out I have been feeling anxiety and heart palpitations along with the tightness once again. Which invariably means irregular heart beat as is normally the result when I use my blood pressure monitor .. though I am sitting down and not attempting to get to the local shop?! Oops .. hmm where is that monitor?

If you, the reader, cannot class this as 'The Evil That Is' then I dread to think what it is that you would consider 'evil'.

Bear in mind that these organisations are paid both your tax money as well as receiving donations based purely on the fact they are tasked to help people, not just vulnerable people, sick people, disabled people and children. Also many are paid in donations too sooo …


WHERE THE FUCK ARE THEY ALL?!

Maybe people think, well some are being helped so that is OK? Though I would stress that would be 'appear to be being helped'?

So that is OK, is it?

What sort of percentage is OK with you? 90%? 50%? 25%? 10%?! 100% is the only acceptable ration to me. If they need help and support then they need help and support. Nothing less is acceptable!

Maybe your like those FBI agents i the helicopter during the Nakatomi Plaza take over by terrorists in the Bruce Willis starred film, Die Hard? You know the part where they talk about the possible civilian casualties in a nonchalant fashion and one says "I reckon about 25%?" and the other says "I can live with that!" before yelling "Yeehawwww, thi is like 'nam!"

If so then .. sad. Very, very sad.

After all is their motto not "We never leave one of our own behind!"?

LMFAO!

Oh dear .. bought my daughter a can of Fanta Lemon and that was a mistake ...

  • Mum, I want your drink, Mum I want your drink, Mum I want your drink and so on and so forth
  • Mumble: I wnnn drnk I wnn drink! NO!! I WNN a DRNKK WAHHHHHHH-WAHHHHHH!! From the third oldest.
  • Wah-Wah-WAAAHHHHH! From the youngest
Dental treatment is easier then this! Oooh .. that reminds me!

Sunday, 12 November 2017

EXPOSING THE DESPICABLE

I never thought things would get anywhere near as bad as they are.

I'm currently in a situation where two members of my own family who are just young children have been diagnosed with Autism. Not one, which was bad enough, but two.

I made a sacrifice, fought and still fighting against my health issues and anxiety to be here and have been here over a month.

The first visit and decision was made around six weeks ago.

It has cost me money I hadn't budgeted for in a time where I was spending a lot of money to effectively start my own business and go self employed which I was then stabbed in the back over by the Job Centre and DWP.

Yet the odd thing is that I've made this move because of my family being stabbed in the back by the NHS, local council and DWP.

I've realised the schools are not too fucking great either, since I've arrived.

I've also been informed that a sufferer of diabetes I know back in London who had already lost one leg had his disability money stopped. Told to me by another diabetes sufferer I know who thought nothing would happen to people with diabetes. Who himself was put out of work over two years ago. 

Who previously was a social worker for 25 odd years.

So even the professionals are being affected now, little by little and one by one. No one will escape this the way it is going.

But it still came as a surprise to read in a BBC News report linked below of Hayley Smallman and the despicable way she is treated over her daughter Holly Smallman.

Holly is afflicted with some complex health issues that are both life-limiting and life-threatening and yet there is no support available out of hours?!

What I find most interesting about the report is that Hayley Smallman states something I have constantly stated for well over five years now ..

"I am not a clinician"

It's staggering that over time we have been expected to be ever better specialists when it comes to health. We should be able to self-diagnose and identify whether what it is that affects us is an emergency or not!

I myself had to self-diagnose after getting fed up of asking a long line of clueless Doctors over a period of 13 plus years what I was afflicted with.

After having my own diagnosis confirmed by Guy's Hospital after some blockades to prevent this diagnosis I then realised symptoms I'd been having over 20 years were down to this Fibromyalgia Syndrome nonsense.

To make things worse my daughter has been having almost all the same symptoms as me even down to the short term memory problems. Yet she has not been diagnosed with Fibromyalgia despite the fact that she has a particularly dangerous symptom that I do not. Well as far as I know. Recurring blood clot in the legs.

In case you were wondering ..

Yup .. two of her children, my grandchildren, are the ones awaiting a diagnosis for Autism we were first told about a couple of months ago.

Added to this I'm expected to find out in a couple of days that I'm being stabbed in the back again ..

Despite me making the sacrifice and far flung relocation while suffering myself to help my family. 

My family the public services have been fucking over for years now.

Even Wirral Council have been sending social workers here but actually do nothing. In fact I'm pretty darn sure that Wirral Council are doing this to look for things. They were previously  chastised over my daughter and, of you look, have been declared as inadequate by Ofsted themselves.

As these bodies are reluctant to give such rulings on the public service they .. watch .. things must have been bad?

Except .. what has happened since they were declared inadequate? Well if anything had happened, of anything had improved then I'm sure the locals would have informed me.

Yet from what I understand many mothers still live in fear of social workers and the council.

So I am now in a family of six and only two of those are not disabled ..

  • Me, grandfather .. Fibromylagia with foot pain, short term memory loss, high blood pressure (Hypertension Stage 2), postural hypertension, irregular heart beat, anxiety attacks, back pain, chest pains and many others
  • Daughter .. Fibromyalgia is one I now recognise and many symptoms I experience plus a recurring blood clot o her leg
  • Two grandchildren out of four to be imminently, at least I hope it is imminent as it has been six weeks or more, diagnosed with Autism .. just an audiology test to do on each


I saw this on the BBC and thought you should see it: 'I'm dealing with life-threatening situations - but I'm not a clinician, I'm a mum' - http://www.bbc.co.uk/news/health-41927703

Monday, 1 August 2016

POKEMON STOP

Well I keep hearing about this craze for a mobile phone game that has got everyone behaving in crazy ways. Stories of bunches of people racing across a park then range to some people almost being cut off from the sea on a shoreline?!

Every now and then I hear something about Pokemon Go.

I have heard of the name Pokemon for years but I have never become familiar with the characters or seen any of the animated cartoons, I am presuming it was from an animated cartoon?

I am into gaming but not so much on mobile phones and I tend to breeze in and out of my gaming sessions and sometime go weeks simply because there is not a game that interests me or I currently don't have anything. I play games on a PC and I like titles like Deus Ex, Fallout, The Witcher which all have an open world play to them. You can go where you like and perform missions in a non-linear like way … most of the time. You have a main mission sequence and then you can find dozens and dozens of other interesting missions. You can meet people that seem to be become more and more realistic with each generation leap in computer and graphics hardware. Despite how good you think games are and look right now a leap in both CPU chips and GPU chips, Central and Graphics Processing Units respectively, is going on right now and will do for the next 12 months. Other more linear like action games like Crysis also interest me.

Oddly there are a number of other genres of computer games that I should get into but have yet to, like strategy games and what they call God games.

Going back to Pokemon Go I wonder what all the fuss is about and I simply cannot see the attraction of running around staring at your phone which all have crap battery lives looking for something to appear on your screen. Maybe if I tried it I would feel differently? Maybe even very differently? But people do seem to get enjoyment out of it and that is good. However I am a bit worried that your going to hear reports of people found dead with their phone next to them with Pokemon Go running on the screen?! There is 'addictive' and then there is 'addictive'. When I heard the report about some people nearly being cut off by the sea I could not quite believe what I was hearing.

Games can also be a good distraction from things and sometimes this can be very good. Someone who suffers from depression or anxiety might get to switch off from those sorts of things by playing games. Funny how computer games are never used in the world of mental health to help people or even just suggested.

There was one particular story I heard that was a damned good example of this with a teenager who suffers with autism. He never left his home, by all accounts, and yet somehow he got introduced to Pokemon Go and now he gets out the house and is much happier than he used to be. Maybe now they might think of using computer games more for certain things, especially children and others with autism?

Why does it take the world of medicine in the UK years to catch onto new ideas? How long have computer games been around now? Seems almost like forever and pretty soon it will seem like that for everyone. But now they are catching on. How about bespoke software and games that help people with certain afflictions? Will someone now think that this needs to be looked into? I certainly hope so.

However these games can only help to a point and there is a world when they simply cannot help you any longer. The wolves can surround you so much that you lose any interest in anything. There is nothing that can help you and this one I know from experience.

For instance I have not played a computer game for a few weeks now, which is unusual for me, and I was playing one recently I had left alone and since revisited and that was The Witcher 3. But I had that issue I spoke of recently crop up. Now I have the possibility of going back to literally scraping to get by from day to day and week to week. I am supposed to phone for an ambulance if I ever have another full on seizure where I end up unconscious again. Yeah, they are doing some evil things to me when I have old incurable conditions going on and a potentially fatal one emerging and an upcoming appointment for it in a matter of days. But the sudden predicament I find myself in has aggravated the condition I do have, brought on symptoms of my condition that I never thought I would experience again, strong anxiety attacks, and bring them on so strong that a symptom I was unaware of would suddenly affect me. Sometimes called 'rubber legs' I lost the use of my legs which was bloody great because my feet are none too good at the best of times. I thought I knew just about everything about my condition but I did not know about that!

Computer games was never going to work with this one.

What I have also wondered is how Pokeman Go seems to be hitting the media a lot and I cannot help but wonder if people like the BBC are reporting every little thing on it because they know it will attract the millions of people addicted to the game? After all they seem to love celebrity gossip which for me is not news. Not mainstream news.

I cannot be the only one that has noticed a certain sideways and downward trend in their usual source of news?

I mean OK that report about helping autism is understandable and is news but if they keep on just reporting on Pokemon Go for the sake of it, it will, or already has, become obvious?

Oddly I came across that report when I was looking for something to do with the fishing industry in the UK and the vote to leave Europe. I had stated many times that I was sure I remember hearing or reading that the fishing industry was not happy with the EU restrictions? I think this was jogged by reading that Iceland originally wanted to join the EU but then pulled out of their application to do so because of the fishing restrictions?

It turned out there was a boat load of them on the River Thames that I think it said was confronted by Bob Geldoff? Seems it was well known so did not see the point on doing a whole piece on this subject after I had mentioned it several times before anyway, lol.

As for my … issues. It will be at least a month I think before I am any closer to finding out, possibly?

Pokemon Go helps Autistic teenager-


Fishing Industry voted to leave EU-

Tuesday, 17 March 2015

FOR AUTISTIC STEPHEN

This is one campaign/petition I was involved with some time ago.

Stephen has autism and is being carde for a long, long way from his mother who has been unable to get anyone to move him much closer to where she lives. If I remember correctly there is a matter of a few hundred miles between them. With current transport, all of it and even with a damned fast car, the time required along with the finances are pretty great to see poor little Stephen even on a semi regular basis.

Now I thought this petition would get the signatures required pretty quickly if I am honest?! However it has not and it is currently on... 10,371 out of 15,000. I honestly thought that with such a youg child and such a horrible condition as autism that the votes would flood in and go way above the 15,000 needed?! But no.

I guess many people are still worrying about their own taxes or lives and not that of others and that the present and unchanging situation is causing people to become more and more amoral. The EXACT problem that landed this country where it is in the first place. And where it now keeps it!

So once again and now with a bigger monthly audience coming into my blogs on the truth  about corruption within the UK I am going to post about little Stephen once again ...

https://www.change.org/p/nhs-islington-bring-my-son-stephen-home-care-for-him-in-our-community-bringstephenhome

It is just a vote and just a button and takes five minutes. Five minutes to listen, read and make a decision and one of many decisions that will help change this country for the better. A decision that will make you feel batter for taking the time to make a difference.

All it needs is enough people to want to make a difference.

I am but one guy without the recources, finaaqnces and nor did I have the tools. Yet despite my diabling ailments I strived and saved and wrangled to do all that I have done. For the benefit of others...so I am disappointed in people that cannot spend five minutes to change the one cruel stance of one hearltess authority.

If this is the world that you want to live in, then do nothing. Only if it comes to you remember the time you could have done something yet decided to do nothing.