Showing posts with label dealing with cancer. Show all posts
Showing posts with label dealing with cancer. Show all posts

Monday, 26 March 2018

HOUSE OF PAIN

Oh .. you know not of how many levels of which I speak about pain.

But last night took an awhile turn .. to the point my normally narcissistic .. ahem, member of my family tried to talk to me twice about what was happening. They also knew it had been all night too?! Not sure how.

In what was a very .. very rare occasion they looked concerned. I still doubt they will do what needs to be done if it ever gets to that. Like call an emergency number. Well .. yes it is true I never do that myself .. but not for myself. If it was someone I deeply cared about then yes. I just never call anything other than '111' for myself and never ever do that in these instances.

There are those times when your suffering and even badly so and you just want to suffer alone. It is as if anyone being around makes things worse? Not sure anyone can relate?

I am in pain as of right now .. just less so than I was. I did get to sleep around 10am .. ish. It is 11.43am now and I've been awake about 40 minutes and this was down to pain. Quite unfortunately.
I've .. something else going on to that's .. well it's just so peculiar .. no .. 'peculiar' is the wrong word and does not do it justice. Despite the illness that afflicts my daughter currently after another .. 

exploratory and biopsy .. she was blown away at these recent .. developments.

Trust me when I say it very much goes against all odds. And then some.

My daughter thought up the exact same to theories that I did.

One theory went out the window. There are .. three theories but .. one? Just too darn crazy to consider. The odds? Astronomical and that's not even considering any outcome, which I'd also say right now was equally unlikely.

I mean me being ..

I mean .. she being .. all that ..

Lol.

Maybe at a later date I'll talk more about that. I really don't even know where to start with it all and where I would go with it all?!

I mean .. after recent events didn't seem to pan out could I even use words like 'kindred'.

'Kindred' is a word that my late friend Old Ken never thought would EVER be used to describe anyone associated with me. Ever. I do believe I've stated as much within this blog going back to the beginning.

Yeah .. I can't really ever be accused of ever hiding anything and I can't be accused of claiming things I didn't say .. that's the good thing about blogging. Everything is dated with even a time provided for the posts.

No point in hiding anything.

Oh and .. yeah .. I still possess .. umm probably over 50GB data and yes .. I did think of get the rest up during 2017 but it kind of didn't work out. What with everything else that occurred.

Also .. though it would have certainly brought my blogs up to much higher numbers than I have now ..

Yeah that's the thing about maths .. it has a much greater effect the higher the number of monthly visitors when I do start to publish them.

I also have to go through them all because target foolishly I never renamed the files. As there are dozens and dozens of them and with my memory I can't remember half of them and the ones I do of never find.

Yes, yes there are certainly dozens were I am told more lies .. but which lies and where they are?

Maybe this year at some point I'll get around to sorting then into some sort of order? If I can get them sorted across half a dozen folders, maybe?

Ooh I was supposed to try and get my medication today?! Damn it! Just keeps being postponed.

Oh and I also wanted to try and get out with my damn camera equipment.

This is heading for a bad ending currently. .. I just know it.

Still in pain too.

Daughter still in pain and hearing now she has to return to hospital after they have given her a second lot of the exact same antibiotic they gave her in the beginning?! Well that is a full gone conclusion then and a pointless exercise?!

Heard from my solicitor over my court appearance that is getting ever closer .. yeeeahh not got my printer and would not have space for it if I were able to retrieve it anyway!

Good God, man. I hope that they do attend this hearing. If I fail to turn up because of my health I am worried that this would go against me, though rather incompetently so if it does. If it has looked for two years like I have had a representative that also does not turn up?!

Yeah like I said .. no printer, daughter's cancer worse than they thought, pain, anxiety and memory problems getting worse as is my sleeping, heading south for the winter like everything else. I am worried this will be used and twisted so that they can get what they want.

I am starting to wonder who you would complain to about the HMCTS before I have even had the court hearing?!

Wednesday, 21 March 2018

THE STARK REALITY

Well I simply don't believe it.

I've had my suspicions about certain courts in this land but now I know the truth and it's plain to see.

I've also had my fear that leaving the European Union might be used by the British government to abuse people even more than they have. It might seem odd then that I voted to leave because the EU didn't give a shit about the disabled people in the UK. Well that was one of three reasons and I contacted a few in Europe about the issue a few years back. Nothing happened .. even when you draw them a picture they are only interested in serving themselves, getting billions in cash and dictating the rules to countries that later destroy communities and create divisions over time.

Well .. yeah .. the government have decided to not even wait until we leave the EU. They planned to go to court some months ago in what was claimed to take away the human rights of disabled people.
I thought this preposterous .. I truly did and a waste of the taxpayers money.

Except .. they won?!

As it turns out Esther McVey had been mentioned in the Canary report below.

It also turns out that what they have done is to allow the tribunals to ignore the European laws on human rights. Someone took them to court over bedroom tax and I'm not familiar with the case, if I'm honest. Kinda hard to keep track of anything right now.

But .. despite the fact that they have gotten the tribunals to ignore these .. they can't get higher court, or just the high court, to ignore them?!

Sorry but how the fuck does that work?!

What is happening here effectively is them putting into practice what has been going on for a very, very long time. Deliberately create situations where it takes so long to do anything that you out people off. While at the same time make things too expensive to pursue.

Even one couple, the Carmichael's, said that they were stressed and tired and didn't want to pursue the case any longer, despite being told they had the right to appeal.

And there in is their plan on action.

There had been this weird attitude within the public services that had gone on for decades and gradually gotten worse and worse. That everyone and everything to do with government and public services takes an ever increasing amount of time.

They clearly have no understanding on the concept of time!

Funny .. you would think that 'time' was one of those basic fundamental things that everyone understands even as a child. If you have a toy boat on the river and a wind picks up blowing it away .. unless your quick .. your going to lose it.

That's time.

Time also costs money. Money is another basic fundamental thing they also no longer understand.
Now they don't understand how laws or human rights work either.

Hmm I wonder if they understand the concept of a revolution?!

On a serious note .. when I was told of this court win last night by my daughter I said how typical it was that this occurred just before I appear at a tribunal?! I simply could not believe the timing?!

I also discovered last night that the cancer was worse than they thought .. which not only made things suddenly focus for me while my heart palpitations went through the roof but .. they have never fucking told us what they fucking thought!! Though it does explain .. some thing pretty serious that has been occurring from time to time. We get the full results, or at least that is when they were supposed to turn up, in two weeks.

As they stated that it would reach stage two within a year .. I am guessing that time has been shortened somewhat and as they stated that in January (2017) and it is now March?!

Jesus Christ .. you simply cannot make this stuff up .. you really cannot.

Missed cancer in one, death of an unborn baby for her best friend is another, missed disability and refusing to diagnose, or delaying as long as they can, a severe disability in a child and two attempts to make them both homeless one around a couple months ago and one ongoing.

With all this .. what is even the point of having laws if there are no human rights?!

I mean if you cannot do anything just for the people I know, my daughter with her cancer, separate disability and four children with one of two having a clear, severe and dangerous disability then who the hell is going to get anything in the way of financial or emotional support or even the correct health treatment?!

Think about this for a moment .. if you do not come close to even a single ailment I have mentioned, say the cancer for example, then what chance do you, your mother, child or anyone else have when things go wrong?

If my heart does not fail over the next month I will surely be shocked.

Tuesday, 20 March 2018

TORTUROUS


This was unexpected on several fronts.

I awoke this morning with a little anxiety and a lot of panic .. in pain from my bladder as per usual and heart racing. I am meant to try and find a NHS Walk-In Centre to try and obtain my prescription medication but did not really feel .. up to it.

I had also awoken late after a night of not being able to sleep again .. probably thinking and panicking about a court hearing fast approaching and if I will get there as it is so early, due to my sleep now playing up, whether I will win and how much is resting on this court case? Probably? Definitely.

Well I say .. 'late' but not as late as yesterday morning where I woke, to my utter shock and disgust, around 10.45am.

But this morning I was receiving texts as I woke up and I realised that it was Tuesday as my daughter was off to her appointment. Her appointment over her cancer where I thought it was just going to be about what, when, where and how they will operate on her. Except it appeared there was more to this appointment than either of us realised.

Before long she was dressed in a gown and looked like she was going to have an operation and they told her she wont get home until 6pm .. though quite how the children were going to be picked up I do not know.

I still do not know what this appointment is all about .. unless it was being kept form me so that I would not get upset or worried.

I am upset and .. well .. worried.

Is not doing my heart rate any good .. not that I care very much.

It never ceases to amaze me just how much the human body can torture itself, for all the proclaiming by scientists of how much of a miracle it is. These scientists have obviously been very lucky in the health lottery and likely never had to endure prolonged physical pain nor mental pain?

I am in a room that is no doubt smaller than the minimum required size for a prison cell. Of that I have no doubt.

But being shoved into something this size with all the pains, stresses, anxiety and along with the tools required to try and earn an income at some point along with the tools required by someone with a disability .. like my damned bike and it gets a bit of a squeeze.

Then you have days like this. Days that no one should endure. Not even the devil himself.

After trying a different tactic on how to do what I need to do while cutting down the pain I spent last night trying to think of something else I could purchase that might help. When I was not focused on other concerns.

It feels like a million things are racing through your head at once at times.

I have often also stated that I honestly do not know what is worse at times, severe mental anguish or severe pain and when I experience each I always think “This .. definitely this!” The truth is that when severe enough I think they are equally as bad but beyond a point things change. The mind breaks with one extreme and passes out with another. This far I have only experienced one of those two.

At the end of the day you feel condemned .. on both sides. What makes it worse is knowing that others have knowing you put you hear and that many do not give a flying f.. shit.

Ultimately you ask yourself why in the hell you are here and what you are here for?

Maybe it is just me? Maybe being alone, or feeling lonely whichever you prefer, is what does this and maybe I am just unlucky in the set of circumstances I find myself in? But it was anxiety that drove me to my current situation and location. Once again brought about because others do not give a crap and those tasked to help or protect you also do not give a crap .. and lie and cheat to save money while awarding themselves all kinds of things?

What this results in is you praying for it to end in the only way you think it will end. Death. You even start to wonder about bringing this about yourself and whether you could build up the courage to do this and how you would do it.

It almost always came down to carbon monoxide for me, not being able to get a hold of the necessary drugs to do it. Christ .. I cannot even get the only damned drug that works on my condition .. sodium oxybate! Like I said .. condemned and knowingly condemned at that.

But we are not supposed or allowed to end it and nor can we be assisted. We have to stay alive .. endure whatever is thrown at us and .. do as we are told and what is expected of us, come what may?! If we were dogs we would be 'put down' or 'put to sleep'. That would be far more humane than what the British government and the UK's public services have been knowingly doing to people in recent years.

Of course there is that one other thing that stops you and that is that if she does survive what my demise would do to my daughter.

Does not sound like I have a lot of faith in winning my court hearing does it? Mind you this may be because I feel like I will let myself down over it all .. but failing to turn up? Though I am supposed to have a representative there I have had no confirmation that they will be.

I have also expressed my concerns about this but have not heard anything back.

Even my social worker friend says that they have been bad at replying to me and never seem to read my emails .. which they do seem to be proving correct even right now.

I do not even know what I would do if anything happen to my daughter while at the same time am well aware that her life is itself yet another living hell.

Once again another case of cancer and no fucking sign of any of the big cancer organisations that appear on TV in adverts begging for your money.

The operation for this specific cancer is not guaranteed and in fact has a chance of the cancer returning rather aggressively. It is also very close to reaching the stage, if it has not already, where it would require radiotherapy and chemotherapy.

During all this .. they have gotten out of paying for their rent, first only wanting to pay 25% of it and even now only 50% of it. They have lied and conspired to not pay Disability Living Allowance for a severely Autistic child, despite this being extremely dangerous, there being three other children and with one of those possibly being autistic too. To put the cherry on the proverbial pie she also has my disability which, like me, they have wondered about and missed for many years. But then some completely incompetent Doctors do not believe our disability exists .. STILL?! Morons! Yeah .. I had all the perfect symptoms listed for it for fifteen years before I was discovered what it was that I was afflicted with .. something that was both missed and I was not warned about when I had the severe road accident 36 years ago. Yup .. that was they key point that set it off .. with weird symptoms piling on one by one over the years for 22 years when my feet became affected. I then asked for another 13 years before I discovered what this was myself and even then they tried to deny I had it and then tried to avoid a diagnosis by making excuses to not refer me. One was that a department that specialises in Fibromyalgia within the NHS simply did not exist. Anywhere. I later discovered from a Fibromyalgia charity that this was a lie and that there were dozens all over the country.

Now at the time you only had two choices, incompetent or liar? I am pretty good at working things out and .. knowing people and I called liars. Many said I was completely mad or just plain wrong and I stuck to my guns because I knew what the facts were. Well those facts have now been exposed .. they are being paid not to refer people and to do that they have to .. you guessed it, lie!

Yeah that crap about Doctors being paid not to refer people? Yeah .. it is not only about referrals and it has been going on a very, very long time. Told you.

Now I am just babbling on because I simply do not know what to do with myself as per usual but this time I am .. somewhat restless and more so than normal. Because I do not know what I am going to be told in several hours time!

Do you know what life actually is, has been for a long time and on different levels?

Torturous.

Saturday, 17 March 2018

THE PAINFUL REPEATS

Damn it.

It has happened yet again. After two days of overdoing it without intending to I am back to being .. in something of a .. well .. state.

I cannot explain what this is like other than it is extremely .. harrowing.

For twenty four hours I have been in a bad way as I was last time this happened and I feel dead tired and extremely depressed. I am ratty and completely fed up with my situation and where I am and in all honesty .. others are not making it easy.

For instance I left the house yesterday and hobbled up to a vape shop after deliberating for an hour or two about whether I would be able to do it and how painful it would be. I am vaping more than usual because I stopped smoking about five days or so ago .. something else I forced myself to do to stop me going .. well, insane. I have to build my money up for various reasons most of them obvious and am amazed with myself for quitting smoking, if I am honest. Though it has not been easy.

So yeah I left the house and managed to get up there and back again and then back into my room which is tiny ..


  • 6ft x 9ft
  • Contains a bed
  • Contains a 29 inch wheeled bike
  • Contains a TV
  • Contains a PC
  • Contains a Laptop
  • Contains Two Cameras
  • Contains a whole raft of lenses, camera accessories in a large security box
  • Contains several camera bogs and a couple of rucksacks
  • Contains a chest of drawers
  • Contains a couple hundred blu-rays
  • Contains various other things
Plus I have a storage area I pay for each month that contains stuff I simply cannot get into this room at all and there is far too much stuff.

Added to this ..

  • TV signal is non existent half the time
  • Wifi signal fecks up half the time, often half way through uploading my photos and videos
  • Living room is out of bounds due to extreme narcissism of someone else affecting my sanity
I digress .. once again.

So I got back in the room, filled my vape tank with the Dinner Lady flavour of Lemon Tart and had barely vaped half of it when there was an ear piercing high pitched shrieking. It turned out to be the fire alarm outside of my room on the ceiling. I waited for someone to deal with it and then gave up, ventured into the hall and I guessed that I had to press the only button? No effect. So I pressed it harder and the noise stopped and the perforations of my eardrums could start to heal.

Suddenly the narcissist appeared at the bottom of the stairs "The fire alarm has gone off" they said before I answered "Yah think?". She then asked if anyone had anything producing smoke upstairs to which I said I had quite smoking five days earlier, not that anyone would notice .. because they don't .. ever. Notice anything. I said no before they then said that it must be my vaping, despite the fact that .. well .. they had just watched me walk in the house. I also pointed out that it can't. Then they disappeared before someone else appeared in the upstairs hallway saying "What is all that noise?" and do not seem to know a fire alarm when they hear one? I said it was the fire alarm and in an odd dig of a statement, I have had about a few things, they said it must be my vaping. "Oh .. don't you start!" I said before they said "well it must be, what else can it be?!" before I then said "I have been vaping for six weeks here and it has not happened before and I have also only been back in the house for five minutes!" to which they then walked downstairs.

So far I have been ribbed about my vaping, smoking, diet, drinking of soft drinks and even wanting to catch buses. Plus despite never being registered with a Doctor .. they are also medical experts and can tell you what they do not have.

Yeah .. you could be forgiven for forgetting, if indeed you had read it recently, that I came here with the only one registered with a disability .. suicidal, slashes on my arm after finding out that my daughter has cancer, my granddaughter is Autistic to dangerous levels, made myself homeless again trying to help them and live 250 miles away from home and .. my daughter and I have been lied to, not supported nor given any financial help at all, hence my loss savings, and left for dead by the public services that are paid a large portion of the taxpayers money to help people that are vulnerable.

Yeah .. you might think that people could be a little more accommodating and a little less .. 'diggy' towards me and even a little helpful? Yeeeeah .. no.

When I compare this to what I just did for four months and that I felt guilty for leaving when and the way I did, even though my daughter and I were victims of a bunch of evil lies and that is from my evil ex, it boggles my mind. Yeah .. they do not appreciate that either and yet I basically get called a selfish twat to my face and behind my back by the narcissistic one that thinks their mild epilepsy is worse then someone else's terminal cancer?! Yeah .. no kidding there and I so wish that I was.

Of course yesterday the digging was at a time when I was low and the worst part about it is they should not only know by now that I would be down, because of the two days, but one was told as much yesterday morning. Of course I then get a run down of the latest thing that she thinks that she has and I heard her talking to the waster or a partner the morning before as she was reading things out from a webpage from her phone and I heard "See? It causes diabetes .."

Yeah .. they do not have diabetes.

They have spent a few minutes hobbling around the house with a walking stick .. I mean who does that? I do not know nor have ever known anyone that uses a stick that actually uses it around their own house! Unless your particularly bad with some affliction. You certainly do not walk around with it one minute and then without it an hour later before then using it again a few hours later. Oddly the two times it was used was walking around the kitchen when she had just called us for dinner so knew we would be appearing. The ONLY times I have seen it in her hand. Also bizarrely it has also only appeared in the last two weeks out of six and since I had my first couple bad days and was limping around. It is a competition with her for sympathy .. except she does not get any and neither do I and nor do I want any. In fact even when I am bad and feeling ratty because no one down here has helped and, in fact, has been quite the opposite .. I get annoyed with myself because I cannot do everything  myself. I so hate being independent, or at least I was to some degree, while feeling like I am dependent, because I have trouble doing things on my own.

Right now I am supposed to be going to my storage facility which I still have not sorted out or moved into a smaller and therefore cheaper unit?! Yeah .. over six weeks.

My own daughter who grew up in a strange land does not understand how some people are with me down here. She does not understand the lack of help, lack of understanding and nor the digs I get about things. She certainly does not understand the narcissist at all.

In fact my daughter wants me back there and I would love to be back there .. helping her .. except ..

  • I need money back behind me - court case over that in a couple weeks
  • I still need to do my work - blogging and photography (see below)
  • My equipment can not be kept at my daughter's house .. my Autistic granddaughter would destroy it
  • I am missing a PC that can edit my photos and videos (spent allocated money helping MY family)
  • It is a three bedroom house and .. there are five of them, I would make six
  • Public services did not give a shit which was how the liar managed to twist things, lie and drive me away
Oh and two important things to note of late ..

  • The media agent is being an incompetent twat and now very obviously dragging his feet after all his fucking promises have been broken and now looking to be lies .. or he has been paid off which even my daughter is now beginning to think ..
  • A GP Surgery refused to register me and to everyone's shock down here .. umm .. knew my name?!
  • To the last one my social worker friend went mad over this "How can they know your name?!"
To that last point I told my friend "exactly" but that I already knew and he said "Why didn't you ask them?" to which I replied "Oh yeah, like they are going to tell the truth and say 'Oh the NHS called around a load of Doctors in the area and warned us you might walk in'?!"

How can a surgery know someone's name before it is given to them and especially when my last GP is located 250 miles away in Birkenhead and I am in a surgery in Hackney in central London?!

Even my mother was in complete shock by that t the point where she did not try to take over the conversation and said "What? How could they know that?!" to which I replied ..

"I have told you and have tried to tell you repeatedly for a few years now .. I am public enemy one, two and three to the public services in this country"

Tuesday, 5 December 2017

WHEN HELL COMES TO TOWN

After feeling the strain of everything the young mum I have been focusing on went out to see an old friend last night.

I stayed at the house with the four children which is one of the many reasons I came .. because there is no one else and she would have been under much more strain than she already is. Already an unimaginable amount.

When she returned a little earlier than I expected .. she said a couple of thing I did not expect and had been dropped off my her mother, who I see waving and I waved back as I closed the door.

Her to revelations came in the exact same line.

“I told my mum .. I just want to die and it is all your fault!”

I sat open mouthed and simply stared at her for a few moments .. well time just seem to dissolve into the background and it was most likely extended over several minutes.

“What?”

She went into more detail .. what has been done to her, lied to about the very cancer she is now becoming more convinced she has, while I pray otherwise. Having been subjected from abuse by a number of men before she had even turned sixteen and as a result is now the mother of four at a little under 25. Ages 10, 5, 3 and 2 .. do the math.

Let us just say that I was working on this long before the Rotherham thing hit the news with a few other darker sides to those involved with .. dastardly plans.

That was not even the first time.

I sat wide eyed as she explained how she had said all this to her mother. Then there was her mother stealing her children. Then there was all the fake cancer scares she had .. we joke that it is around a dozen that she has meant to have. She had recently admitted that she lied about them and only seem to give a .. bad excuse for the very first one. That I would come up to Birkenhead and stay with her?!

Oddly and as mad is it sounds what with everything she had previously done I find myself wondering and feeling a little guilty that I had not. Though I tried to find my daughter when she was 13 and was thwarted by a web of conspiracy, lies and a really bad solicitors practice called Reed, Sternberg, Taylor Gill or .. something like that in Barking, I failed. But I still feel a sense of guilt.

I tried to encourage my daughter to come and live in London with all the kids. She said that she would a few times but never did. Yeah it is hard to live somewhere where everyone speaks differently and have different ways of life and attitudes. To those of us from the south we feel like we will get treated roughly, even persecuted as you hear the stories over the years. But going the other way is not as bad. But you never know that unless you have the courage to do it.

Those that have been reading these posts for a long time might have been asking themselves how it is I claim that I am the only one when there is a mother nearby?

Well I can tell you something this mother does not know .. if the social services EVER found out that any of the children had been left with the mother it would count as a very black mark towards the mother of the children. It would also put them in danger. Because she does odd things that .. no one can explain and most women baulk at or become enraged when they hear.

Yeah it really is bad and you might think this is so bad that it involved the death of a child? Well .. that came close several times with each of them. One nearly kidnapped at least twice, one not being watched and hit by a car.

The oldest son hates his mother, I am told. In fact when the cancer scare came about the mother recalled that she was supposed to have three injections for HPV and that her mother only took her for the first one and did not bother with the others. On discovering this her oldest son shouted “Why didn't you take her for all three injections?!” to which she answered “Oh be quiet, things are bad enough as it is!” Umm .. yeah!

I told her that half of that line I had been expecting to happen for ten years. Ten years of finding out about the first horrors and then hearing about a whole series of others over the following ten years and then to be hit by the worst of all.

I do not even have the time to ask myself what it is I am going to do if the worst was to happen!

We ordered food but even while chatting about things and me trying to make her laugh things went .. awry.

AT the end of the meal she was suddenly in pain .. with a hard lump appearing in her stomach which s near an area where they discovered one of the three lumps.

Remember .. she is 24 with four children and no one other than her best friend, Laura. Laura, who has her own issues and bad life to deal with. In fact they were even in care together .. care that was .. bad and mostly responsible for the current woes.

I had expected a moment of realisation for years and I even said “DO you ever remember me telling you that one day you will wake up and ask yourself .. 'What the fuck just happened these last ten years?'” She nodded.

What I did not expect, though I had heard it from her when she was 13 to 14 several times when I was trying to get her to come down to London, was the 'I want to die' part.

That was the moment when time just seemed to slow down to a eventual halt.

I told her there was another reason I was here and that this was to try and help her find something .. for herself.

There is very little me time, a hell of a lot to do and .. under an immense amount of strain ..

  • Abused by step-father
  • Under age mother twice
  • In and out of foster homes and care
  • Held against her will by radicalised Muslims in a flat
  • Domestic violence victim
  • Four children at 22
  • Two children autistic
  • Discovers she has my disability
  • Mother who encourage the second point
  • Mother who stole two of the children with the local council's help
  • Specific and not very nice female problems
  • Domestic abuser phoning all night every night from prison
  • Found three lumps that look suspicious
  • First lump alone has had Doctors and Hospitals running around like headless chickens

That is just the quick but y no means full list.

It is what I have been carrying around for twenty years when I first told Liverpool High or Crown Court that if they do this, this young girl will have a life of hell.

Except it was far, far worse than I could ever have imagined.

The sad part about it is that the reason why I ca talk to her is that I have been in this position where you just hate waking up in the morning because you are reminded your still alive and all the shit is real.

Eventually you start to pray that you don't wake up.

I truly have lost count of the number of times I have been through that.

But because of the lies and corruption of the NHS I only found out that this was down to a condition I have called Fibromyalgia which screws with everything. As well as the pains, skin conditions and short term memory problems among others, it causes pretty bad anxiety that makes no sense, has a mind of its own and can make the simplest of things like your facing death itself.

I have said it is both annoying and makes no sense because I do not fear death .. pain, yes! But not death so .. how is it that these stupid things can set this off?!

The other annoying thing for me is the extreme anxiety you can wake up with .. often waking you up very, very early .. heart beating like a race horses and you often literally feel like you are going to have a coronary. Or heart attack.

This happened to me this morning and I explained this to the young mother that has been my focus for the last several months. I said I often used to wonder if I had, had a dream that had set it off but f the dream was so bad .. why am I not able to recall it?

I said that I think this damnable thing just plays up whenever it feels like it and that .. if you have any stress going on that is just how it is. Too much to do and too many things to think about and knowing you have the memory issues that, not can but, will screw things up does not help one little bit.

It is odd watching her do all the exact same things I do.

I wish I was able to do something about it all .. I would gladly take any cancers she had if I could.

Even if a member of my family, my cousin Julie Bannister, had not stole £35,000 I inheritance, did you not read that, I could make life somewhat easier but in the case of the big 'C'? Not so sure .. not even this first one of cervical cancer. Or is it Uterine cancer that is difficult? Cannot recall and too scared to look.

That £35,000 is off nine of us, just so you know. It was £350,000 that was stolen .. out of £750,000 plus!

I have often thought and talked about a GoFundMe page but that seems somewhat .. self-serving .. well presently.

Until we get the results back in a few days time .. and of course the other results it is difficult to know what to do.

But then there are still problems in the meantime. I told her that I tried to deal with my situations by using both cycling and photography to relax, switch off an get through it with the exercise perfect for lessening our symptoms of Fibromyalgia.

Unfortunately and with the governments approval for 14 weeks and over £20,000 of m own investment with very little left and being refused UC after being refused Working Tax Credits after becoming self-employed and previously having Incapacity Benefit and Personal Independent Payments being taken away?

Yeah this corrupt government put the fucking tin hat on that too .. something I was hoping that while here I would not only do, in the Peak District and Snowdonia and hopefully Scotland, I would involve the aforementioned mother to see if I could get her into it too?

Just a shame that I places where people are supposed to not only help but be understanding .. they then go and assume that a really bad situation is nothing of the kind, no three adults and four children are not going to be affected by this .. but .. they also do not stop to think about anything else so extreme that you are not divulging in that very public place.

There are these tiny moments when I picture the worst and I wonder if and how I will survive it and how I will cope with the children.

If you see what looks like a statue of a man mid-stride somewhere on the Wirral in the coming months made out of petrified wood? It will likely be me!

I am thinking of a title called 'The Good Samaritans' for a few weeks time, if I bloody remember the title idea that is.


I often wonder what it will have included in it?