SHOCKINGLY LONG SYMPTOM LIST FOR FMS

Right now then...been working on this next bit for awhile now, since I discovered that I had Fibromyalgia.

Now I took recepeit of a couple of books the first I have had around two weeks and brand new and by a British author. Another was used, grubby and only arrived two days ago from America.

The latter book has a section in it for you to do a checklist of a run-down if symptoms which I will get to in a minute. The book is tiitled...

LIVING WITH CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA

by Mary J. Shomon

2004

Now I warn you now I got a real shock here. I have many, many problems but due to the major ones I do not really speak of the ones that are merely a pain in my arse, quite literally at times so it seems.

Now this CHECKLIST was absolutely astoundingly long.... I MEAN REALLY LONG. Now I will list the ones that affect me personally but there are another 30% more at least that do not apply to me.

I put in some funy comments and sometimes point out ones that are rare or do not have any more. Also you will note that some have the words 'Eleven Point Rule' in brackets as the author refers to the fact that in a particular section Fibromyalgia sufferers have at least, you guessed it, ELEVEN of them.

There is a section on a checklist of symptoms and here I have includud only the ones that I experience...

Those that the long list of really bad GPs and Specialists should have spotted are all in capital letters in brackets stating (ON MY [MEDICAL] RECORD)!

I am sure you can all come to your own cocnlusions regarding the NHS and the long list of hospitals, GPs, Sopecialists and others that have managed to miss this for way more than 13 years now, lol?

1. Irritible Bowel Syndrome (ON MY RECORD)
2. Mood Disorder (ON MY RECORD)
3. Nasal Problems (ON MY RECORD)
4. Ear Problems (ON MY RECORD)
5. Fatigue (That is unexplained medically) (ON MY RECORD)
6. Substantially Impaired Memory Problems
7. Sore Throats (ON MY RECORD)
8. Tender Neck
9. Muscle Pains (ON MY RECORD)
10. Headaches of Differing Types (ON MY RECORD)
11. Unrefreshing Sleep (ON MY RECORD)
12. Pain in Multiple Joints (ON MY RECORD)
13. Pain for three months (ON MY RECORD)
14. Pain base of skull left and right sides (Eleven Points)
15. Pain midway between neck and shoulders (Eleven Points) (ON MY RECORD)
16. Pain in Muscles over shoulder blades (Eleven Points) (ON MY RECORD)
17. Pain in Hip Bones (Eleven Points) (ON MY RECORD)
18. Pain in Buttocks (Eleven Points) (ON MY RECORD)
19. Pain in Knees (Eleven Points) (ON MY RECORD)
20. Pain in Upper Chest Bone (Eleven Points Rule)
21. General Muscle Pains (Eleven Points Rule) (ON MY RECORD)
22. General Joint Pains (Eleven Points Rule) (ON MY RECORD)
23. Stiffness in Morning (Eleven Points Rule) (ON MY RECORD)
24. Joint stiffness after maintaining same position for a long time (Eleven Points Rule)
25. Pain in Upper Back (Eleven Points Rule) (ON MY RECORD)
26. Pain in Lower Back (Eleven Points Rule) (ON MY RECORD)
27. Pain in the Middle of Back (Eleven Points Rule) (ON MY RECORD)
28. Pain in Neck and Shoulders (Eleven Points Rule) (ON MY RECORD)
29. Pain carrying a Shoulder Bag (Eleven Points Rule) (ON MY RECORD)
30. Sensetive nipples (stop laughing!!) (Eleven Points Rule)
31. Aching Pelvis (Eleven Points Rule) (ON MY RECORD)
32. Pain in hip that radiates down the LEG (Eleven Points Rule) (ON MY RECORD)
33. Sciatica (Eleven Points Rule) (ON MY RECORD)
34. Pain in tailbone, Coocyx (Eleven Points Rule) I get confused about the 18 areas after this as it just continues on...
35. Pain or cramps when you write or type (ON MY RECORD)
36. Carpal Tunnel like pains (was tested for this) (ON MY RECORD)
37. Difficulty holding things (saucepan in right hand) (ON MY RECORD)
38. Muscle Cramps (wake up screaming unable to talk) (ON MY RECORD)
39. Muscle Spasms (twitching can happen often)
40. Recurring tension headaches (ON MY RECORD)
41. General tiredness (ON MY RECORD)
42. Fatigue (ON MY RECORD)
43. Fatigue alternating with normalcy 
44. Extreme Exhaustion (seldom luckily)
45. Fatigue not relieved by rest
46. Flulike Body Fatigue (lost count of times thought I had flu but did not)
47. Exhaustion after physical and mental stress
48. Morning FOG (this that explains a lot)
49. Restless Legs (caffeine makes this worse) (ON MY RECORD)
50. Restless ARMS (see above) (ON MY RECORD)
51. Insomnia (CURSED INSOMNIA BANE OF MY LIFE) (ON MY RECORD)
52. Early waking (went through a year waking up exactly 4am after my father died) (ON MY RECORD)
53. Feeling like you cannot take a full breath
54. Feeling like you need to Yawn to take a full breath
55. Sinus night time stuffiness (raid 99p store for sinus sprays) (ON MY RECORD)
56. Thick nasal congestion that is difficult to clean (ooh boy so glad to see this one I was)
57. Trouble swallowing (ON MY RECORD)
58. Lump In Your Throat
59. Impaired attention spand (like you would not believe)
60. Poor Memory (ON MY RECORD)
61. Poor Memory (sorry could not resist that, lol)
62. Short term memory (and cannot remember what you went to the store for)
63. Easily distracted (yes so I said to him I am gonna knock you...oh wait a minute! LOL)
64. Remebering things you have seen
65. Word substitution
66. Feelings or worthlessness (ON MY RECORD)
67. Anxiety (ON MY RECORD)
68. Panic attacks (increased heart rate) (ON MY RECORD)
69. Claustrophobia
70. Sensation of burning feet (years ago for about a year)
71. Numbness or Tingling sensations (ON MY RECORD)
72. Sensetive to temperature changes
73. Sensitive to changes in the weather (ON MY RECORD)
74. Sensitive to changes in humidity (ON MY RECORD)
75. Sensitivity to cold hands
76. Sensitivity to lights and brightness
77. Sensetivity to flourescent lights
78. Night blindness (oncoming cars on single carriageways)
79. Eye floaters
80. Dry Mouth (Mostly when waking)
81. More frequent cavities (are you SERIOUS?! LOL) (ON MY RECORD)
82. Gum Disease (ON MY RECORD)
83. Bruxism (Tooth Grinding)
84. Cliking and Painful Jaw (ON MY RECORD)
85. Pain in temples
86. Toothaches unexplained by dental problems
87. Irritible Bladder
88. Diarrhea (ON MY RECORD)
89. Constipation (ON MY RECORD)
90. Diarrhea and Constipation ALTERNATING (oh my...GOD!) (ON MY RECORD)
91. Bloating
92. Nausea (ON MY RECORD)
93. Indigestion (ON MY RECORD)
94. Heartburn (ON MY RECORD)
95. Stomach Ulcers (ON MY RECORD)
96. Hypoglycaemia known as Fibroglycaemia
97. Dizziness (ON MY RECORD)
98. Dizziness on Rising and Moving (ON MY RECORD)
99. Vertigo
100. Dizzyness triggered by patterns in floors
101. Clumsiness
102. Spilling food or Drink while eating or drinking
103. Fainting (ON MY RECORD)
104. Dry Skin, Peeling skin (ON MY RECORD)
105. Acne (ON MY RECORD)
106. Ridges in fingernails
107. Swollen feeling in abdomen or side
108. Heart palpatations, skipped heartbeats
109. Rapid heartbeat (ON MY RECORD)
110. Chest Wall Pain … Costochondryitis (ON MY RECORD)
111. Tinnitus (ON MY RECORD)
112. Decreased Appetite
113. Increased Thirst
114. Carbohydrates Cravings especially sweets
115. Attracting Mosquitoes
116. Insect Bites become more swollen and hard
117. OTHERS FACTORS...
118. Physical Injuries (TWO CAR ACCIDENTS)
119. Toxic Exposure (Mercury)
120. Severe Life Stress (ON MY RECORD)

Oh and I am STILL awaiting my new GP surgery, LMAO!

PHSO AND THE SARCASM

Here is first off a sarcastic and patronizing response from the Parliamentary Health Services Ombudsman which will be followed by my pithy comeback along with an explanation of the BIGGER PICTURE. 

The Bigger Picture is something the all fail to see despite their patronizing tones that insinuate a superior intelligence, lol.

Dear Sir

I write further to your email of 24 October 2013 in which you complain about your difficulties with your GP. We have previously informed you that we would not respond to your emails until you have completed the complaints process of Barnet & Chase Farm Hospitals NHS Trust and the Pension, Disability and Carers Service, however, as the concerns you have raised about your GP appear to be a new issue, I feel it is reasonable for us to respond to you on this occasion.

As we have previously explained in relation to your complaint about Barnet & Chase Farm Hospitals NHS Trust, before we will consider a complaint we expect the complaints process of the organisation concerned to have been completed.

In order to pursue a complaint about your GP, you can either complain in writing to the Practice Manager, or to NHS England (who commission GP services in England). The contact details for NHS England are as follows:

NHS England
PO Box 16738
Redditch
B97 9PT

Telephone: 0300 311 22 33 (Monday to Friday 8am to 6pm, excluding English Bank Holidays)

Email: england.contactus@nhs.net

I trust that the information provided will enable you to pursue this complaint. We will not correspond with you further about this matter until you can provide evidence that you have actively pursued your complaint with either the Practice or NHS England.

Yours faithfully

Ann Cox

MY SARCASTIC REPLY...

Dear Ann Cox

FORE-NOTE: FOUNDATION TRUST PREVIOUSLY INFORMED AND WILL ONLY CONTACT YOU WHEN THEY HAVE FINISHED DOING NOTHING

Thank you for your email response. When exactly did you inform me of all this previously? If you sent an email and I have not read it then I apologize.

But to be 'informed' as you put it I need to have been 'told' and if I have not read the email then I have not been informed and you cannot possibly know that so please try not to be sarcastic when sending emails to people when you are not aware of their knowledge.

Secondly I had to ask you are joking about going through these complaints procedures, right?

If you are not then I can assure you that I have previously informed you that I have been through this before and am well aware that it will go nowhere, just as I know that contacting you will go nowhere.

I would also like to pint out that ABSOLUTELY NOWHERE is it clear on how to go about taking action! AS well as yourselves there is the GMC, NICE, PALS and likely others all of which only pass the buck and inform people with complaints that they have to go down some useless channel that gets you nowhere.

Thirdly I did state that I was falsely accused and that I can prove it but oddly whenever I state this no one is interested. I can also prove the test results are falsified and yet still no one even asks to see what I have. This is a serious accusation that I can prove and I can do so several times over. This ultimately puts peoples lives at stake and yet none of the governing bodies nor Ombudsman who are paid for by US the TAXPAYER are even remotely interested in doing ANYTHING AT ALL?!

Could you explain exactly WHY you are paid for out of the public purse?

To cap it all I often get arrogance, rudeness and patronizing tones as if people in public services are a different species to everyone else.

The fact is when I go through these processes I actually cover them as I go to an audience. A very big audience I might add that grows exponentially over time. So when the excuses come forth along with any sarcasm and patronizing tones combined with a lack of action of any kind, including empathy or understanding, more and more people read it.

I also have a backbench MP who reads my blog along with his MP wife, a Baroness, and uses my data and evidence in the House of Commons and has done since January 2013.

What makes me unique in this is it just so happens that I have conditions that have been totally ignored, lied about and had a dozen wrong diagnosis for years. So I had the opportunity over a small space of time to be referred to many departments over three hospitals. In one year. IN each of these I was lied to about my conditions and about the test results.

The amount of times I have been lied to is around 80% and I clearly know a lot more about the bureaucracy and corruption within the NHS than YOU DO. I have also had several GPs lie to me and my LAST GP admitted that the NHS force them to lie and force them to NOT SEND PATIENTS for expensive tests, like MRIs, otherwise they get kicked off the NHS register.

Now here IS the amusing part. I hint that I actually have all this but for some reason people I contact who are meant to make sure these things do not happen FAIL COMPLETELY to pick up on this. Well at least I now know how the whole system managed to get so rotten and corrupted.

Now my audience has been growing for well over a year and has heading for 100,000 people and rises at over 2,000 per week. That 2,000 per week figure itself rises each week. So in a few months time this would be heading for 150,000 and rising by 5,000 per week.

My point has been to show that the Ombudsman and Governing Bodies are a complete waste of the taxpayers money and for the News Media to run around working out how much is wasted each year. Which I am sure they are in the process of doing. Now I cannot do this unless it is plain to see that I exhaust every avenue but I will not go down ones that are obviously a complete waste of time.

So as I have been through three GPs in this area, three hospitals, several specialists and currently attending a Pain Support Group which is nothing of the kind and every week tries to recruit people to work for Chase Farm Hospital for FREE I have done all that I can. While those that are meant to help have done nothing. Now would you like to know WHAT departments I have been through?

1) Rheumatology several times (Probably LIED)

2) Orthopaedics several times (LIED ABOUT KNEE MRI)

3) Podiatry several times (LIED)

4) Back Specialists (LIED)

5) Inguinal Hernia specialist (LIED & TEST LIED ABOUT)

6) Physiotherpaists several times and then some

7) Neurology (LIED & TEST LIED ABOUT)

8) St Michaels Hospital, Chase Farm Hospital, Royal Free Hospital, Barnet Hospital and I even cover Whipps Cross Hospital too

Now all that above is just off the top of my head and I have 50GB of data that has been used by MP's and my data against ALL the Ombudsman (QUANGOS), NHS, Police, Local Government and many others besides. Like HMRC has suddenly sprung to mind...ooh and courts as well as Debt Collectors and bailiffs....sorry I digress. Now where was I? Ooh yes my data...

It amounts to 50GB and it is all evidence to what is rotten, wrong, corrupt and truly wasteful within the United Kingdom.

So then...let us FORGET what you said about complaining the the practice, which will only give excuses because the NHS holds them to ransom.

I will now explain that I HAVE INDEED ALREADY CONTACTED THE FOUNDATION TRUST who are not only dealing with it but they are a NHS Foundation Trust so actually part of the system that is corrupt!

Now I only heard of these NHS Foundation Trusts recently and that was in a letter being KICKED off my GP surgery. You cannot speak DOWN to people becuase there is some section of the NHS that no one is aware of. IN fact the details provided to me by the GP were WRONG. That trust he tells me to contact did not exist!

It is humorous how many people I speak to that have delusions of grandeur that get their facts completely wrong over and over again with the next health professional being no different than the last.

In fact I have several recordings that explains my point whereby one specialist tells me the previous specialist was completely wrong!! I have had a fair few like that throwing out my previous diagnosis while I ran around in pain and waiting months on end for yet another person to diagnose me and them told 6 months later he was an idiot by someone else!

Oh not but you are not supposed to get angry or frustrated by any of this of course. So you get scorn, labelled and sarcasm along with patronized by people who fail to realize that they could not even come close to matching my level of intelligence!

So as I stated at the beginning I will contact you after the Foundation Trust has done nothing so that you can therefore go forth and do the same.

Yours 

Martin Haswell BSc