Showing posts with label epilepsy drugs. Show all posts
Showing posts with label epilepsy drugs. Show all posts

Monday, 19 February 2018

OLD NOTIONS

I wish I could step into the distant future.

A time where society as a whole had woken up and stiff and stupid laws have changed.

Laws that they claim are to protect us but which at times only serve groups that have old fashioned and outdated notions that are not just wrong but have been proved to be so over and over and over again.

How is there even a legal fight of any kind to be allowed to stop someone's pain or suffering?! Just how the fucking hell do we get into a situation where the law on something serves absolutely no other purpose than to cause suffering?!

Then you have to look into just how long this has been in place. Then how long it will stay in place. Then consider just how many people have suffered agonising symptoms, shaking, pain and other ailments in all the years this blind incompetence has gone on?!

I only see two words pop up in my mind when stupid laws exist that cause suffering ..

Money from fear of lack or decreased work and/or difficult to tax and ..

Religion .. because some fucking outdated notion that something is linked to a non existent figure, red with horns, living in a fiery pit.

Really?! No .. fucking REALLY?!

You have to consider that among those suffering will be old people and .. CHILDREN.

Here is another example of a complete waste of time and money that was completely unsuccessful in getting a bunch of overpaid people who are leeching off the taxpayers to uphold the rules that serve no one. A ridiculous example where the answer was to pop across the English Channel with their son and administer a drug for a rare condition that proved successful.

I mentioned that one possibility of this stupid law is saving money or over money? Well .. read this ..
This child was experiencing 3,000 seizures in a single year and 48 of these resulted in a hospital visit!
Despite this condition and form of epilepsy being rare .. very rare, with only six cases worldwide, many conditions exist that cause shaking and convulsions.

Now think about that. How many people that have trembling or shaking to deal with? How many with convulsions? Epileptics? Parkinson's? How many other conditions? How many affected within the UK?

But all of these have to suffer because of difficulty introducing taxes or an action being linked to the devil's work?!

Fucking REALLY?!

Good God how I would love to live in a country where it's not predominantly made to of a populace that are secretly amoral, mostly naive and the rest sit on their arses and do nothing. A country where they are not mostly right wing in all the wrong areas and the wrong reasoning .. to keep to the appearance that they are left wing. Helping one or more groups at the expense of another.

The drug is not even the one that I'm not allowed, which is Sodium oxybate which is not allowed anywhere in Europe. Nope .. we are talking, of course, of Cannabis.

Who was it that denied this child the only drugs, out of the tens of thousands of drugs they make billions on, that worked?

Why that would be the Home Office of course and giving the umpteenth example of a complete mockery of the law and the government and a complete waste of taxpayers money while letting down those they were tasked to protect.

God, I hate this country at times.

I am sure if you complained they would answer ..

"No but that's the way that it is"

No, that is a bloody mess and the way that you constantly leave it in.


I saw this on the BBC and thought you should see it: Home Office denies medical cannabis pleas for boy age six - http://www.bbc.co.uk/news/uk-england-coventry-warwickshire-43101716

Tuesday, 23 January 2018

ONCE MORE THE MERRY-GO-ROUND

I received a message tonight about a report of an NHS cover up.

When I asked further about it they days it was something to do with epilepsy.

I then realised I had seen something about this story on the news. Though I didn't catch it all and had to go out.

Oh if it turned out to be a cover up I would be happy about that beyond belief. Because I've known for awhile now that there are some bad things going on within the NHS and it doesn't appear to change when you have moved 250 miles north .. west.

I'll have to check that out further.

On the exact same day there is another BBC report about children's health being affected adversely in England. Yeah I've seen that first hand.

Child services was referred to as 'disjointed' due to public health cuts was stated.

The government stated that "world-leading plans" for child health were in place.

Yeah right. Where?

I was astonished at the absolute lack altogether of help. Save one hamper of food that was provided to the council by charities anyway .. so not from the social workers at all. Not really so technically there was no help. When asked they said 'ask the community' in a roundabout way. I say this showed their naivety to what is happening in the real world outside there offices. Everyone is struggling everywhere and especially where I was.

I think 2018 will have more revelations regarding the public services than any other year previous to it.

As for my Aussie flu .. for a couple of days I actually thought it had gone. For the past twenty four hours I've had a slightly sore throat. Like the one you get that almost feels like the sore part is a lump.
In the meantime I wonder if the NHS will outdo itself further?

Sometimes it becomes obvious that you cannot go upwards, or improve, unless you hot the very bottom first. This has been obvious to me for awhile as merely trying to inform people who are mostly naive is simply not enough. Of course trying to inform people who are merely all amoral in reality, if not outwardly, wont work either.

So I often look or wait for signs that each public service has a news report on them to say they have hit rock bottom. This means a widespread habit of lies and cover-ups.

Yes as it turns out it is that report about the Epilepsy drug Sodium Valproate ad has caused disabilities in babies that Norman Lamb MP is referring to as a "scandal".

How many more times do we need to go around the various merry-go-rounds?



There are, of course, lots of other claims of cover-ups .. a hospital administered overdose kills a baby?!


Wednesday, 18 February 2015

THE LEAFY DRUG WAR

I find the statements released in recent times regarding cannabis as... head scratchingly hilarious. Confusing while funny.

This BBC report I found tonight was sobering of a surprise.

After the recent reports starting that cannabis causes psychosis and I said rubbish I now read this report and raise they were playing both loose and fast with the truth.

I have stated for many more years than this blog has been live that I believed... no I was convinced that it causes problems in people that already have problems. If there is an underlying mental issue or even perhaps a family history of things then your at a high risk from smoking cannabis. However I can't tell you how high that risk is. Because it may only be specific illnesses and may need certain doses but because cannabis was just totally ignored because of sometimes agenda we... basically don't know.

This report now states this in detail and even separates the two chemicals within cannabis and discovers some surprising things about the stuff. Some of it  surprisingly good especially if you suffer from epilepsy. I know someone I would wager won't like hearing this but more about that another time.

It now turns out... allegedly that the THC that everyone talks about can cause the problems with psychosis and memory issues...noo my memory has no connection whatsoever with me using cannabis in the past as that was... bloody ages ago and I was not a big smoker of it anyway. It had fantastic affects on my Fibromyalgia and then many years later on discovering my Fibromyalgia then discovered it had good effects from cannabis. I told several Doctors this too and still Fibromyalgia was never, ever mentioned as a possibility.

It also turns out that the other chemical, the one that sounds more like the chemical that gets you high, CBD, cannabinidol, helps improve memory as well as slow down, stop and even prevent epilepsy?! Mad! In this report it turns out that parents of children with bad seizures have used something called Charlotte's Web which contains the CBD drug to amazing results. Trials are now ongoing, probably not the UK because of the corrupt NHS and powers that have large broom handles sticking out their arises and still in the mud laid down in medieval times, lol!

So when they said in the initial report that your for times more likely, or whatever figure it was, they were saying three quarters of the public are bonkers?! Lmao!

If they were aware of the fact that preexisting mental issues were why the numbers raised they were very, very stupid to word their report the way they did. Well either they are the stupid news media that reworded it to suit headlines, lol.

Either way the facts I stick to still remain the case.

Epilepsy suffered everywhere will have raised an eyebrow by now, then lowered, then raised it again, then lowered it before their legs and arms follow and the fall to the floor having another seizure.
Joking apart it's not nice to have. Though I have met many that have got used to them I don't know how. I had one many years ago, oddly aster getting stoned and everyone, including Doctors, blamed the cannabis.

Now what am I supposed to think? Lol!

I stopped taking Amitriptyline five days ago and went to my town to get a passport photo and a passport application form. Been trying to do that for two weeks. Got to a friend's place for a cup of tea and showed him the odd bits I bought from Maplin, key ring scissors, blank DVDs, pouch for headphones. Sat down and said "Oh fuck!! Remember I said when I left here earlier that I needed something in the town? Well I just remembered what it is... passport photo and application form!"
He finally realized what a problem my memory is and looked shocked and asked if I was joking!
Son of a bitch!

Cannabis: Promise, risk and controversy - http://www.bbc.co.uk/news/science-environment-31518546