THE DAY OF PAIN

That ... is becoming semi-regular.

It has become clear after this now occurring three times in the last year that ... it is not going to stop.

Yesterday I had one of the worst days of my life when it comes to both pain and discomfort. When it started it blew out my plans to get out on my bike with my new camera to some of my frequented nature spots.

After an hour or two I decided that instead of the spot that is about 8 miles away I should just go somewhere that is less than a mile away.

I ended up not leaving the house at all and from 9am, roughly when it all started, it was 11pm before I was finally out the other side of it.

There were points I wanted to punch the wall in front of me in my bathroom, except it is made up of mirrored tiles! That would not have ended well.

There were moments I wanted to die.

The rest of the time left me wondering how scientists can talk about the miracle of the human body when it causes this much pain and upset.

At times like that I am torn between wanting to phone for an ambulance but also wanting to suffer in silence as I never want to be around anyone when I am like that.

The funny thing is this stomach pain, gas, diarrhoea and other things is actually why, right now, I am awaiting a letter from the hospital for a colposcopy. That was how recent the last one was!

After around 8pm I was feeling dead tired too, leaning this way and that and trying to rest my head on something and just wanted to sleep. I was clammy and feverish too and I noticed this time around that whatever was going on inside of me seemed to be on my left side.

I sit here this morning now wanting to get out and do what went south for the winter yesterday but somewhat scared. Should I risk it?

I have not had any more bouts since around 11pm last night and the last couple of hours were so bad I spent an hour or more with my fingers down my throat for 20 to 30 seconds at a time, to try and force something out of me and for the vomiting convulsions to take my mind off the pain and cramps in my stomach.

Yup, that is how bad it got!

I had already decided that my decision to purchase Pepto-Bismol after my last bout was a very major mistake. I wont make that mistake again. Thank you Fibrofog.

I also realise that my memory lapses, known as Fibrofog, even cause me to forget how bad something is! One thing that kept repeating in my mind is 'How could I have forgotten how effing painful this is and WHY did I not buy Pepto-Bismol after the last bout?!'

One time I had it I had an hour without issues and went out and bought Pepto-Bismol from my local Boots Chemist. This is because there were some pretty strong and pretty awful smells I had deduced were caused my bacteria. Pepto-Bismol was something I came across that seems to kill stomach bacteria so I went out for it out of desperation to try ans stop whatever it was.

Within seconds of drinking the bright pink fluid I felt different. It stopped!

That could have been pure coincidence, I know.

I seem to get a lot of bloating with this too and after several hours you start wondering where all the gas, vomit and excrement is coming from and its akin to thinking you have developed a wormhole in your stomach and crap just keeps coming through from some other dimension or galaxy?

So this morning I tried to do a little research and see if I could nail something down prior to going to the hospital for a colposcopy.

Gastritis, not Gastroenteritis, came up and then so did Diverticulitis with mention for the latter of having pains on the left side. Getting bloated, I often feel it, feeling full after eating, I always get that and a few other things seem to tie up with what I had been experiencing.

There was even mention of bacteria build up in these bulbous pocket type sections linked to diverticulitis.

This was a bit bizarre as I am sure a member of my family has mentioned this condition to me the last few times they visited. I had not known anything about it until my research this morning.

Oddly enough the research also found mentions of children having difficulties and the funny thing is I used to have a lot of and fairly regular stomach pains when I was a child. So much so that liver salts along with Kaolin & Morphene and other things were permanently resident in the family medicine cabinet.

That would be just about typical that I had, had something else for years that the NHS missed.

But I spent many years of my adult life without too much trouble though ... it is only recently and the last few years I have started to have these issues return and far worse than anything I had as a child.

Fibre seems to be a common thing mentioned to use and oddly enough I am remembering going through months of buying Bran Flakes for months on end and several times over the last few years. Meaning I now realise I have had this occur at least half a dozen times and I have been forgetting about them occurring.

Probably why the very last visit with my GP, before he moved over to west London, he referred me off over yet another bout of heavy bleeding too. Yeah I have that other horrible complication going on down there which is another reason why I have been averse to visiting hospitals over it.

I told the Doctor the had better 'knock me the hell out!' My landlord looked understanding when I told him what I have and turned out he had, had this himself and told me they drug you up and you do not care. Sounds good, maybe I should book regular weekly visits for this?

LMFAO!

I have had a cup of tea and worried it would have adverse effects but its been thirty minutes and all seems OK. Had a couple of Jaffa Cakes too. If I am going to end up cycling 20 odd miles by going out on my bike I simply have to eat something. You also have to drink in the warmer weather, they say a litre an hour, or end up feeling drained energy wise before too long.

Normally I get constipation this time of year too!

Nothing is ever easy, is it?

EDIT:

In respite moments I managed to get downstairs as hating the fact I was not out getting content I was uploading videos to YouTube ... pressing 'Publish' before rushing back upstairs for another hour!

...

The times each is posted show how long I was ... incapacitated ;)
Shows just some of the other things I am into ... too ... no astronomy but I did publish a video of Jupiter and its Galilean Moons recently with more to come.

NHS INCOMPETENCE PART 2: THE VAGUS NERVE!

Boy I am glad that is over..well I bloody hope it is over..

Firstly I woke up sore and still am, whatever that last push did hurt like hell and stings rather!

But was forced out today and took a shed load of cotton wool in my backpack and well as packing out my already padded cycling underwear?! LMAO.

Well after being told last night that my situation was going to get worse by an idiot that did not know what Ex Lax was I am pleased to declare that she was WRONG! Well THUS far, lol.

I fell into a peaceful sleep around 2am and then woke up at 5am, exactly why I do not know, but after going to the lavatory (noo not THAT) I listened to the news for awhile before falling asleep again.

Around 8am I woke up again and I was thinking bout what I had discovered the nght before on the Internet. As per usual of the NHS and being told I was getting an ambulance, then told no and I would get a visiting Doctor I was then told that I would not get this and by the same woman at Barndoc that said that my situation was about to get worse, due to the Ex Lax, that I was NOT going to be picked up but that they had booked me an appointment for 10.30pm at Chase Farm Hospital despite me telling her I could net get there. "Get a CAB!" she exclaimed and I thought how so many of us disabled people have so much money lying around that we can just phone for CABS at the drop of a hat.

To say that the public at large are naive is one thing but to get this from professionals is quite another. That it comes form so called medical professionals is utterly shameful and I would hang my head in shame to be THAT naive and complete lack of compassion.

So I spoke to no less than THREE people and the closest I could be told, other than I could have a heart condition, is that the odd symptoms I failed to understand were "yes that would be a change on pressure" and I thought 'what the feck does that mean?!'.

Looking on the Internet last night I found out what the REAL reason was and it seems that there is a nerve, called the Vagus Nerve and Vagus is latin for wondering due to its meandering path down your spine, that caused all that. It apparently, and believe me was bloody hard to find this information and dozens of so called health sites before I did and not on the NHS sire EITHER, that if you involuntary strain hard enough the Vagus Nerve becomes compressed and drops your blood pressure.

From that Vagus Nerve becoming compressed you get the heart attack feeling, the sweating, the vomiting feeling and the passing out!

It also turns out that a damaged Vagus Nerve can can impact your swallowing (which I have a history of), Indigestion (which I have a long history of), Constipation (which I have had on and off for years) and one site was speaking of sinus problems which I also had for many years.

Then I wondered whether or not the CMT, being a muscular atrophy, may have had an impact on this nerve over the years?!

A neurological muscular disorder which can alter something that would place pressure on this Vagus Nerve would explain absollutely every ailment that I have had for a very long time. From the more alarming and painful down to the downright annoying, blocked sinuses at night.

Still whether or not the Vagus Nerve in my body is damaged or not, i.e. just gets compressed now and then, it explains alot. My mind DOES get foggy and I have often typed on this blog about how shopping is a nightmare and I often go out and get back WITHOUT what I wanted or even needed.

Just today I entered Tescos and bought a litre of Milk and was half way home when I realised I had not bought Decaf Tea Bags?! This happens all the time and I have always put it down to the pain r stress that it will get more painful while out so forces me to rush. I have often typed about how there were times when I have gone upstairs no less than three times in 5 minutes only to forget what I went up for, come back down and then remember?! That is the most bizarre thing, it really is.

It is rather odd, I find, that an absolute diabolical agony that I experienced that I would NEVER want again, I bought Dulcolax (or whatever it is called) from the 99p Store while out, and three people unable to help me, well one person and two idiots, that led me to uncover details about the Vagus Nerve that together with CMT explains EVERYTHING!! Well possibly and there is still more research to be done.

Maybe if Professor Mary Reilly returns from her Christmas break and decides to contact me I can ask her opinion on this as the entire NHS do not have a clue and the woman who refused to send anyone out to me did not even know what Ex Lax was?! When she said Senna and I said Ex Lax she said no and I realised she did not know what it was and I corrected her TWICE?!

Oh GOD LOVE it has only been around since World War 2 and possibly PRIOR to this, that is all and you work in a medical capacity and am not familiar with possibly the OLDEST laxative known to man?! Riiiigggghhhhht!!

So there you have it for anyone that has had anything similar it is the compression of the Vagus Nerve that causes those odd and horrid symptoms that makes you feel like your dying sooo much that you just want to welcome death with open arms!

I said it before and I will say it again ...

... i long for the day when I actually speak to someone in the medical profession, oh OK the NHS then, that actually not only KNOWS SOMETHING but can actually GIVE YOU A BLOODY EXPLANATION!

So the fact that they cannot and that the first person I spoke to was absolutely overflowing with compassion for what I went through, once realised about Mrs Emma Royd, that a decision was made NOT to send for me nor to send anyone to me despite telling me it was about to get worse and I said 'I doubt that love as worse would mean death!'

I REST MY CASE REGARDING THE NHS!!