THE DOOZEY AT THE DELTOIDS

I have been having an old pain return since the weather has warmed up.

Well ... I say 'old pain' only in the sense that I have not had issues from it for several months, long enough for me to have trouble remembering when it was last.

But do not get the idea this could be anything like a year or more because is quite simply is not.

But it does go on and off and is a very bizarre pain and one of three separate odd things that made me realise that my suspicion that I suffered from Fibromyalgia Syndrome was an absolute dead cert!

If memory serves me well, and it rarely does, it would have been from the absolutely best book I have come across on the subject, Figuring Out Fibromyalgia by Ginevra Liptan.

One of the other things that is odd and linked to Fibromyalgia occurs mere inches away from where this pain is located.

I have been meaning to look up the name of the muscle where this occurs and it turns out to be a name I am already familiar with, the Deltoids?! Not sure why I had forgotten they were called that. Or maybe I did not realise that the Deltoids actually went that far up?

For those that do not know where the Deltoids are located they are thee muscle at the very top of your arm over the shoulder joint.

Those with Fibromyalgia get this bloody odd and bloody annoying pain that occurs right over the shoulder joint on the outermost side. It is bi-lateral meaning it occurs on both sides of the body, ar at least it does with me.

Now what happens is mostly you do not feel anything ... until that is you just lifting your arm up, worse if arms are outstretched. You get up about 25% of the way it normally starts to hurt and this pain increases the higher you raise you arm. This is to the point whereby 75% of the way up is normally unbearable.

I have been getting this the last week or so.

Only this morning I could feel the pain before I was fully awake and I have never experienced it to actually do that previously. I tried to raise my arms up but by the time they were 25% of the way up it had already become unbearable.

In fact just sitting here typing this out I cam experiencing said pain in my Deltoids which is not unbearable but is DISTRACTING!

That has never occurred before either?!

I do not know if I missed some pills which has made it worse but I have not had this pain at all during the last winter. So I am wondering if this is a warm weather thing?

Unlike most other Fibromyalgia sufferers I have met, they hate the cold whereas I seem to suffer in the warmer months. I was envious of each and every one of the two dozen or so not affected by the warmer weather. This may have been one of the reasons I had learned to fear the summers?

Oddly I also hate the winters as it is so miserable, dark and not a great deal happens and nor can you do very much.

Hmm? Now that I think about it I have always like the Autumn and Spring periods equally and I now wonder whether or not subconsciously I knew these were my easier seasons of the year?

I came down about 8am and I took 100mg of Tramadol and 750mg of Methocarbamol in the hope it was ease the pain off somewhat?

It is 11.33am right now and I am not sure as I have not tried waving my arms about, lol.

Oddly I was initially annoyed as I knew the weather today was going to be crap, after several days of unbelievably good and one or two days of overly hot weather. But the fact that my deltoids are hurting as much as they are this morning I am kind of relieved that I am not going to try and cycle off to a spot that is around 9 miles north of here!

Could have turned out to be a very painful and therefore arduous journey. Not to mention dangerous.

I have spent the morning squeezing my deltoids every now and then in the hope it will ease the pain, though quite how my dumb brain thinks that is going to occur is beyond my rational mind.

It is times like this I am furious with the bullshit surrounding the three drugs I have never ever been prescribed, Sodium oxybate, Milnacipran or the only one of the three they CAN prescribe but wont because of cost ... Pregabalin.

I would do almost anything to get my hands on drugs that stemmed every single symptom Fibromyalgia causes....almost ... anything!

In fact even the existence of this blog was in the hope that if it could pay a small monthly income I could acquire these drugs and give them each a trial run to see what they could do? I had thought that after two years I might be in the position to be able to do that but over three and a half years I am still thinking I am a year away?

This deltoid pain is certainly going to increase the drive I already have to get a great deal of things done as far as content is concerned for the next 10 months!

The other odd symptom I alluded to is actually your armpits and even wearing a tee-shirt in the warmer months, well hot months, makes you feel like you have a small tennis ball shoved under your armpit!

I remember the first several times this occurred I actually thought a tumour had bloody appeared under my arms! But you put your hand there and nothing is there and nothing, it all seems normal and your like 'EH?!'

Oh well, keep marching on I guess?

THE DOUBLE IRONY

Oh now I cannot get over the irony today.

I visited my Doctor's surgery ... err Tuesday. Now for those that know I only go to my GP on a Thursday as he only works Thursdays. This is a actually handy for me as I have short term memory issues that are quite bad. So each week as Thursdays approach I question if I have an appointment coming up.

Only when I asked for the appointment I was told he was doing odd days. So I said I did not mind and to book an appointment for whatever free appointment on whatever day he has next.

So I went in on a Tuesday.

Only ... I did not see my GP!

Do not ask as I bloody well do not know.

This is not that which is ironic.

Right now I am in a lot of pain, as oddly I was yesterday morning but with something else. This morning I awoke in bed unable to move with an intense pain in my back. This was the worse so far and any attempt to move, even only 10% of consciousness, and the pain intensified further.

Eventually I was fully awake and just to get onto my side I had to grit my teeth and roll with it.

It is supposed to be a sunnier and warmer day today and I am panicking at the moment whether the pain will die down in time for me to go out on my bike. First day of warm Spring sun and I am crippled.

Not, that is also not that which is ironic.

On Tuesday just gone, the 15th, I attended my GP surgery for the results of the DEXA Scan, which I already knew the answer to. Though they did say I had some score of 12 or something out of 21, or was it 15 out of 25? I cannot recall. Do not know how bone densities work and like I said I thought this was bullshit, avoidance of the known fact to not treat me or give me drugs to save money. It was clear at any rate, though I am told I have to have another scan and do weight bearing exercises, DUH! Oh an take in more calcium apparently.

That is it.

But the pain is not only still here but this morning is giving me a living hell. It took me twenty minutes just to get a pair of damned socks on and for the first ten minutes I did not think I was going to achieve it! Luckily when it came to tying my laces I could get each foot onto a heater. Bringing my feet closer to my chest and as I bent forward it hurt a lot less.

Now just for the record the pain is exactly where I stated it was from the beginning, a little above the centre of my spine but radiating to the left.

I also always get twinges in this area when I am riding my bike and look over my right shoulder to view any oncoming cars and lorries. Therefore dangerous riding a bike.

Yet I keep being told to ride my bike, lol.

Oh and I already do weight bearing exercises as I mentioned this on here, though in the last couple of months I have not but not anywhere near long enough to affect bone density.

So I have told my Doctor surgery about this issues several times. Yet what I got was 'Well we will send you for an X-Ray of your back while lying in your side in the foetal position with your spine stretched out and then a bone density scan, DEXA, despite the fact that you have fully informed us and given us your own X-Ray to show that it IS in fact your discs and that several of them have collapsed, leaving no gaps between 4 or 5 vertebrae".

Oh and those privately done X-Rays I handed in?

Well I now reckon it has been three months and I have visited a minimum of twice, but think this was the third I am sure of it so four months, and nothing.

The GP I saw, brother of my GP, said he knew nothing about it but would get his brother to call me.

Now I did state that I had pain yesterday morning? Yeah, that wasn't my back. In fact that was something quite weird and I have never had it before.

I was squeezing the flavour out of a tea bag, with one of those tea bag squeezing tool thingies, when I felt a pain in my forearm in my right arm. My hand also started to bend inwards and the pain became quite intense. As  I realised this was going to be intense I immediately clamped my arm against my chest which seemed to stop both the pain and the clawing hand in their tracks, but the problems persisted.

I then had to continue things using my left hand only for the next hour or so. After about 90 minutes to 120 minutes the arm went back to normal. Whether this had anything to do with the fact that as soon as I clamped my arm against my chest I turned 180 degrees and wolfed down a Quinine Sulphate pill, I do not know.

So...I am waiting to see if the pain they have avoided for over a decade is going to clear up in time for me to get out on my bike on the very first warm and clear day of Spring that I have been waiting for since last November.

Ironic, much?

LMAO!