To look at us it would never occur to you that there was anything there, no different to early stages of cancer, but just like the killer disease it is there. We know this. Because we feel this. All the time.
But to a number of public services the government wanted to save money with they decided that everyone in the UK is stupid and that they could go after these people and that because you cannot see it, it would appear to not be there. Other simply would not care .. as long as their taxes go down and I have stated over and over again .. taxes only ever really go up. Certainly in the long term.
How many years have we been at this now? Seven? Eight?
Wow .. it has really done its job, has it not? We are well free of the financial troubles .. oh wait? I think Vince Cable just said in a little speech that things have been getting worse and about to get worse? Crime has gone up by its largest amount. Exactly as I stated it would. The savings and kicking in the groin of disabled people has done absolutely nothing. Even with over 100,000 people dying as a direct result of that kicking (Google Calum's List) they still have not done anything.
I stated, when David Cameron first announced Welfare reform, that I was all for it and behind him when he stated it was fairer and provided that was his intention. But I also stated that I could not but feel that he was just going to create a craftier way of going after people with disabilities that was even worse than that of Tony Blair?! I just could not shake that feeling and I was around 80% convinced they would go after even more conditions of the list of disabilities and I was right.
If your on a list of disabilities and that condition is a registered disability then that is that. It is not called a disability when you can actually walk and get around normally just like everyone else. It SAYS disabled because it MEANS disabled.
Except when your a Tony Blair government or worse still, a Tory Party government.
Well the number of people that have died have exceeded 100,000 some time ago now and they show no signs of slowing down.
They are doing this for the good of the country.
Funny that as I thought the country was the people of said country. Without any people a country is just a land mass. Well that is my train of thought and always has been.
So they think the best way to help the country is to actually very deliberately go to the weakest section and either make their lives a fucking misery for years and years with the hope they will kill off a few hundred thousand and therefore reduce said bills?!
Yeah that seems to be working out just fine and dandy, does it not?
Let us forget about a knee problem I have that was spotted, tested and diagnosed by the very same Guy's Hospital Doctor/Specialist that diagnosed my Fibromyalgia .. I have Fibromyalgia.
I also self-diagnosed that Fibromyalgia long before I had it confirmed at Guy's Hospital.
Well .. except .. I had been nagging General Practitioners and hospitals about it for over 13 years or more. Let us look at the tests and the departments I went under ..
Departments
- Rheumatologists x 3 (Whipps Cross, Wanstead, Guy's)
- Podiatrists x 2 (Forest Road Med Centre, St Michael's)
- Orthopaedics x 2 (Chase Farm, Barnet)
- Bipedal Mechanic (St. Michael's)
- Foot Specialist (Barnet Hospital)
- Lots Physios that did nothing (Wanstead, Whipps X, Chase Farm)
Tests
- Tarsal Tunnel Syndrome
- Nerve Conduction Studies
- X-Rays .. at least twice on feet alone
Condition Drawbacks
- Half Dozen to Dozen or more areas or more of pain
- Can include several areas of pain in feet including Plantar fasciitis (IN REVERSE!)
- Short Term Memory Loss
- Body Temperature Regulation bad (either trouble with cold or heat)
- High Blood Pressure
- Fatigue
- Sleeping is crap, can have periods of insomnia that last for months on end
- Nervous Breakdowns from stupid things
- Rubber Leg Syndrome
- Restless Legs Syndrome
- Restless Arms Syndrome, yes look it up!
- Uncomfortable lump feeling under arms when wearing clothing
- Tightness in skin over breast plate
- Skin conditions in several areas of body (I have 4 but feet have started to have .. signs)
- Possibly causes my Postural Hypotension (not good when you have abnormally high BP sometimes over 200)
- Chest Wall pain (you really don't want that) could be caused by Fibromyalgia
- Could be behind my back pain or it is a knock on effect
Except if you look at me I am fairly fit and muscular ..
Because light exercise or exercising parts that are not hard can reduce the symptoms frequencies and intensity.
I keep looking up at those different bullet points and I know I am not recalling things. That test section I am sure should be over double that length .. oooh X-Rays, lol.
A brother phoned me recently and stated that Fibromyalgia has now been declared as a long term illness, which is odd as the NHS nor the DWP have contacted me about this.
I am having a hard enough time getting anything out of a solicitor who is supposed to help me out with this, the disability side which could make or break me becoming self-sufficient over the next year, see upcoming post about that called 'The Last Days'. They really will be the last days as it has now been confirmed. Kinda. Lol.
Anyway after being told this about Fibromyalgia over a week ago I finally remembered I needed to 'google it'. I only found a BBC report that stated that Fibromyalgia has been declared a long term disability in Northern Ireland?! Getting closer. Lol.
As I said I try to exercise because deep down this condition terrifies me. Because I have been told by a specialist that you can end up so bad you are bed ridden. The light exercise and the pacing is the key to stopping this from destroying your life completely. Bloody hell I even saw a Paralympian, I think it was, in a BBC report that stated they had to crowdfund a damned wheelchair!
What we actually have is a society that is behaving like that as they did in Medievil times but are trying to hide this fact. Where they weak die off and the strong, and those with money, survive. Good attitude that. So why even bother having hospitals at all? I mean all hospitals, I really do and I mean private ones too. I mean if the attitude that the weak can die is OK then it should apply to all, am I right?!
How much of a negative effect all this has had on medical research, God only knows!
I still maintain that Chroniic Fatigue Syndrome, Fibromyalgia Syndrome and Chronic Regional Pain Syndrome are actually one and the same thing. Just different levels of the condition when it comes to pain with CFS being the early stages, FMS being the mid stage and CPRS being the extreme stage.
There just seems to be too many similarities between them, outside of severity and a few symptoms, to just be coincidence. So much so that I have wondered for a few years now why this has not been spotted or even suggested by anyone in the world of medicine? Have they just missed the obvious or are thy deliberately letting them be classified differently?
Although it was somewhat .. complicated I do know someone that was refused both DLA and PIP despite having quite bad Chronic Regional Pain Syndrome. Yeah did not look good for everyone else with these nasty conditions.
Fibromyalgia Syndrome Declared a Disability in Northern Ireland ..
http://www.bbc.co.uk/news/uk-northern-ireland-37424804
In America ..
http://fightfibromyalgia.net/fibromyalgia-is-declared-as-a-new-long-term-disability/
Some get help .. some do not and those that do being kicked off disability one by one in the UK ...
A Forum of Sufferers ..
http://ukfibromyalgia.com/forums/viewtopic.php?f=11&t=13756
Now what did I say only recently and have stated for five years now? I stated that they are not ignoring the obvious ones, the NHS & DWP, but ignoring the less obvious as well as going after them!
But, hey? As long as they look good, right? As long as they save money and get the UK out of trouble, right?! Except they have been doing this for years, successfully kicked me off twice now.
"Targeting those with invisible disabilities undermines the fairness of benefits reform" - Telegraph
http://www.telegraph.co.uk/news/2017/02/28/targeting-invisible-disabilities-undermines-fairness-benefits/
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