Now let's see if I can
get this straight in my head?
I'm alone with the
youngest grandchild and two women have gone to pick up a child.
There is an appointment
to do with the older of the autistic children who is the one being
picked up, which takes place in a couple of hours.
Just prior to them
leaving the three of us struggled as we tried to recall the odd
behaviours of the older of the two with autism. Paediatrician! That's
the appointment they are having
today, my bloody memory?!
So
yeah .. two of us with the memory issues and one other listing all
the of behavioural patterns on just the older of the two with autism.
It
was a very, very long list.
But
that's not why I'm typing this out ..
It
was meeting number seven with the council, suicidal workers, health
visitor, victim support, school and nursery. At risk children over
domestic violence with Terri of them more or less diagnosed with
Autism. I say 'more or less' because it's accepted by all but you
have to go through processes that are basically a stalling procedure.
Then there is this stupid rule about not being able to list it into
they are four years old.
Now
if it was the age of three before you could list it, whatever
'listing it' is, I could understand it to a certain degree. Still
wouldn't agree mind.
This
is because of the infamous phrase of 'the terrible two's' as say in
the UK.
So
it might be .. difficult to ascertain?
But
what if the 'terrible two's'' become the 'torturous two's'' because
that age is compounded by the onset of Autism?
So
.. there were three of us and one child heading down to this meeting.
We were a little early but the mother wanted this. Because they had
failed to turn up so many times if they did it once again they would
look even worse than they already did, if that was at all possible.
They
did it again and they did look worse.
We
waited patiently in my car fur well over an hour, and closer or even
longer than 90 minutes the longest I had waited this far. The friend
said they must have turned up as it had taken so long and I said with
a knowing smile "Don't bet on it!"
Of
course the child with us played to several times and I had to console
her with bubbles that had no liquid in them, coins and games.
The
mother in the meeting came back and her friend, convinced that
everyone had to have turned up due to the time said "So the
meeting went ahead this time then?" to which I knew the answer
as I'd seen her face. She said "No! Nobody turned up and the
Independent Review Officer went mad." Her friend said "But
you've been in there way over an hour?!" to which the mother
then said "Yeah, she ordered some prior down, she was one of
this people that does things with their hands while taking .. well
she pointed at each of them and said : you call yourselves
personals?!'" to which her friend said "Your joking??"
then started laughing.
I
am still not sure who, if anyone, had arrived. If be surprised if the
health visitor was a no-show.
As
we drove away I said that this is the beginning of the end I've been
waiting for .. the fact that no one wants to be there confirms what I
already suspected several years earlier. Except they are not being
smart about it.
It
shows me cracks that I've been waiting for, for almost an entire
decade. Because when I first suspected what we going on 15 years ago
or occurred to me there was one possible way it could all fall down.
The
very weird thing about all this is that I never expected in a million
years that I'd be right in the middle of it, figuring figuratively
speak as I'm actually just inside the edge.
I
never thought I'd actually witness personally that which I've been
predicting for a very, very long time now. I also expected it to
happen a lot sooner.
I've
read and watched new articles over the last few years where I thought
it might happen, but did not.
But
then maybe this is what it takes?
Out
of all the big name but utterly useless national tabloids and TV news
networks it had to take me being involved to break it and force
something to happen?
Let's
not beat and the bush here .. they are certainly scared of something.
They simply have to be to not turn up when an outside body ORDERS
them to. So what is it? And why is a separate entity involved?
Well
it's not like there are unlimited funds for private legal proceedings
or any Legal Aid? Because there isn't.
There
is, however, me. More specifically what I've been doing for a very
long time and this blog.
But
that's not what I'm getting at, just a possibility as to why they are
acting the way that they are.
What
I said we that .. you have a situation where no one wants to take the
blame. No one.
There
must have been a long list of situations around the country whereby
councils, schools, nurseries, social workers, victim support and
others have been given blame? Even the NHS has this and every the
ones reported on make a scarily king list. I bet the real list would
have the nation in an uproar?!
What
I predicted is that even in the event that they help each other out
and they do, that there would eventually be situations where this
fails to work? Then you would have literally panic stations in each
organisation and not wanting to take the blame they would all point
fingers at each other.
The
nursery has admitted that they know Wirral Council are trying to
blame them.
Oh
we it turns out I've now finally just had a conversation about this
and my trusty health visitor was in fact a no-show?! I'm shocked.
In
fact the only one that turned up as someone from the nursery, which
is a first.
When
someone from the school finally turned up after being ordered to do
so they had their proverbial strips turn off then fit not doing
anything and not perform something called a Conner's Test, or
something similar.
Also
weird is that I watched this morning as the mother spoke to the
headmaster of the primary school about the meeting that morning. He
claimed to boot know anything about it but .. well be then did. They
did not show up either.
The
mother pulled a me!
The
appointment with the paediatrician is tomorrow and not today. But
they did state that they had all the reports. So .. that's something
.. I think?
Got
a glimpse of one page of the primary school report the mother dude
she should request .. under notes on the back of actually states
'nothing' and then says can't count beyond our even to '3'.
Funny
as I've got her to count beyond '3'.
Oh,
would you believe it?
I've
just had a call from what sounds like a helpful and understanding
person from what he described as some joint venture between the
Citizens Advice Bureau and Age UK.
"WOW!
This is a .. tricky one! I'll have to go and speak to others about
this!" is more or less what he said word for word.
He
said he will call back in half an hour but I'm not going to hold my
breath. After all and as I already stated they were supposed to ring
me the other day but didn't. Taken then three of four days.
I
don't care about the waiting and I never have, desire what some over
zealous woman said on DPAC's Facebook wall.
If
someone tells each of us "Don't worry, this WILL be sorted in
[X] amount of time" we will both sleep easier.
Unfortunately
this can't happen did the young mother until five things occur. Maybe
more? The results to a biopsy, breast scan and abdominal scan. That's
the important three. Lung even .. ovaries scan. Full diagnosis from
at least one of the two children. Initiation of the support needed
and there's a lot to fix too. Painting, decorating and moving to the
new house and a car acquired with all necessary equipment for
Autistic children, TWO no less.
I
discovered a bit more as the day went on .. it is like King's Cross
Station here .. some days there is a lot of coming and going and
today is one of those days.
My
daughter has called the GP Surgery three or four times in the last
four days in the hope of getting results. I told her that they wont
get results for two weeks minimum. She told me that they were told
that it would be within two weeks. I said that maybe it is different
around here, but I doubted it, but that in my experience the process
goes no faster than two weeks. In non fatal test results it can take
6 to 8 weeks but I did not tell her that part.
However
she went and phoned today and some idiot told her exactly that. I
said that I had hoped they would keep that art from her but reminded
her that with my own head MRI they told me two weeks, it took a
little over that and they came back as clear. Though .. they could
have lied. It would not have been the first, second or third time
they had lied. In fact it runs well into the double figures and
beyond a couple of dozen. Soo ..
That
seemed to settle her a little but tonight she was on edge and wanted
to go and see a friend and asked if it was OK if I looked after the
kids? I said yes, two girls would have been put into bed anyway and
with any luck would have fallen asleep and with a little more luck
wont wake up.
Of
course needy-boy was told to go to sleep and his overwhelming
feelings of self-importance had him starting to play up by faking
some loud crying. First he was told off for it and then she gave in
and said he could stay up until 8pm. Giving him an extra two and a
half hours.
He
was also told to go to bed when “Grandad tells you to or you go to
bed early for the rest of the week”
Yeah
.. that really does not work because he knows the the grizzling
loudly gets him what he wats half the time.
Take
for instance the other night, he got a pack of crisp just before bed.
He then kept shouting down and demanding a packet of crisps. I had
told him off, told him no and that he had already had a pack. But he
just grizzled even louder and higher pitched and said “But mom
said!!” I do not recall that and because of the grizzling and the
fact he knows his mother will panic that the two autistic girls will
wake up she took him up a packet of crisps.
He
never learns.
He
then wanted to coe down because he did not want them all because 'I
am full'. Did not really want the crisps as much as he cried abut
then, did he?
His
mother was then told by me that he had quite literally lied about
wanting crisps because he had just eaten a pack before being told to
go to bed. He had NEVER failed to eat a packet of crisps before so
gave himself away to his mother. Her friend also turned round and
said “HE had just been given a packet of crisps just before he went
to bed, I can't believe you gave him another packet!” to which his
mother went “Oh?!”
This
was the night the Police were here so his mother did not know. She
was bloody annoyed that he had been played yet again by this boy.
It
is literally like this every single day .. when he is not winding up
his older brother or his two younger autistic daughters he is telling
lies, demanding stuff, helping himself to stuff and doing all manner
of things.
What
drives us adults to even more distraction is that if he catches a
glimpse of someone else doing something, even not that bad, he races
into the room trying to get them into trouble.
When
I say he winds up the others .. if they do get into trouble for
something he will then say to them “Ha-ha! Mums told you off!”
Yes he is the most misbehaved of them all.
He
is only beaten by the two girls or two and three by their meltdowns
which at the end of the day is down to their condition. Yes .. when
severity is involved and maybe volume the girls come in one and two
in the list of bad behaviour and their parent's stress levels. But
for sheer consistency then needy-boy gets it every single time.
I
have told everyone that I pray to God he grows out of it and soon ..
as it would be nice to get another problem out of the way so that we
can concentrate on the Autism, research and what or more apt, how we
are meant to deal with it.
Anyway
.. I was told something quite interesting regarding the meeting of
all today and that was that .. well .. I keep saying this year that I
have lots of things to publish? Well the mother kind of let the cat
out of the bag when she said at the end of the meeting when several
people were ragged into it more or less kicking and screaming ..
breaking one of my own golden rules ..
“Just
to let you know .. I am recording you all!!”
I
looked at her and said “Your joking, right?” and then laughed. Oh
well .. if they had not figured it before as they caught my daughter
using a phone so that I could record a meeting from around 8 years
ago .. they know now!!
Yeeeeaaah
.. you see .. I have not published anything for around two and a half
to three years but that did not mean that I was not doing anything.
Sorry NHS, I know you read this blog! LMAO!
I
said 'cracks' and I meant 'cracks' and I have what could be the
largest proverbial crow-bar in the history of proverbial crow-bars.
But
as I have said recently .. it all comes down!
For
instance .. if your utterly shocked at what you have read recently
and have had doubts about the believability of it all I first off
would not blame you and secondly .. yeeeah .. I have been collecting
a hell of a lot of proof and I have become very adept at doing it,
bar the odd stupid mistake.
What
they should be realising about now .. well after asking themselves
how many of the several dozen meetings that produced nothing at all
have actually been recorded, is how long do they have?
I
had stated to the young mother that things were so bad here with both
Wirral Council and the NHS Trust that I would not be surprised at all
if government commissioners were bought in an Wirral Council was
dissolved and the area put fully into Cheshire?
That
might sound extreme but .. many, many years ago they completely
changed the postcodes here and it places on the Wirral used to start
with an 'L' for Liverpool but then changed it to 'CH' for Cheshire
which I thought most bizarre at the time.
It
is t a process that would take place over night but you might hear
something in around a year to eighteen months, maybe?
Yeah
.. they seemed and it felt like they were trying their best to get
rid of me by forcing something upon me that would be .. well ..
self-inflicted? I still have the scars.
That
was never going to happen unless I took them all down with me.
Or
indeed they pissed me off again by failing the members further down
my family tree.
They
have not only attempted both but in as many months.
My
excuse to start recording again?
Umm
.. whoever said I was recording .. again?! That
would suggest that I stopped at some point?
Nahhh
.. that is exactly what I wanted all the public services to think!
Sorry to any previous people doomed to become my victims .. it is
purely business and most of all .. JUSTICE.
No
one forced you all to lie, cheat and falsify documents, reports and
the like ..
..
or did they.
Anyone
want to release some tension by taking deep fast rapid breaths?
Might
I suggest a whistle?
LMFAO!
EDIT:
Ooh I almost forgot .. here is a lesson from the past I have told over and over and over again ..
When the mother announced she was recording, using one of my own nifty devices I might add, the representative from the Nursery said the following ..
"Good! I am so glad that you are because you cannot rust any of this lot!"
When told this I then said the following ..
"Right, now you know that you can trust that person because they have shown without actually saying it that they have nothing to hide!"
END EDIT
EDIT:
Ooh I almost forgot .. here is a lesson from the past I have told over and over and over again ..
When the mother announced she was recording, using one of my own nifty devices I might add, the representative from the Nursery said the following ..
"Good! I am so glad that you are because you cannot rust any of this lot!"
When told this I then said the following ..
"Right, now you know that you can trust that person because they have shown without actually saying it that they have nothing to hide!"
END EDIT
For those of you with the very unfortunate fate of having a child suffering with Autism and had no help .. well if you wondered where to look and might well be wondering what the hell this 'Conner's Test' is ..
Conner's Parent Test Questionnaire PDF file ..
Net Mums ..
ADHD-BRAIN ..
The ADD/ADHD Support Site ..
Autism.org.uk ..
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