I am definitely having
a hot day today.
Recently I thought I
was doing well but I am not so this morning. My typing is all over
the place too and with this playing up I get from this crap keyboard
sold to me by PC World it is already a pain after just two sentences
and a little YouTube searching.
I feel like I am almost
burning.
I am going to do a
quick search, never thought it would quite get like this especially
as it is supposed to be cooler, going to check the temperatures too.
Nope, 23 celsius so I should not be feeling this bad, it feels more
like it is 40 Celsius or more and there has not even been any sun
that I have seen!
Aha … hmm
my system is refusing to copy an paste! I thought it did this
previously but thought it was me forgetting to select 'copy'. May be
I am not going mad?
Hmm going to close this
and start it up again.
Aha!
There is a page of
Fibromyalgia sufferers speaking about heat … going to see if there
is anything I can buy or get from my GP for this … it is very, very
uncomfortable today.
I like this line …
“Typically,
a person with fibromyalgia may see more than 10 healthcare providers,
including multiple specialists, before being properly
diagnosed,”Argoff told Healthline. “Who wouldn't be frustrated
under those circumstances?”
Every year I feel like I can pull through and normally it is just
feeling hot while sweating an incredible amount. But I feel like I
have been sunburnt today, God damn it!
Ooh I have a sofa pillow with a different material, ribbed, and I
have just used that behind my back as the sofa feels as it it has
central heating going on inside it. Yeah the material of my sofa
prbably not the best with my condition, like the rest of my house.
“I
have been diagnosed with Fibro for at least 15 years I would say the
devil caused it if anyone”
That
above is another good quote by a lady in Tennessee, Texas, USA. If,
of course, you ignore all the religious crap where they argue which
God created Fibromyalgia and whether there is a God or not, lol.
Hours
of discomfort and tingling arms feeling as if they were burning but
it has finally died down … probably because I moved my ig velocity
fan around to blast at me. I still feel heated in places.
Nope
… getting hot again. Does not seem to be an easy fix for this and
though beta-blockers were suggested in the past the ones I am taking,
Propranalol, are not doing anything. Funny that these things are
happening after what the DWP did?
I
have not posted this and now it is the next morning.
I
was looking up to see who is out there to help people wit
disabilities and in my experience thus far there seems to be a hell
of a lot but none of which actually do anything. I try to feel
confident that I have the advice of the Citizen's Advice but every
time you ever mention them to anyone you only ever get one single
response from people They are useless, all they do is advise” and
to be honest this was all that I had form them in the past … only
they did not even give advice on the trouble I found myself in. They
told me they knew nothing about bailiff law, even though it consists
of a couple of A5 pages, as it turned out.
I
find it funny when you go t sites for help and all they seem to do
is list everyone else, including several you have just been to or
told they do not help other than to give advice. How many
organisations giving advice do you bloody need?
Even
after finding out that Mind have their own advocacy and legal people
they have since written to me and told me that they do not.
As
I was looking around I saw this page whereby a similar thing that
happened to me between the Citizen's Advice and Jobcentre Plus. The
CAB tell me to go to the Jobcentre Plus to do something and the
Jobcentre Plus tell me I can't, or they can't, do it! I am even more
confused because it states on the web-page that the Jobcentre Plus
have disability advisors and I am wondering why this is the first
time I have heard about this. Though quite bizarrely according to a
Jobcentre member of staff the disability advisors only apply to
disabled people that are working?!
The
other funny thing is the remark about finding someone that knows what
they are doing and I think this shows up the British public's naivety
at large. I get the same thing from people but no one seems to
realise two things …
- No one seems to know what they are doing so you wasting your time
- The fact that no one seems to know what they are doing means they are up to something and damn well know it
How
nice it would be if you could have just one advice organisation and
if you went there and you needed help they would put you onto the
only help organisation. I mean, how hard is that?
To
me there are a lot of cheats out there taking donations for faux jobs
and careers doing basically nothing.
I
just added someone called Masis and the Disability Living Foundation
to my lists of people I have contacted that claim to help those with
disabilities. That takes the total up a few to around two dozen I
think it is?
Oops,
add someone called SEAP to that list.
If
I am to become homeless once again and with a bonafide disability
diagnosis after 14 years of asking and twenty years of having it I am
going to make sure that everyone that is useless and a waste of tax
or donation money is seen as just that.
Lol.
Did you check my new article about small apple nutrition.I hope you will love it :)
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