THE FIBROMYALGIA SYNDROME 101

Just recently you would have seen my publish a whole string of events that at first I had not realised were linked together.

Ever since I diagnosed MYSELF with Fibromyalgia I started to realise many of the things that have been going on in my body. IN some respects this has been a great help in more ways than many could have ever imagined.

Now despite any halfwits that are working on researching Fibromyalgia and the fact that GP's and the NHS would rather no one knew anything about the condition except themselves I fully intend to delve deeper into the mechanics that cause the condition.

Knowing what it is is half the battle in this sense.

Now sometimes I react to things in such a way that later I am surprised about. How I reacted to Amazon's sodding about and taking the piss is no exception and an example I am going to use to explain things and link them together.

Now I will run through the very recent series of events and then I am going to run through a vicious circle that is the condition of Fibromalgia Syndrome.

PART ONE (SECTION A)

1 I was happy after I discovered I had Fibromyalgia

2 I was happy with my new Doctor and for him sending me off to Guy's Hospital

3 I was happy with the Guy's Hospital appointment and felt a confidence I had not felt in awhile and thought that the powers that be within the NHS had decided to back down from taking me on.

Now I am going to break and list the vicious circle that is Fimbromyalgia Syndrome.

PART TWO

1. It is a fault Central Nervous System Damage that revolves around too much Substance P (pain signal) and lack of proper sleep every single night.
2. Stress is a trigger factor and so is lack of sleep so you have to wactch a balance of both
3. You end up convinced that no burning energy no sleep, zombified and feeling sick while extremely nauseous for days on end. So you become obsessed with being able to sleep and buring up energy (a FACT proved by the recording of the Guy's Hospital Appointment
4. Staying indoors stresses you out
5. Staying indoors in the heat you cannot handle stresses you out more
6. Staying indoors for consecutive days due to morons … NOT GOOD!
7. FMS is aggravated by stress and it becomes a vicious circle

Basically you can get the idea, you work out a system and one thats not boring to be able to cope with certain aspects of the condition.

PART ONE (SECTION B)

• Go to GP tell him I am diagnosed with FMS but did not need to be told as I was one that asked for referal. Told him I was prescribed Pregabalin
• NHS see a chance to make me look a liar by then altering what was stated about Pregabalin and say they prescribed Gabapentin which I actually refused as I have a cupboard full of the stuff! No mention of the knee problem either
• Conveniently for the NHS they tell my current GP, thereby using him as a stool and for target practise, damage his ego knowing he will confront me and while they know about FMS he does not and I am riled up in the hope of thumping the GP in the jaw?! (Whether he knew this and was prepared to do this to protect his NHS registration I do not know, you will have to ask him)

This then aggravates my condition and I have several flare ups, some I did not mention because … well all in good time!

PART ONE (SECTION C)

1. I am victim of a curious attempted break in (I have actually known the truth about this for a couple of days and the reality of is is MIND BLOWING!)
2. In a matter of days I am trying to finish a Project I started after beating Enfield Council without even going to court this time, something that a friend fails to believe as she has been fined several times. Enfield Council pay me money which neatly ties into my project
3. This 'PROJECT' is a big one for me and it is to help me in several ways, help me to attain a great deal ogf photos and film for my various blogs. Also to prevent several pains I have while sitting on my sofa
4. I order things from one company (nameless for now) and then a few things of Amazon, who then royally screw things up in ways that are difficult to believe and keep misinforming me in the process. I end up sitting indoors, which I hate doing for both boredom and my Fibromyalgia, and the deliveries fail to arrive
5. I then get a phonecall regarding something quite personal I have not referred to at all in any way. I am also not allowed to speak of it presently and nor would I if I was able, though this will come out later on in the year via … other sources. It makes not good hearing, worrying yes but not as worried as I could have been. The compounds the problems I am having with my flare ups as they are now being fed
6. Amazon inform me that the parcel is Geo-Tagged and its showing as being in my vicinity, but the story changes from being posted into my letterbox to being posted into a neighbours?! I have three neighbours and two have not had it and the third has not been in her house for several days, likely in Poland. (I NOW KNOW WHAT HAS HAPPENED AND AMAZON DO NOT- BELIEVE ME THIS WILL REFLECT EXTREMELY BADLY ON AMAZON!) Amazon tried to say I was lying and this does not go down well with me
7. They arrange to deliver a replacemement on Suday and I wait in for yet another full day sitting on a sofa and staring at my own street door and I get yet another bloody lie, like Atos did and backfired badly, when they said that they knocked at my door and I was not in. (I came home today and when I answered the door the parcel was on my doormat!)
8. This means that Amazon lied to me yet again and did it twice. First stated they knocked on my door and then contradicting their own statement by then putting it in my letterbox the next day! (Monday, today)

SECTION D

1. We are all human
2. Anger is a natural human emotion and no one, and I mean NO ONE, is immune to it
3. It is a crime against humanity how the NHS have twisted facts and prepared to destroy lives to protect their inhumane actions to protect vastly over the top salaries along the lines of fat cats
4. Anger does not nor is it eual to ... Mental Health Conditions
5. Trying to state that a patient that knows the truth is having hallucinations is in my book eligible for being burned at the stake at worst and NEVER being allowed the totle of DOCTOR ever again
6. I have far better excuse and not to mention a bona fide reason for the fact that my temper can fray, and still I will not hit anyone, despite how they fully desreve the broken jaws, and I have no doubt they will start coming before long

For someone with Fibromylagia, and I do not know if this needs to be a certain level of Fibromyalgia or with certain conditions of FMS I do not know, but this sequence of events is very bad, very, VERY BAD!!

Think lighting up the touchpaper on a big fireworks rocket and then running like buggery?! Yup you get the idea and there are plenty of evidence to this within the posts of this blog.

Now here is the eye opener here. Now who was it that actually set of this sequence of events? Go back among my points and where I state I am confident and I am happy and there is a point when EVERYTHING changes.

I will give you a clue its the one that has managed to dodge paying out money for thirteen years to help me and in so doing has helped two other organisations from helping me.

I was happy both pre and post the Guy's Hospital appointment. But that all changed when I received the one A4 paged letter stating on two thirds of it my medical history that they had no access to and then being vague about Fibromyalgia when on the day he was anything but and failed to mention the test oin my right knee that had me yelp in pain!

You know all the stuff on that other secretly recorded Guy's Hospital Appointment I did wherbey the NHS was hoping that my Fibromyalgia would have caused me to forget about doing it or I thought that a hsopital of that repute would not do this kind of thing and that riling me up a few times I would break the jaw of someone they put up as a target just so they can label me and get out of paying.

Paying? Oh yes, PAYING! Paying out a large sum of money and they know this. This was never about expensive drugs, oh no. If you go that extre mile over and over it is an act of self preservation of the highest order and you do not do this over a few boxes of drugs when the patient is going to go private in a matter of months because of the success of his blog!

I have absolutely no doubt that since I made those outbursts, oh and they were genuine outbursts, it all is despite how cranky I might sound at times from lack of refreshing sleep, the fat evil cats within the NHS have been busily putting together a report to state I am not of sound mind, total psychopath of whatever else they think they could fabricate from what I just did. But like your Doc statedd at Guy's Hospital 'you have obviously had it for a long time as you have managed to work out a regime that we would encurage you to do'. OOPS!

My symptoms are also well documented on here as all all the horrors, do not underestimate this or believe people that want their to be a thousand times worse as they are not. A great many have been to the dark places I have been and never come back from it. Somehow I did and I realise it was the NHS that fecking sent me there in the first place. Then followed by all the other fat lazy twats on public services coming along and putting the boot in to send me further into the darkness.

It did not work and I came back and I assure you that you need to immediately stop any plans you may have, because I spent over 18 months preparing for any attacks you might make, well I spent years preparing, that you will find no way through.

Also despite the fact I have had no responses from anyone, no doubt in the hope that I woulod go mad and start screaming obsceneities at them, yeah thats not gonna work! In fact everyone kept asking me if I had heard anything and even asked if I had an offer of money yet and I said 'oh no! There will be a long pause of silence. I hope it goes on for several months because the longer it goes on the more guilty each of them look on my blog! That is the beauty of it they failed to realise that I post everything and (lol mostly) immediately so so that if I was to get a response from any one of them I would post it. The fact that I do not … well I post about that too! BUT in this instance there is not one but several concurrent groups that have gone quiet. The plan was that they would go quiet trying to cook up excuses or labels or both, so bust with this endeavour that they would fail to realise that they were indeed becoming more guilty looking by the week and eventually the day, especially when they have had more than enough time, several weeks like, to find out something and I start emailing them and they fail to respond several times. AT this point the guilt keeps on building because the readers are fully aware that they now are aware of the blog. Sothe smarter readers will think its safe to assume that they do not want to reply as I would post it on the blog. What does this do with each of them that I am in contact with? It shows that they are corrupt as they have something to hide. Yeah, saying you have nothing to hide does not mean that you do! I am afraid that a court of law would want a WEEEE bit more than your say so! LOL!

So for the sake of sounding like a family of famous singers ... How deep is your hole? Have a good look at the hole that is daylight, do you think it time to come up before it is too late? Or perhaps your insistence on digging means you realise it is way beyond too late?

That my dear readers is Fibromyalgia 101 or NHS Manipulation 101 depending on who you are and your viewpoint?

(BOWS GRACEFULLY)

I THANK YOU!